Hi everyone, how are you all? Caro;e have you any news from your appointment, I was waiting to hear an update from seeing the onc as well as the other tests. Hope things are progressing as we would hope. I know you are a bit tricky with a number of health issue to juggle, so a lot to think about and get checked. Lisa horrible to have job cuts and now a take over? How will that affect you and your job? Well regading the house, you never do the quick job so I am not surprised when the whole ceiling came down! I couldn't work out what room it was? Is it looking bette rnow or are you taking all the plaster off too lol.
Nicky that is a fab reason for not being able to go on the trial. I hope it made you smile, it did me. Also super fab to have a bit of time on just hormone tablets. I know they have their side effects but pretty nice compared to old public poisoning. Hope you have a good long spell on these.One met, how cool is that. They have come a long way with their liver treatments, thankfully. I have been watching the stand up to cancer programmes and love the fact that celebs put themselves out and often seem genuinely affected by the sad stories they tell us. I loved celebrity hunted, did you watch it? My son has written to go on the show but I hope they never call him as I don't think I could cope with the stress. Also watched celeb gogglebox tonight. Yes I know the logical view on mammos but I bloody hate them. My scar tissue stings like 100 bees on one spot. Heaven help her if she needs 2 goes at it. That's without the what ifs it creates in your head each time. Which tablet are you on this time? Can you back on our originals or do you always move on to another? I have lost track of any new ones released. Its party weekend this week as its ed's hen do, I am very excited and looking forward to my weekend in a big London hotel and spa. Having a bit of a crisis about what to wear though as not many oldies going. I have to share with someone who I really like but have only met a few times, so a bit of stress about that and how it might be. I wondered what to do, thought of Lisa and decided to see if the prosecco cure would resolve my worries I hear its good. Well better buzz off and get packed. I have hidden the price label of the top I bought as it was a bit frivolous but I liked how it looked so there was no going back after that! I don't buy many expensive things as they get easily wrecked at work, chewing gum city !! See you soon. Take care and enjoy the lovely autumn colours we have around at the moment. Love Lily xx
Lisa, I hope the job situation, or should I be saying the situation at work, improves. It all sounds a bit topsy turvy for you which must be awful as you enjoyed working with your old boss for so long. Enjoying going to work is a good thing but when all of that is taken away it just becomes a chore doesnt it? Well, at least the weekend is just about here so you can have a breather - and a new ceiling!
Lily - we had quite a few trick or treaters as well and just about ran out of treats! Some of them had made a real effort not just with costumes but had had their faces painted as well, lots of very pretty witches! It was a bit worrying though when I looked out of our front door straight into the faces of two trick or treaters who were way too old for it - basically late teens I'd say. Both chaps and one with a full face gas mask on and the other with a halloween mask on, hmmmm, I wanted to get rid of them quickly! Good luck with the mammo, it's good to keep being checked generally rather than because you have had BC but unnerving as it reminds you of how things can start, apart from the fact it is bloody uncomfortable!
Carole, how are things for you, both health wise and general living? Is the weather closing in at all? We have had a few chilly nights but still fairly mild and some sunny days which makes things feel better. How is YD doing with her current course? Sorry cant quite remember where she is and what she's studying! Does she get back to visit at all or is it a different structure to her term time now? How is Mr P and his job? Hope he is back soon, or has been back recently, as it must make a huge difference to have him there. Ohhh, you've started the holiday talk off for next year - its usually Lisa! We would also like to plan a trip further afield but we will have to wait until the next scan to see if we can book something without wasting money on cancellations or changes. Also, I will update you nearer the time but we could be in your neck of the woods next year for a wedding! I'll pop in for a cuppa if we are ha ha.
So, my update. I saw oncologist yesterday and we were both saying why had I not had my referral yet. Worryingly he said the last time his secretary chased them up they said there were no trials available for me, gulp. Anyway he got his secretary to phone The M and they repeated that there were no trials and I should have had a phone call from them to tell me! She then spoke with one of the research nurses who explained. The reason there are no trials - at present - is because my BC is stable (and in fact has regressed) and there has to be progression to meet the criteria of starting a trial. At least I know now why there none at present that I can be screened for. So, for now I remain on the hormone tablet that I have already started and keep up with the 3 monthly scans. At the first sign of progression I will be referred (again!) and be able to go on a suitable trial based on what is available at the time. I am happy with the decision, it is nice to give my body a break from constant chemo and I have confidence in hormonal treatment as I have responded well in the past. My liver mets (or 'met' as it now is) are also much smaller than a year ago when all this kicked off, plus bones have remained stable for a long time now. I am sure Dr Lily will have some questions and I'm happy to answer them ;-).
Well, thats the medical update. Other updates include GS doing very well and smiling at those he knows - including his Glam-ma (ha ha). We are due his first sleepover in a week or so as his Mum and Dad are out for a late night which was planned a long time ago (a wedding reception) so I had better get a few good nights sleep in beforehand as he still wakes up in the night for a feed, although gradually going a bit longer which is good for his M and D.
