23-10-2018 09:48 PM
Michelle .. quarter of a way through is great ... your game to relieve the boredom is good memory training 🤔
Kip ... hope you have a good night...
Clare ... keep eating the biscuits.. be prepared 😊 It’s not helpful when the Marsden surgeon was giving conflicting info but if he would want his female relative to have bilateral mx that’s very telling. Goodness knows which country he was thinking of but he should have been giving you advice based on treatment guidelines based in the uk, your circumstances now and your family history..surely?. Ultimately it’s your decision. You have time to deliberate on your surgical treatment and get some insight from your original surgeon. Your numb toes sound quite debilitating. How’s your cousin and brother ... have they had their results? It’s good that your sisters are going to be seen at the high risk clinics and be checked out. Hope your sisters mri will be ok. You’ve got such a lot going on, to think about.
Hope you had a good dinner and a biscuit or 5.
After a marathon fence painting afternoon yesterday, and feeling extremely tired last night I felt really good this morning... thought I would be hobbling. I’ve got a foob fitting tomorrow. I was hoping to be like a spelk by now.. obviously not after the amount of biscuits I’ve had. I need salad. My bcn emailed me yesterday...she’s been off sick for 5weeks so that’s why I’ve not heard back from her.
23-10-2018 08:39 PM
23-10-2018 06:44 PM
23-10-2018 05:10 PM
Great news Kip. It makes such a difference being first on list. Hope you are comfy and drain not too much of a nuisance. Positive vibes coming your way xx
Michelle .. hope rads going ok.
23-10-2018 03:23 PM
We are back.... Yippee.
Well I'm home and already had cake! Op went well and was first on list... In theatre at 9 and baxk jn recovery at 10.30. And home by 2.30 so very happy. Surgeon was nice he did level 2 clearance and said it shouldnt make too much difference to next treatment as chemo should have done its stuff so will trh to think positively.
Thanks for all your kind wishes it makes all the difference.
23-10-2018 08:38 AM
Kip ... your OH is right, at least we have found our nastie and it’s being dealt with giving us many many years at the biscuit tin 😀
Hope you haven’t long to wait before getting down to theatre.
Clare ... how are you today?
Michelle... hope rads are going ok
Sally ... hope you’re enjoying your break
22-10-2018 10:56 AM - edited 22-10-2018 10:58 AM
Feenix, yes you are right I think ,sometimes too much information can blow your mind, I've not asked or been given any prediction as to outcome, not sure I can handle that either. But actually you reminded me that at my last appointment with my surgeon when we discussed me not having rads to my armpit area (they are only doing breast wall and collar bone, she said that way I can keep Rads to the axillary area as a back up for the future if needed, so you are right, you have some weapons in your artillery should you ever need them, fingers crossed we never need them but they are there. As my OH tried to tell me this monring, we should, in a way, be grateful that we are the ones being monitored for any other nasties, the rest of the people out there could be carrying something they haven't found yet... I guess he's right.. still scary though.
I am 8/8 oestrogen positive too, so should avoid that biscuit tin...but its soo hard isn't it. Just found a bag of haribos....now eating those.. oh dear! Oh well can't eat after midnight to night.. so better stock up now.
22-10-2018 10:42 AM
Been thinking how you were doing as op tomorrow. Just caught up with your chemo thread and you’ve had good info from your bcn which seems logical and very reassuring. Definitely miraculous that you got her straight away. Stress and the what ifs, wondering, definitely affect sleep. Just part of trying to cope with everything and a reminder of your first op and waiting for results.
I was never given a stage, only grade, and only looked in the bcc booklet to see what I would be but I’ve not looked into that since. I’ve never had percentages re survival either, and I’ve never asked although I did do the old predict in the beginning as wasn’t impressed with my Nottingham score on my first histology report.... that’s old hat these days so I discounted it. I think that in depth information isn’t helpful in some instances as it can have a negative affect. Statistics etc are more for the MDT who have to decide what is the best treatment/s to give. I sometimes wonder at ‘just’ having surgery. I did have a micromet of miniscule proportions but that’s classed as negative but it does creep into my mind that my axilla didn’t even warrant a quick zap. I comfort myself with the thought if anything crops up in that area I can have surgery and rads ... and that the other 3 nodes and intermammary gland were negative (2 extra looked at after mx). If anything has gone walkabout just hope letrozole does a good job. I have to laugh at what I find a comfort these days. As I’m 8/8 oestrogen positive I need to reduce my body fat ... the biscuits really should go but have had a couple already but should burn the calories off as I’m fence painting this morning.
