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Member
Posts: 1
Registered: ‎11-02-2018

Re: Diep reconstruction? Or Braxon implant?

Hi Rosie 14 and everyone

Rosie, May I ask why / how your implants failed?

I had a Braxon implant in November and am having delayed problems with wound. I think the fluid pushed it and now it’s slightly open. My surgeon says the rads I had 9 years ago is probably the reason. I was not informed it could be an issue before I had the surgery. 

I am probably going to need another surgery.

Feriel

Member
Posts: 20
Registered: ‎18-05-2017

Re: Diep reconstruction? Or Braxon implant?

Hi Jacqui, in the end I had a bilateral mastectomy with implants and lymph node excision. I found out a few days before the surgery that I'd have to have radiotherapy but the surgeon said go ahead with the implants and if there were any problems with them, e.g. infection or damage from radiotherapy, I'd then have the option of having diep at a later stage! It's a tough decision to make especially when you're under time pressure but just remember whatever you decide, it may not be straightforward and you may have to have further surgery down the line. I'm 4-5 weeks post op and still very sore (mainly from the lymph node excision) but up and about and able to drive etc. It feels like a tight band around my chest and is quite constrictive. The implants look pretty good but a little uneven and lumpy; I'm hoping this will settle down in time. It's been an emotional rollercoaster, I found out on Wednesday that I have to have chemo as well which I'd hoped to avoid. I had to wait 4 1/2 weeks for my results which hasn't helped. Good luck with your op, I hope everything goes well for you 😊
Community Champion
Posts: 1,228
Registered: ‎24-11-2014

Re: Diep reconstruction? Or Braxon implant?

Hi ladies, I had mx with immediate implant reconstruction sept 14. At the time DIEP was not an option as no belly fat and LD clap out of the question due to back issues.

I went to have chemo and rads - this would have been delayed dramatically if I had to wait for DIEP to heal. As it was I had problems with infection and ended up with five ops in all to remove implant, later had an expander before rads and replacement and uplift on good breast six months after all treatment was finished.

My implant side is very lumpy and much smaller than the natural side. I have put on two stone since treatment so natural breast has grown. I have decided now to put my weight gain to good use and have DIEP booked for end of August!

I do not regret having implant first it was the best option for me as did not want to be flat. I was warned that rads might damage it which is why I ended up with expander before rads.

So I guess what I'm trying to say is don't rush into making your final decision. You need to do what is necessary to kill cancer first. My hairdresser had chemo followed by DIEP and rads. She felt pressured to have DIEP before rads as surgeon didn't want her to be flat, but long term she would have preferred to wait til after rads as that made her DIEP boob go hard.

Good luck with decision: and treatment, wavylocks your recovery sounds great - hope mines the same!
Community Champion
Posts: 509
Registered: ‎27-10-2014

Re: Diep reconstruction? Or Braxon implant?

Hi Jacqui not easy to decide & its a big decision. I was lucky as I could take my time deciding as my op was a delayed reconstruction. Its also worth talking to people who have been through it as well as on here. Have you thought of  asking breastcancercare for the someone like me service? I did this and it was really useful. The lady I spoke to had had a DIEP....she could tell me what it was like for her. One of her top tips was to get your support team in place.....those first two weeks you need supporting and after that you need to take things slow. If ever theres an excuse for a gardener, cleaner who also irons & doing your shopping online  -This is it!!! 

Community Champion
Posts: 509
Registered: ‎27-10-2014

Re: Diep reconstruction? Or Braxon implant?

Hi Daisy,

Am so sorry....I missed your reply. I hope you are ok? I dont know what you decided but hope you are on the road to recovery....

 

I am now just 2 1/2 months post surgery and am improving loads. Some one said the 6 week marker is a milestone and that was the case for me. I really turned a corner. I healed up pretty quickly apart from two little areas that took a bit of time & in the end a little bit of magic cream to sort. Love my new breast. I do have to be careful with lifting heavier items still as it makes my tummy feel sore.....still early days. I drove after 6 weeks little local journeys. When shopping in the supermarket I take extra bags and put fewer items in each bag so they are lessheavy.....  With young children you most certainly will need help afterwards no matter which op you go for. Have you friends or family that can help you.....its only for a little while.

