Member
Posts: 1,989
Registered: ‎03-09-2014

Re: DIEP Reconstruction

Oh Crikey Riverside dawn,

 

Awwwww, poor you. Well hope you have a great holiday. At least a suntan will disguise your bruises a bit!!! I hope.

 

Loadsa love to you and everyone xxxxxx

Community Champion
Posts: 1,242
Registered: ‎24-11-2014

Re: DIEP Reconstruction

Hi ladies, I switched my failed implant for diep on 29th August last year, just come to my anniversary.

Sue, i had a bad cough after several nights in hospital. Trouble is with the diep wound you can't cough to.clear your lungs properly. After aboit a week I had a CT scan as they were concerned about pneumonia. Luckily caught early enough and antibiotics cleared it up.

I wore support knickers for several.weeks after reading on here - no advice from hospital!

That CT scan went on to diagnose secondary bone mets - although for whatever reason was not brought to my onc's attention until November!

That's all under control and responding well to treatment. So I decided a bit more evening up.was required and last Friday went through lipofilling to plump up the diep breast and soften scar tissue where it has tethered down. Just a little op to squeeze a bit of fat under the skin I naively thought how wrong!!!
Recovery must've similar to.diep. the donor sites (hips and love handles) are a hideous shade of black and blue from just under my breasts down my full abdomen and round the back almost meeting in the middle, down my left leg looking like shorts and even. My pubs is swollen and purple! !!

This I did not expect. 8m guessing it's because I didn't have much fat sontjeuve had to dig around for it. We're off to corfu next weekend I look like a battered 6 month pregnant wife - my husband us going to need protection on hols! !!
Member
Posts: 51
Registered: ‎01-05-2012

Re: DIEP Reconstruction

Hi Sue

i wore some supportive high waited knickers for 6 weeks my surgeon said no corset was required I bought them from sainsburys and wore them fairly tight probably a size smaller than would of been comfortable.

everything softens up but it does take months in my case many months

sL xx

Highlighted
Member
Posts: 1,989
Registered: ‎03-09-2014

Re: DIEP Reconstruction

Hi again Sue

I hope you have a better day today and are allowed home. Yes, I've had expanders for permanent silicones later. Didn't ever want any other recon than implants. Am very slender, so lat flaps were the only other option.

I know it's a bummer, you having to have a further op to level things (boobs!) out, but from what you've said so far, I'm sure it'll be worth it. I'm amazed at what they can do now, to rectify anything.

When you say you're now in a "cubicle", did you mean on a ward and curtained off? Sorry you're so upset. It's only natural. A huge major thing to go through all this BC, let alone recon ops. Good to let the tears vent and flow, I say.

Have you a hubby/partner to go home to??

Keep posting on how you're doing.

Lotsa love, Delly xxxxxx

SUE
Member
Posts: 16
Registered: ‎18-08-2015

Re: DIEP Reconstruction

Thanks again sisterlylove, must have been a hard few weeks for you xx Thanks for the reassurance, I think I'm concerned that they look so different at the mo and one is lower down on my chest than the other but they did a scan yesterday to check no infection in breasts and there are two seromas on the bigger one, no infection so left to resolve themselves. Very hard and lumpy which I know will soften with time. One question about the abdo, did you wear a corset or support pants for 6 weeks? Thanks Sue xxx
Member
Posts: 51
Registered: ‎01-05-2012

Re: DIEP Reconstruction

My op was August last year my surgeon knew pretty quickly that one breast was going to have healing problems and they needed to let it "declare " itself and let everything that was going to die of do so therefore I had a horrible few weeks with a vacuum pump and open wound bending dressed frequently.
I ended up back in with cellulitis as well but it eventually declared and she was able to do the debridement and close it up.
I am delighted with the dieps even though I need a bit of lipo to correct to size.
You are so early days and the breast and the stomach will vastly improve month on month.
I hope you are the right side of the infection now and be sure it's usual to feel down and tears even without complications.
I'm sure you will be delighted with the outcome DIEP is the gold standard of recon and has a very high favourable outcome
SL xx
SUE
Member
Posts: 16
Registered: ‎18-08-2015

