11-12-2018 06:40 PM
Hi crochet addict, So good you don't have to wait another week, the waiting was the worst part for me I think. I was in hospital for two nights and I found my pack of baby wipes most useful, also a 'Take a Break' magazine, cheesy, but the little puzzles were just enough to keep the fuzzy brain cells occupied!
I had my drain removed today, by the district nurse! wow! ouch!!!
Now I am bathed, dressed, got my softie in place and starting to feel more like my old self!
Hi, Mrs G, Hope all is well with you and you don't have to have the drains for much longer, mine was really hurting where it went in, such a relief to have it gone!
11-12-2018 05:36 PM
11-12-2018 01:07 PM
@Reddi thoughts are with you with the op, hope everything goes well. xx
essexgirly2 & MrsG1962 hope you are both recovering well. xx
I have just had a phone call from the hospital they have a cancellation for this thursday, I am over the moon only tomorrow to get through as apposed to another week. I'm only in for the day and my hospital letter might not arrive, apart from taking the obvious slippers, dressing gown can anyone recommend anything else to take. xxx
10-12-2018 11:13 PM
@crochet addict What a drag! Will you get to meet your new surgeon this week? I hope so.
@Magsv You're welcome!
@MrsG1962 A second thank-you for the Cancer Research pointer -- I suspect I won't finish hand-stitching my eye mask by Wednesday (can't find the elastic I bought for the strap!), so bought a plush back-up. Worst case, I find the elastic and sew up a storm and my OH gets it in his stocking.
@essexgirly2 & MrsG1962 Hope you're both cosily resting and recuperating.
10-12-2018 10:44 PM
10-12-2018 02:32 PM
I hope everything goes well for you, will be thinking of you xx
My consultant meeting went ok but my operation has been put back to the 19th now. I'm anxious as i am to have a new surgeon and the consultant couldn't pronounce his name ! I'm sure all will go well it's just having another week of anxiety and trying to keep positive thoughts in my head.
10-12-2018 08:46 AM
09-12-2018 11:08 PM
Just a quickie before I drag myself to bed! I think I'll have the drain for a few more days, still oozing and very sore where it goes in on my left side. I think it is just the drain that is giving me grief.
Journey home was bumpy, husband did his best but the potholes round here! OMG! We have changed sides of the bed so I can sleep on my good side and can get out to the loo easier ... I don't know how he will sleep on the 'wrong' side! lol..
Best wishes to all... X
09-12-2018 04:52 PM
09-12-2018 04:43 PM
09-12-2018 08:56 AM
08-12-2018 11:16 PM
Hi Mags, Friday i was scared but the hospital staff were great, especially in recovery. I was in a great deal of pain and had a big dose of morphine - i felt wonderful. Today (Saturday) is a different story. I have been nagged by nursing staff for low blood pressure! Not a lot i can do, it's always been like that! Going home tomorrow. And will have ditrict nurses come in as i still have a drain. Very sore and had scant attention. They wantedme gone today but i could not stand the drive, every movementis painful and i am dreading getting in the car. I won'tget results till after Christmas. Feeling very low. Wish i could have a shower or even a wash. Excuse awful typing/grammar.
08-12-2018 01:31 PM
@MrsG1962 and @essexgirly2 Seconding what @Magsv said -- and I hope you are recovering well today! I also hope any pre-surgery jitters have settled. I know I certainly wouldn't have signed up for this particular life event, and I'm feeling nervous, too. I think that's totally natural with such a major surgery -- major, no matter how much tissue is removed, because of the underlying reason for it as well as the effects the surgery has on both mind and body.
@crochetaddict How did your meeting with your consultant go? I hope you got all your questions answered. It seems we'll be the two in this thread having surgery this week -- though, of course, some late-comers might join our party. I'll be thinking of you on Wednesday.
@Pulapula Our journeys seem to have been somewhat similar, with neoadjuvant chemo, then some choice between a very wide WLE and a Mx. And I, too, work for myself from home, and recovery was a factor -- though for me, it was more a factor in considering whether to go for immediate or delayed reconstruction. I just felt I'd like to try immediate, since I knew I wanted reconstruction and I'd prefer one big surgery to two. We'll see if my body agrees to that plan!
Apologies for being so quiet this week -- I've been busy consenting to surgery and going through pre-surgery assessment, with this coming week no better, with more pre-surgery bloodwork, Herceptin injection (first post-chemo), follow-up with oncology, and check-up with ophthalmology (for an inflammation in one eye that seems to be a side effect of chemo) squashed into Monday through Wednesday. So I may be quiet again til I'm discharged home next weekend. I'll be thinking of all of you and eager to hear reports when/if you're ready.
As to me, I've signed on the dotted line for the lumpectomy on the left and the mastectomy on the right with immediate reconstruction using a prepectoral implant. Fingers crossed, the implant will take and my margins will be clear, and at most I'll need a little lipo top-up surgery to balance things up in late 2019 or 2020. At this point, though, I'm prepared (as much as I can be) for any turn of events.
@Magsv Thanks for your packing list. I think I've now got my list sorted, but I'll have to pare back a bit in order to fit it into a suitable bag: button-front PJs, thick nonslip socks (cold feet!), front-closing sports bra (probably not required in my case), drain dolly, earplugs, eye mask, toothbrush & toothpaste & hand sanitizer & moisturizer (for my post-chemo care regime), throat lozenges, dandelion tea bags, book, mobile phone & charger & extra battery & headphones, and thank-you card for the nurses on the ward (my mother was a nurse, which is why I do this). I'm hoping to wear in what I wear out, but if my shirt doesn't fit over the swelling and bandages, my stretchy jersey PJ top should.
I got some post-mastectomy pillows from the fabulous Jen's Friends (if you're having surgery, I highly recommend them -- they were great after my sentinel lymph node biopsies in the summer). However, I don't know that I can fit them in my bag, so either my OH half will need to bring them to me in the ward after surgery, or I'll just leave them at home. (I have to report at 7:30am, so I'm going in on my own -- my OH is not a morning person.)
One nice early present: I found out that I'll only have drains on the mastectomy side, and I'm being given a type that I don't empty myself: they're vacuum-sealed, so if they get full, I have to go into the hospital to have them emptied. I'm going to have to be sure I know what to do if they need attending to on the holidays, especially as both my surgeon and my breast care nurse will be on annual leave. Tis the most wonderful time of the year!
06-12-2018 09:47 PM
06-12-2018 06:50 PM
Welcome to the forum. I send my best wishes to you, and can empathise with your dilemma as to the best option. I had a triple positive tumour, but, although it completely resolved with chemo, I had a large area of dcis, so a mastectomy ended up being my only option. I still need radiotherapy to prevent recurrence, so I wasn't able to have an immediate implant. Although I wasn't happy about having a mastectomy, I did feel pleased to think that I am cancer free, as my nodes were negative too.
Good luck with whatever you decide.