Member
Posts: 47
Registered: ‎02-03-2017

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Carole

my surgery next thursday, its horrid isnt it? my anxiety not good at moment. I think i see how other peoples first diagnosis changes and the fear is awful...trying to be possitve....big hugs x

Member
Posts: 83
Registered: ‎16-03-2017

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Hi Millie
My surgery will also be 9 weeks or so from diagnosis. The wait is unbearable and mine feels so much worse now. I haven't had MRI and I have just had a chest X-ray which I asked my GP for as I have chest/rib pain. Today they said it is normal so that's good. I also have an ache under my arm and breast pain so hoping it's not gone to LNs.
I'm getting a lot of back ache too. I'm trying to not worry about all the aches and pains and put it all down to stress, but it is so worrying. I just want the mx done and still have 2 more weeks to go. Good luck with yours.
Member
Posts: 47
Registered: ‎02-03-2017

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

hi ladies

my surgery is 11th may double mastectomy with immediate sillicone implants, matrix sling............ that will be 9 weeks from diagnosis !!  i am also feeling pain under arm and presuming something will come back on lymph nodes although mri and ultra looked ok....have a ct scan monday evening to check chest wall as hurts when i breathe.....i am petrified of what i shall wake up to but need this cancer out !!xx

Member
Posts: 83
Registered: ‎16-03-2017

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Hi Delly, I'm still enduring the long 5 week wait for my mx and reconstruction. My surgery is on 12 May and I've done everything I can to bring it forward but although they've tried the hospital can't get me in earlier. In this time my boob and underarm have got more uncomfortable and sometimes painful so of course I'm freaking out with it all. Getting very stressed and not slept more than a few hours a night since February.
I just want the cancer out ASAP and to know that it's not gone into LN during the long wait. At least my hospital has the machine to test the SLN during my op and if necessary clear the rest during surgery. I will also know LN diagnosis straight after surgery.
I am having expanding implant with port on rib and also the matrix sling at the bottom. We can decide later if we want to change it for the silicone implant. Both have a lifetime guarantee so don't have to change it if we're happy with it.
Member
Posts: 48
Registered: ‎10-01-2017

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

No probs Delly - I know you were absolutely trying to help and no offence taken.  Also I'm sorry if I sounded dismissive. xx

Member
Posts: 1,389
Registered: ‎03-09-2014

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Yeh Millie - get rid of the bu**er BC. I think many of the stories of "messy" recons may be related to having to have radiotherapy as well - not many due to otherwise?!

Have you a date for your surgery?? Please let us know.

Argy and Carole M - how are you doin?? Argymargy, my last post to you may have come across as somewhat belligerent! It wasn't. I was merely concerned that you'd got all your info correct ref implants/procedures, that's all - no offence meant. 

Love to you all xxxxxxx

Member
Posts: 47
Registered: ‎02-03-2017

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Thankyou.....im hopeful .......so many scarey stories of messy implants etc, just want this cancer outx

Member
Posts: 1,389
Registered: ‎03-09-2014

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Ps. That's HUGE, massive major surgery for you. I'm so sorry you're having to go through it flower. But I hope it gives you hope and positivity, to know that others on here have been through the same, or similar - and that we're here for you. Much love to you Millie67 xxxxxxxxxxxxxxxxx
Member
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Registered: ‎03-09-2014

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Millie, I think you'll be very surprised as to what you'll wake up to and will be able to do. Pain management wise - it's most important that you take painkillers before you sleep at night, to provide you with that much needed rest, and don't wake yourself up with your body movements at night, when you're wanting to shift your position. xxxxx Please do keep us in touch. When is your op scheduled for?? Of course you're "petrified" - we can all sooooo relate to that, darlin girl. xxxxxx
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Posts: 47
Registered: ‎02-03-2017

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Delly

sorry for late reply not been on in a while

i am having bilateral mastectomy with immediate reconstruction sillicon implants, they sent me to plastic surgeon to meet but he didnt think the tummy one was suitable for me ...i feel a bit better with it but still petrified to have it done, of what i will wake up to? also pain wise  etc as to how much i can do ? brush hair wash loo etc, so hard to know Smiley Sad xx

Member
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Registered: ‎03-09-2014

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Hi again Argy,

Considering the whole of my last post was based on your "Delly, I don't think "anyone has suggested" that expanders are a permanent option"??, which it WAS suggested. Smiley Frustrated  And was also based on the info provided by the other "posters" on this thread,- I'm somewhat confused that you think "we're on the same page" Smiley Frustrated when we aren't really. Hence my stressing to al othersl here, to ensure that you make sure you're information is correct.

Love to you though Argy Smiley Frustrated, and all others

Delly xxxxxx Heart 
 

Member
Posts: 48
Registered: ‎10-01-2017

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Thanks Delly.  I think we're on the same page Smiley Happy   I agree that yes, methods do change all the time (thank goodness for progress!) and yes, hospitals do offer different options (although NICE guidance states that all reconstruction options should be discussed with patients even if they aren't available at the hospital concerned).

Member
Posts: 1,389
Registered: ‎03-09-2014

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Hi Argymargy,

Ref expander implants and "leaving in", I was referring back to Carol M's post 10.04. where she's stating she'd have the "option of having the port removed and leaving the expander in, or changing it for a silicone one". I haven't heard of "expanders" being left in, hence my surprise as to whether this is now a new option, or concern as to whether Carol M may possibly have confused her information.

In my own post of 12. 04. I was referring to my own "expanders", which also have a silicone "shell" and have "frontal" ports, as opposed to underarm ports as with Carol's, and that mine DO have to be replaced with silicone - no option to leave them in.

