Good to 'hear' from you - Hope you had a great Christmas and New Year. It's great you have your family here for a while - how long are they here for?
I think it's bad that you haven't had your follow up appointment - it's such an anxious time and if you had a date it would be easier for you i'm sure - it would be even better if your family were still here to support you -whatever the outcome. If the BCN is not replying to e-mails do you have a phone number for your consultant's secretary - I'd be phoning them I think.
I had a good Christmas and New Year but I've developed a really bad cough which is getting worse each day. I ended up going to my doctor and he has sent me for a chest x-ray - which I had today. I just hope nothing 'bad' shows up on it now. I'm sure it's my mind going into overdrive and imagining every ache and pain is something serious.
I know what you mean about feeling 'weepy' - I did end up crying at the doctors yesterday - no idea why.
I'm hoping to go back to work the week after next on 14th Jan - thats the plan anyway - although I will have to have more time off to have the implant exchanged etc.
Take care and keep in touch
Hi Carol Lina
Happy New Year! It is so nice to read your post, and you sound so much happier. The family being with you must give you such a boost!
I went back to work on Wednesday, mornings only until my radiotherapy finishes on 10th January. I am not working today though.
I have had ten radiotherapy sessions and I have found them really easy. No tiredness or soreness. I can't wait to ring that bell. I still have to have Herceptin injections, three weekly, til June, but there have been no side-effects, so I will feel that next Thursday is really the end of treatment ( until my reconstruction !).
Good luck with the rest of your treatment
Love Jane xx
Thank you, I'm really pleased for you. i think its important that we hear the positive outcomes as well as the risks. I will continue to do my research, so thank you for the link. Problem with research is I have hundreds of questions now in my head (LOl)
Thank you all again. Cel
Touch wood the radiotherapy didn’t affect my implant - I don’t know if it can impact further down the line, I’m 18 months post surgery so hoping all is stable now. Google “pre pectoral implant with Braxon” if you would like more info on the implant I had.
It’s always tough weighing up the options especially when different surgeons are prepared to offer different options. All the best and I’m happy to answer any more questions any time.
Thank you for your reply. From my own research one of the issues with radiotherapy first is that some reconstruction surgeons are concerned with the quality of the skin post radiotherapy and this can reduce their options or what they can do afterwards - so this seem a risk also to me to wait post radiotherapy. I want to see both surgeons before i finalise my decision - if I'm given an option - and be able to have all the information to hand. its the only way i know personally that i will be comfortable with what i finally have to proceed with.
I do hope your reconstruction goes excellently - good luck and if you feel up to it keep me and other forum members posted?
Thank you that is really helpful, especially to know that your consultants were prepared to go with the immediate reconstruction. I may have to have an implant subject to another surgeon reviewing me this week about the autologous option - so yes it would be nice to hear how your radiotherapy has impacted - if at all. Please do let me know.
Whilst they tell you the risk - e.g. with implant approx 26-28% of capsulisation or other skin tightening issues , they don't say that this mean 72% of women were fine.
Welcome to the forum, where you will find lots of support and understanding. You may want to find the chats with ladies who didn’t have a reconstruction, as they will be able to answer all your questions. Try searching on here for an appropriate thread or call the helpline.
If you have concerns about the fluid do give your BCN a call as she will be able to reassure you. Itching around the sites is very normal, but again do speak to your BCN if anything at all is worrying you.
Big hugs to you
I wanted to wish you all the best for your operation on 2 Jan. Sorry to hear that you are going through it again. Your first post was very positive, but it’s totally understandable to have a wobble while in M&S. You will wear nice underwear again. You’ve already had lots of good info from other ladies, so I’ll just second what they have said. The drain bag was really useful - I got mine from Drain Dollies, but for anyone reading this who can’t get hold of one in time you can definitely make some sort of device yourself so that you can walk around and not worry about the drains. Also front opening clothes are a must, it took me a long time to be able to get clothes over my head and my arms in that way (I also had node clearance).
I’ve just read your post asking about immediate reconstruction and just want to offer my own experience. I had a mastectomy about 18 months ago with immediate recon using an implant. I then went on to have radiotherapy after that. I too was advised about the risks but I had a “pre pectoral” (on top of the muscles) implant held inside a Braxon mesh which I was told reduced the risks of radiotherapy damaging it. I think though that you would prefer a recon using your own tissue. I’m happy to answer any questions if you decide to go for an implant. All the very best to you for your operation and recovery, and deciding which option to go for.
Hi I have just had a lumpectomy and unfortunately they found the lump was twice the size the MRI scan showed. therefore my surgeon has advised i now move to a full mastectomy. I want to have immediate reconstruction, but my surgeon is reluctant stating that radiotherapy may impact quality of it - i have undertaken my own research and understand the risks, but immediate reconstruction ( autologous) not implant is my preference, and this appears to carry less risk of being impacted by radiotherapy than an implant also.
Can any of you ladies who have had immediate reconstruction advise if you have had follow up radiotherapy and how that went?