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SURGERY SEPTEMBER 2018

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Re: SURGERY SEPTEMBER 2018

Fingered crossed for you Kate that the genetics test comes back negative, and well done to you for progressing through chemo....all of you chemo ladies are my heros!!!
xxxxxx
Member

Re: SURGERY SEPTEMBER 2018

Hi ladies
Just wanted to pop in and see how you are all doing now
Time is going quickley even though it doesn’t feel like it
Cycle three of chemo for me tomorrow
Had my genetics test last week but that’s about an 8 week wait for results
I’m praying with all I have it’s negative , not because the prospect of more surgery but for my girls xx
Member

Re: SURGERY SEPTEMBER 2018

Hi Alex - so sorry to hear about your Mum - you've been put through the mill, for sure. Hope she's on the mend - and hope you're doing OK as well. 

Keep in touch when you can.

Sending love and hugs.💖😘💖

Member

Re: SURGERY SEPTEMBER 2018

Hugs to you and your mum Xela-so sorry to hear about her hip. I hope she is being well looked after by her own doctor and hope she makes a full recovery.

xxxx

Member

Re: SURGERY SEPTEMBER 2018

Hi Guys, so sorry i’m Catching up. My mum broke her hip and it was in front of me. It made everything I went through look like nothing. She’s 77 and I lost my dad 18mths ago so it hit her hard and me. It’s been such a crazy horrible 6 months. So that put me back a bit as I was dealing with everything well. I hope everything is going great with all the ladies. I’m catching up right now xxx
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Re: SURGERY SEPTEMBER 2018

Thanks you’ve helped me work through any nagging doubts I had.
Wishing you a lovely weekend too xxxx
Member

Re: SURGERY SEPTEMBER 2018

I hear you loud and clear re-your ovaries and womb....it sounds like you are in control of things Lorraine! Smiley Happy.

 

I hope you have a lovely week-end...

xxx

Member

Re: SURGERY SEPTEMBER 2018

Thanks ladies, 

both gynae and breast care are recommending ovary removal. They may have just left my fibroids alone or monitored them if it wasn’t for the breast cancer.

I’m 51 and my husband has had a vasectomy so pregnancy is not on the cards!

I have 2 lovely children and think my ovaries and womb have served their purpose!

I hope you are well following your surgery and treatment xxxx

Member

Re: SURGERY SEPTEMBER 2018

Good point PastaMissus! That's what I wondered...whether the purpose of removing L's ovaries are to reduce estrogen production and it sounds as if it is. xxxxx 

Member

Re: SURGERY SEPTEMBER 2018

Hi Lorraine, OK-good! I just wanted you to be aware of all options but you do sound switched on! Smiley Happy and great to hear that the procedure can be done laparascopically. I, too had many fibroids and still have at least one (too close to my bladder to remove safely). My consultant had told me I had a fibroid factory. I had 3 procedures (2005, 2009, 2015) to have them removed. They kept growing back (I had not gone through the menopause yet) and estrogen apparently helps them grow, so I am hoping that now I'm on Letrozole, and post menopausal, they may shrink. I've always had a "bulky" tummy-as if pregnant, as a result of my fibroids. 

 

Good good luck with your procedure.....sending lots of love...

xxx

Member

Re: SURGERY SEPTEMBER 2018

It's not the fibroids that are the issue with the breast cancer, it's the ovaries. Leaving the ovaries means oestrogen keeps getting produced. If you remove the ovaries you remove all possibility of future pregnancy anyway.

Member

Re: SURGERY SEPTEMBER 2018

Thanks Marla,

 

I have been told by my consultant that the whole hysterectomy should be possible via laparoscopy.

I have lots of little fibroids lining my womb and one big one. Unfortunately, I don’t think removing them is an option. Thanks for your advice and information.

I’m reasonably happy with my decision but will continue to read up before I go ahead,

best wishes, Lorraine xx

Member

Re: SURGERY SEPTEMBER 2018

Hi Lorraine,

 

Thanks for the additional info. We're the same age and I, too am Estrogen +.

 

OK-so a cricket ball is a fair size, and this might mean that it is too big to remove laparascopically, *however* it *is* possible to shrink fibroids such that they can be removed laparascopically; you can ask your doctor about this. Here is some info. about this:

 

http://www.adrianlower.com/conditions-treated/uterine-fibroids.html

 

If it is your decision to have the hysterectomy, then please disregard the aboveSmiley Happy. It is 100% your decision; I  just wanted to share with you my own experience because for many women, depending on size of fibroids, etc. it *is* possible to remove them without having to have a hysterectomy & we should always be advised about *all* of the options open to us.

