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SURGERY SEPTEMBER 2018

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Re: SURGERY SEPTEMBER 2018

Alex - glad you're out of hospital - nothing like your own bed - hope that infection keeps clearing up. I'm in the same 'boat' as you - so glad I found the cancer early - mine wasn't even a lump - it was puckering and a 'shifting' nipple that alerted me. I was tempted to ignore it as i'd had a mammogram 18 months ago that was clear and i'd lost some weight - so was initially putting the 'changes' down to this - but we ladies know when somethings not quite right and there was a niggle in the back of my mind which made me take some action - SO glad I did. 💪

 

JacqB - fingers crossed you still make your haoliday in March - I had a hoilday booked in France for September and all my appointments/surgery etc were worked around my dates - so hopefully it will be the same for you. Nothing like getting away to the sun to lift your spirits. ✈

 

Kateday - you say they have a replacement for you in work - but from what i've noticed on this forum you're irreplaceable, so i'm sure once you've got through all this you'll be back at the helm.😘

 

Rapunzel - so sorry it's looks like you're going to need chemo - but you don't need me to tell you that it's for the best given your results - zap those cells and you'll be as good as new.Then just keep taking the tablets (which is where i'm at now).💊

 

Chocxie7 - You said on another thread how you know you're not ready to face going back to work yet - I think we had our surgery on the same date- 24th Sept(?) - there is NO way i'm anywhere near ready to even think of going back to work. I love my job - so don't want to prolong this - but my arm is still stiff, the area where I once had a breast is sore and tingling. I have no 'power' in my right arm (if I try to close the curtains I feel a real pull on the 'area' of the reconstruction - as though i'm going to dislodge the implant). I'm knackered - can't get out of bed before 10.00am (not like me at all - i'd always be up by 8.00m even on the days I didn't work). 

 

Marla13 - I will continue to follow your 'journey' and hope all goes to plan - and we will meet up in the East end of London when we've come through all this.🥂

 

I hope everyone else in the September (and every other month) surgery is doing well - I'm following you all to check how everyone is doing.

 

Good luck for to all - you're all amazing - I know I couldn't have got this far without all your help and support.

 

Lots of love💝💝💝

 

Helen

xxx

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Re: SURGERY SEPTEMBER 2018

Glad to read your home Alex
And it’s lovely you want to keep eye on how we’re all doing
Well as hard as it is we have to take them moments to live
Had fab day yesterday being normal with my family
Safari and meal with my husband mum and foster children , couple drinks with friends and movie at night
Hope Everyone is doing as well as can do xx
Member

Re: SURGERY SEPTEMBER 2018

thanks everyone and the infection seems to be clearing up.

I will be keeping a watch on you all. You really got me through the toughest part of my life ever. I will continue to support all of you. I was so so lucky to catch mine so early. It depends on which way you look at it, it was devine intervention or just a fluke it was caught so early. I’d like to think it was my dad looking over me. Xxx
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Re: SURGERY SEPTEMBER 2018

Welcome home Xela xx
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Re: SURGERY SEPTEMBER 2018

Welcome home Xela! I am so happy for you that you're home. 

xx

Member

Re: SURGERY SEPTEMBER 2018

Hi everyone I’m home. Was able to have a little birthday Celebration for my bestie at her gorgeous home, a glass of champers & Chinese take away! I’ve been dreaming about it the whole week. Even though it was her birthday, I was the one being spoilt rotten.

I’ve made the mistake of then today to carry on as normal and ended up in bed now. I’m still on Oral antibiotics and placed into Tamoxifen. See my consultant next week.

JacqB sorry to hear your infections not clearing up, my consultant wanted me to stay in another 48hrs. He kept changing the lengths of stay. 48 then 24 then another 48. The problem is you plan your life and as we all know, illness knocks onto other people’s plans! We would all like to put the brakes onto life so we could just get get well and healthy, then start up again.

KateDay good look on Tuesday! I’ll check in to see how it goes.

