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Re: Surgery May 2018

Glad the hospital are being a bit more flexible Michelle. Fingers crossed for your daughter! I’m feeling brighter today after a good nights sleep. As well as hunkering down I need to try and remind myself that I only feel truly horrendous for just over a week or so and that hopefully there will be at least one good week each cycle, I’m hoping that I will be able to see the end of the tunnel once I’m half way through and I’ve finished with all the AC. Really appreciate everyone’s support.

Take care and hugs xxx
Kip
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Re: Surgery May 2018

I'll be ready to hunker down then Michelle.. hoping to work though so fingers crossed?

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Re: Surgery May 2018

Thanks all for your kind words. I feel a bit better about things today, I managed to get my admittance time pushed back to 9am so hopefully she will get the required results and be happy and I willl go off without worry. I have been told I’ll be in overnight but like you say I can text from my bed!
Jean, good to hear you are getting out and making plans. I think it is good to try and look to the future however difficult that may be sometimes. Also perhaps with a bit of living ‘normally’ the answer to what you want re recon might become more obvious to you.
CDC/Kip My steroid low was 4-5 days after finishing them, just when you thought it was safe! I think hunker down is a good description, that’s certainly what I did for the last 2 cycles. I know heading towards the halfway mark seems a long way to go but it will pass. You can both do this xx


Kip
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Re: Surgery May 2018

Hi feenix glad to hear you are up and about, does you good to go out for a stroll I find. I have a lovely vintage style bike and I enjoy biking although haven't done much lately, that's a lovely thing to do and get a new car, good to make plans.  

CDC my duff days are 3 days after steroids too, which is always a weekend for me which sucks!

We must all meet up after this roller coaster ends... Be fab to meet you all in person.

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Re: Surgery May 2018

Oh Michelle what a shame about the date for your surgery coinciding with A level results. I’m sure your daughter understands But I can see why it’s such an emotional time, Do you know how long you’ll need to stay in for? Hopefully you’ll be out and celebrating before you know it. Also wanted to say thank you for sharing your experience about diarising your SEs and how this helped you. I’ve now tried to work out the pattern with regards to coming off the steroids and I definitely feel most lousy 2 days after I’ve finished them, Maybe that’s the day I’ll just know to hunker down and accept I’ll feel grim for a while.
Love your description of the Grand in Brighton. Tired and worn-that’s me too at the moment! Will have to find a more fitting place to stay next time - hopefully ‘newly refurbished!!’ It would be wonderful to all meet up when all our treatments are over.

How are you doing post surgery Jean? I’ve been thinking of you xxx
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Re: Surgery May 2018

Kip is right Michelle... you’ll still be in touch with OH on your op day. Sending a hug.

Im not too bad Kip... bit up and down but better today. Doing exercises.. I’ve had plenty of practise !!  Waiting for results now .. hoping there’ll be nothing unexpected and I can get my head in gear (totally wiped out yoyoing about recon and final histology) ... after that get a bit fitter and reconsider what I want, or not !!! Planning to get myself a new bike and get pedalling... better get a bike hat too. Think the time is right to get another car after all that test driving we’ve done since diagnosis. Just been for walk along promenade and it’s quite warm tonight so expect you’ll be sweltering further south.

xx

Kip
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Re: Surgery May 2018

Michelle if it's any help on my day of surgery I was back from theatre in a couple of hours and home in 6 from moment of arrival al, but on the ward I was texting and chatting and walking around so you'll hopefully be able to at least direct your husband should he require help.

feenix how are you doing?

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Re: Surgery May 2018

Just got a date for surgery, 16th August. Which is A Level results day and my youngest daughter gets her results. I have to be in by 7.30am her results come through at 7.30-8am. I’m so upset. She worked so hard even with all of this going on. I’ve asked the secretary if I can go in a bit later but even that’s not ideal if she doesn’t get what she needs for her uni choice. I know my OH is more than capable of coping with clearing if need be, maybe it’s the control freak in me but I just wanted to be there. Sorry feeling very emotional x
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Re: Surgery May 2018

Hope you’re all having a decent day.

overcast here... bit cooler which is good.

Hope you manage a run Michelle 

I’ve been to Brighton years ago when OH worked in London... pebbly beach... nice place... probably much more busy now. I think we drove down for the day.

Clare ... how are you today ?

Kip ... hope you’re doing ok today

xx

 

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Re: Surgery May 2018

Thanks for your good wishes CDC, once you get to the halfway mark chemo does seem to do quicker. I know it is difficult with the steroids. I diarised my side effects through every cycle and each cycle was so similar I knew what was coming when. It made it easier even the low moments because I figured out it lasted 1-2 days. I still cried my way through those days but knew they would end.

Glad you had a good walk Kip, I’m sure that helps with SE’s, it seemed to help me.

Jean a 3 week wait must be frustrating but I will keep my fingers and toes crossed for you. You certainly were prepared having your hair cut short but it must be a nice feeling the thought of growing it again. Claiming back a piece of you. That’s how I feel about running again, although obviously I’ll have to stop again after surgery. My run on Saturday was along the seafront of Porthcawl, South Wales. There were lots of surfers out it was a good atmosphere I’m going try and run again this week and then do parkrun again on Saturday, but we’ll see as the tiredness is biting this week. I love Brighton too CDC, I took my mum there for her birthday this year. We stayed in The Grand but it wasn’t looking so grand, quite tired and worn, a bit like me at the moment!!

I would love to meet up when this is over, you’ve all been such a support xx
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Re: Surgery May 2018

Michelle , great you’ve done your run.... very emotional time. I’m hoping results will be back 3 weeks. Didn’t expect more out... if all well then I won’t be having more treatment and can then decide what I want to do. I’ve even started to let my hair grow ... I had it chopped off at the beginning and kept it short , just in case. I was more prepared for chemo than surgery !!!  At least I know my cancer recurrence is as low as it possibly can be at this moment in time.

