Member
Posts: 70
Registered: ‎22-06-2018

Re: Feel like a fraud

Morning Ladies

 

Just popped into say hello - we are on holiday in the south of France at the moment but I wanted to see how you all were.

Jude, I’m so glad you had a great day at the races and you looked absolutely gorgeous in the photo! Beautiful lady in your stunning outfit. I can imagine that you felt tired afterwards and hope that you had a relaxing weekend to make up for it.

 

Jem, well done you for all this walking! It is very therapeutic and good for you physically too. I think you’ll find it gets easier. I realise now that I can’t walk quite a long way without feeling tired now - the old body is getting there!!! You hang on in there and continue to improve. 

 

Glad your rads are finished Yorkshire Tyke, Elaine. Hope you’re feeling well too.

Take care all of you and I’m sending love and hugs from France.

Love Rosie xxx

Member
Posts: 195
Registered: ‎23-06-2018

Re: Feel like a fraud

Life revolving** around appointments 😂😂
Member
Posts: 195
Registered: ‎23-06-2018

Re: Feel like a fraud

Hi Elaine

Thanks for the additional info on the rads process - I’ve got an appointment on Wednesday with a radiotherapy consultant from St James but I’m seeing her at Bradford Royal Infirmary so it’s possibly just to check the scar area & to discuss timescales. I’ve had a cardiac rest test today at BRI & am seeing the oncologist next week so am starting to feel like a proper patient! Life receiving around appointments!
Hope your skin gets back to normal ASAP & you can start to relax & enjoy life to the full

Go swim with those turtles 🐢

Take care

Jude x


Member
Posts: 19
Registered: ‎06-07-2018

Re: Feel like a fraud

Hi Jude,

 

I'm so happy you had such a fun day out, and the mental image of you sat in full war paint and no wig did make me giggle!

 

To be honest it felt like an anti climax when I finished the rads. My life is basically back to normal now. Although I applied for an got a new job in the midst of all the chaos!

 

The redness and itchy skin peeked on Friday and has now started to settle down, whilst my sun tanned armpit looks to be honest bruised but is in no way painful!

 

You will have an appointment with the nurse to check your skin on the day of your last appointment (and if you have any problems just tell them and the will refer you to the out patients ward if necessary - that how I got to the bottom of my infection) and another one 6 weeks later. Mine is with my breast cancer nurse back in Harrogate.

 

I suspect that, that is when I will find out how often I have to go to clinic for a check-up. I know the mammogram will be annual but I'm not so sure about the medication reviews.

 

I hope you had a restful weekend

 

Elaine

 

 

Member
Posts: 195
Registered: ‎23-06-2018

Re: Feel like a fraud

Hi Jem

Well done on the walking, I’ve been trying to walk a little everyday, last weekend before chemo I got up to 5.5km so am trying to build myself up. My plan is to do couch to 5k running by end of next March!! I love a plan!
Sounds like you have a busy weekend - have a great time, try not to overdo it
I’m having a settee day today

Take cate

Jude x
Member
Posts: 255
Registered: ‎18-04-2018

Re: Feel like a fraud

Hi Jude
So pleased you had a great day- well done you 😊
You made me smile with you say there bald, make up on 😆
I too have dark blue nails - docetaxel can effect your nails. My fingers hurt but nails all intact so far. Had a discussion with my nurse about how long to keep the dark nail varnish on - we decided about 6 weeks post- no scientific reason but if nails lifted would be gutted. So I’m now deciding which colour next? I will need to keep covered as ridges across showing surgery and each chemo cycle!!!
I hope you can rest over the weekend.
I walked just over 6km today😊 amazing when Wednesday 500 m and my legs aches ! Busy weekend here- off to help parents in the morning and meeting friends in the New Forest for walk & Bbq, Sunday equally busy- lunch with friends and afternoon out. Just hoping no one has an infection.
Rest now xx
Member
Posts: 195
Registered: ‎23-06-2018

Re: Feel like a fraud

Hi Jem

Thank you very much - very kind of you - yes I’m in the blue hat, have had an absolutely lovely day but now pooped!
Apparently the T chemo which I have next time can effect your nails but dark polish (mine is shellac) is supposed to help against them getting brittle & damaged? And as they are not growing anymore they should last a while
To give you a laugh I’m now sat at home in my dressing gown, bald, still with my makeup on & I look like Terence Stamp in Priscilla Queen of the Desert!!