Love to you all xxx
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Re: SURGERY SEPTEMBER 2018

Hi everyone
Looks like we are all being tested in one way or another.
My axilary scar is still not healing, in fact it’s getting worse every day even though I’m on antibiotics. Looks like it will delay my chemo, which is crap as the knock on effect is that I probably won’t make my holiday in March.
I hope you are home soon Xela.
Let’s hope the journey gets smoother very soon. Hugs to you all
X
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Re: SURGERY SEPTEMBER 2018

Hi
All
How is everyone today
Sorry to hear you didn’t make it home Alex
And it’s good to hear some are getting great results
Pastamissus im sorry you are going through even more
I meet oncology on Tuesday , don’t normally swear but **bleep**ting myself xx
Member

Re: SURGERY SEPTEMBER 2018

Axillary clearance postponed as found suspicious stuff in other breast on MRI. Got results today. CT clear, cancer in other breast, so going for right mastectomy with SNB and lext axillary clearance on 8 Nov.

Anyone got any advice for having both sides done at the same time?

Member

Re: SURGERY SEPTEMBER 2018

I've been following your journey Xela and though I really empathise! It sounds like you are better off where you are, where they can look after you. I'm so sorry though that you weren't able to leave when you had hoped. Fingers crossed tomorrow may be good news! 

xxxx

Member

Re: SURGERY SEPTEMBER 2018

Not allowed home. Not past my parole and I’m not passing Go & collecting £200 😡

It’s clearing up but they don’t want me coming in again.
Member

Re: SURGERY SEPTEMBER 2018

Kateday - just wanted to send you big hugs! I really feel with you, and I wish you a lovely day!

xxx Rapunzel

Member

Re: SURGERY SEPTEMBER 2018

I’m still amazed how differently different areas get things done
My area seems to take ages
But as all ready mentioned our time seems like years rather than weeks since diognosis
I do hope you are allowed home today Alex
Well work have a replacement for me 😔 I knew this would be needed due to chemo , and I’m a nursing home manager so high infection risk there , but breaks my heart , just have to remember it’s not forever xx
Member

Re: SURGERY SEPTEMBER 2018

Big hugs everyone! Gosh we’re a lot of tough women aren’t we? In fact it’s made me quite proud of being female, more than ever now.

Couple of the Ladies who had surgery had disappointing results😢 So I’m quite upset, after such a great day yesterday.

Hoping to escape costa del Castle Hill tomorrow.

Xxx

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Re: SURGERY SEPTEMBER 2018

Cheers Chocxie! That brilliant thanks
Member

Re: SURGERY SEPTEMBER 2018

Hi Thistle

Thanks for checking in on me.

I've been given calcium tablets as well as the Letrozole - 2 a day - I suppose as a precautionary measure (I guess they wont do me any harm). Surgeon said he's arranging for a bone scan and they'll monitor my bones in any event.

Glad you're finding the drug OK - so hope I will, too. Have been told if it doesn't agree with me to let them know and they'd see what could be done - but i'm hoping once my system gets used to them I shoudl be OK as well.

Surgeon said some people suffer with achy joints - so we'll have to see.

Its been 3 months since I first went to the doctor - it feels like a lifetime ago 

As I said - this forum has been a godsend - I know I would have been freaking out a lot more if I hadn't had this place to come to.

Going to focus on recovery and reconstruction now - and getting back to work.

Thanks, again, Thistle - we did it.💖💖💖

Member

Re: SURGERY SEPTEMBER 2018

Hello everyone,

 

also had results in today - and it's a mixed picture:

- no node involvement (3 were taken)

- ER + (no other receptors)

- one margin wasn't clear (2nd operation scheduled for the end of this month)

- cancer got 'upgraded' from 2 to 3 after pathology

- invasive tumour about as big as seen in ultrasound (15 mm) but also non-invasive on top of that (at least another 10mm).

 

This means that chemo is pretty likely now (plus hormones and radio). Got a bit of a shock to the system today, if I'm honest, because initially (after biopsy), things looked quite a bit brighter.

 

At least the nodes were clear, and a hormone receptor means I can at least try my luck keeping it at bay for a longer time (if I can stand the stuff ;-). Trying to focus on the positives. Such as (also): the weather was glorious here today.

 

All the best to all of you, whatever your results, BIG HUGS!

 

xxx Rapunzel

Member

Re: SURGERY SEPTEMBER 2018

Hi Helenann

 

Came on here to check how your results went, and I’m over the moon for you..it’s great news! 😄

 

I’m on Letrozole, have been for a few months, - and though still waiting for the bone scan results to see if I need calcium etc, I’ve been OK so far🤞🤞 ... hope it proves OK for you too, (I think there are more positives than negatives as I do think those people who have no problems with it, do not feel the need to post..)