 

Clare ... sorry you’ve been feeling down... hope that won’t last long ... getting the meds balance right must be really difficult. It’s good you know you’ll get better though and have something to look forward to with OH and daughter.

 

I do feel for you lasses going through chemo but nearly half way through 🤞 💪 💪 

This time next year will definitely be done and dusted.... we’ll all have to have a celebratory get together in the big smokey 😊 🍸 🍻 

 

Kip... you’re doing well with walk ... good destination. I was in overnight, BP a bit low, drain out next day. Easy recovery considering. Need to keep up with exercises.  I see Michelle had good advice about T 

 

I think it’s going to be cooler, soon 😊 

 

Ive not seen anything from Jazza or Bridget. Just know Jazza was waiting for results after her third op... hope all is well. 

 

hugs xx

 

 

Kip
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Re: Surgery May 2018

Hi yes I've not heard from Jazz's and Bridget for a while either?

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Re: Surgery May 2018

Michelle What great news that the tumours have shrunk so much that you won’t need a full mastectomy. I wish you well for your last chemo cycle and for your operations. Very impressed to hear about your Park run today especially as it’s the first one since it all started. Did you run along the sea front? Must make sure to try and get to the coast this Summer. I usually take my daughter for a day trip to Brighton each year so hopefully I’ll feel up to doing that at some point. It’s always a lot of fun.

So pleased to hear you’re out of surgery Jean. Sorry you’re having to wait for more results but I have everything crossed for you. Hope you enjoyed your seaside walk. I’ve been feeling rather down for the last couple of days but I think it’s because I haven’t quite got the balance right between the anti-nausea and steroid medication. At least I know that my chemo SEs won’t be so bad next week and the following week I should be back to ‘normal’ so I’m looking forward to a few nights away with my daughter and OH.

Kip I really know what you mean about wanting the chemo to be over. I’m getting so fed up with it now! Still, next cycle I’ll be half way through too. Hope the T part treats you kindly. Keep telling myself that this time next year all the treatments will hopefully be done and dusted and we’ll all have the best holidays ever!

Hugs and lots of love to everyone. Xx

PS I seem to have lost track of Jazza and Bridget.. Is anyone still in touch?
Kip
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Re: Surgery May 2018

Hi Feenix so glad you are doing well, did you get home on the same day?  I start T on 13th Aug so got one more week to go.   Just want the chemo over.  

Michelle well done on the park run, I walked 2 miles to pub and back last night and it was fab, no TV as marathon  but it's something.

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Re: Surgery May 2018

Jean so pleased to hear you are out and doing so well post op. How long until you hear back re your nodes? Will you have to have more out. It’s another lovely day a walk by the seaside will be lovely.

I’ve been by the sea myself this morning I did a parkrun, my first since all this started. I felt like me again, doing what I do, although not as well as before but I don’t care. I even shed a few tears whilst running it was quite emotional.
X
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Re: Surgery May 2018

What great news Michelle .... so pleased for you. Your surgery will be fine. I’m ok post op. I had a couple more nodes sent so awaiting histology....again.  Off to seaside for a walk. I really need to get some more weight off and get fit

Kip... hope it gets cooler soon. When do you start T?

Clare .... hope you’re doing ok

xx

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Re: Surgery May 2018

Thanks Kip and thanks for your contribution on the August thread. I will certainly let you know how I go with the op. Try not to worry too much about the T I was surprisingly ok with minimal SE’s, although I have noticed the tiredness is worse this time. I’ll keep my fingers crossed for you x
Thinking of you Jean x
Kip
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Re: Surgery May 2018

Hi I michelle that's fabulous news for you and at least lets us see that the chemo really does do its job!  I haven't had node clearance yet I'm probably having it after chemo and before rads.  You'll be able to let me know what it's like.  I finish chemo on we sept.  Can't wait as getting worried about the T part.

Feenix.. thinking of you xxx 

Love to all.. another hot day here in Suffolk so lazing around with breeze in my baldie XX .Kip

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Re: Surgery May 2018

Hello!
I had a really good appointment with the surgeon today. After a trip to radiology for a mammogram and ultrasound he told me there is now no need for a mastectomy! The tumours, (I had 2) have shrunk down to nothing. He said he is going to remove the areas where they were and the size they originally were. So after a lot of time spent thinking about recon it turns out I won’t need it and they would have offered a delayed recon anyway!
I will still have the full lymph clearance. Am I right in thinking you’ve had this Kip? How long was your recovery? Sorry if you have told me before, I can’t remember.
The surgeon said surgery might be on 13th or 23rd, which would be great as I want to get on with it now, although I don’t actually finish my chemo cycle until 10th which doesn’t give me much time to recover but fortunately I haven’t suffered too much from chemo.
Obviiously I’m really pleased, whilst remembering that things can still change.

Jean is your surgery tomorrow? I hope it all goes well for you x

I hope everyone else is keeping well xx
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Re: Surgery May 2018

I try to be Kip ... not done them today though. That’s a good way to decide your own queries. Its always difficult to decide without a strategy. It does make sense though. They must be on a par with risks and effectiveness as wouldn’t be given as a choice. Know someone who had rads but think she just didn’t want more surgery, but she did research the risks of both. she has some upper arm pain but it’s manageable... says it’s like someone has punched her.  It’s the deciding but sounds like you’re nearly there with it. 

Like that you can easily check your scar area... it must be really improved now.  It was something that crossed my mind. 

Hugs xx