Hope you are ok?

Take care

Jude x

Member
Posts: 195
Registered: ‎23-06-2018

Re: Feel like a fraud

Hi Elaine

Good to hear you are doing ok
I do find the blogs to be quite cathartic so if nothing else it’s keeping my head together!
I did get to the races & had a fab day but am absolutely pooped now - will have to have a very quiet day tomorrow!

Thanks for all the info re the radiotherapy- I’ll bear in mind the extra time needed to get parked & thanks for the directions & info that will be really helpful
Well done on getting through your rads with no major discomfit - how are you feeling now it is complete? Or do you have some further follow up appointments. Hopefully you can gradually get your life back together

Take care

Jude x
Member
Posts: 255
Registered: ‎18-04-2018

Re: Feel like a fraud

Jude you made it 🎉😊😊🎉 you look amazing beautiful lady- even matching nail varnish (that is I think you are the one in blue hat?!)
Hope you have a fab time xx
Member
Posts: 19
Registered: ‎06-07-2018

Re: Feel like a fraud

Morning Ladies,

 

Jude I hope you feel a bit better today and make it to the races! I've been reading your blogs and they've made me laugh and shed a tear. I read the blog about the wig fitting whilst at the hair dressers. If I'd gone down the chemo route that would have been the day of the chop but instead it was the normal application of dye to hide the white roots! Besides I doubt very much that they make wigs to fit my natural hair style which is less chic bob and more long haired, slightly dishevelled poodle!

 

My radiotheraphy completed last Thursday. It was both a relief and an anti-climax. So far my skin has gone a bit red (you would have to be up close and personal to see it) and feels mildly itchy. I'm still drinking loads of water (about 2 litres per day) and applying moisturiser (Avene - RosePosie recommended and Aveeno - which is on offer in Waitrose). I had a bit of a rough day on Sunday (that could have been the red wine!) but otherwise I've felt fine and the rest of my skin looks much better thanks to all the water!

 

My appointments pretty much ran to time but I'd recommend that you give yourself some time to find a slot in the hospital multi-story. You will find one, it's just very busy with cars coming and going so you often have to wait to go up to the next floor or for someone to park. You don't have to pay and you exit via Floor A0. Just walk across to the main entrance then on to the "Green Lifts" and down to -A2. The opposite set of doors to the one you entered through will open and the toilets are on the right and reception to check in for your appointment on the left. When you go round to the waiting area to the machine you've been allocated there are more toilets. If you drink the amount of water I did you'll need them!

 

Radiotheraphy itself is just like having an xray. The majority of the time is spent lining you up with the marks to make sure they get the best coverage they can. My skin felt a bit warm afterwards but I was never in any pain.

 

Once again enjoy the races Jude!

 

Elaine

 

 

Member
Posts: 195
Registered: ‎23-06-2018

Re: Feel like a fraud

Hi Rosie

Feel loads better today just background nausea rather than full blown! Ufortunately the steroids had me fully awake at 4am but dud have 2 walks today -so think the races will be a goer!

If you get chance have a listen to the older podcasts- well worth a listen

Have a good week

Lots of love

Judy


Member
Posts: 70
Registered: ‎22-06-2018

Re: Feel like a fraud

Hi Jude

I hope by now you are feeling a bit better and not so nauseous and that you slept ok too.

Hope you’re taking it easy again today - feet up , good book.

Just read your blog - I loved it, and to think you were thinking of not writing this time!!

I’m so pleased you are making plans to go to the races soon, I’m sure your lovely friends will look after you!