Anyway, have a good weekend all, sorry if I've missed anyone's news out. Off to a fireworks party tonight and will try to oooh and ahhhh over the weekend as well when there will be plenty of fireworks around - I love them :-)
Hi all, sorry my attendance has been shocking for one reason or another... work is dire job cuts then week after being pushed into takeover and communication is awful so not the best place to be at the moment and iTS UPSIDE DOWN, BEEN LACKING WIFI oops sox receiver caps but too tired to fix lol. Decorating sling room has now expanded to pulling down ceiling and new one going up so at mo off to bed and have been sitting with iPad facing wall with wee lamp and table then flattened my car battery, but tomorrow is a new day and will catch up tomorrow once drama at work has settled a little.
hope everyone is okay and enjoy themselves xxxxx
Hi ladies, how are you. Have you been for your referral yet Nicky? I was wondering what they were thinking of giving you next and whether you qualified for one of the newer trials? Hoping things are going well and keep me posted when you get the chance. You know I like to keep up to date with your plans and results. xx
Carole being lazy sounds perfect, especially if still warm there. Lucky you. I was swamped with trick or treaters, well over 40 and in the end took my pumpkins in so I could watch tv and before I ran out of sweets. A lot of older children this year too but amazing constumes. 2 of my grandsons were coming for dinner tonight so I was instructed to let them ring the bell and surprise us. They were so excited having been to a party beforehand and bouncing from the sweets they had been given! Will any kids sleep tonight? They were very pleased with the number of callers at my house, except they let the dogs out each time, such was their enthusiasm to see what costumes people had on. A lot of fun. Keep us posted about your test results too. I have just been called for mammos again. You get out of the habit of appointments quite quickly and then the letter sets you off again, back in time. I am on the regular call list now so they are always a bit shocked when they start to give me the talk and find I've already been the 1 in a 100 they say I would be unlucky to be! Not the best letter for all people receiving it, I think they could do better than what it says about unnecessary treatment because only one of you will really have BC. Rubbish leaflet! I also had my smear test come back saying it was dodgy but it had been tested for cancer, I didn't have it so my abnormal cells would sort themselves out most likely! Forget it for 3 years they say. Arggghhh. My heart was in my mouth reading it and then I'm left with a bad result but they don't do anything about it??? Might see the dr for a chat as it left me unsettled. Then the mamo letter popped through the door, so a bit spooked. Thank you Carole, the holiday was really lovely and I enjoyed seeing all the famous places. Its a devil of a place to park, so once we found a space we paid a fortune and didn't move it until we left. We were right in the middle of the city so just minutes from all the places we wanted to see. Yes Victor and I are undecided about where to visit next year. We never go back to the same place for quite a few years so always pleased to hear of new places to visit. Criteria is sun for me, great scenery and historic places to visit closeby. Any ideas most welcome. Lisa how are things at work now? Hope all is ok for you. Love Lily xx
Hi to all, sorry I've missed quite a bit. For no reason really other than being lazy and extremely tired. Weather here still lovely considering it's the last day of October. Are you all prepared for trickers or treaters? We have some small bags of sweets just in case but as most of the children around here are only about 5 I doubt we'll see anyone. Heidi has been doing well, as in no more fits, although we do think the medication is doping her as she seems very sleepy most of the time.
I haven't heard anything about my tests, so I suppose no news is good news. Thursday I see my Onc, which I feel may be the last time.
Did you enjoy your break in Bath Lily, I've been but many moons ago. I fancy somewhere exotic next year if we can afford it, Cuba sounds interesting but then again I would like to go back to Rome and San Marino, Mr P and I are in a disagreement as he wants to take the caravan again, and I would rather fly!
Well enjoy whatever you are up to today and I hope the weather is at least sunny for you all. Take care Love Carole xxx
Hi everyone, how are things with you? Lisa keep us posted how work is going and I hope it will not affect your job. Fingers crossed. Carole how is Heidi getting on with the medication, has she stabilised. Any news of your latest tests yet? Fingers crossed too. Nicky I can't remember the brand but we did find a hair dye that was organic and suppposed to be ok to use after chemo. Can anyone remember? Was it from a health shop like Holland and Barrett? Maybe you have better memory connections than 5FU left me with! Glad to hear ED is settling in to new mum life style well. I hope you get your letter soon for the referral. Nice to enjoy some non- medical time though. Victor and I are off for a mini break to Bath, his choice for his birthday. I really hate being married to a former frequent flyer who does not get the same enjoyment from travelling abroad as I do grrrr. So raincoats for us although I am looking forward to visiting a beautiful city too. We are in a lovely hotel and only lovely 4 poster rooms were left, what a shame to have to pay more! I have a feeling he will be taking work with him so might pack a book, although I googled the hotel and found a giant Debenhams opposite so may volunteer to shop while he does . I still have some items to buy for the wedding and hen do. Better buzz off as babysitting the whole world this week, both littles and oldies have me running up and down most of the day. Love Lily x
Very strange got an error and said I couldn't get on then allowed me, maybe cos I've been absent for so long. Will catch up tomorrow, sorry decorating issues and redundancies announced at work so not nice time. Will catch up tomorrow and hope everyone is okay xxx
Hopefully you got the link I sent you Carole, if not I'll try to send it again or give you some info about searching online for the article, as Lily has said it's quite a long way down the list and not that obvious from a general browsing. My hair isnt like that anymore, unforunately. The photo was taken about 12-15 months ago and I had put a non permanent colour on my hair for my daughter's wedding which had been in the February. Anyway it didnt wash out completely, as it should have done, but I just kept getting blonder and blonder so was more than happy to stick with the shade, which ws lighter than when we met last, Lily. Its now predominantly dark grey and grey as I've not been able to colour it for ages and have been reluctant to do anything that would make more of it fall out! I will work out what to do with it soon but an new colour would be better.
