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Surgery December 2018

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Re: Surgery December 2018

Hi Reddi

I hope everything goes well for you, will be thinking of you xx

My consultant meeting went ok but my operation has been put back to the 19th now. I'm anxious as i am to have a new surgeon and the consultant couldn't pronounce his name ! I'm sure all will go well it's just having another week of anxiety and trying to keep positive thoughts in my head.

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Re: Surgery December 2018

Essex Girlie fabulous to hear you’re home now relax and allow others to look after you for a while xx Melanie
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Re: Surgery December 2018

@essexgirly2 Welcome home! I know you were worried about being discharged too soon, but you sound so much better now that you are home -- I am happy for you.

OH will adjust to the bed -- my OH and I had to do a similar swap midway through my chemo, and now I fear I won't ever get "my" side of the bed back!
Member

Re: Surgery December 2018

Just a quickie before I drag myself to bed!  I think I'll have the drain for a few more days, still oozing and very sore where it goes in on my left side.  I think it is just the drain that is giving me grief.

 

Journey home was bumpy, husband did his best but the potholes round here! OMG!  We have changed sides of the bed so I can sleep on my good side and can get out to the loo easier ... I don't know how he will sleep on the 'wrong' side! lol..

 

Best wishes to all... X

Member

Re: Surgery December 2018

Essex girlie I had the same problem with blood pressure, mines always low so ironically when they thought it was normal it was actually high for me but they didn’t seem to understand that.
Hope they get on top of your pain. It’s the drains I find uncomfortable they are just by my navel so catch every time I stand, sit or lie down. Have now sussed out how to lie on my good side in bed which helps. Also using an old fashioned wooden towel rail next to my bed for the drain bag. Loop the bag round the top a few times and I’m able to pull it really close so I can have more drain in the bed.
Only forgotten the drains twice but me and the drains survived 😂😂😂. Struggled going to the loo too until I moved the bag to hang round my neck so the drains are in front and dangle between my knees ( too much info I know but god it made a difference ).
My consultant is amazing she hugged me, hugged my husband and my brother and really made us feel like she cares. Hope you’re getting the same support. Take care and take everything at your own pace only you know how much you cannot can’t do xx Melanie
Member

Re: Surgery December 2018

Mags, Essex girlie and Reddi thank you all so much for thinking of me it has really touched me finding your messages.
Op went well, I had to go to the hospital for 7:15 and was met by the night nurses who wanted to introduce themselves as they would be looking after me that night. Anaesthetist then arrived swiftly followed by breast care nurse then my consultant and I’d barely had time to blink before I was on my way to theatre.
Consultant and anaesthetist came back to see me later that afternoon and both were really pleased how I’m doing
I’ve had the right side mastectomy, sentinel node removed and implant so have two drains in place.
Consultant came back Saturday morning and was pleased with how I was doing as was physio. Came home late Saturday afternoon, feel much better being at home. I’m so lucky I’ve no pain ( Essex girlie I’m heart broken for you the discomfort and tightness is enough without pain so dread to think how it is for you).
Can’t shower as I can’t use waterproof dressings but had a good wash down and had my hair washed so that made me feel better.
Stayed in pjjamas today as they are really comfy. Taking care of my own drains, both vacuum and really easy to change so all went well with that this morning.
Have been very nauseous but think it’s the anaesthetic, hope it’s not the antibiotics as I am allergic to most of those too. Not eating much at all, must be very naive as I hadn’t anticipated feeling unwell ! Nuts or what.
On paracetamol and ibuprofen and antibiotics but that’s it.
Seeing consultant Wednesday and breast care nurse Friday so going to have a couple of lazy days.
Before I went in I purchased a gift set from cancer research online specifically for mastectomies. Have a velvet heart shape cushion, a black cord drain bag, cushion to protect me from sestbelt and eye mask they’ve been a godsend.
Thinking of all of you who still have your surgery to come, stay strong ladies you are so much stronger than you think xx
Member

Re: Surgery December 2018

Oh dear Essexgirly 👎😪. I really hope you're feeling a bit better today and that the car journey is bearable. I think some staff just seem to have a better bedside manner than others - although I'm sure they all mean well 🤞. I'm the opposite to you and have high blood pressure - I'd be really upset if it was implied that I could somehow control it myself. Hopefully they'll give you some strong painkillers to take home? It doesn't sound like the usual over the counter stuff will be enough. I'm really hoping I don't have a drain. I'm not sure why they're used but when I mentioned it to the BCN she said they weren't used routinely in my hospital. I'll find out soon. It was difficult enough showering / washing hair after last 2 lumpectomies for the few days following surgery. Must be a nightmare with drains. Fingers crossed the district nurse removes yours when she visits?🤞
Big hugs - and I'll be thinking about you today. If you get a chance let us know how things are ❤xxx
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Re: Surgery December 2018

Hi Mags, Friday i was scared but the hospital staff were great, especially in recovery.  I was in a great deal of pain and had a big dose of morphine - i felt wonderful.  Today (Saturday) is a different story.  I have been nagged by nursing staff for low blood pressure! Not a lot i can do, it's always been like that!  Going home tomorrow. And will have ditrict nurses come in as i still have a drain. Very sore and had scant attention. They wantedme gone today but i could not stand the drive, every movementis painful and i am dreading getting in the car. I won'tget results till after Christmas. Feeling very low. Wish i could have a shower or even a wash. Excuse awful typing/grammar.  