 

You came a long way and got through it, didn’t you? Well done, and very best wishes for your continued recovery..

 

Thistle xx 

Member

Re: SURGERY SEPTEMBER 2018

Helenann, that's fantastic- so pleased for you 😊

Alex, I don't know if this is any use, but there's a website, www.predict.nhs.uk/predict_v2.1 where you can input your own info and get survival rare statistics for different treatments.

Take care, I hope you're home soon xx
Member

Re: SURGERY SEPTEMBER 2018

Helenann,

 

Congratulations on your fantastic news! So pleased to hear no chemo or radiotherapy for you. 

 

Really pleased your new inflator is behaving itself tooSmiley Happy

 

Thinking of you and sending you lots of love....

xxxx

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Re: SURGERY SEPTEMBER 2018

Oh Helenann that’s brilliant news. Such a relief for you. Sort of the same as me, the just I’m on Tamoxifen and I’m having reconstruction on the good boob because there is a difference in volume.

Feeling doubly guilty as he two ladies I met haven’t had as good results as me. The one lady I’ve been talking to constantly, said she’s devastated. I’m
Just waiting to hear exactly what’s going on but I’m so sad for her 😢. But I’m going to support her.

I’m still in hospital and noticing that the new breast is getting smaller so I’m better symmetry. So the antibiotics must be working. Still a little red in areas but so far so good! Hopefully out tomorrow xx
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Re: SURGERY SEPTEMBER 2018

Hi Ladies - all really good news for me. The cancer was as expected and hadn't spread anywhere - so no chemo and as I've had a mastectomy no need for rads either.👍

Am on Letrozole for the next 5 years and calcium tablets - as one of the SE's of Letrozole is it messes with your bones. Having a bone scan so they keep an eye on the effect the Letrozole has on me.

Surgeon even started filling my inflator today as it was 'nice and soft'. Weekly appointments to have it filled gradually - it's starting to look good already - put's my 'good' one to shame🤣 - but i've been told they will see about balancing them at some stage in the future.

Been one hell-of-a 3 months to get to this point - but I made it - with the fantastic help and support from this forum - so a great big THANKYOU to you all.💐

Love

Helen

xxx

Member

Re: SURGERY SEPTEMBER 2018

Hi Choxie it is an emotional rollercoaster we are on. I hope a walk has made you feel better. I had a lumpectomy and full lymph clearance in August and my movement in my arm is practically the same as it was before. I found swimming to be an amazing help. It completely released the tightness that I felt. I also did the exercises twice a day.
I hope that is of some help xx
Member

Re: SURGERY SEPTEMBER 2018

Hi Chocxie and all the ladies,

Mine went down from 2 and a bit tumours. The bit was growing off another one . A grade 2 to grade 1, which I was quite surprised, as if anything, I thought they’d end up a grade 3. They found traces in one node but decided they were just cells and nothing to worry about.

What’s happening in my area, they’re coming to the descion that we’ve been over treating for far too long. Some could say it’s a money saving exercise. But I do believe that they’re getting results and even though there are cells the chances of you getting cancer again are the same as if they removed them and gave chemo. Or e.g you’d get 2% chance of it coming back if you have chemo and a 3% chance of it coming back if you don’t.

I’m quite happy for now trying Tamoxifen because everything that’s gone wrong with me in the past is has always been hormone related. Couldn’t take the pill, underactive thyroid - which levels all the hormones in the body and now Hormone related breast cancer. I also used to have 34 J/K breasts. I also think, but not scientific proved that I know of, was because I over produced hormones,
My breast were massive. I did have a blood test years ago and they did say my progesterone was slightly raised but nothing to worry about.

I was ready to question my consultant, If offered chemo, the % rate of survival increase, if i was to have chemo. I forgot but you’ve now reminded, to ask him about the Tamoxifen survival rate % increase. Though I think I will give it a go before I ask. If it doesn’t suite me then that’s something to look at later xxx
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Re: SURGERY SEPTEMBER 2018

currently lopsided, but expecting biopsy from other breast to show cancer (get results tomorrow) so will go for a mastectomy that side too, to go along with the ANC from the original side.