I can't believe its half term already! I realised this on Friday when lots of kids were already off and others were in casual clothes. We live really close to the primary schools that both D's went to so I can guess the term times by looking out of my kitchen window and seeing if anyone is walking to school! Enjoy the timewith the littlies, and no so littlies.
GS is doing fine, as is ED, enjoying it all at the moment as he s a very contented chap. Putting up with all the noise from my side of the immediate family when we had a big get together yesterday - so many birthdays in one week that it was good to get everyone together and also for the ones who live further away to be able to meet GS. She (ED) has already got a few friends with babies and her ante natal class has been very friendly so they were already meeting up socially before they all had their babies. She is signing up for some of the baby classes you can go to so I'm sure will meet more friends along the way. Eventually she will have to go back to work but that's a long way off so she should enjoy it whilst she's off. Luckily, with her OH's work pattern he is off for long streches at a time so that is nice for them both, to spend time as a family. Baby and her had their 6 week checkups last week and all is good after the initial discomfort and bad infection she had, so that was good. As to being christened I'm not sure what they will do, certainly they will have some sort of dedication and naming of guardians but there is no pressure from anyone to do anything in particular.
Well, that's me up to date, waiting for my referral appt but chased it up last week and have spoken to current onc who is on the case so I'm just enjoying my time away from needles to be honest.
Hoping everyone else is doing OK and willcatch up later in the week.
Hi everyone, I feel like we haven't chatted for ages. Carole I was sorry to hear about your dog and hope that the medication works well. It might take a while to settle as does any medication.My mum's friend had a dog with epilepsy, which started after it had the rabies shot to be ab;e to travel. Its had regular fits after that but has been fine on medication once they got the dose settled. Also sorry to hear you are so tired, maybe take some multi vitamins with iron in case you are out of balance with something that you could resolve yourself. The dog being ill might have been more stressful than you imagine too, so it might be that affecting you too. Hope you both report being brighter soon. 9 weeks to Christmas and hopefully you will have more people around then to help. Lisa how is work now? Also hoping your mum is doing better now.
I found your article Nicky. Carole I googled Mail health but it was pages down before I saw the article, so keep going. Well done Nicky, it was a marvellous story which will hopefully help people know there is more they can ask for if in a similar situation themselves. I like your hair, a lighter colour than when we last met, very flattering. You wouldn't think you had all that going on, good for you. Enjoy all the birthdays and family coming in. Will GS be christened? That's always a tricky one. I think first tiem mums just find it strange to be the only adult in the house as before that you are either at work orr school, many say its lonely. Has she started going to a mother and baby group with him yet? There are loads and you quickly make friends in similar situations to take the babies out together. Lovely to be needed too. I have 3 chaps back again this weekend for a sleepover. Maybe I said yes fine a bit too quick as we have had someone every weekend for a month! I love it but I do get behind as I drop everything. We have a long half term so I have been home a few days. I am trying to get my wedding outfit sorted out as I really can't settle until I know I have something I like. So far I have the dress, jacket was a biiiig bargain reduced from £169 to £44 what a bargain. Looked carefully over it, in case there was a glaring reason that I had not spotted but couldn't find one. So I bought it. Also got a bag and my 3rd level shoes, which are flat for the end of the evening and dancing. the wedding has to be early, as there was another registrar booking on the same day so we will be up early and have a lovely long day. I am so looking forward to it but know my feet will let me down. Now I need to find some higher having your photos taken shoes and some middle I can just about walk in these ones 2nd level shoes. I had 3 levels of shoes last time and it worked well. My YD was impressed as her shoes hurt a lot so she just went into whichever shoes I had just abandoned. I was pleased with the outfit but noted it would look even better if I was looking better underneath it ha ha. Maybe I will have a go at a diet. I also got a fantastic sparkly top which I didn't dare tell Victor about. It wasn't hard as he was so impressed/shocked with my large amount of detail about the jacket. probably wishing I would stop talking about clothes which he has no interest in at all apart from saying 'very nice'. Better make a mental note to remove the label and rip into 100 pieces. We are off for a few days soon, Victor's late birthday present. Little does he know I have wedding shoes and new boots in mind as well as sight seeing. Well better buzz off as late. Loved the article Nick, well done. Love Lily xx
After a dreadful weekend with our dog Heidi, who kept having fits, she started Saturday early evening and was having continual seizures throughout the night and on Sunday. As soon as one fit was passing, she was going into another one it was very distressing to see and being as i'm home alone I coped as best I could but was very worried, and tired. On Monday off we went to the vets, thankfully her blood test was ok and didn't indicate anything that would cause seizures, so she is now on epilepsy medication. She has been fine since Monday but I think the meds are causing her to be a bit disorientated.