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Re: Surgery December 2018

@MrsG1962 and @essexgirly2 Seconding what @Magsv said -- and I hope you are recovering well today! I also hope any pre-surgery jitters have settled. I know I certainly wouldn't have signed up for this particular life event, and I'm feeling nervous, too. I think that's totally natural with such a major surgery -- major, no matter how much tissue is removed, because of the underlying reason for it as well as the effects the surgery has on both mind and body.

 

@crochetaddict How did your meeting with your consultant go? I hope you got all your questions answered. It seems we'll be the two in this thread having surgery this week -- though, of course, some late-comers might join our party. I'll be thinking of you on Wednesday. 

 

@Pulapula Our journeys seem to have been somewhat similar, with neoadjuvant chemo, then some choice between a very wide WLE and a Mx. And I, too, work for myself from home, and recovery was a factor -- though for me, it was more a factor in considering whether to go for immediate or delayed reconstruction. I just felt I'd like to try immediate, since I knew I wanted reconstruction and I'd prefer one big surgery to two. We'll see if my body agrees to that plan!

 

Apologies for being so quiet this week -- I've been busy consenting to surgery and going through pre-surgery assessment, with this coming week no better, with more pre-surgery bloodwork, Herceptin injection (first post-chemo), follow-up with oncology, and check-up with ophthalmology (for an inflammation in one eye that seems to be a side effect of chemo) squashed into Monday through Wednesday. So I may be quiet again til I'm discharged home next weekend. I'll be thinking of all of you and eager to hear reports when/if you're ready.

 

As to me, I've signed on the dotted line for the lumpectomy on the left and the mastectomy on the right with immediate reconstruction using a prepectoral implant. Fingers crossed, the implant will take and my margins will be clear, and at most I'll need a little lipo top-up surgery to balance things up in late 2019 or 2020. At this point, though, I'm prepared (as much as I can be) for any turn of events. 

 

@Magsv Thanks for your packing list. I think I've now got my list sorted, but I'll have to pare back a bit in order to fit it into a suitable bag: button-front PJs, thick nonslip socks (cold feet!), front-closing sports bra (probably not required in my case), drain dolly, earplugs, eye mask, toothbrush & toothpaste & hand sanitizer & moisturizer (for my post-chemo care regime), throat lozenges, dandelion tea bags, book, mobile phone & charger & extra battery & headphones, and thank-you card for the nurses on the ward (my mother was a nurse, which is why I do this). I'm hoping to wear in what I wear out, but if my shirt doesn't fit over the swelling and bandages, my stretchy jersey PJ top should.

 

I got some post-mastectomy pillows from the fabulous Jen's Friends (if you're having surgery, I highly recommend them -- they were great after my sentinel lymph node biopsies in the summer). However, I don't know that I can fit them in my bag, so either my OH half will need to bring them to me in the ward after surgery, or I'll just leave them at home. (I have to report at 7:30am, so I'm going in on my own -- my OH is not a morning person.)

 

One nice early present: I found out that I'll only have drains on the mastectomy side, and I'm being given a type that I don't empty myself: they're vacuum-sealed, so if they get full, I have to go into the hospital to have them emptied. I'm going to have to be sure I know what to do if they need attending to on the holidays, especially as both my surgeon and my breast care nurse will be on annual leave. Tis the most wonderful time of the year!

 

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Re: Surgery December 2018

Thinking of you both today Melanie and essexgirly Heart

 

I hope your ops went ok? :-)

 

Mags xxx

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Re: Surgery December 2018

Thanks jane. I think I will have mx and recon as it just feels like I’m reducing the risk of recurrence. It will be a longer recovery but I work for myself from home so I can hopefully work when I feel ok and rest when I don’t.
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Re: Surgery December 2018

Hi Pulapula,

 

Welcome to the forum. I send my best wishes to you, and can empathise with your dilemma as to the best option. I had a triple positive tumour, but, although it completely resolved with chemo, I had a large area of dcis, so a mastectomy ended up being my only option. I still need radiotherapy to prevent recurrence, so I wasn't able to have an immediate implant. Although I wasn't happy about having a mastectomy, I did feel pleased to think that I am cancer free, as my nodes were negative too.

