12-12-2018 09:37 AM
Well no further forward with the arm issues. Asked at radio yesterday and the lady I saw was very short with me (I could see in her face she was thinking "why would we be looking at it for you") and she said they were too busy to look and that I should just gently massage it and if it doesn't improve self refer to physio. No luck there then! I don't know what type of massage and how hard etc to be doing, and whether its cording or not. So this morning I called my BCN again, she was off but spoken to another who has said I may get an appointment quicker via the physio department rather than the breast clinic so have to call them in a minute to see what they say... more chasing but I really want sometone to take a look.
Michelle interesting you said your arm aches, I've been messaging someone who has just finished (well about 2 weeks ago) and she said her arm aches and she couldn't work out why either. I still ache all over so another arm won't make much difference to me.
CDC - Sounds like your counsellor is doing you the world of good, deffinately think thats on the cards for me after xmas. Its my daughters birthday today and I so wished I could give her the ultimate present, i.e.. the old me back... bless her.
Anyway ladies, Rads No. 10 today so 5 more to go... so far so good, no soreness as yet.
11-12-2018 10:42 PM
11-12-2018 12:37 PM
I've read through some of the threads on here and I think we may have had treatment at the same Cancer hospital. I was just wondering have you contacted them again regarding Counselling etc? I only contacted them a couple of weeks ago as I heard other ladies were having advice/help from there. I spoke to some lovely people there and they are arranging one to one Couselling and other things for me. I was just wondering if it would help at all. I took it upon myself to ring them rather than being referred by a professional.
11-12-2018 11:27 AM
11-12-2018 09:41 AM
Oh dear Feenix, sounds so painful. I have finally spoken to my BC nurse today about my possible cording and seroma which seems to be getting bigger again. My arm is definately twanging all the way down to my wrist when I reach out, may need physio she thinks or some more instruction on how to twang the cording away! Got to ask the radiotherapist today to take a look and then see whether I need to see the breast clinic, the lymphodeoma clinic or the physio.. or possible all 3.. more appointments.. grrrr.
Hope the mini mince pies were good!
11-12-2018 08:14 AM
10-12-2018 08:52 PM
If only there was a biscuit to be had Kip. Might have a mini mince pie instead. Ended up in A&E this evening to be checked over as had horrendous pain. As bruised ribs and rib fracture are treated the same I didn’t need an X-ray... no heavy lifting but I don’t do that anyway. Will have to take it easy as my side/chest doesn’t half twang when I move certain ways. Trying not to shallow breath as don’t want to develop chest infection. Takes up to 4 weeks to settle. I’d just started to do hooping as well. OH is still traumatised... bless him.
10-12-2018 02:30 PM
Kip ... I booked on through BCC direct as my Bcn was off sick at that time. Bcn will book you on I’m sure.
Well.... I took a dive out of the car this morning. My foot caught on bag strap and out I flew. Landed badly on my ‘bad’ side... scrape on hand, face and knee but really clattered my ribs/ chest area where had mastectomy although don’t think I’ve broken anything. (OH had a look and did exam) . Really sore but can do exercises. Put myself on anti inflammatories and have cleaned and dressed wounds.... fingers crossed. Really tearful after as first thing I thought about was lymphoedema, just because I’ve heard of it developing after injury to arm although there are those that have had ops on arm and have been ok. So I tell myself that I’ll be ok and as OH tells me it’s mainly to do with infection. I’ll be using a tube of salon over next few days !!!
Gave OH a real fright ...and the woman who thought he’d run me over 😂 Hoping for no more mishaps.
10-12-2018 10:40 AM
Morning all, thanks for the lovely comments.
CDC - when my daughter said she wanted her old mum back I could have just wept and wept. Like you said, that old Mum is gone, but not necessarily for the worse. Its just so hard explaining everything to her and remainign positive when all I am thinking is what if! My children are coming to my last Radiotherapy so that they can ring the bell with me and I'm hoping they will feel some relief from that. I think I always feel worse when I am physically going to the hopsital. It just brings it all home and when I am going every day and sitting in that waiting area looking around me.. its just so surreal. I am going to see if I can find out about the Moving On Course today whilst there, so I can get that booked.
10-12-2018 09:01 AM
What an emotional time you are having, but seems par for the course and especially now Christmas is pending.
Kip ... your daughter saying what her Christmas wish is ... so heart wrenching. I hope you are have a good day and rads go ok + no traffic probs 🚗. Just thought ... put a positive mantra on your fridge....I used to do that and probably should do so again. Good you’ve got your tree up.... mine is a foot high, one my mam had ... takes no time at all 😂 Can’t believe Christmas has come round so quick. Tbh honest my favourite day is December 21st, the winter solstice, because I know that once that’s over the nights will be getting gradually longer and spring will be on its way. I should have been a Druid 😂. I’ve now got 2 bras from Asda which are ok. I’m still deciding about which one I’ll order from NJ but really got to decide today. Info .... If you sign up for sale alerts etc with Nicola Jane you’ll get discount off your first order.