As for my own health, my constant fatigue is beginning to be a worry, I'm waking up exhausted and feel so tired throughout the day. I'm still waiting for my ECG results. The pains and tightness in my chest seem to occur at any time, even when I'm not doing anything strenuous. I just haven't got the energy to even take a walk.
Nicky, I searched the Daily Mail website but sadly I couldn't find your article. I looked under Health too. Perhaps if you have time could you PM me a link please? I am envious that you get to spend a lot of time with your GS. Lily too with hers! But, I now how wonderful it is to have family around you.
Lily, bathtime is lovely with little ones isn't it? Are you managing to avoid the coughs and colds that must be doing the rounds? Half term next week, are you planning anything nice?
Lisa how are you?
Take care everyone, love Carole xx
Sorry for my absence its just been a bit of a manic time. OHs birthday needed some extra time shopping as we'd only come back a few days before plus seeing GS, especially when ED needed a bit of a break takes up sooo much of my time. I love it of course but it puts you on the back foot a bit and existing plans or jobs for the day end up having to be done in the evening or fist thing the following morning which means no time for reading and writing on here.
Everything is going well with the little chap but as my SIL does shift work ED found it a bit difficult the first night shifts where she was on her own and still coping with the night feeds. Also, although being able to have 5 weeks off after the baby's birth it meant she suddenly had to do things all on her own in the day whereas most new mums have to cope pretty quickly after the birth.
Glad you have had lots of cuddle time with your new GD CArole and it woukld have been a great help when your DIL had to go into hospital. I don't know what is going on with births these days but so many mums seem to get an infection of some sort, I didn't know of anyone of our generation who had one. Hope you get to see her again soon. How did the 24hr ECG go? Did it show up any problems? I must admit I've had them done a couple of times and they didnt show up anything, this was before I had full blown AF rather than the occasional AF I started off with. (On that note just to let you know I was in the Daily Mail yesterday, Health section, regarding my heart issues - it's online and you are 'lucky' enough to see a photo of me! I didn't want to say anything beforehand as i only knew the night before it was going in and as my name is used I didn't want to flag it up in a quick post so I'm sort of hiding it in here)
Lisa, hope the cold is getting better. I had my flu jab last week and no side effects at all except the sore arm. Last time I had it I went staright down with a cold which is why I've not had it since but that must have been coincidence. Hope work has calmed down and you are planning your next hols :-)
Lily, hope schoolwork has calmed down after the inspection, let us know what the resukt is. I have a couple of teacher friends who hated the Ofsted inspections, so much extra work, often for nothing as you said. I'm currently waiting for my next referral appt and have chased it up yesterday., Enjoying the chemo break to be honest and not worried about the time off treatments as my scan was only done 4 days after my last infusion so didnt even show the effect that last one would have had and I'm sure it will in my system for a few weeks more. Also, if you are starting a trial, you need at least 2-3 weeks off any treatment before you start it - to make sure the results are accurate.
Anyway, no other news from me except a big weekend coming up. More family birthdays and all of my immediate family visiting to see the new GS, living further away it's been difficukt to organise until now. Hectic but I'm not cooking thank goodness, the local pub can do that!
Catch you soon
Hi everyone, we seem to have all been popping in and out and missing each other, so to speak. Nick have you had an appointment referral date yet? They always seemed to be relatively speedy so hopefully you can have a good chat with the experts about what comes next. What does your local onc think you should do? Do you agree or do you have other things in mind like getting on to a trial to access a newer drug that is not available routinely? Hope your little chap is doing well and they are settling down to family life after the big shock of a first baby. Easy peasy after number one!! But the first is a shock as seems to take over everything you do. Great fun though. Carole how did it go on the monitor, did it reveal anything? Lovely to hear about your visit to your new GD too. Poor new mum, that sounded horrible and such a shame to have that so quickly after the birth but glad its sorting out now. Abscesses are notoriously hard to heal, do you remember I had one and it took 6 months after the op to finally close. I hope she does better than that. Lisa aaargh the colds have got you already, bad luck. I have had one cold but it was mild thankfully. I hear that people are being quite poorly after the flu jab this year but that it is a very nasty strain so I guess worth a milder illness to prevent it. I don't get one but take my oldies along for one. I have been so busy as we had an ofsted at work. Horrible being under pressure and after all the hard work they didn't see me, so rather a lot of paperwork to go in the bin. Oh well its part of the job but so unfair to be judged on 10 minutes of your whole career. They are the traffic wardens of schools. I have ED and little pink staying so its a fun weekend. She is good fun to have around, very chatty and likes to dance to any music that comes on. She likes us to be busy. Confident enough to run in and shout I'm here for a sleepover Nanna. They don't have a bath in their house so she thinks my bath is a pool to swim in and its very difficult to get her out, once in. Going to be a lot os swimming here this weekend., Take care all love Lily xx
Hi carole, baby sounds adorable, what's her name? Lovely that you've had lots of cuddles. Ouch re her wee issue eugh.
any news on monitor results?
not much to report here, got lurgy and awful cough and work awful lol holiday seems many moons ago, think I was reliving my youth partying and dancing till 4am lol 👍👍. Ready for another.
hope all is well xxx
I've been so busy catching up with shopping, animals, housework etc. nothing interesting happening here.