Ill be thinking of you ... hopefully they won’t have you hanging around too long pre op tomorrow.
Clare ... hope you’ve got your feet up. How’s the fatigue?
Michelle ... have you had a break from rads over the weekend?
22-10-2018 09:46 AM
Morning Feenix, Michelle and the gang...
Hope you all had a good weekend? I have been getting very stressed about the surgery tomorrow but have just had a nice chat with the BCN who has answered some questions for me and put my mind at rest on some issues, so trying to calm myself down. Didn't sleep well last night and guessing I'll have little tonight, have to be at hospital for 7.30 so a very early start too. Just want to get it done and home again. Unfortuantely she did say I'll have a drain again... thought I had seen the last of those blighters, but hey ho, it wasn't too bad I guess just a pain having to carry that lovely floral bag around with me.. so here we go again!
Might just have to have more biscuits to see me through!
19-10-2018 02:33 PM
19-10-2018 11:57 AM
Hi Feenix, not sure how the menopause will pan out, can't work out if the hot flushes are chemo induced or hormones or both.. its a guessing game alright.
I am just about to hit the biscuit tin... those digestives keep calling to me. Also have a large bar of chocolate which is just begging to be eaten.. oh when will I be able to stop.. you are right carrots and cucumber...blurghghg!
19-10-2018 10:43 AM
Love that you name the parts giving you gyp... how long do those se’s last or is that a daft question, like asking how long is a piece of string.
Kip ... sounds right saying your lad is coping his own way with his own support mechanisms kicking in...pleased you’re ‘sorted’. You’d certainly shock his mates with your drain.
It sounds like menopausal symptoms are a big negative. Will they be worse because the menopause is induced? I didn’t have a bad time with the menopause, in fact I had more problems when I was thyrotoxic.
Back is ok just now and then I have a twinge... probably got osteoarthritis... aging 😂
Clare ... hope you’re getting your feet up after your hectic week re daughters birthday celebrations. Sometimes a slice of fresh toast hits the spot. I’ve just eaten the last two 🍪 🍪 biscuits. I’m now trying to think of something else to eat instead...carrots and cucumber don’t have the same appeal however I must do something about my spare tyre !!!
Hope P goes ok today ... another crossed off ... 3rd of the way through
Michelle ... 2 down after today...and counting.
19-10-2018 09:52 AM
So Numble and TIngle it is! Tingle doesn't get cold but the flippin pins and needles are annoying. Im still aching a lot too, hoping that goes off soon otherwise I will be doubly stiff after the op on Tuesday. I think you are right that my son just tries to do normal things to keep the BC stuff out of his head, he is very apologetic about upsetting me yesterday and for losing his ticket! I did give myself a stiff talking to and thought about how it must be for them to go through this too, they do need their friends and we have sorted everything out now. At the end of the day, it doesn't matter too much in the scheme of things... if his friends annoy me I will show them my drain... that will shock them!
18-10-2018 10:03 PM
18-10-2018 07:37 PM
Kip ... 😂 .. biscuits rule ok 👍
Michelle ... my tiredness only lasts an hour or two ... tbh it’s probably exacerbated by age 😂 You're right about stress; and the affects of that may last longer than we think ... probably creeps up when we least expect it. I’ve had a bit of a twang in my back and of course one always has a moment of wondering about secondaries. Perhaps it’s been playing on my mind more than I think it has. I do try to knock such thoughts on the head...with a big hammer 🔨
Ive got my confirmation about the Moving On course 👍
So pleased you’ve got your first rad out of the way ... fingers crossed it’s quicker tomorrow. Enjoy your choir
18-10-2018 07:07 PM