Michelle .. hope you have positive contact with the Someone like Me service today and you get input from the psychology team to help you with coping strategies. It’s good you have spoken with your OH about how you are feeling although I know what you mean about not wanting to offload on him. I tend to refrain from saying how I feel when I’m have wobble thoughts even though OH has told me he’d prefer me to... he can probably tell by behaviour/mood changes anyway !!!! I do however mention it “in conversation” after I’ve got my head round it. I don’t have very frequent active wobble thoughts but they are probably there subconsciously just waiting for a chance to pounce. (You can tell I was watching Dynasties last night ... tigers 🐅). It really is good you are planning though and have booked a holiday. Russia will be good. Are you getting out running?
Clare ... pleased you are enjoying prep for Christmas. Dedicated No screen time is a really good strategy for more interactive family time. The Someone like me service will certainly have contacts for you regarding your surgical options and there will be many threads on here. I remember I had a time of very low mood after I started Letrozole but it was the time when I was struggling with the question of recon although it did get better pre op ... might have been a combination of both as I was definitely soooo less stressed after my mastectomy.
As you know I didn’t need chemo but I did get my hair cut short before my first op ‘just in case’, plus it would be easier to manage post op. I’ve kept it short ever since and it’s so much better. I started using lush shampoo bars but yesterday thought I’d use simple shampoo that needs using up but it made my scalp really flaky and itchy. I think I’ll look for some tea tree or aloe Vera shampoo from health shop. Any recommendations?
The apple trees got their cut too... well pollarded.
Got to find the lights to put up today and I may get out into the garden and make that Christmas wreath. Forgot ... need to post overseas cards and get the rest done.
09-12-2018 10:55 PM
09-12-2018 08:48 PM
I agree Michelle, time will be the key. I have 3 friends who have been through this and they all said as time goes on it gets easier.
Ive found the tamoxifen ok, just hot flushes, although i have achey jojntj and muscles which could be the tamoxifen or chemo SEs... Otherwise so far its fine.
09-12-2018 06:57 PM
09-12-2018 09:27 AM
Hi Michelle, wow what you've written could be me! I am feeling the same. We got a xmas tree yesterday and had a lovely time decorating with the children but all the time at the back of my head is "what if im not here to see this next year" .im too scared to look too far forward to and want to book a holiday but feel scared to tempt fate! Ive been feeling really positive lately but today could cry. My daughter told me the only thing she wants for xmas is me not to have cancer and be her old mum again!! Breaks my heart and i try to brave it out for her but inside ☹️. Must try positive thinking again... Hope you are ok today?
Cdc when your consultant said the 1st year is the hardest he wasn't wrong!!
08-12-2018 01:57 PM
07-12-2018 09:31 PM - edited 07-12-2018 09:33 PM
Hi Michelle How are you doing today? The Becca app looks interesting, I saw the medical onc registrar today, She said that the first year after finishing treatment for BC is known to be especially hard. I will be able to have open access to follow up appointments. She told me I should just ring if I have any concerns including low mood and said that they offer counselling, Does your hospital offer something similar?
Thanks for all the offers for donor tissue for my DIEP or TUG but I think I already have plenty of my own. Sorry!
I’ve put on a stone after changing from AC to the T part of chemo. Haven’t been this heavy for a while! The onc said not to worry at the moment but just keep trying to walk as much as I can when I’m up to it. She did also say that I really am not long out of chemo so bound to still be having problems with side effects.
My hair is growing back quickly! I think I’ll keep mine short from now on anyway. I’ve been told it suits me by various people. Hope you like your new crop Jean. Did you manage to get the trees pollarded?
Kip I had to have some blood tests taken next to the chemo suite at the Marsden and, like you, I just felt so relieved not to be heading in for a cycle. So glad that part of treatment is over!
Have a good weekend everyone,
07-12-2018 08:11 AM
06-12-2018 05:59 PM
Michelle ... hope today has been a bit better for you.
Kip ... I’ve fallen off the hoop 😂... must get back on. I too could make donations aplenty to Clare. I’ve got the Becca app but haven’t used it much.... only had a look to see what was on it. Not done much walking today... hopefully tomorrow as I’ve got to go over to GP to get bloods done, then back out later to get hair cropped. Apple trees finally getting pollarded tomorrow ... hope it’s not too windy & the guys have to cancel.... doubt it 🤔