My UK visit was wonderful, new little miss is absolutely adorable. She is quite a good baby in that she sleeps a lot, DIL is managing breast feeding well although poor thing ended up in hospital for the day with an awful abscess in a very difficult place. (DIL not baby). Anyway after an operation to clean it and open it new Mum was feeling a lot better. I had lots of cuddles with baby who is so cute. I was left to babysit for just over an hour while they popped out shopping, I had to step in with standing, rocking and bum patting - do all babes love that, my 3 always did? Doesn't time fly, she will be a month old tomorrow.
Weather wise it has been nice here, very chilly mornings and evenings but yesterday was 26 degrees so quite warm during the day. Garden wise I am still picking cherry tomatoes, raspberries and blackberries our green veg got demolished by cabbage butterfly Our dahlias, marigolds and geraniums are still flowering and the crysanthemums are just budding.
At the moment I'm strapped up to the 24 hour ECG machine, however, the electrodes are not agreeing with my skin so I think I will have to take it off before the 24 hours. Hopefully they will have enough hours to work out what, if anything, is wrong.
So on that note I'd better go and do something before I lose the day completely. Love to everyone xxxx
Hi all, sorry I've been away all weekend again and loads of dramas at work but I'll catch up tomorrow when positive head on. Only had quick scroll down but amazing news Nicky 😍😍😍😍😍😍😍.
hope everyone okay xxx
Hi all, I'm back from cuddle land and will catch up tomorrow. Brilliant news Nicky yippee.
Love to all xxx
Fantastic news Nick, congrats. Its what we have all been waiting for and I hope you can enjoy some stability for quite a while so you don't have to have the worry of these big decisions so often. keep me posted and most of all just enjoy it. Can I say I told you so ha ha. So pleased for you love Lily xxx
Another, slightly longer, message from me.
Now I've cleared some of the washing mountain (luckily a lovely sunny day here yesterday so I got most of it dried), seen GS (plus ED, YD and SIL - ha ha what a coded group we are) and generally got back into the swing of things I have a bit more time to post.
Firstly I had my results yesterday and full body scan shows only one liver lesion that continues to shrink - hooray. Bones all stable and no other signs of (bad) activity. What a relief, something that had kept me away the night we got back from holiday. So the plan is to still get (yet) another referral to The M and see what they thuink, whether I stay on the current regime (a possibility) or be put forward for a trial (as long as I meet the criteria). Either way I'm a lot more possitive than when I went there earlier in the year to discuss a trial as at least things have now been responding well and I am both physically and mentally stronger. Should find out in the next week or so when I get the appointment through but current (local) onc and I are happy with the plan - and obviously with the results.
So, how is everyone else? Carole, you must be over here visiting now, or very soon. Hopoe all is going well with new little miss. Our GS is doing very well, putting on weight, very contented but still giving his Mum and Dad a few sleepless nights but what can you (they) expect after all he's not even a month old!
Lily, how's school, other than being drowned by paperwork? Any more babies on your horizon? Or have all your daughters had their families now? I lose count of the number of grandchildren you already have. And can't believe that oldest GS is 13 - wow where has time gone?
Lisa, how was Magaluf? Or is it a case of what goes on in Maguluf stays in Magaluf?? Hope it was fun and all your organising was appreciated.
Have a good weekend
A quick message to say I'm back from hols (last night) but busy busy with the pile of washing - as ever, plus all the other bits of life that have to be sorted once the hols are over. Had a great time in Northern Spain, weather iffy at times, baking hot at others - but only what we expected this time of the year.
Will catch up later.
how are you all? Its a bit quiet on here so hope you are all busy. Nick I have lost track of whether you are still away or maybe enjoying the company of your gs? Carole when do you see your new little gd? Hopefully you will get a cuddle soon. I am busy at work too Lisa. i don't know where the days go to but the pile of work seems to keep accumulating. I have the tiniest gap on my desk and the rest is a mountain of paper and things to do when I get the chance. At least the days zoom by to the next holiday. Still haven't booked anywhere yet. Its Victor's choice so it will be in the UK booo. Take care xx
Hi all, will catch up tomorrow as been busy bee, back from hols then straight to Birmingham for course so slept last two days after work, should be back in land of living tomorrow. Have a lovely holiday Nicky. Rest f us batten the hatches rain is due tomorrow xxx
Have a brilliant time Nick and I hope the weather holds so you can stay out and about for most days. Other people's families are quite difficult to understand at times aren't they? At the end of the day I think you reap what you sow. That's why Carole and I are battling through some tough times with our oldies because of what they did for us in the many previous better years. I don't know what wsa said Carole and I don't think you should even write it down so there is a record of it, just think of her not being her normal self and not meaning it. I come home and tell everyone mine is deranged when she says horrible things. My brother says - well she looks like her mum even if what's coming out of her mouth doesn't sound like her! Nick it is difficult to give advice, they almost certainly know you are right but maybe can't trust anyone else to actually help out. Or if yoiu keep asking and no-one does help, you just get on with it, it wears you down keep asking.