 

As an aside, my mother had a hysterectomy (1982) at the age of 39 (she, too had fibroids) and obviously could not have any more children (I'm an only child) so I feel very strongly about women having options and knowing the full story about their individual situations before they agree to have a hysterectomy. 

 

Re-the menopause: there is a hormone (blood) test they can give you to determine where you're at. I'm most definitely post menopausal and so Letrozole was the obvious choice for me re-hormone therapy & it makes sense you are now being prescribed Anastrozole. 

xxx

 

Member

Re: SURGERY SEPTEMBER 2018

Thanks Marla,

one of my fibroids is the size of a cricket ball. I had a coil to alleviate heavy bleeding but that had to be removed due to BC and mastectomy. My cancer was oestrogen positive so gynae and my breast surgeon think ovary removal and switching from tamoxifen to Anastrozole will be better for me.

(I’m 51 and they are unsure where I am regarding the menopause as the coil was masking my symptoms).

Thanks for your advice xx

Member

Re: SURGERY SEPTEMBER 2018

Hi Lorraine,

 

I don't know enough about your situation (age, detailed medical in's and out's) but for what it's worth...I had (and still have-they keep growingSmiley Happy) fibroids, and have had three laparascopic myomectomies to have them removed...all done by a fantastic surgeon in London who specialises in keyhole surgery. I was able to avoid a hysterectomy. Mine were not cancerous either and I chose keyhole surgery so that I could still preserve my tubes/ovaries/uterus. There may be a reason you are being advised, or are choosing a full hysterectomy but I thought I'd mention it because there are a handful of surgeons who remove fibroids via keyhole surgery and they can spare you the tube and ovary removal.

xxx

 

Member

Re: SURGERY SEPTEMBER 2018

Just back from my gynaecology oncology appointment.

We discussed full hysterectomy inc tube and ovary removal - due to a large fibroid and ovary removal will mean I can switch from Tamoxifen to Anastrozole.

They will try to push for an appointment soon as I am still off work and have been advised that it is better to have one prolonged period of sickness than 2 shorter ones.

There may be a wait of up to 3 months! They are not as speedy as breast care.

Can any of you lovely ladies give me and tips and advice about the surgery?

Also Tamoxifen/ Anastrozole.

I have had great advice from my hospital but it is good to hear from people who have been through it, or are taking the medication.

Thanks, Lorraine

Member

Re: SURGERY SEPTEMBER 2018

Thanks very much Helenann! My father is here and leaves on Sunday. I'm really happy to hear your osteoporosis was picked up and is now being treated. You have prompted me to ask my oncologist (again) re-a bone density scan. She doesn't seem in too much in a hurry to check it outSmiley Happy

xxx 

Member

Re: SURGERY SEPTEMBER 2018

Thank you for the welcome Helen,

 

my reconstruction was the Braxon over the muscle type. I’m pleased with the results visually but they do feel strange. However, they are gradually becoming normal to me.

I’ll post information about my hospital appointment tomorrow, it may help someone going through similar.

take care, Lorraine xxx

Member

Re: SURGERY SEPTEMBER 2018

Hi Lorraine - you're more than welcome to join us here on Surgery September - a shame you didn't find us sooner - but I'm sure you'll find us very supportive of you as you move forward. Its been a life saver for me at times.

If you think of anything you would have liked to say or ask as you were going through surgery feel free to do so now - and if there's anyone can help they'll be along before you know it.

I had a right mastectomy on 24th September with immediate reconstruction - tissue expander type, so ongoing at the moment. No chemo or radiotherapy either - I'm on Letrozole - and diagnosed with osteoporosis yesterday so on some other meds for that.

Good Luck for tomorrow - come back on here and let us know how you got on.💖🍀🍀🍀

 

Hi Marla - thanks for your reply to my 'woes' - talking loads of sense as usual - having had time to reflect and look things up on osteoporosis it might be a blessing it was found now - and it is getting treated - so all good. Have a great time with your Dad.(I seen on another post he's due over here soon💝) xxx

Member

Re: SURGERY SEPTEMBER 2018

Hi all,

I had surgery in September but I didn’t find this forum until a week ago.

Ive just found this page and read through most of the posts.

It is reassuring to know there are others ‘like me’ out there 😊😍

I had a double mastectomy with skin and nipple saving reconstruction.

Histology came back as grade 1, 2 tumours, biggest 7.5mm

No radiotherapy nor chemotherapy.

I’m taking tamoxifen, healing well but did have a localised skin infection a few weeks ago and panicked that my body was rejecting my new boobs,

I find out tomorrow whether I need hysterectomy, tube & ovary removal (fibroids not cancer)

I’m mostly feeling positive, not emotional and trying to get my fitness levels up a bit.

 

Wishing all of my ‘September sisters’ well, Lorraine xxx