 

Last week I went out and bought an ordinary bras! Amazing.....stuck to the non wired ones of course... 

 

Thinking about you,

xx

 

 

 

Member
Posts: 108
Registered: ‎29-07-2017

Re: Diep reconstruction? Or Braxon implant?

Hi Daisy52 - can I ask where you are up to with your surgery? I am mid - decision (erring towrdas DIEP) which I'll be ahving with M double Mx. Thanks

Jacqui x

Member
Posts: 20
Registered: ‎18-05-2017

Re: Diep reconstruction? Or Braxon implant?

Hi waveylocks, thanks for all the brilliant tips and advice! The plastic surgeon who I met last Friday is very confident and has done around 300 DIEP surgeries, so I feel really happy that he will give me the best result possible. I'm still not 100% sure if I want to have the op or with to go with implants. I'm mainly worried about the recovery time as I have two young children and they'll be on their school holidays when I'm still trying to recover. Although I do have a great group of girlfriends nearby who I'm sure will help plus a husband who will have to learn to clean and cook Smiley Wink xx
Member
Posts: 20
Registered: ‎18-05-2017

Re: Diep reconstruction? Or Braxon implant?

Hi rosie14 I have an appointment to see Jo Skillman on Thursday! I'm still unsure whether to have DIEP or implants. They could possibly do a double mastectomy then 2 implants which would give a more even appearance but it's a big step when I don't really need a left side mastectomy. With DIEP I'm just put off by the long recovery time as I have two young children and I'll be laid up during the school holidays. I'm lucky that as I'm classed as an emergency they can fit me in within 4-6 weeks. I've done a list of pros and cons and I guess I'll wait to see what Miss Parkman says on Thursday then make a decision 😳Thanks so much for your help 😊xx
Community Champion
Posts: 4,308
Registered: ‎02-02-2014

Re: Diep reconstruction? Or Braxon implant?

[ Edited ]

Hi Daisy it was Joanna Skillman that did my DIEP! I am happy with the results. I did suffer ab wound dehiscence and had district nurses coming into me for several weeks! Also the wound under the new right flap opened slightly but 6 months on I am all together!!!
My implants were done in Cyprus and I was butchered about!!!😞
Hope your appointment went well?

They will possible offer you the op quicker as I had already had my mastectomy so was classed as non urgent!

Community Champion
Posts: 509
Registered: ‎27-10-2014

Re: Diep reconstruction? Or Braxon implant?

Hi Everyone,

Ive just had a delayed breast reconstruction -DIEP. It is two years since my masectomy and 22 months since rads. My reconstruction was delayed due to the rads but I delayed it further as the Herceptin has affected my heart so on heart meds and I wanted to have time to recover from all the treatment.

 

You definately need a plastic surgeon who specialises in this reconstruction. I also chose to go to a specialist regional centre where DIEPS are routinely undertaken. Am glad I did this the staff and surgeons have been fantastic. Im receiving great aftercare. Only been home a week so early days but have been fine with lots of pain relive so can keep moving. Was told to keep talkng it as being in pain just stops you moving and that slows healing. Make sure you have laxatives too as pain relieve such as codeine is terrible for constipation.....am using lactulose which works for me.

 

Am able to self care but avoiding any lifting. I have never had any dressings on my wounds -they used glue to seal them -amazing!!! The wounds are healing well so been told at clinic they dont need to see me until August now -fingers crossed progress continues to be straightforward.

 

Been using loose fitting pjs and loose fitting cheap stretchy yoga pants. Am ok with putting on/off loose t shirts and loose sleeveless tops but also have button up shirts/cardi to hand if needed. Bought cheap shapewear from Sainsburys -you wear it 24hrs a day so need several pairs. Mine cost £6 each so no need to buy the expensive stuff. Am using my masectomy bras but bought bra extenders......been fine! Will treat myself to some lovely new bras when fully recovered. 

