Thanks for the messages, Melanie, Reddi and Linda. The chest infection is loads better .... and the sachets have certainly worked (and still are working :-) !). Still haven't taken the softies out the packet, but then again, I've been housebound since op so have been mostly in pjs. Hoping to venture out soon. x
Linda, my Osteopenia has probably been caused by 3 years of taking Letrozole. Did you mention earlier that you were on Bisphosphonates? I think I'll mention this to my GP or maybe wait until I have an Oncologist appt and mention it then.
I read this link about how they can prevent spread of primary breast cancer:
I've been prescribed Vit D, but maybe better adding these as well?
@Magsv Argh, what a bad mix of stuff to have to deal with on top of recovering from surgery. During chemo (I had chemo pre-surgery), I got hemorrhoids for the first time in my life, presumably because chemo dries everything up and, to help mitigate side effects, the oncologists give you steroids, which cause constipation. It has taken me weeks to start to feel healed up down under. It sounds as though the sachets are helping you, but if the problem comes back, my GP gave me a prescription for lactulose, which helped things go... let's say, smoother.
News Report: I've got my pathology results, and I'm delighted to say that I do not need to undergo re-excision. My surgeon decided she didn't quite like the margin on my WLE (left) side at the time of the operation, so took a bit more then and there, and so she got a nice 3mm margin circumference around the IDC lesion. On the nipple/skin-sparing mastectomy / immediate reconstruction (righ) side, the removed tissue had at least 2mm on all sides but the anterior (skin) side, but there was still a clear margin there, i.e., no cancer cells on "ink". And because the IDC and the DCIS both showed a very strong response to my pre-surgery chemo and HER2 antibodies (and I still have 12 Herceptin injections to go) and they're both ER+/PR+ (and I haven't yet started endocrine therapy), she feels -- and I agree based on the research I've read -- that there's no need to remove the reconstruction just to hit 2mm. (Getting 2mm on the anterior side would almost certainly leave too thin of an envelope to keep it, so it would entail a majory surgery now and a major surgery in 16-18 months, for no definitive improvement in recurrence risk, etc.) In addition, the sample she took from the nipple on the mastectomy side was cancer free, so the nipple can stay.
Of course, I'll have to remain viligant doing breast self-exams between clinical check-ups, but it's good news. And it makes me feel the neoadjuvant chemotherapy was totally worth it, despite the infections, hospital stays, shingles, alopecia, and everything else.
So, next stop: radiotherapy (left side only)!
Fingers crossed that everyone still awaiting path reports has good news, too.🤞And if a re-excision is necessary for you, we're here to support you!
p.s. If anyone is recommended to have chemo post-surgery, please do feel free to ask me questions (I had FEC-T plus HER2 antibodies). And there are few words capable of conveying just how helpful my monthly chemotherapy group was, beyond: the first thing you should do, once you decide to sign the consent and get a date for starting, is join your month's thread.
Reddi, seeing my surgeon tomorrow too. It will be the first time in 4 weeks she’s seen it as she’s been back to Sudan to visit her family. The bcn’s have seen it a lot but like you I’ll be interested to hear what she has to say and get my full histology report. I know the drain is doing a good job, and drawing off fluid when you have a silicon implant is very difficult but goodness I’m fed up with it now. Hey ho could be a lot worse xx Good luck for tomorrow Melanie
@MrsG1962 Oh, no!
If it's any consolation, I was only putting off 10-20ml the last 3 days I had my drain, but since it's come out, I've swollen up a lot. No redness or heat, though, so they'd prefer to let me body absorb the fluid. Seeing my surgeon for path results tomorrow -- she's been on annual leave, so it will be her first look, and I'm curious if she'll think the swelling is just peachy.
Hi Reddi, still got drain number 2 and today it’s gone up from 50ml yesterday to 100ml today so bcn thinks it’s going to be at least another week.
hope all you December ladies are doing ok xx Melanie
@Beckett I trust you've been able to get some help with the pain by now -- how are you doing? Are your drains out?
@MrsG1962 Is drain buddy no. 2 still with you? Hopefully, it can't be too much longer, if it is.
How is everyone else doing? Thinking of you all.
At last one drain has gone ! 25 days it’s been with me but can’t say I was sorry to see it go. Sadly the 2nd one is still drawing 60ml per day and has to be below 20ml for 2 days before they’ll remove that one but feel much better with one down. It’s the little things........ 😂😂😂