28-12-2018 11:06 PM
28-12-2018 08:45 PM
Hi stargazer 1, I had my mastectomy on 7th Dec and had an immediate reconstruction with implant. My drains are still in place as they are still draining over 50ml per day and my surgeon won’t take them out until they are below 20 for 2 days.
ive had no pain from my surgery at all, a bit of discomfort and tightness but nothing more. The drains are a nuisance but you soon learn to live with them. A drain bag is a must ( I got mine from the cancer research on line shop ). I actually purchased a gift pack of soft velvet heart shaped cushion for under my arm - a godsend - a padded cushion to protect you from the seatbelt, a plain black cord drain bag - very discreet, and an eye mask. There is a Facebook group called Jens Friends who will also send you heart shaped cushions for just the cost of the postage. These are much firmer so I use them whilst I’m sleeping to keep my armpit comfy ( who knew ).
i only take paracetamol and ibuprofen ( and now tamoxifen ) so can still enjoy an occasional glass of wine which has been nice over Xmas.
im allergic to waterproof dressings so have now gone 3 weeks having a strip down wash and washing my hair over the sink. Deep joy today they are trying silicon dressings so tomorrow I’m having my first shower. Suspect my drains won’t come out for another week. Hopefully like me you’ll be amazed how well you feel after the surgery, I stayed in one night because of the reconstruction and low bp but honestly felt I could have come home the same day.
if you have any questions don’t hesitate to ask, stay strong and keep your chin up xx Melanie
28-12-2018 06:31 PM
26-12-2018 08:48 PM
Dear Starglazer, I had a mastectomy 3years ago, with a reconstruction, left hospital with next day with two drains, was suggested I used soft sports bra for a week or so after approximately 5 days of all goes well your drains will be removed you will then be able to shower, this is a bit uncomfortable, however gets better each day. I put my drains in a little bag with a handle as suggested by BC nurses to carry around with me.
Hope all goes well for you, have lots of rest and take good care BRAVE LADY.
BIG HUGS TILI
26-12-2018 07:25 PM
Hi.After previously having bc 5 years ago, a lumpectomy and radiotherapy I have just found out I have another primary cancer in the same breast. I am having a mastectomy on the 2 Jan with an expander implant. I am actually coping quite well, even though i say this myself!, but i like to be prepared and cannot find any information on what I should wear immediately after the mx? I will have 2 drains fitted, what are these like? what will i be albe to wear when i am home from hospital? how will i shower with the drains? will they just hang there? Im sorry for so many questions but I need to be prepared for next week xxx
24-12-2018 08:58 AM
21-12-2018 02:51 PM
I echo what Helenann has written. Please don't feel bad. As she said, it's traumatic having any surgery. I will really hope and pray that they have got clear margins. If there had been any chance of my having a lumpectomy instead of a mastectomy then I would have jumped at the chance!
Try not to worry about the future, and also don't worry about the cost to the NHS for your treatment. We all contribute and I can assure you that I would far rather be still in the position that I was paying for other people's treatment, rather than having to go through it myself. But it is what it is, and thank goodness that we have the NHS.
Please try to enjoy Christmas and I hope you find peace.
Love Jane xx
21-12-2018 01:11 PM - edited 21-12-2018 02:57 PM
Dear Carol- you don't 'owe' anyone an explanation. What you have been through is VERY traumatic. I'm just so pleased for you that the medical team gave you the choice to try for a lumpectomy (This is still a big operation, so don't feel 'bad' that you haven't had a mastectomy).
I'm glad we were here to give you support and help with our own experiences - it doesn't matter where you're from.
You've obviously had the added stress of all this Brexit stuff to deal with. I really hope it all works out for you and your husband.From what you say I don't consider you a 'guest' here - sounds like you both work hard and as you said pay your taxes etc - so you're just as entitled to treatment under the NHS as anyone - so don't ever feel like 'bad' about it.
Now try and put this to the back of your mind for now, have a good Christmas.
You're only young- in one way much worse for you being diagnosed at such a young age - but with youth on your side hopefully you'll be fit enough to get through any treatment you may need in the future (im 62 so a wise old head hopefully).
I'll say a prayer and light a candle for you over Christmas.
You take good care of yourself- aches and pains will subside as time goes on. Take paracetamol and ibuprofen for now. Much love, Helen😍😍😍xxx
21-12-2018 11:44 AM
21-12-2018 11:37 AM
21-12-2018 11:29 AM
18-12-2018 02:37 PM
hi Carol Lina,
It is good that you are sounding more positive. I see that you had a lumpectomy rather than mastectomy. I am glad a decision was made with no more delays!
I had my first radiotherapy this morning! I have no effects so far.
Our daughter was back from Uni on Friday, and our son came home from his internship , for the weekend, so we were all together, which made me very happy!! He comes home for the Christmas break this Thursday, so we will have a lovely Christmas, and I must say, I appreciate my family and friends even more, after my diagnosis.
Happy Christmas to you and enjoy your family reunion soon.
Love Jane xxx
18-12-2018 01:56 PM
18-12-2018 01:52 PM
17-12-2018 10:53 AM
Hi Carol -Thanks for posting your update - I've been thinking about you. Great that you were eventually given the choice and well done on geting through the lumpectomy surgery. Don't worry too much about any scar you might have when the dressing comes off - scars fade and you can use all sorts of nice creams and oils to help them fade quicker.
It's quite usual to feel sick after an anaesthetic, I think - I know I felt sick but it soon passes.
I think Asda do some post surgery bra's that are quite reasonably priced - might be worth a look.
When do you go back for your results? Will keep my fingers crossed for you🤞.
I'm doing really well, thanks, starting to feel like 'me' again.
Take care and do keep in touch.
Love, Helen. xxx
16-12-2018 08:02 PM
05-12-2018 08:40 AM - edited 05-12-2018 08:41 AM
Thank you Carol Lina,
It sounds like you have had similar frustrations to me. I think we just have to accept that we are just one of many many people, so there are bound to be administration errors at times.
Thank you for your good wishes about my forthcoming radiotherapy. I hope you are right! It will be fifteen sessions, Monday to Friday, but due to Christmas Day, Boxing Day and New Year's Day, it will extend to 10th January.
They just phoned again yesterday and said they need another scan whilst I hold my breath ( as my breast cancer was left breast and it will protect my heart if I hold my breath during the radiotherapy. I had read up on this, but when they took the scan they told me to breathe normally, and then they said, as I was leaving, that they might call me back if the oncologist decided he wanted another scan with my breath held.). So they asked me to ' pop back' tomorrow for another scan. If it's anything like last time then that will be another four hours out of my day! I don't mind while I am off work, but that is why I have asked them if there is any chance of bringing the appointments forward as I really want to complete them before I go back to work. ( They have said it is really unlikely).
04-12-2018 07:31 PM