13-01-2019 09:22 PM
13-01-2019 07:58 PM
Well done on your training Michelle. I’m going to sign up for the 12 week active programme available here... I need a kick start, esp after my fall. I’m travelling to India...I’ve been many times. I’ll be taking plenty of deet with me this time.
Kip ... those worry gremlins have a lot to answer for. Definitely phone your onc to put your mind at rest. My feet and knees have been acting up lately ... I put it down to age and letrozole. I’m guessing you still have the after affects of chemo plus youre on ‘the tablet’ now. Are you still using the Epsom salts ?
Clare ... hugs xx
13-01-2019 06:58 PM
13-01-2019 04:10 PM
13-01-2019 03:58 PM
13-01-2019 10:33 AM - edited 13-01-2019 10:34 AM
Clare forgot to say no other ideas yet re a holiday in sun. A friend is in Hurghada atm as its easy to get there from here as we can fly from Bristol. Hurghada isn't that nice but hot in Feb.
Not sure if you saw my FB message on the post re dense breasts but anyway hope all goes well tomorrow! Everywhere else is expensive atm although it's only money! xxx
Ps Christine Rim had a diep at the Marsden.
13-01-2019 12:31 AM
Kip ... forgot to say that I sent off for 2 Asda bras and 2 Nicola Jane ... sent the NJ ones back and kept Asda ones. NJ bras didn’t have cotton pockets, which I prefer, but I didn’t like the style/material of one of them. Sizing was ok. I’d much prefer to see them in a shop esp at the price. I’ll probably try Amoena next. Hope you’re doing ok. Im going to try hooping again next week 😊
Michelle ... hope your training is going well.
12-01-2019 09:19 AM
Hello clare,. Oh what a shame for your daughter, hopefully she'll get to Wales and perhaps get given some special responsibilities on the activities which will help her feel involved. I hadnt realised your op was Monday either, that came round quickky didnt it. Your poor OH will feel torn between being there for you and yiur little girl but good your mum can be there for you. Ill be thinking of you and looking forward to hearung its all done. Hope you get a restful weekend.
12-01-2019 12:13 AM
Aw Clare you daughters disappointment must have been immense but hopefully things will turn out ok for her. Children heal well and bounce back quickly. The school sounds so good.
My goodness it’s your op Monday... I had the 16th in my mind. You’ve certainly had plenty of distraction although not what you would really have wanted. It’s good your mam is around and will be there on the Tuesday for you. Monday will feel like a long day for them all. I’ll certainly be thinking about you on Monday and look forward to hearing you are through it and recovering well.... and planning your shindig 💃🕺
sending love, hugs and positive vibes
11-01-2019 11:12 PM
Glad to have you back online Jean. Do take care- moving heavy furniture? Definitely sounds like you’ve over done things, Hope the exercises are helping.
Unfortunately the hospital rang my OH out of the blue this afternoon, A bone specialist decided to review my daughter’s x-ray images taken on Wednesday and he believes she has two ‘small and subtle’ fractures on her third and fourth metatarsals - (the long bones in the foot). No wonder she’s been in agony and can’t put any weight on it at all. She’ll be on crutches for a while. She’s so upset as it’s the school disco on Thursday and the following week her year are off on their long awaited week long residential to a farm in Wales. She’s literally been looking forward to it for two years!! We’ll let her go if the school and consultant say it’s safe for her to do so but she’s been in floods of tears tonight as she was looking forward to the hike by the sea activity more than anything else. Her teacher and the school office manager who are both accompanying the class have been so lovely and have been reassuring her they’ll let her join in with as many of the activities as she can and will find special things for her to do if it’s not possible, Hopefully she’ll be on the mend by then. She will be reviewed in the fracture clinic next Tuesday. Aaaghhh! My OH was supposed to be coming to the Marsden that day to see me and get an update. He can come with me to the theatre doors at 8.30am on Monday (14th) but there’s not much point hanging around as I’ll be in theatre till at least 6.30pm. I’ll then be in critical care so they advised him it would probably be better if he waited till the next day to see me. He’ll now be with our daughter in another hospital in the opposite direction! Thankfully my Mum is around so will come instead.
Im exhausted so off to bed, At least all this drama is taking my mind off worrying about my surgery!!
Take Care everyone.
ps I’m definitely going to need a party after all this!!
11-01-2019 05:58 PM
Hi all ... just got the internet back on. It had gone walkabout with the phone line from Tuesday...openreach just got round to fixing the problem. Just having a quick read through posts.