On a brighter note glad GS is doing well and I think you might need to have a crying baby to appreciate a contented one. I have had complete polar opposites of babies and think it is just chance but experienced mums cope with needy babies better as they don't panic. Glad she had a sleeper even if she doesn't realise it yet! I see your point about the chemo and saving it for later seems a great plan. How do you feel about faslodex? I have read a bit about it and know it works in a similar way to tamoxifen. Do you have to have it in the backside and one on each side? That's really annoying if they can't stab you somewhere else or have it in a tablet!!! I would be having nightmares about what underwear was suitable to arrive in!! I will be hoping you don't mind the idea of it as much as I would or that you can have an alternative way of delivering it. I do like the idea of being on a new trial though. Presumably it would be a stage 2 or 3 trial so pretty well tested already. Main thing is of course that it does what it is supposed to and stabilises everything for you. Forget it all and have a lovely break. Lily xx
Sorry to hear about the Mum troubles. Luckily I don't have it with my parents but OH is having to see more often as his Dad isn't getting any better which outs strain and stress on his Mum. He has to visit each weekend now, his choice, and although not too far away it does eat into his time off work. To be honest I try to keep out if it as I have my own health problems but if it were my parents I would be banging all his brothers and sisters heads together - there are 5 of them after all and sort out something more permanent. My 2 brothers know I wouldn't stand for any nonsense from them and I have no idea why OH and his younger sister seem to take on all the decision making, they are causing themselves more problems. Every time I say something about sharing the laid it sounds like I'm criticising the two of them whereas I think they are their own worst enemies, grrrrrr.
Bet you can't wait to see the new little miss, Carole, not long now. Our little chap is doing very well, as are Mum and Dad. I am helping out as much as they want me to and hoping I'm not in the way. ED is not keen on the in laws parenting skills, I won't even go into how badly our son in law was treated as a child as he's a stepson to the MIL so I think they appreciate my down to earth approach which appears to be working well. Having said that I ever had a baby that well behaved! Yes, I know they aren't 'behaving' but goodness me he's content and sleeps well, they have no idea how bad it can be for some Mums and dads, and just complain they they only got several lots of 4 hours asleep at night, I should have been so lucky!
As to treatment and scan results I hope I do actually change from this chemo, as it is a chemo, and it does have its long term effects which are cumulative. It also means if it hasn't stopped working I could re visit it again if needed. I should (and I say this with a bit of previous knowledge as its ended up not happening in the past) go onto hormonal treatment but as it will be faslodex I will have to go to The Marsden as faslodex is not funded by the NHS. You have to have it under trial conditions either with additional, newer, inhibitor drugs or possibly increased dosages, all of which are being carried out under trial conditions. I'm sure it won't be easy either way but it has been flagged up through various blood tests already carried out on me that I would benefit and respond quite well to it. We will wait and se, as ever.
Anyway off for our Hols tomorrow, YD will be here so no worries about leaving the house. Looking forward to some R and R, weather looking a bit of a mixed bag, hot to begin with but a few showers forecast for the end of the Hols, however this can change so I will pack accordingly.
Catch you all soon.
Hi, we will be waiting to hear about the gossip Lisa, hope you had a great time. Nicky it seems to have flown by, your last eribulin possibly! I know in fact it only flies by for people not being poisoned! Fingers crossed for some good results from it and of so maybe they will keep you on it for a while longer. It would be nice to have some periods of stability when you didn't have all these big decisions to make. All of which take you away from more exciting things like babies or holidays . Keep me posted how you get on. Will you definitely go to the Marsden or does it depend on what the results are and if a decision is needed? Sounds like a good time to escape to Spain and enjoy some relaxing days. You deserve it. I have enjoyed planning work in the house but it drives me crazy when they are actually here so i try to be at work and leave Victor in charge. After quite a lot of changes here, we are back into resting mode and fighting of chest high nettles in our wild garden. One week away and they swarm back from an over run garden close to us. A never ending battle.
Oh Carole I am sure I know exactly what you are going through and how you feel. I have even talked to my lovely dad's photo recently and said that's it, enough, she doesn't even want to be here so come and get her! Thankl goodness I have a full time job and thank goodness you have the channel to separate you ha ha. My heart sinks if someone jokes that I am getting like her but at other times she is perceptive kind and very generous. You just never know what you are gettiing next! Yes I saw George with work colleagues and it wa fantastic. very realistic and a great stage show so I was on my feet dancing for most of it. Not the Dbs yet! I hate to shock you but little chap is 13 now. Typical situation with the families. i assume the other mum has flown over and wants everything done her way? One of the girls' MIL causes waves and you just wonder why bother. Mum is trying to bully people into having the bridesmaids she wants/thinks should be asked but they are not budging and I admire that as I sometimes give in for an easier life these days. You take care with your palpitations or you will be having something else wrong. Better start having a wine yourself to relax! I think not calling is a good thing and probably the only thing that makes them take notice as you can't be unkind, weell I don't find I caan be. Although I notice she seems to be much kinder to the people who bite back! Typical, nice guys never win. Well cheerio Grandma and Nanna and we can all wait to hera what Lisa has got up to ha ha . Lily xx
Nicky I don't blame you, you deserve a nice break and if it incorporates tasting some wine.... well why not. I'm pleased that you have finished your last current dose (hopefully) and as usual, along with the other buddies I'm sure we all wish your results to be super dooper! Well, Grandma, I am just going to be Nanna. I hope that you will be enjoying your new bathroom, and some freedom from workmen.
