11-02-2018 09:37 PM - edited 11-02-2018 10:07 PM
Glad you put me right on hubby ;-)
Sooo glad to hear you "Up" and you're settled to without recon. The beauty is - it's still there if you change your mind and wish to pursue, isn't it? You still have a "choice". I was so much happier still having one of my own, it was losing the 2nd that tipped everything.
Much love, Delly xxxx
11-02-2018 11:21 AM
Delly don't get me wrong hubby has been my rock, accompanying me to appointments, words of encouragement, comfort and lots of hugs but at times he doesn't understand how I feel, men! I told my son right from the start and as a typical teenager would say "mum I'm not stupid, I knew something was wrong" !
I'm not planning to have recon. The 'new me' does take some getting used too but I'm ok with this and to be honest having one boob doesn't bother me. I'm looking forward to getting rads out of the way (once I get my dates).
Lots of love xxx
08-02-2018 04:42 PM
Hi Northern Girl
I'm so pleased you've now had your treatment and it's all feeling and looking so much better. Well, at least you can be yourself on here, flower. I can undersrand you wanting to keep your son "up" and unaware. Am not so sure about the hubby, that's tough you not being able to lean on him for support, comfort? I hope you've got SOMEone or some goods friends around you, that you're able to talk to, turn to for support and comfort, physical contact i.e. big hugs, have you?? Anyway, you let rip, grunt, groan, rant, sob on here, whatever. I'm not at all surprised you are or were feeling low.
Do you think you might you have recon after your rads are done and finished??
Lots of love to you, sweetie
07-02-2018 11:29 AM
Been feeling sorry for myself but have given myself a kick up the backside and feeling ok again. Was struggling with putting on a brave face in front of family & friends. Don't want to worry hubby, don't think he would cope if I fell apart (I'm the strong one!) and teenager approaching end of A levels, don't want him to lose focus so been going through the motion of feeling ok. Oh well, that's what we do. We just get on with it but Today is a good day
Had mammotone us scan and fluid/tissue (lots of) got rid off - hooray. It's made such a difference. Can begin to heal from the inside now, mx scar has healed nicely.
Seeing onco next week to plan rads. No idea when I'll get back to work. Been off since Dec but once rads is over can start working on the next stage of my journey. For now its onwards and upwards
03-02-2018 08:27 AM
Oh Notherngirl hope you have had the biopsy and are getting some answers and comfort.
i met with my surgeon yesterday and I'm pleased to say the steroids did the job and the rash and swelling is gone just leaving dry skin such a relief - it wasn't red breast syndrome just an allergy have changed everything to unpeefumed and all ok now so I won't be self diagnosing going forward and shall try not to google everything in future - I say try but it's hard to do isn't it?
northerngirl hope you get sorted soon xx
28-01-2018 01:11 AM - edited 06-02-2018 06:39 AM
Crikey Shocked - No pressure on the house front then!!
Northerngirl - Oh flower, I'm so glad I asked after you now. But not glad what's happening with you though. Haven't seen you since 16 / 01. Well done on going to get it looked at. When will you be having the ultrasound and treatment? And please try not to get anxious, because you've had the worst bit done and over. I'm pretty sure it won't be as bad as a core biopsy. They're pretty nasty those. I had one with the first breast. The tumour was only about 1cm diam, but so hard, it kept moving out of the way as soon as the thick needle centre shot at it, but not into it. So it took loads of attempts until it finally took a bite out. Not very pleasant. What do you find is the best thing to relax you? Calming music, yoga, gentle exercise?!!
Whereabouts in the North are you? I'm in Macclesfield, N.E. Cheshire, about 20 miles south of Manchester.
Keep us in touch with what's going on. I'll keep remembering to ask, if you've gone quiet on us for a while, hey?
Lots of love to everybody, Dellywelly xxxxxxxxxxxxx
27-01-2018 05:11 PM
The area has filled up again but not as much as before and is now a haematoma. After feeling that the surgery area didn't feeI right, I went to see my BCN and a doctor in the week who said that I have blood clots. I've been referred for a mammotone ultrasound scan. The radiologist will be able to see where the clots are and break them down using some sort of instrument and drain.
I'm now feeling anxious as the last time I went to that department was to have a core biopsy and the results were not good! I know I shouldn't be worrying but it only takes one step backwards and my anxiety levels start rising. I'm usually positive about life. I'm not sleeping well and won't be able to start radiotherapy until the swelling is reduced and stable and this is further stress for me. I don't know what the surgery area looks like after my mx as i've had swelling since Dec surgery but at least the scar has healed.
I'll keep doing my breathing exercises and go for walks to take my mind off things
27-01-2018 05:02 PM
No we are renovating an old farmhouse we were painting the new windows before they went in - still have months of work left though hubby has been left to it for now.luckily not had to move in yet but we have 3 viewers on our current home tomorrow- ah well life goes on. Xxx
27-01-2018 01:13 PM
Yes its over a month now, The redness is still there (not hot though more dry skin like) but the itching has stopped so I think things are starting to improve.The oncology team seem unconcerned and I see the breast surgeon Friday so may get an answer then - will let you know if I get an answer,
27-01-2018 11:22 AM
25-01-2018 08:36 PM
Sadly yes I was being serious it’s supposedly an allergic reaction to the mesh used on the implant and given where the rash is - right around the implant I was wondering if that’s what it is? I am new to all of this though so please tell me if it sounds really odd 😳
25-01-2018 02:41 PM
i did call in to the Chemo ward the day before I started chemo as the rash was still there so wanted to double check that all was ok and it wouldn’t delay anything. The doctor took a look and said it’s not infected but an allergic reaction so gave me steroid cream and antihistamines luckily it did not delay my Chemo.
the rash is still there less itchy now and I’ve been looking around and am wondering now if it’s red breast syndrome. Unfortunately I am being treated in two different hospitals for the surgery and the Chemo so I was a bit lost who I should speak to about what.
24-01-2018 05:56 AM - edited 24-01-2018 06:22 AM
I'm so sorry to hear you're having so much trouble. I have medical training that involved treating infection, and the fact that your swelling is "hot" indicates that it may very well be an infection, which I suspect is why Jay68 asked if it was "red", which you said it wasn't. Now I suspect more so with the fact that it now has a rash. I can't say I'm impressed by your BCN suggesting Piriton. I would ask (gently insist) to have it looked at as soon as poss, preferably as a matter of urgency, by your consultant/surgeon or one of his colleagues or registrars. Plus it may affect you starting chemo.
I had a series of seromas after both my masts, but none of them were "hot" to touch. All of them were drained, because they were either the size of an egg or half a tennis ball, despite any possible risk of infection, with an immediate relief. But different breast units seem to have different policies on draining. But I'm not so convinced yours is just a seroma.
Good luck with it. Keep us informed with what's happening will you.
21-01-2018 06:43 PM
Thanks all the swelling as decreased a little which is a relief but instead I now have an itchy red rash all over the reconstructed breast which started Thursday - the breast care nurse told me to try piriton but its getting angrier - its driving me nuts just hope it can be sorted before I start chemo on Tuesday
21-01-2018 11:19 AM
16-01-2018 02:12 PM