 

Ive found the U pillow and wedge plus loads of pillows great for getting a comfortable postion in bed at home as have to sleep on my back. I put two pillows under my knees at night for comfort but I can lay my legs flat and its good to gently gradually  encourage to strech your legs flat if you can as this will help with standing up straight (doc told me this) but I dont sleep like that!  My bed is a good height -ie when sat on bed my feet are flat on floor but knees at right angles as recommended by the specialsit nurse. This has enabled me to get in and out of bed on my own. Ive a set of wooden drawers with TV on and can reach stuff on there plus a hard tray on the bed beside me to put stuff. Really helps! Walk in shower a must! Managed stairs easily. Definately worth swimming and walking before this op to build tummy muscles as Nurses tell me my ability to stand up straight away is down to strong tummy muscles. I am no fitness freak though by a long chalk....my adult sons laughed when I told them as they know how unfit I really am!!

 

initially a water bottle or glass with straw is helpful if your laying semi flat but am using ordinary tall glasses now. Drink loads of water!!! Good for healing but also helps with constipation. Am also eating dried prunes...lol.

 

Been doing lost of little walks round house / garden. But will start a little walk to cafe and back this coking week. 

 

Lots of rest though too!!

 

Ive got people around me for the first two weeks as I do tire really easily and need naps! Lol... And its comforting knowing someone is around to support.....help out with doing the shopping washing and cooking. I have a cleaner coming in and someone to cut my lawn and will be shopping online once my little support group have gone and am on my own once more. Pharmacy will deliver meds. 

 

Ive been lucky so far but wanted to write this positive response as so often posts are from people not faring well. 

 

Am delighted so far with my new breast......far far better than I was expecting.....and its a 'f' cup -dont know how they managed that!! Just fingers crossed recovery continues smoothly.

 

Good luck hope your DIEP goes well.....xx 😊😊

 

 

Member
Posts: 20
Registered: ‎18-05-2017

Re: Diep reconstruction? Or Braxon implant?

Hi rosie14 - wow - a years' waiting list eek!! I've got an appointment tomorrow with the head of plastic surgery to see if I'm suitable and/or discuss other options. I know that Jo Skillman is booked up until at least August but I've been told she may be able to do the mastectomy and someone else would do the reconstruction (Mr Park maybe?) Are you happy with the results and did you have any complications? I'm assuming from your comment about implants this was a better option for you? Thanks for posting 😊 xx
Community Champion
Posts: 4,308
Registered: ‎02-02-2014

Re: Diep reconstruction? Or Braxon implant?

Hi Daisy yes I had my DIEP at Coventry in November last year! I am not a smoker but you should be ok if you gave up 3 years ago!
I was warned that there was a year waiting list as the surgeon is sought after. Also,they only do one a week as it blocks a theatre for the day!!! I waited 5 months I was lucky! I had a history of failed implants!!!🙀
Member
Posts: 20
Registered: ‎18-05-2017

Re: Diep reconstruction? Or Braxon implant?

Hi Argymargy, that's a good point and I don't know why they're not suggesting it. Even if they think I won't need radiotherapy on right side surely there's no way of knowing until lymph nodes are tested? I'll ask the question when I meet the plastic surgery team. Thanks so much for your input! xx
Member
Posts: 61
Registered: ‎10-01-2017

Re: Diep reconstruction? Or Braxon implant?

Hi Daisy, if there is a chance you will have radiotherapy on your right breast, I would ask about potential damage to a DIEP reconstruction.  It would be a shame to go through this surgery, only for the tissues to be damaged by rads.  This is why many places will offer temporary reconstruction as MrsMerton mentioned.

Member
Posts: 20
Registered: ‎18-05-2017

Re: Diep reconstruction? Or Braxon implant?