Can't be bothered with implants or reconstruction, going to have moobs :-)

 

Member

Re: SURGERY SEPTEMBER 2018

Hi All
Good to see that we're all receiving results and at least know what the next steps will be.
Alex, I hope the antibiotics are working and you'll soon be home. Helenann, I hope today is a good day for you too.

I'm feeling a bit mixed up at the mo, to be honest. Although the results I have were good, smaller than expected and only traces in single node, I'm still definitely on the waiting and deciding wagon.
Oncotype DX being done to decide about chemo and, on top of that, the decision about whether or not to join the trial so won't know where I am for a few more weeks.

My wound and armpit are stinging a lot today. Any suggestions on how to reduce this? I'm being a good girl and doing my exercises and these do help. I know it's just nerve pain, just hoping it doesn't continue much longer.
Anyhoo, sun shining, so I think I'll go for a little walk - that should cheer me up 😊
Catch you later x
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Re: SURGERY SEPTEMBER 2018

Helenann keeping everything crossed for you today. Sending my good results vibes to you xx
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Re: SURGERY SEPTEMBER 2018

Results day for me tomorrow - can feel the anxiety building up.

I keep saying to myself that surely I'm due a 'break' in this cancer mullarkey - EVERY Wednesday results day for me so far has been bad news - so hoping to break the cycle tomorrow and get some good news for a change.🤞🤞🤞

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Re: SURGERY SEPTEMBER 2018

🤣🤣🤣🤣. Oh well at least mine are a bit more Ant n Dec! 🤣🤣🤣
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Re: SURGERY SEPTEMBER 2018

Hi Xela
I have to own up, I stole Casa NHS from the June thread. I think we all ended up there at some point and someone came up with it. it made me smile 😊

You shouldn’t feel guilty about wanting a matching pair, If we have two boobs they should be twins or at least sisters. I’m definitely having work done next year as my girls are more Arnold Schwarzenegger and Danny DeVito at the moment! 🤗
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Re: SURGERY SEPTEMBER 2018

My wait was four weeks one day
Bloody waiting game
Hoping you feel better after IV Antibiotics xx
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Re: SURGERY SEPTEMBER 2018

Pastasmissus. So are you lobsided too? I’m shattered, certainly slept better after my mastectomy. I’m currently in chaise Castle Hill Hospital for the next 48hrs on antibiotics because my implant is causing me pain and infection.

You’ve got a lot to go through.

I kid of feel guilty as I’m wanting reconstruction on the good breast but I’m 44 and still feel I’ve got a long way to go. But honestly I’m here and I will keep supporting you all 💖💖😘😘



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Re: SURGERY SEPTEMBER 2018

JacqB you have such a brilliant sense of humour with all your ditos and now ‘Casa NHS’,😂😂😂you did make me chuckle.

Don’t forget their Michelin Starred Cuisine!

Again we’ll be here for you as well 🙏🏻👍🏻
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Re: SURGERY SEPTEMBER 2018

KateDay I know the f-ing wait. I had to wait over 3wks and 4 days for this result. Also my consultant changed his surgery day to Monday and they messed up his clinic day. So he was double booked which put him an hour behind! On all days.
Well we’re all behind you KateDay and we’re staying here. Xx
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Re: SURGERY SEPTEMBER 2018

Hi JaqB - thanks for the good luck message - fingers crossed.🤞

Hope your seroma is calming down a bit as well.

Sorry you're having to go through chemo.😕

Lots of Love

Helen

xxx

Member

Re: SURGERY SEPTEMBER 2018

Almost 6 weeks since my original mastectomy and I am still shattered! Doing very little and often needing an afternoon nap. Can't believe how tired I am. And I'm sleeping fine and pain free. Expecting I will need another mastectomy along with the axillary node clearance I know I need, so more exhaustion, then the chemo and radio.....

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Re: SURGERY SEPTEMBER 2018

@kateday
that’s a complete mixed bag of news for you, talk about a rollercoaster ride. We can go through chemo together as I had my results meeting this morning and I’m booked for more chemo from the 24th. We’ve got this! 💪💗
@xela
Sending healing hugs your way and hoping you are out of casa nhs very soon. Thrilled to hear your results were so good. 🤗
Good luck tomorrow Helenann I will be thinking of you. 🤞
Jacq x
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Re: SURGERY SEPTEMBER 2018

Hi Kateday - so sorry you have to go through chemo - don't really know what else to say as I don't want to say the wrong thing while you're feeling so 'low'.