Kip ... exercises sound good...pleased you’re doing ok on Tamoxifen although you still have your aches and pains. Not too long until your appointment and get your arm looked at. Great your friend is pleased with her diep. Research says that women who have delayed recon appreciate it a bit more (!?). You’ll have a fab time in York. Keep on hooping and resisting the biscuits...if you can. I’ve nearly finished the Stollen thank goodness.
Michelle ... the moving forward course is worth doing.. you’ll get something from it I’m sure although I realise it’s not for everyone. Six of us still meet up at least once a month.. coffee/lunch/natter.... it’s good support and we know what bc diagnosis is like plus going through treatment. I don’t know about telling people about bc but everyone in the cafe yesterday would known all about it 😂 I’ve seen the Bosh book but not delved into it. I’m definitely doing lists ... on a daily basis...keeps me focussed and it’s good to plan, even just the shopping.
Clare ... hope your daughter is improving and pain is controlled. You’ve certainly got something to plan (once recovered) and to look forward to in August ... what a lovely thought and gesture.
Afternoon tea ... mmmm.... very nice. Not long to go ... op Wednesday I think !!?? Time is flying but it will be good to see you through it and recovering.
Im doing ok... much better mood than last week. Ribs much improved....twangs a bit when lying flat ... and I really should refrain from moving heavy furniture around. Keep getting a burning sensation in my hand... think it’s carpal tunnel syndrome. It’s a side effect of letrozole plus I already have mild nerve compression in that wrist from nerve conduction studies. I’m doing dedicated exercises as I don’t want it to progress. I had severe carpal tunnel syndrome in my other wrist which needed surgery...instant relief though. I think I set it off this time by over stretching my arm when doing cording massage..unless it’s a coincidence. OH off to see family later this month and I’m going over next month ... my first long haul flight for nearly one and a half years.
Have a good night
11-01-2019 09:10 AM
Hi, I want a party too... look what you've started Clare We all deserve a party I think... Michelle.. a summer party sounds fab.. probably be in my garden too but something to think about.
Your poor little one Clare, makes my aches and pains fade into the distance just thinking about it. No doubt she'll get lots of attention at school and make her feel special, I remember always wanting a go on crutches when I was little.. am sure I wouldn't once I had them though. I always wanted to have a plastercast too... crazy child.
Had another restless night with the achy joints... tried to explain exactly how they feel to my OH this morning but he couldn't understand, its difficult to explain. He did say that he wishes he could experience it for 10 minutes to fully understand... only 10 minutes mind!! I think I need to sleep standing up as its so much better then... not sure that would work though
11-01-2019 08:42 AM
10-01-2019 09:39 PM
10-01-2019 03:27 PM
CDC - just wanted to tell you, just had a message from my friend, she had her tummy DIEP procedure yesterday and is sooo happy with the results already.... feeling bit tired and woozy from morphine and a little bit sore but otherwise she's fine and so happy to have a flat tummy and 2 boobies again!
10-01-2019 09:22 AM
Oh dear Clare, your poor girl, hope she's feeling ok today and not in too much pain. Your party celebration sounds like a fabulous idea. My OH and I have been invited to a wedding in York in February so decided to take up the offer and go for a couple of days (just the two of us), so found us a nice hotel and really looking forward to just spending some time away from everything.
Going back to Michelle's post about what to say to people... I just bumped into a lady in our village, she's very nice etc but always comes up with a sheepish look and says "well how are you....is everything (long pause)...ok? So I always say "oh yes everything fine" and then she goes merrily on her way.. when I really want to say "yes I feel ok, I ache from head to toe, have hot sweats that wake me up everynight and spend the good part of the day wondering will it come back" but you don't say those things do you... you just smile, and let them go on their way. Perhaps next time I will say it... just for the look on her face! She also always says "love your hair bet your pleased its grown now"... also want to say "no not really much preferred being a mousy blonde with locks passed my shoulders instead of a grey Philip Schofield lookalike" but I don't. Bless em!!!
Enough of my moaning.... its day 4 of my healthy eating plan and going ok, did some more hula hooping this morning, didn't help with the hot flush I had at the same time but hey ho. Determined to shed some of this blubber and feel a bit fitter ready for the summer.. oh and have to squeeze into something suitable for a wedding in Feb... eek!!
09-01-2019 11:19 PM
09-01-2019 09:54 PM
09-01-2019 02:36 PM