Lily, how are you and the family, Have you seen George M tribute yet? Have your eyes popped yet with the dream boys. Blimey, hasn't time flown fast, I remember when your little chap was born so he must be around 9 now??
Lisa you look like you are having fun in Majorca, it looks like a hen party lol. I think parts of Majorca are very pretty, are you doing some sightseeing too? The weather looks fantastic.
The last week has been very stressful for me not being close to baby, son and DIL. DIL's mother has been doing a lot of "wrong" interfering, maybe its a cultural thing, she doesn't speak any English so it has been difficult to explain to her, but son has felt a bit left out at times and of course, I am the one giving support, without trying to interfere, which hasn't helped my stress levels. I wasn't sleeping, I had a pounding of heart beat in my ear and my palpitations were getting very uncomfortable. Purely all stress related I think. Finally by the end of the week the other Nanny was put in her place and has backed off, so, over the weekend I've just been enjoying seeing lots of photos and speaking to them both about how wonderful baby is doing. I am so looking forward to my hugs after next weekend.
I also had some upsetting conversations with my Mum, purely because she has no tact and is always just putting her foot in it! She has said things I just didn't want to hear, couldn't bear to think about (can't go into detail) but it was so upsetting. Even though I asked her not to say those things she still carried on 2 or 3 times after!!!! So, I haven't phoned her since Friday and will give it a few days so I don't say something I will regret. I'm sure you understand Lily where I'm coming from?
We are having an Indian summer, it has been gorgeous during the day and our terrace thermometer reached 36 degrees today. The pool though is only 19 so much too cold for a swim, I'm not very brave. Yesterday on my step machine I managed 2 kms in under 10 minutes. I am trying hard to be active but rarely have the motivation.
I hope you all had a great weekend, sorry it's been a bit about me! Happy holidays to Lisa and Nicky and Lily I hope that you are managing some free time, what with grandchildren and an aging Mum.
Love to all, Carole xxxx
Hey Lisa, hope you had fun (I'm sure you'll only read this once you're home and recovering!!!) and that the weather was OK, it's been a bit iffy over the last few weeks as I've had friends holidaying in Majorca. Tell us all about it!
Well, Lily, I've decided to be a glamorous Grandma ha ha. ED kept asking me, for 9 months, what I wanted to be and I couldn't make up my mind as we do still have both sets of parents who still have their own names which I couldn't use. So Nanna was already being used and I joked with my Mum that I'd have to kil her if I wanted to use it. Our families have never used Grandma, always Nanny so I thought I'd go for something ironic which also has no particular link or memories (of old grey haired biddies) so 'Grandma' I shall be unless he wants to call me something completely different of course. Funnily enough some other friends, one already a grandma, and one soon to be, have chosen that name so we can all be glamorous grandmas together.
Hhow are things with your DIL, Carole? Recovering well I hope. Having had a C section with ED I know what it's like with the recovery. The main thing is to remember it's a major operation and not to underestimate the stress this puts on it. And baby, how is she? Our little boy is doing very well, putting on weight and feeding and sleeping well. I luckily get to see him quite frequently as ED is just down the road so we went out for a nice walk the other afternoon, making the most of it whilst the weather is still OK.
Well, I had my last (I think) eribulin yesterday, all went well and no repeat of the nausea from the first part of the dose last week. I say that I think it's the last because I am meant to be changing treatments but, as you know by now, things don't always go to plan with me! Anyway a CT next week then results a week or so after which I'm quite happy to wait for, especially as we've planned another holiday in between the two. This is our delayed holiday waiting for little baby to arrive as we usually go away once the school holidays are over and the weather is still nice in Europe. So off to northern Spain next week for a bit of travelling around and some wine tasting in Rioja which should be good. After that I expect to get another referral back to The Marsden to see what they have in store and if I fit the criteria for one of their trials, which I am hoping I will.
Workmen in again today to fit the flooring for our newly enlarged ensuite so eventually we will get to use it fully and then almost done, just a few finishing touches needed such as cupboards and shelving but were coping at the moment with free standing units we already had. Can't wait to say goodbye to all the workmen who've been here during this year but at least we've now got things as we want them.
Ta, off at 5am lol... took Mam for wee meal out tonight so better get to bed as pick up at 4.30am so won't sleep lol.
See younall all next week when I'm exhausted from 8 girls in Spain escapades xxxx
Hi everyone, hope you are all ok. Lisa I am really pleased to hear that your holiday is ok. So disappointing for people and I bet its wrecked some honeymoons and weddings too for some people. Hope you and the girls have a lovely time, of course you will! Good news about mum picking up.