Re: DIEP Reconstruction

Thank you Delly xx never seem to do anything the easy way! Thought once I came through operation then would be ok, sure didn't envisage all these complications. Had my first wobble last night as they moved me from high monitoring to cubicle, which is a good thing but on my own, so was very teary till about 3am, feeling very sorry for myself! Blood tests later and hopefully home then.
Are you having expander in then implants? Thanks again , Love Sue xxx
Member
Posts: 1,989
Registered: ‎03-09-2014

Re: DIEP Reconstruction

Crikey Sue! - I do hope you recover and are out of hosp soon. Then, once healed and settled down, any uneveness between your left and right can be sorted. I'm a double mast a year apart girl (2006/7), part way through implant recon, but just wanted to say Hi, and give you some support.
Hope all works out well for you.
Lotsa love, Dellywelly xxxx
SUE
Member
Posts: 16
Registered: ‎18-08-2015

Re: DIEP Reconstruction

Thank you so much for replying sisterlylove xx When did you have your ital op?
How long did it take for the problem with the wound break down? I'm just over 3 weeks post up now and wounds still looking ok.
I am in hospital at mo! Blue lighted in again, 40 temp, rigours etc, treated for sepsis, from infected lung, don't do anything by halves!! Been here since Saturday, what a scary experience, worse than chemo!!! Feel so much better but not home till started on oral antibiotics. Will slow down recovery a bit but grateful caught in time.
Good to hear about second op to even out things and that abdo takes time, sometimes I think yes great other I think did I make the right choice! Hope it will all be worth it in the end! Thanks again xxx
Member
Posts: 51
Registered: ‎01-05-2012

Re: DIEP Reconstruction

Hi Sue

i had a double mastectomy with skin sparing dieps and had a problem with one breast healing it all opened up at the mastectomy scar and I needed a debridement op after a few weeks which they left the breast open to see how much tissue would die off and need removing.  So I now have one breast larger than the other like yourself but I am now waiting for a further operation to have lipo to make the larger one smaller to match.

speaking to my consultant she says that the first op is a guide and evening up if needed will be done in the second op so I really wouldn't worry.

also it takes time for Alt the swelling to go down and one breast may if swelled more than the other.

 

i can't really help with the fluid on the lung question I did however have a chest infection and cough afterwards that took an age to clear, I would of thought because you are quite low after such a long op.

 

the stomach can take some time also to settle so it's early days

 

hope this helps

 

SL x

Community Manager
Posts: 1,976
Registered: ‎01-05-2012

Re: DIEP Reconstruction

Dear Sue

 

I am sorry that you havent recieved a response yet, I am sure someone will be along soon to offer support and share their experience with you.

 

In the meantime, you can talk to one of our experts on the free Helpline, 0808 800 6000, or perhaps post in the Ask Our Nurse area of the Forum where our specialists can reply to you online?

 

Best wishes
Anna
Digital Community Officer

SUE
Member
Posts: 16
Registered: ‎18-08-2015

DIEP Reconstruction

Hi all, I had a second case of breast cancer in same breast, first 2002, lumpectomy and radiotherapy and Tamoxifen for 5 years. Then different tumour, had R mastectomy in 2015, followed by FEC chemo Zoladex and Letrozole. Wanted L boob removed but surgeon said she would do at a later date if I was still sure. Fast forward to Monday 18thl when I underwent a L mastectomy and double DIEP reconstruction. R was complete reconstruction and left was a skin sparing reconstruction.
All ok, had scare as very breathless and ended up in hospital with suspected PE! Had scan and turns out have some water on both lung and a very small collapse of one lung, side effect of such a long time under anaesthesia, they think and will resolve. Anyone else had this problem? How long did it take to get better?
I am thrilled to bits with reconstruction on R but L, the skin sparing is huge! Very hard and much lower than the other!! Hoping it will settle? Anyone else had the same op? Abdominal wonderful!!! but no pain left side and terrible deep burning pain above right groin, on movement.
It's so hot with bra and corset and the lovely white tight! Feel like a trussed up chicken in the oven!!
Thanks in anticipation, lots of love to all xxx