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Surgery December 2018

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Re: Surgery December 2018

Hi Ladies,
I had my check up yesterday and the surgeon said I was cancer free! Lots of tears and family gathering, yesterday.
Still need radiotherapy but it makes it all worthwhile! I can deal with only 1 boob for a while...small price to pay.
Hope you are all ok.
Becky xx
Member

Re: Surgery December 2018

No I am not on Bisphosphonates. I did ask the doc about them but think he said it is for when you have Osteoporosis or something like that. I am just on calcium but have only just started on Letrozole. They have just started using them here.
Will look at the link now.x
Member

Re: Surgery December 2018

Thanks for the messages, Melanie, Reddi and Linda. The chest infection is loads better .... and the sachets have certainly worked (and still are working :-) !). Still haven't taken the softies out the packet, but then again, I've been housebound since op so have been mostly in pjs. Hoping to venture out soon. x

 

Linda, my Osteopenia has probably been caused by 3 years of taking Letrozole. Did you mention earlier that you were on Bisphosphonates? I think I'll mention this to my GP or maybe wait until I have an Oncologist appt and mention it then.

 

I read this link about how they can prevent spread of primary breast cancer:

 

https://www.breastcancercare.org.uk/information-support/facing-breast-cancer/going-through-breast-ca...

 

I've been prescribed Vit D, but maybe better adding these as well?

 

Margaret x

 

 

 

 

Member

Re: Surgery December 2018

Glad your feeling ok Magsv now. The painkillers give you constipation. I already had it a couple of days before my op. 4 days of rads left. Have got Osteopenia like you. Wonder if its due to the chemo? x
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Re: Surgery December 2018

@Magsv Argh, what a bad mix of stuff to have to deal with on top of recovering from surgery. During chemo (I had chemo pre-surgery), I got hemorrhoids for the first time in my life, presumably because chemo dries everything up and, to help mitigate side effects, the oncologists give you steroids, which cause constipation. It has taken me weeks to start to feel healed up down under. It sounds as though the sachets are helping you, but if the problem comes back, my GP gave me a prescription for lactulose, which helped things go... let's say, smoother.

 

News Report: I've got my pathology results, and I'm delighted to say that I do not need to undergo re-excision. My surgeon decided she didn't quite like the margin on my WLE (left) side at the time of the operation, so took a bit more then and there, and so she got a nice 3mm margin circumference around the IDC lesion. On the nipple/skin-sparing mastectomy / immediate reconstruction (righ) side, the removed tissue had at least 2mm on all sides but the anterior (skin) side, but there was still a clear margin there, i.e., no cancer cells on "ink". And because the IDC and the DCIS both showed a very strong response to my pre-surgery chemo and HER2 antibodies (and I still have 12 Herceptin injections to go) and they're both ER+/PR+ (and I haven't yet started endocrine therapy), she feels -- and I agree based on the research I've read -- that there's no need to remove the reconstruction just to hit 2mm. (Getting 2mm on the anterior side would almost certainly leave too thin of an envelope to keep it, so it would entail a majory surgery now and a major surgery in 16-18 months, for no definitive improvement in recurrence risk, etc.) In addition, the sample she took from the nipple on the mastectomy side was cancer free, so the nipple can stay.

 

Of course, I'll have to remain viligant doing breast self-exams between clinical check-ups, but it's good news. And it makes me feel the neoadjuvant chemotherapy was totally worth it, despite the infections, hospital stays, shingles, alopecia, and everything else.

 

So, next stop: radiotherapy (left side only)!

 

Fingers crossed that everyone still awaiting path reports has good news, too.🤞And if a re-excision is necessary for you, we're here to support you! Heart 

 

p.s. If anyone is recommended to have chemo post-surgery, please do feel free to ask me questions (I had FEC-T plus HER2 antibodies). And there are few words capable of conveying just how helpful my monthly chemotherapy group was, beyond: the first thing you should do, once you decide to sign the consent and get a date for starting, is join your month's thread.

