13-01-2019 02:01 PM
You are absolutely right. It is so easy to compare, not only in terms of treatment, but also regarding our prognosis. We are all individuals and we must have faith that our oncologists are going to try their very best to go for a full cure, and carry out treatment that they believe is in our best interests.
I wish you well
13-01-2019 12:12 PM - edited 13-01-2019 12:19 PM
Awwww...thanks very much Jane for the 👍. xxx
To put a different slant on the above...I'm only too aware that the nature of BC is such that it is very easy to get competitive...not necessarily with the *intent* of wanting to see oneself or another's situation as better or worse, but the very fact that we all share our own diagnoses, stories, experiences, treatment plans...lends itself to comparing notes, even when it's unhelpful. And it has become very obvious to me that different teams/surgeons/oncologists work differently and therefore make different recommendations, and we mustn't get into the habit of thinking "mine is right and yours is wrong" (or vice-versa). What is right for one, may not be right, or may not work, for someone else.
We should all be using this forum to inform ourselves, and to help us make better choices-the right choices for *us*. Not to compete, or put doubts into someone else's mind as to whether their team knows what they are doing, etc. (I've digressed slightly-sorry) .
13-01-2019 10:24 AM
Wow-it sounds like you've had your hands full with mum's health and your housemove, on top of your own health issues! Never ever say or think "others have it worse" (or others had to go through a lot worse)-you know why? Because it will make you feel bad for feeling bad. Everyone's problems and situation are as important as another's and the truth is that there will always be somebody who has it a lot worse, but also others who don't. We all matter. We are all important and we are all suffering in our own way.
So pleased to hear that you've got support for your depression.
Good good luck with your house move tomorrow and I hope your first night sleep in your new home is a positive experience.
12-01-2019 10:25 PM
17-12-2018 11:16 AM - edited 22-12-2018 11:29 AM
I'm so thrilled to hear you are doing well and had your last fill of your tissue expander-hurray!
I'm so behind in replies on here-I've just come back from 2 weeks in the Canary Islands...a well needed break but was sick from Day 3 of 14 and am still congested!
I, too, am struggling with low mood on the Letrozole but am trying to apply my own therapeutic tools on myseld "therapist heal thyself". My NY resolution is to DO LESS. I realised whilst on holiday just how much pressure I put myself under at work, and at home (keeping up with chores, tasks) and I do think it has been killing me.
Like you Helenann, I've been off work since Oct. and admittedly I have felt slightly a "fraud" given I never had surgery in the end, but the whole emotional trauma of this diagnosis, and "you're having surgery" to "I'm not ready for surgery" has really thrown me. I thought I'd be able to take my 2 weeks away and just process the last 3 months but truthfully I think I was in avoidant mode whilst away (though am trying to be forgiving of myself because I *was* so poorly). So this Christmas is going to be a quiet one...not having family visit and not visiting family (they are abroad)-it's my choice, and I feel good about it. I just want some "me-time" and time to think, and plan, etc. I am also hoping to move house (if I find one I like) next year so that's also a priority and a time consuming one.
I love hearing how you are doing, and if we weren't all so spread out across the country I'd suggest a get together over Christmas....would be lovely to meet some of you in person. Perhaps we can organise something well in advance so those of us who need accomodation can arrange it.
Sending lots of love....
16-12-2018 11:24 AM
Wishing you luck with your chemo. Just wanted to let you know that I used the cold cap throughout my chemo and I kept about 60% of my hair. If you decide to give the cold cap a try, then I would advise that you take painkillers half an hour before, and try to withstand it for the first ten minutes. After that, it becomes more bearable.
My hair was thinner but remained just below my chin. I finished my last chemo on 10th October and my hair is growing back at a rate of knots! I had it cut into a short bob today, and everyone says you can't tell I have even had chemo, as it now looks much thicker as the more 'wispy' longer hair has been removed. I have been using ' mane and tail shampoo' which you can get from Amazon or Boots etc and it is meant to promote hair growth.
My radiotherapy starts on 18th December. Like you, I feel it's a pain before Christmas and I was ready to start it earlier but they hadn't got any availability. But it's another thing to tick off.
Best wishes with your continuing treatment.
15-12-2018 07:18 PM
12-12-2018 12:12 PM
start chemo 20 December!!!
Glad to get started, but it's a pain it's before Christmas. But rather then than wait until 7 Jan. Saw the oncologist today, having a think about whether to do 3 FEC then 3 FEC-T or just to stick to FEC.
Appointment with hairdresser for Wednesday to get my long hair cut very short!
11-12-2018 06:55 PM
Kateday - so sorry its so horrible for you 😪- how many more 'sessions' do you have to have? I agree about getting loads of sleep -will do you the world of good, and also I agree in lots of ways time seems to stand still yet flies by at the same time. I find myself wishing my life away some times waiting for the next appointment so I can move forward a little more.xxx
Pastasmissus - You've been through the mill for sure - glad all the surgery is done. Good luck for tomorrow 🍀- be sure to let us know how it goes. xxx
11-12-2018 04:13 PM
Having had the original mastectomy in Sptember, they then found cancer in the other breast on MRI and biopsy. So ended up having another mastectomy with ANC of the original side in November. Go to see oncologist tomorrow to talk about chemo and radio. At least that's the surgery finally finished with!
11-12-2018 01:37 PM
11-12-2018 01:18 PM
Hi Kateday, Marla and all you lovely September ladies.
I'm doing well - have had my last fill of my tissue expander - now just waiting to get it replaced with a permanent one, which will be Feb or March next year.
I'm still off work but am looking to go back early in the New year.
Kateday - hope you're 'coping' with the chemo and good luck for the genetis results - be sure and let us know.
Marla - how are you doing on the Letrozole? Have you had the DEXA scan yet?
Keep in touch everyone when you can. xxx
09-12-2018 11:05 PM
20-11-2018 11:05 AM
Hi Alex - so sorry to hear about your Mum - you've been put through the mill, for sure. Hope she's on the mend - and hope you're doing OK as well.
Keep in touch when you can.
Sending love and hugs.💖😘💖
19-11-2018 07:45 PM