06-09-2018 11:46 AM
Hi Feenix, funny you should mention the hula hoop I was looking at mine today and thinking I need to get back to it, I haven't done any for a few weeks, but feel I should.... I'll be back at 5 minutes too I reckon but the waistline is crying out for some help!
06-09-2018 10:27 AM
Lincoln tomorrow... workmen today.
Kip... pleased to see you doing better after cycle 2.
There have been lots of mentions about Rachael Bland. I remember reading some of her story when I was first diagnosed and I have looked at some of her vlogs/blogs and listened to some of the five live pod casts yesterday... they mentioned about communities, such as this one, which give so much support, where we can all relate to each other. She said it how it was, and seemed to make the most of her time, working, holidays, family time and raising awareness with the other ladies on the radio show (which I will catch up with). The sad stories are the ones in the news, especially when they are working in media, are well known, but there are many more good news stories that don’t get a mention.
Hope you’re managing to work.
Ive picked up the hula hoop again .... just doing a minute or two... will I ever get to 5 minutes never mind 15 😩 😂
05-09-2018 02:50 PM
Enjoy your day resting Michelle... remember, steady away. I’m not doing too badly with my list of things/jobs to do... no pressure though. This time with OH being away I’m in a much better place mentally and of course Im doing lists, planning things and catching up with series on tv. I’m off to Lincoln tomorrow, on the train, and of course I’ve got my shopping list !! York is a great place and I’m hoping to meet friends there soon. It’s good to plan ahead, have something to look forward to. I’m starting to think about a few short trips to have.. maybe south of France, Netherlands, Portugal and of course over here.
Theres no sunshine here... cloudy. Hope it’s shining bright where you are.
05-09-2018 02:37 PM
Your GP sounds great... very helpful. I do hope you get sorted before next week.
I had a rash after first op to the orange chlorprep. I had iodine after that and was ok. When I had my dressings changed they used Hydrex Pink which has less % of chlorhexadine in.
I’ve been told I will have mammograms which I know didn’t show the idc, which was very small, or the dcis. MRI didn’t show dcis but did pick up idc as they are solid. USS showed idc, or rather there was ‘something there’. I don’t know whether I can request an uss alongside a mammogram, or what would be the best. I only had an MRI because I thought I’d had some dimpling which would have indicated the invasive cancer was bigger... it wasn’t. Normal follow up screening is mammogram. I’ll have to get OH to look into the research side of things first. Anyway, that’s why we are always told to be vigilant as nothing is 100%.
You need a dermatology referral and have allergy testing. I had that done some years ago... they used my back for everything they wanted to test me for. I had an allergic reaction, with swelling, probably due to long term handling of IV antibiotics at work... one time too many set it off.
From your histology report it would appear your high grade dcis would indicate a mx. The problem with dcis you never know what it will do in the future plus I was told it’s unknown as to the effect rads have on it.
Massage with oil or moisturiser helps scars mature, softens them, so I know that works. I’m massaging all the area to try and smooth it out... must be my fat 😂 Everybody’s wounds/scars are different.
One good thing about diagnosis was I lost weight although tbh I’d already started on a healthy eating plan before. After last surgery I ate what I wanted over a couple of weeks and I put weight on but now I’m back onto sensible eating.... but I really need to increase my exercise as I’m still overweight. I need at least a stone off... I’d better do some more outdoor stuff... garden bin day tomorrow.
05-09-2018 11:25 AM
05-09-2018 10:49 AM
04-09-2018 08:28 PM
Happy Birthday to your daughter... hope she’s had a great day.
I found after my first op, wle and snb, it took me a few weeks to feel ok.. probably effects of anaesthetic and allergy to skin prep... felt rubbish the first week. The next 2 ops have been much better recovery wise. You’re recovering from the anaesthetic but you also have the effects of chemo which may be the primary reason after 3 weeks. You’re doing well though.
Enjoy your chill out day tomorrow
04-09-2018 07:14 PM
04-09-2018 12:56 PM
Kip ... pleased to see you are doing ok..and working.
cdc...Clare... get everything down you want to say... it’ll help you focus. You can request a refferal to a different onc.
My great achievement this morning is getting the ironing done... was sick of looking at it 👀
03-09-2018 08:29 PM
Pleased you got through chemo Kip.. and quick .. hope you’ve got plenty of meds to try and keep se’s@ bay. I’m not that organised ... I find it easy to write a list ... it’s getting through it that’s the prob. The ironing is still waiting to be done but I did get quite a few things done today. Tomorrow’s list is done... will the ironing still be hanging around I wonder 😂
hope you have a good night
03-09-2018 03:52 PM
03-09-2018 01:42 PM
I’ve got a list of things to focus on Kip... out of the 9 on today’s I’ve got two crossed off. One of those was the dexa scan and the other a phone call...nothing strenuous, yet 😂I just feel it gives a bit of structure to the days especially with OH being away. Plus I don’t forget things. And I don’t just sit around all day. I aim to watch a series, Mama, on All4 catch-up ... its Israeli and apparently has a uniboober in it.
I hope today is going ok and you get some respite from the se’s.
02-09-2018 05:26 PM
Hi Michelle... Actually my scar isn’t too bad now I’ve got the tape off and am oiling and massaging. I think the tape didn’t help. It’ll take some time to settle down as all scars do. I just have to be patient as Kip says. OH is seeing family... I’m under strict orders not to go out on bike while he’s away. He’s imagining I’ll be ending up in hedges and all sorts !!! I’ve not got a new bike yet. The old one has had the seat tightened and it’s a lot better. I gave OH the ok to be away for a descent spell so he’s not back til beginning of next month. He’s got jobs to finish off over there. We’ll go together next time. I’m enjoying pottering...got lists of jobs to do here, I’m also reading, catching up with recordings/iPlayer etc. And will also have a bit of retail therapy. I’m going to Lincoln this week and have other places in mind, like York perhaps. May get to meet up with friends ... they live where I originate from so they’re not nearby.
Things caught up with you on Saturday as they tend to do. It’s a bit of a release valve, which is good. Great you had a good day in London though. Stay positive... it’s the only way, although having a blip along the way is only natural.
02-09-2018 04:08 PM
02-09-2018 01:41 PM
02-09-2018 12:57 PM
Enjoy your birthday cake ... and other treats. Wise words from your OH... I always say I didn’t know my expiry date before bc and I still dont. Here’s to many decades of birthday celebrations though... got to be positive.
I know where you’re coming from regarding mammograms and future monitoring....
I am sorest in the area beneath the old snb scar where I have more fat left... mx scar meets up with the snb scar. I’m massaging now so hopefully it will settle. I’ll have to lose more weight to get rid of the fat bulge...it’s still sore there. Looks like side bulge of boob .......but without the boob 😂 You’re right.. I need more patience. Time will make the difference ... and massage.
I would think they’ll go into your old scar for ANC.
Enjoy the rest of your birthday.
I hope T treats you kindly this time... got everything crossed