Ooh thanks I shall have a look at that website and I'll google for some pics. I don't know if I'll need radio after mx on right breast yet. The wire procedure and mammogram does sound a bit weird but then again nothing surprises me any more! I did ask if it would be better to have a double mx but they seem to think it's better to save the breast where they can. Just worried about it coming back in the future xx
Member
Posts: 145
Registered: ‎17-11-2016

Re: Diep reconstruction? Or Braxon implant?

Yes, lumpectomy and local excision are the same thing.  They do literally stick a wire in you under local shortly before the op to mark where the area is that the surgeon needs to take out. It's done by the radiologist using ultrasound and then you have a mammo with the wire in!  Just when you think things couldn't get any weirder.  I had a DIEP rather than an implant because I am having radio to the mx breast which damages implants.  Hopefully my DIEP will not be too badly damaged.   You might be interested in this site. Www.keepingabreast.org.uk - it is a breast reconstruction charity. Quite a few reputable plastic surgeons also put up galleries of their before and after breast reconstructions on the internet (neck down, no faces) which you can browse to see what the recons look like.  Good luck with the plastics team.  Xx

Member
Posts: 20
Registered: ‎18-05-2017

Re: Diep reconstruction? Or Braxon implant?

Hi MsMerton and thanks for your reply. I have heard today that I have an appointment at Coventry with the plastic surgery team. So hopefully I can find out more and look at all the options in greater depth. I'm having a wire guided local excision on the left breast, is that the same as a lumpectomy? (Please excuse my ignorance, this is all new for me); the DCIS is 7mm so not massive. Then radiation on that side to zap anything that might be still lurking. On the right breast a mx and I could possibly have a delayed reconstruction but they seem to think it's better to have it all done at the same time? The nurse said the scarring can be worse if they have to open up the mx scar at a later stage? It's all so confusing! But these are questions I need to ask at my appointment so thanks once again for your input! xx
Member
Posts: 145
Registered: ‎17-11-2016

Re: Diep reconstruction? Or Braxon implant?

Hello Daisy - I used to smoke quite heavily but gave up 8 years ago and that was considered no problem for a DIEP.  So I understand from your post that you are having a mx on one side and a lumpectomy on the other side - so cancer surgery to both breasts.  You need to see a really good plastic surgeon (who can do DIEP etc) and discuss ALL the options because long term you want them to match as well as possible.  I was an E cup - they will struggle to match that with any reconstruction but the lumpectomy will of course reduce your other side as well.  However, the other side can't be adjusted to match the DIEP side until about 6 months later when the DIEP has found its final shape, whereas you will be having the lumpectomy now and then rads which more or less precludes further surgery.  So in that case I'm guessing the surgeon(s) will be aiming to create the same cup size in both breasts through different ops performed around the same time and hoping they turn out similar-ish I assume.  What happens if you don't get clear margins on the lumpectomy and need a mx in the end?  You can only have the DIEP done once although you can sometimes have both breasts created from the DIEP if done at the same time.  Or is there an option of having a saline expander and going back to do a reconstruction later when you have seen where you are with the lumpectomy side? Sorry, that doesn't give you answers but I think you need someone to look at the overall cosmetic outcome for both breasts holistically.  Hope all goes well for you whatever you choose.  Xx

Member
Posts: 20
Registered: ‎18-05-2017

Diep reconstruction? Or Braxon implant?

Hi, does anyone have experience of having DIEP done at University Hospital in Coventry? I'm being referred from my local hospital for an assessment to see if I'm a "suitable candidate". My consultant has said they may not accept me as I'm an ex smoker (I smoked the occasional social fag but gave up over 3 years ago). I felt she was being quite judgemental! Anyway just wondering what the waiting times are. I've got a provisional date in mid June for mx at local hospital but they don't do DIEP there. The other option is to have a braxon implant at my local hospital but I'm worried about potential infections/problems down the line, plus I think it will look very different to my left breast. I'm a 34e and the surgeon said she'd have to reduce my right breast but didn't mention about having surgery to my left breast to even them up? I've got to have rad after wire guided local excision on that side so maybe that's why? Don't know yet if having rad on right side. Sorry for the rambling post but my head's spinning at the mo and I don't know which way to turn! 😫