Sounds like you’re going to be prepared with the meds too.😉 You’ll have a great time.

Everything you said about Rachael Bland rang true!  I listened to the podcast yesterday ‘About our Rachael’ and it was very sad but also, I felt uplifted by it, talking about the big c in such an informative but realistic way. It’s gotta be good!!!

Keep up the good work.

Sending hugs to you.

Lots ove love 

Rosie xxx

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Member
Posts: 195
Registered: ‎23-06-2018

Re: Feel like a fraud

Member
Posts: 195
Registered: ‎23-06-2018

Re: Feel like a fraud

Hi Rosie

Had a reasonable night but still feeling mega nauseous, the meds are holding it at bay as I’ve not been sick! So that’s a plus point

Hoping I’ll start to improve tomorrow

Jem - hope the PICC line removal went well & you are recovering ok

Lots of love

Jude x

Member
Posts: 70
Registered: ‎22-06-2018

Re: Feel like a fraud

Hi Jem

 

I wish you luck for today and hope that all goes smoothly with the PICC line.I can imagine what a big step it feels like.

 

Hope your se’s are improving and you are taking good care of yourself. And I hope you find something good to eat, that takes your fancy,  and to tempt your appetite. Lard at the beat of times...yuk!!!! 🤢

Sending love and hugs.

Rosie xx

Member
Posts: 70
Registered: ‎22-06-2018

Re: Feel like a fraud

Hi Jude

 

I hope you are not feeling too awful this morning and I hope you going to rest and take things easy. It seems awful to say that I’m glad your chemo went ahead and knowing how rough you’ll feel but at least you’re halfway there!!!

I am having a quiet week after the party ( its was great with cake and fizz etc) but I don’t drink very much and take care about the diet. Sad I know but after bc I’m just trying to take care of myself as much as possible.

 

Look after yourself. Sending gentle hugs and love from France.

love Rosie xx

Member
Posts: 195
Registered: ‎23-06-2018

Re: Feel like a fraud

Hi Rosie & Jem

Rosie - that’s lovely that you have now had your 60th bash even if a bit late, this blooming cancer gets in the way of life unfortunately. But better late than never!
You’ll probably need to chill this week to get over all the excitement, food & fizz 🎉

Jem - sorry to hear about your mouth side effects, I was prescribed mouth wash last time that really helped. That potato rosti sounds a bit grim! I quite like a jacket potato even if I only eat the inside when I’m chemo girl!

My blood tests were ok, my neuts has crept up to 1.37 so slightly better than last time so all went ahead ok. I had a bit of toast when I got home, been to bed for a couple of hours but am now starting to feel nauseous so could be a long night!

Take care & sending lots of love to both of you

Jude x
Member
Posts: 255
Registered: ‎18-04-2018

Re: Feel like a fraud

Hi Jude

i do hope your blood results were back in good time today and you could go ahead with your chemo. It sounds strange to say hope you had chemo- but if you're like me You just want to get on with it without any hiccups. And now time to look after yourself .

ive done better today, bone pain and aches gone, but the mouth thrush and sore now kicked in again😥. Hubble though potato rosti might be good- any other potato is a no no-was really looking forward to but tasted like eating a spoonful of lard!! My youngest,7, asked how I knew what lard tastes like!! 😂😂. 

Tomorrow my PICC line coming out😀Think this will be a big step for me, hope it doesn't hurt!

take care xx

Member
Posts: 70
Registered: ‎22-06-2018

Re: Feel like a fraud

Yes I had a great weekend thank you. Very busy but fun. I finally managed to celebrate my 60th birthday properly yesterday with hubby and some friends. It was lovely.

 

Hope all has gone well for you today and you’re getting through it.

Thinking of you.

Take care, 

love Rosie xxx

 

Member
Posts: 195
Registered: ‎23-06-2018

Re: Feel like a fraud

Thanks Rosie

Hopefully I’ll be good to go! Fingers crossed 🤞

Hope you have had a good weekend

Take care

Jude x