Good luck with whatever you decide.

 

Jane xx

Member

Re: Surgery December 2018

Hi ladies, I thought I should come and join you. Here’s my journey so far:

I found a lump in July and was diagnosed in August with triple negative IDC measuring about 30mm.

Had a SNB in Sept (nodes tested negative) and started FEC chemo 2 weeks later. Had my last chemo on 22 Nov and mri last Friday. Just been for my results today.

Although my tumour could no longer be felt it still is about 24mm in length. My surgeon said I could choose between lumpectomy or nipple sparing mastectomy with implant.

My surgery is booked for 21 Dec and I go back on Monday to discuss and decide with my BCN.

Im thinking mx at the moment, as I worry about recurrence as I’m triple negative.

Now I really need to get organised with buying and wrapping presents, food shopping etc as I’ll be out of action from 21st!!
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Re: Surgery December 2018

Hi Mags, it is strange isn’t it how different it feels once the decision is made. Will certainly let you know how I get on and if I have any tips ( or things I wish I’d taken in with me ) I will let you know.

take care xx Melanie 

Member

Re: Surgery December 2018

Hi Essex Girly I’m so pleased you’ve managed to get the guidance and advice you needed. Must admit my surgeon is brilliant, I’ve got so much confidence in her, so when she told me it was non negotiable and I have to have a mastectomy and loose my nipple I felt really calm about it. Funny how once the final decision is made you get an almost serenity and ability to concentrate on what needs to be done.

Good luck for the radio active dye and for Friday and let’s both look forward to Friday night when we can actually get some sleep xx Melanie 

Member

Re: Surgery December 2018

Hi Magsv, I feel we have been down a very similar path in the way we have agonised over what choice to make, but, as I have explained in my post to Mrs G.   I really just wanted some 'guidance' which I got today, and now I am happy (well, as happy as I can be about losing a breast) but at least I am not sobbing every half an hour like I have for the last couple of weeks!

 

I was told that the recovery was very similar in both operations, drains with both, but I am not worried about a night or two in hospital, I worry more about being sent home 'not quite ready' as happened with my hysterectomy 25 years ago (I ended up in hospital for another week after being sent home too early)

 

I want to 'move on'.   We get the keys to our new house on Thursday and I get my op on Friday!!  I want to be free of this thing so that in the new year we can look forward, no more worry about 'is it going to come back' and all that.

 

I will never know, maybe a lumpectomy would be ok, but do I want to take the chance? or be in and out of hospital for goodness knows how long?  No, I have songs to sing and places to go... life is too short! 

 

After so much agonising I am so happy to be calm and be 'myself' again!

 

Wishing you all the best for your New Year op.

 

 

Member

Re: Surgery December 2018

Thank you so much for your advice, after spending hours trying to read up on diagnosis and treatment you start to feel quite insecure. I will be spending more time on this forum and less on google. xx

Member

Re: Surgery December 2018

Hi, Mrs G!  snap!   

 

My BCN arranged a quick meet with the surgeon today ... I finally got what I wanted, he said 'if you were my wife or daughter I would want you to have a mastectomy'  really, that was what I wanted to hear, its all very well saying to us, 'you choose' but my head has been bouncing between the decisions and I felt I was going nuts!!  I know it may sound daft to be pleased to be having a mastectomy, but I am now calm in my mind. 

 

Yes they offered options, but I do not want to be going back for more surgery and I do not want to be getting an implant replaced when I am 80!   He did say that one area would be easy to find but the other one would be 'challenging' and that he was not sure if something was 'going on' between the two areas of calcification.  He also said he was not sure what the cosmetic appearance would be like.  So I am thinking, and knowing, that a mastectomy will give me peace of mind and no further operations.

 

Good luck to you on Friday.

Community Champion

Re: Surgery December 2018

Hi and welcome to the forum, I think Stereo is referring to a wire they insert in to the area to be removed, Im sure they call it a stereo wire. I had one Inserted and it's done via ultrasound with local anaesthetic so it wasn't painful, it does hang out of you like an Ariel which would explain the term stereo! 

 

This stage is very stressful and your nerves will be shredded but it becomes easier the more you find out about your treatment plan, its best to just deal with the facts and not to speculate about the things you don't know yet, it only adds to your anxiety and isn't helpful. 

 

There will always be someone around to listen and help answer any questions for you Xx Jo 

Member

Re: Surgery December 2018

Hi I'm new here and am due to have WLE with targeting clip on the 12th December, I have been diiagnosed with pleomorphic LCIS which from what i have read up on is treated the same as DCIS. I am due to see consultant on 6th December and my nerves are shattered already. 

Silly question but does anyone know what stereo WLE mean does it mean two incisions ?

This forum is amazing, it's uplifting reading other peoples experiences and everyone is so helpful. xx