Member

Re: Surgery December 2018

Mags v sorry to hear you’ve been unwell, especially both ends 😁 but really pleased to hear you’re not having any issues with the operation site. My scars are so neat I honestly think they will fade out beautifully. The softie is really weird isn’t it, I can’t work it out at all so haven’t bothered, a baggy shirt is hiding a multitude of sins.
Hope the chest infection is well behind you now and the sachets have done their job - it’s the little things 😂😂😂. Take care and stay strong xx Melanie
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Re: Surgery December 2018

Just catching up with everyone's news ...after the most horrible week ever. It started off with a really sore throat and I put it down to the tube they use during op. It didn't go away tho and turned into a nasty chest infection.
After a few days I realised I hadn't been to the toilet and became horribly constipated. Maybe I strained too much and tore something - but the pain was excruciating and I spent sleepless nights walking the floor! I phoned doc on friday and got some sachet things to take- took 3 days to work.
Sorry about all the detail but tonight is the first time I've felt semi normal. I'm very pleased 👍😁
I've had no problems at all with mastectomy. The community nurse came today to change dressing and all looking good. I had a funny sloshing noise from it one day but have been wearing a tight fitting sports type bra day and night and it seems to have helped 🤞
I had a look at the mastectomy scar when the dressing was changed (through the steri strips) and it looks surprisingly ok. I go back to the hospital on 16th Jan for results, and on 7th Feb I have an appt for boob fitting (they gave me a couple of softie things meanwhile but haven't even taken them out of the bag yet).
Mags x
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Re: Surgery December 2018

@MrsG1962 Good luck to you, too!

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Re: Surgery December 2018

Reddi, seeing my surgeon tomorrow too. It will be the first time in 4 weeks she’s seen it as she’s been back to Sudan to visit her family. The bcn’s have seen it a lot but like you I’ll be interested to hear what she has to say and get my full histology report. I know the drain is doing a good job, and drawing off fluid when you have a silicon implant is very difficult but goodness I’m fed up with it now. Hey ho could be a lot worse xx Good luck for tomorrow Melanie 

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Re: Surgery December 2018

@MrsG1962 Oh, no!

 

If it's any consolation, I was only putting off 10-20ml the last 3 days I had my drain, but since it's come out, I've swollen up a lot. No redness or heat, though, so they'd prefer to let me body absorb the fluid. Seeing my surgeon for path results tomorrow -- she's been on annual leave, so it will be her first look, and I'm curious if she'll think the swelling is just peachy.

Member

Re: Surgery December 2018

Hi Reddi, still got drain number 2 and today it’s gone up from 50ml yesterday to 100ml today so bcn thinks it’s going to be at least another week.

hope all you December ladies are doing ok xx Melanie 

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Re: Surgery December 2018

@Beckett I trust you've been able to get some help with the pain by now -- how are you doing? Are your drains out?

 

@MrsG1962 Is drain buddy no. 2 still with you? Hopefully, it can't be too much longer, if it is.

 

How is everyone else doing? Thinking of you all.

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Re: Surgery December 2018

Hi Beck's , sorry to hear about your pain , I was advised to ring the ward , my arm and armpit are still really uncomfortable three weeks after my lymph nodes clearance operation my drain ended up being left in for two weeks , they say keep exercising it difficult when it hurts & is heavy Xx I was given oxycodone wish I took to help get some comfort so I could sleep xx
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Re: Surgery December 2018

Hi
No, to be honest I'm not impressed with the aftercare thus far. It was much better during chemo.
My bns don't work over weekend. District nurses just say contact dr.
I'm seeing dn face to face tomorrow so will talk to them.
Xx
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Re: Surgery December 2018

@Beckett I don't know, but my nurses told me to contact them if I experienced significant pain. Did they provide a contact in the surgical ward for after-hours? (I got one.)
Member

Re: Surgery December 2018

Hi Ladies,
My drains are supposed to be out tomorrow but I'm concerned about the swelling in my arm.
District nurse not much use!
Should I have pain under my arm? Not my arm pit, under arm. Really painful! Is it part of the lymphedema?
I can't speak to bn until Monday.
Becks x
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Re: Surgery December 2018

Brilliant! 1 is better than 2!
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Re: Surgery December 2018

@MrsG1962 🎊🎊 Hurrah! 🎊🎊

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Re: Surgery December 2018

Oh, good news Mrs G! what a relief! You can see the light at the end of the tunnel now? Smiley Happy Onwards and upwards, glad you are feeling a bit better Smiley Happy
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Re: Surgery December 2018

At last one drain has gone ! 25 days it’s been with me but can’t say I was sorry to see it go. Sadly the 2nd one is still drawing 60ml per day and has to be below 20ml for 2 days before they’ll remove that one but feel much better with one down. It’s the little things........ 😂😂😂