Just know we all send you love and will 'support' you as you go through these next steps.💖

Love

Helen

xxx

Member

Re: SURGERY SEPTEMBER 2018

Hey Alex don’t feel bad , I was over joyed to read your news
Today was or is just a bad day for me woke early with that awful feeling
My next stop is chemo 8 cycles but again another wait I don’t even have appointment date all I got was if you haven’t had a letter in two weeks call us
O I love this waiting game
They will genetic test now xx
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Re: SURGERY SEPTEMBER 2018

Thanks Helenann,

I’m currently back in hospital for 48 hrs. Antibiotics intravenously. It’s quite good here because we all get our own room. But then again you miss the chats with the girls.

It’s just Tamoxifen for me. Heard the bad and good sides of the drug. The BCN said if I have any trouble after about 4-5 weeks they will look at changing it. They didn’t give that option to my mother in law 20 yrs ago and she was climbing the walls with terrible side affects. She thought is was her only option. 3 years later they told her there’s others. So I’m glad they said straight away let us know. Xx
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Re: SURGERY SEPTEMBER 2018

KateDay. What’s the next step for you? Xxx
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Re: SURGERY SEPTEMBER 2018

KateDay they got it!! Please look positive on that. I felt guilty about my news. We’re all here to love and support and I’m not forgetting anyone on here xxxx
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Re: SURGERY SEPTEMBER 2018

Hi all
Well a mixture of news for me , they got it all
Not so great news triple negative grade 3
Good luck all with upcoming results xx
Member

Re: SURGERY SEPTEMBER 2018

Oh, Alex, I am SO SO SO pleased for you - thats such briliant news.👍.

How's the infection?

Whats the next stage for you - meds?

Hope Kate gets similar news.

Hope I get similar news tomorrow (results appointment at 2.30 tomorrow).

Well done to you.💖

Now its all about recovering for you - fabulous. 

Lots of love

Helen

xxx

Member

Re: SURGERY SEPTEMBER 2018

It’s gone it’s all gone! They got the **bleep**. I will always hate it because it got my breast and nipple.

It has gone from a grade 2 from biopsy to a grade 1 from the biopsy they took in Theatre. So it was even less aggressive than I thought it would be.

I hope everyone kicks this cancers arse xxxx
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Re: SURGERY SEPTEMBER 2018

Good evening
And thank you , I have been so busy today so my mind has been occupied , the sleepless nights returned few nights ago
And I will prey our outcomes are good ones
I have waited a long four weeks as other than it being IDC and PR and ER negative I know nothing else
Slightly increased nerves as I’m worried I might end up being triple negative
But I must remain calm and remember we’re warriors fighting along our paths xx
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Re: SURGERY SEPTEMBER 2018

Thanks Helenann. Im going to be climbing the walls in that waiting room tomorrow. So I hope they’re quick.

KateDay, I hope we both get the best news tomorrow and we can both 🎉 celebrate.

Same as Helenann, I hope I haven’t missed anyone else. But if you don’t mind i’ll say a prayer for everyone who is getting their results.

Love to all xxx
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Re: SURGERY SEPTEMBER 2018

Alex - good luck for tomorrow for your results - hope they get that infection under control as well.🍀

 

Kateday - good luck for your results tomorrow.🍀

 

...and anyone else that I've missed - if you're getting results tomorrow hope all goes well.

 

Sending love and hugs,

Helen

xxx

Member

Re: SURGERY SEPTEMBER 2018

Oh well can’t admit me until tomorrow. Tomorrow’s big results day too! He’s said he’d admit me a few times and the time I decide to go in, he’s got a full Theatre list and no beds!!
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Re: SURGERY SEPTEMBER 2018

Hello Kateday,

 

I only read this now - that's exactly what I call them 'jelly legs'. They're getting better but are still far away from 'normal'. I'm just taking it into my stride now and do as much as I can. 

 

Got my results appointment on Wednesday, and the anxiety monster has been rearing its head again ever since the letter arrived. From this forum I know that most of us are familiar with that response. Oh well, it is as it is, anway. Just have to wait and see.

 

All the best for you (and everyone else who happens to read this),

Rapunzel xxx