Hi reddi, thanks for starting this thread, but i don't think i will be coming on here so much now....
I saw my surgeon yesterday and he told me its good news! My nodes were clear and i require no further treatment!!!!!
My areas of DCIS were 16mm and 9mm which is way more than the 5mm and 2mm first diagnosed. It means i made the right decision to have a mastectomy. I would now be looking at another operation to get clear margins or mastectomy if i had chosen to have lumpectomys.
Thanks to all you lovely ladies who have been so supportive😘
Hi Magsv. I had a simple mastectomy. First morning case, had one drain in and stayed overnight. Pleased I did as bp was on low side. I remember not drinking much the day before op so that may have been a factor ... so drink plenty and remain well hydrated day before you have op. My drain was in overnight only. I managed fine overnight, up with no probs, had paracetamol and ibuprofen only, although offered oromorph. I took wipes with me for freshening up, mints, small snacks and mainly listened to radio although did manage to read a bit before nodding off. Was out to shops on day of discharge. I hope everything goes well. Feenix Xx
Reddi, oh deep joy a little something else to look forward to 😂. My surgeon puts the drains to come out by your belly button ( consequently I can only wear leggings ) but she is adamant feeding them through such a long distance significantly reduces the chances of infection. She’s so totally amazing I’m not going to argue but she did suggest I have them both out at the same time, I suspect that’s because if I had one out I wouldn’t go back for the other ! The one from the sentinel node has been ready to come out for a few days so just waiting on the one from the reconstruction now. I’m hopefull for early next week. I’ve had no pain at all from the mastectomy or reconstruction but the drains are so uncomfortable I’m hoping any amount of pain will be worth it to see them gone. Two days after they come out I can shower, cannot wait. Hope you’re still doing ok xx Melanie
Hi Essex girlie fingers firmly crossed for your results tomorrow, I’m on the south coast too at least we are in a beautiful part of the world xx
@MrsG1962 Wow! I hope your drains come out very, very soon -- no 6 weeks for you. Definitely take some paracetamol beforehand; when I say "some tugging" -- it hurt. My BCN kept checking that there weren't still stitches holding the tube in place. But of course, the pain passes.
@krcrayer Oh, just realized that you had your drains in for 16 days (assuming they came out yesterday). How'd it go?
I'm amazed that you were able to shower with your drain bags in; I found it too unwieldy, so I've just been hand-washing at the sink, and washing my hair at the sink, too.
Like you, I've been going a bit stir-crazy in the first couple weeks after surgery/reconstruction, with the drain in. Through all 7 courses of chemotherapy, I managed to get out for walks on at least my two "good" weekends, trying to hit 10 miles one day if I could. The drain bag and soreness and stiffness and other complications have made that impossible, and I'm so looking forward to getting out this weekend. I had to stop antibiotics early as I got a fever and then -- in the realm of "other complications" -- days of diarrhea (sorry to the squeamish). Waiting to hear from the hospital lab about whether some C. difficile bacteria is lurking in my gut or I've become ultra sensitive to penicillin.
Hi @Trixielady! Good luck today.
@Beckett and @Magsv I hope our NYE'ers have some nice plans for tomorrow or Saturday. My OH took me out for a lovely kebab dinner the night before my surgery, insisting that I needed a big meal, including tiramisu dessert, since I wouldn't be getting any breakfast or lunch the next day. (Thankfully, I don't seem to struggle with general anesthesia.)
I've got my drain removed (mastectomy side) this morning and I feel an immense freedom: a literal burden lifted (though not off my shoulders; off my side!). Because of the surgery I had (mastectomy with immediate reconstruction with a prepectoral implant), my drain was in for 14 days -- longer than many, from what I've read elsewhere -- and my body was starting to heal around it, so it took some tugging to get the tube out. 😲 For others getting a drain out in the future, I'd suggest taking a paracetamol or two beforehand, just in case.
Hi Trixielady, and welcome, I hope all goes well for you today.
I had a DCIS diagnosis at the end of October and had a mastectomy on 7th December. I get my SNB results tomorrow.
I am on the south coast of England.
Hi @Beckett The waiting can be the hardest part. You'll get there, and to the other side! And til then, there are 12 days of Christmas -- I keep looking for things to celebrate, and there are lots of little excuses right now.
My surgery was on the 10th and I went home the same day. I was nervous about it, but all in all it was fine. My bed was more comfortable and the familiar surroundings were comforting. I had a chest block for pain and mostly just slept.
I had surgery on December 10th. Bilateral masectomy with expanders. I am 11 days out and doing pretty good. I still have drains. They will be removed next week on the 26th. There is a lot of soreness in my chest and under my arms. I am still on antibiotics, but just using acetaminophren and ibuprofen for pain. I am normallly a very active person, I teach 3rd grade and am used to a lot of moving around and it has been hard staying quiet. The first week was tough. I mostly slept, and took drugs, but now I am much better. I am able to shower and do my hair, put on my clothes and get around pretty well. Other than the achy chest where the stitches are and the expanders are I feel pretty good.
Thanks all for the replies. It seems like everyone's experience is very unique. I'm hoping mine is like yours Chocxie7 - I've got a thing about hospitals! Mine is a simple mastectomy without the need for SNB as this has already been done. But I do understand the benefits of staying in overnight if necessary.
When I had my first lumpectomy 3 years ago, I was desperate to go home the same day. I had a bit of a reaction to the anaesthetic, though, and was sick a few times. My blood pressure was also through the roof so when the surgeon visited post op he advised me to stay in overnight. It wasn't nearly as bad as I'd imagined (ours is quite a new hospital so 24 hour surgery cases are allocated a single en-suite room).
After the second one, in October this year, they were rushing me out the door :-)
I don't know if the 'no drain' thing is to do with smaller breast size? When I spoke to the BCN she said that drains are no longer fitted routinely in our hospital anyway? I also telephoned the GP Community Nurses to let them know the date of the operation, as (in Scotland) New Year is a big holiday. She said I wouldn't get a visit until the Thursday (ops on the Monday), but if there's any leakage I should phone their number or NHS24 for advice.
Long post - but maybe it'll clear my mind so that I can concentrate on a lovely (busy!) family Christmas season (been awake since 4am with op fears going round my head!). The house will be very full with children and grandchildren staying over from 23rd until the 28th .... I'm sure to sleep then. Ha ha!