The differences mentioned by others have confused me somewhat, as to whether methods have changed, and/or that certain different hospitals offer different options. OR that the persons posting may be possibly confused in their info, hence my stressing the importance for them to make sure their info is correct. THAT is my concern. Very easy when you're going through so much, at the actual time, to only half hear what is being said. Myself having considered all the pre-op options, 10 yrs ago, and it having "back fired" on me, have then spent 10 yrs POST diagnosis, looking into all recon options, albeit then with the differences of "delayed" recon, as opposed to "immediate", but WITHOUT being so overburdened with the initial shock of cancer diag AND all the possibilities/choices recon wise.

 

The whole point of this post, is that you NEED to make sure that all your information is correct. If you have any doubts or confusion about ANYthing, call a halt to get it sorted. Don't just get carried along on what the medics "think" would be best for you - question why on EVERYthing, make a nuisance of yourself if you need to - YOU need to be happy with your decision.It may turn out to be what the medics suggest actually IS right, but sometimes it IS'NT.

 

Much love to all of you

Delly xxxxxx 

Member
Posts: 83
Registered: ‎16-03-2017

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Pretty sure my surgeon said that both the expander and the silicone implants now have a lifetime guarantee.  From what I remember he said I'd have the option of leaving the expander in permanently or taking it out when it's the right size and changing it for tearshaped silicone at that time.   Think I'd definitely prefer to change to the silicone at that time. 

He also talked about reducing my good boob and giving it a lift later on.  I

Member
Posts: 48
Registered: ‎10-01-2017

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Yes lots to consider Carole M.  I've found it valuable to ask lots of questions, be comfortable to ask clinicians to repeat things and have a friend with me who I can bounce things off later.  Best of luck with your treatment.

 

Delly I don't think anyone has suggested that expanders are a permanent option.

Member
Posts: 1,389
Registered: ‎03-09-2014

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Hi Millie,

You haven't provided much info on what you've already had, BC treatment wise. 

Immediate reconstruction means - at the same time as your mastectomy. I had mastectomies withOUT immediate recon, so have ended up having to have recon in later years, and from a different starting point of having no boob tissue to work with at all.

They are restricted as to what they CAN do, to provide you with a happy, acceptable result and size. I don't know what area of the country you are, but these days, there is so much more that can be done to provide you with a less "stuck on/ 1/2 sperical mounds" result, with the advent of the "anatomically, tear shaped" silicone implants.

Sounds like you're having to have a single mastectomy? and then they'll match your other healthy breast to your recon one, size wise, at a later stage, i.e. reduce it size wise to match? Is that right??

Can I suggest, that before you go ahead with any surgery, that you get as much info as possible, from the BCC info leaflets on reconstruction directly available from this site, your Breast Care Nurses, even seek/ask for a second opinion from a different surgeon, be that a specialist breast "plastic" surgeon, or another "onco-plastic" surgeon. 

AND . . . there are sooo many other options available to you surgery wise, than just "silicone implant" surgery. I'm surprised ( shocked ) that you haven't had all the other options of "self tissue" recon surgery explained and offered to you, but I'm going off the small amount of info that you've provided us with.

Let us know

Much love to you

Delly xxxxxx

Member
Posts: 47
Registered: ‎02-03-2017

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

[ Edited ]

I am also due dmx with immediate reconstruction but they have said max c cup. I am a DD........they said silicone implants does that mean immediate??? They as tld me that I will not very look like I have boobs and fit a bra just mounds. ...I just wanna give upc

Member
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Registered: ‎03-09-2014

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Hi Girlies

I've not heard of saline expanders that can be left in? only temporary ones to gradually stretch to the required size, such as those that I still have in, to then be replaced with the permanent silicone ones. Yes, the outer shell of these are silicone, with ports at the front that make them less likely to irritate the underarm area and easier to inject into. But are only advisable to leave in for a max of 1 1/2 - 2 years, which I've gone long over, due to falling off the recon horse at the 6 month desired expansion size stage, which was 2 yrs ago. Am presuming the "sell by" date is because their outer silicone shell is quite fine, and apt to rupture if left in longer. Fortunately, they're okay, albeit slightly mis-shapen now, but the replacement silicones are likely to pull out any of mis-shapeness.

The differences may be down to the fact that mine is delayed recon from mastectomies 10 and 11 yrs ago, so from a "nothing there" position. I'd wanted and asked for immediate recon, but had a switch of surgeon due to my initial one retiring, and miscommunication with the second surgeon, who thought I was wanting self tissue recon, which I didn't ever want, but he specialised in and tended to push. Would and could have been sorted out and finished, all those years ago, but not having ANY boobs and still being single, resulted in years of debilitating depression, with a few other major life factors delaying things further.

As you so quite rightly said, Carol, a load of info to get right, get your head round, and decide on.

 

Good luck girls

Much love, Dellypoos xxxxxxxxx 

Member
Posts: 83
Registered: ‎16-03-2017

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Thank you Argymargy.  There's so much to learn and make decisions on, isn't there?

Member
Posts: 48
Registered: ‎10-01-2017

Re: Help! I need MX and surgeon asked me to consider immediate reconstruction options.

Hi Carole M.  Sorry for butting in - just thought I would add that I have what you are describing.  The implant does contain a certain amount of silicone, as well as an expander that gets gradually filled with saline to stretch the skin.  It is "temporary" so when I have my final reconstruction (probably next year) it will be replaced.  I could have a "permanent" silicone implant but more likely I will have a breast made out of my own tissue, either from my back or my inner thigh.  I think the strattice will remain to support the final item.  The important thing about the temporary implant/expander is that I will have radiotherapy after I finish chemo and that can cause damage, so better to damage a temporary implant than damage my own tissue.  Hope that helps!