We set up designated MBC clinics with all breast Oncologists, and run joint clinics. IN the absence of the Oncologist due to leave I will run the clinic so that clinics aren't blocked. This means that the patients have an appropriately assigned appointment time with the right health care team. I do not see a NP until they attend with the Oncologist, although for many diagnosed in crisis through A & E will offer guidance with the AOS team for planning staging, with or without biospsy so that they attend their first appointment with all the right information to start planning treatment. Nothing worse than a NP consultation without the right information, it's too variable.
I inform early breast care nurses if known to them, to help manage their anxiety, but there is one of me and 6 of them so the NP consultation in Oncology is the " start" to meet new patients. I acknowledge I have roughly 10 NPs per month, which is significantly less than other centres, so this may not be faesible. It is more efficient of time and resource having designated clinics, and the feeback from patients is positive. The waiting room is usually a meeting place for many of the patients as well as many also attend the LWSBC.
Took a long time to sort, but happy to be contacted if wanting information on how to set up and clinic template
I started picking up new diagnosis in clinic and MDT as I dont sit with the oncologists. I get copied into all oncology letters now and literally just contact these patients I dont know just to offer a contact number. if known to palliative care I dont add to my caseload. What I found was that a lot of these ladies had no contact with anyone.
what I found also is that patients talk in clinic and a lot of ladies contacted me direct after getting my number from another SBC patient.
I have to say a lot who have been diagnosed a while only really call as needed.
I have now completed my induction and I am trying to get a feel of how best to pick up referrals. As I am only working 27.5 hours/wk I am mindful that I don't risk promising too much too soon!
All our breast Oncology Consultants have clinics running at the same time (and also at different sites)and they have mixed speciality clinics so the MBC patients’ can be scattered throughout those clinics. We don’t have a separate breast MDT-the MBC patients’ again are scattered throughout the main breast MDT.
I thought I would start by picking up the new diagnoses on the back of MDT rather than the existing ones otherwise I worry that I will be overwhelmed from the start!
How did you manage this? Any suggestions would be gratefully received!
I am due to start a new role as a secondary breast ANP next week in Gloucestershire covering 2 sites. This will be a completely new service so I'm hoiping to get some useful guidance from you all.
I plan to attend the Sheffield meeting next week so hopefully I will get to meet some of you there.
Great to hear about the progress of your service in Staffordshire.
Are you still the only team member for the service? How do you find covering two large sites?
I am SBC specialist Nurse In a large trust with two sites in staffordshire. I have been in post a little over 18 months now. It was a completely new service set up by myself with some great input from other SBC nurses and out Oncology ANP's and oncologists here. Hope all your services are getting of the ground and going well.
I'm Sam, One of the two whole time equivalent metastatic breast cancer nurses based in Oxford.
Nice to meet you all.
We think we've sorted a way of prompting people to reply to messages on here so hopefully use of this area will improve in the future. Thanks for using the area and for your patience!
Hi Lyn and Jayne
Apologies for my quietness I've been away and was back last week but hadn't got any notifications there had been posts on here! Jayne - good to speak last week. Lyn glad to hear you are getting things together up in Morecambe
Lovely to hear from a fellow newbie!
Things are progressing nicely up here in Morecambe Bay.
I have recently done some patient experience work as part of a larger project I am undertaking, and have revieved some really positive feedback about the service. Some of the feedback was a little unexpected ... one patient reported back that they had no one to turn to for advice and no one to support them other than their oncologist .... Er Hello!!!
It's all given me useful pointers as to where I need to concentrate my efforts more.
My biggest problem is covering my entire geographical area which is huge !!
I'm also looking at re designing my electronic documentation that I use. The Trust's EPR systrem in use does not "talk" to SCR which is a pain given it's usefulness from an MDT point of view. Therefore if SCR is used by the CNSs to document day to day activity and contacts, there is no transparency between departments during periods of in patient admission, so I'm looking at devising a more robust clinical chart within our EPR system that can record my assessments, patient contacts and capture my activity
Hello ladies , Im also new in post here in sunny Bournemouth .....my background is specialist palliative care . currently im on orientation , hoping to shape the role as i feel it should be , big learning curve as have never done oncology and have a slight fear I may be pulled in that direction as im based in the oncology unit and am an NMP but feel this should be a supportive role firstly , hwo are you gettimng on Lyn ?
i work in reading as a breast cns, we haven't yet got a metastatic breast nurse. Did you set the service up yourself? How are you finding things. How many patients on your caseload