So Nicky and Carole are you nans, nannas, nannys, grans or grandmas? I think it all depends what you called your own grandparents as people don't like to share their name, otherwise you have to hang another name on the end to know which one you are. I never had a nanna so i picked that. Also because my first one could say that easily from an early age. Our very eldest relatives were gran and nanny, so I guess that was the other reason as they were all stiull alive and called that by everyone. Such fun
Thanks mum seems much better apart from acid reflux which is causing her problems as switched her tablets and given vitiman d and calcium toobut not sure how long for.
yep holiday is causing me stress lol and will need another holiday lol. Luckily Ryan air just announced full list of cancellations so I can breathe at last lol
oh dream boys get you Lily xx
Hi well that's better news, mum out of hospital and both babies and mums healthy and doing well. You are making wish I had a baby to cuddle and I already have 6 little people to cuddle, well little chap has size 7 feet and is taller than me now so maybe not so little. he is a big cuddler though which I love. Oh it is chilly for September isn't it? I have my heating on so it just kicks in whenever the house cools down and let the shower run for ages before I venture in!1 No idea how I will cope with winter this year. I am supposed to feel hot all the time at my age but instead I feel cold so I am battling people in the office who want air con on. Do any of you feel very warm? Just wondering if the chemo forcing menopause means I am now experiencing the chilly 60s earlier than usual ha ha. Lisa I hope you have a lovely holiday. It sounds like the type you need a holiday afterwards to recover from! Have fun. I am looking forward to the George Michael tribute concert with work, hope he is good. Also booked for the dream boys. That should be amusing! Well better buzz off. Lily xx
Hi all, congrats carole, seen pics on Facebook so happy for you.
hope everyone having a nice weekend.
mum is out of hospital and loads better thank god, was pretty scary, she's worrying a lot but doing well just acid reflux playing up so she's worrying what it may be, now you can see where I get it from.
well on countdown , girly break on Thursday for 4 nights all inclusive just to chill and talk and laugh with girls, only issue is going with Ryan air so on edge of seat to see what happens eek
night xx loving my Saturday night X factor fix 😍
Whoopee, over the moon. I've seen photos of little baby and she is adorable. There was a problem during labour, she was 8 cm dilated and it didn't progress, plus Mum and baby were becoming distressed, so they put an epidural in, which improved the stress but baby was going into the wrong position. Hence the C Section. Having had 3 I empathise, but at least it resulted in a healthy baby and a very happy mum and dad.
Tickets are booked! Going over in 2 weeks time when DIL's Mum has had her couple of weeks. Can't wait for cuddles.
Thanks for your good wishes everyone
Happy weekend all xxxx
Congratulations New Granny No 2 👵🏻 What a lovely name. Sounds like the labour didn't go to plan and was quite an exhausting day for them both but the main thing is that mother and baby are well. I must admit the later it got with EDs labour I thought she would end up with a c section. Having also had a major infection 'downstairs' she's saying she would want one next time! A speedy recovery for Mum and hope you get to meet your new granddaughter very soon.
Congratulations Carole and it wasn't long to wait after Nicky's little one arrived. Such lovely times for you both. I love the name Sofia, very sweet. Was it a planned C section or did she have problems. You haven't mentioned anything so I am assuming and hoping that everything is fine healthwise. Book that ticket now! Congratulations love Lily x
Lisa I hope your Mum is continuing to recover, sounds like an awful virus to wipe her out like that. Hope your leg and your eye is better.
Nicky also hoping your eye has improved and you are enjoying lots of cuddles with GS.
I'm on tenterhooks, DIL went into hospital yesterday morning early after having a show and pains all night. However her contractions weren't regular so they sent her home. I had a message from our son just after midnight to say he was taking her back to hospital as contractions were regular. By 9 am her waters had broke and she was 4 cm dilated, however, during the morning both her and baby were becoming distressed. So the last I heard was that they were going to give an epidural to help. Not sure how that will help apart from relieving some of the pain, perhaps DIL is stressing too much. It's so hard not being there
So no news yet other than that.
Hi, well I need to send get well wishes to everyone! Lisa so sorry to hear about your mum, sounds very scary so good to hear she is on the mend. Nicky hope your eye continues to improve a bit quicker. That drip down the side of the eye used to bug me as it sometimes got sore. You could be right about the grit and lack of lashes. Hope the nausea was coincidental but probably wouldn't hurt to take a small anti sickness dose on the last one. Could be psychologiical but could be a build up on the later doses. Sorry also to hear ed had some infection worries but happily sound slike she is bouncing back now and can show him off to everyone now. I do hope you are preparing for another sack this Christmas. Great fun buying baby things. I hope you are ok Carole. I am scare dto ask as we seem to have hit a poorly patch. Love Lily xx
Ahhh Lisa, bless both you and Mam. How frightening that she was that poorly but it sounds like the Drs were on the ball and got her hooked up to everything she needed. Wishing her a speedy recovery and she's not in hospital for too long. I think one type of tablet that she may have been on, a diuretic, can cause low potassium levels, mainly because you pee so much it can deplete them. Given that she had a really bad stomach bug as well it wouldn't be surprising that lots of levels that we don't even think about got so low. Hope you are recovering from your fall and it was only your pride that was damaged 😉
Well, last but one infusion yesterday and for the first time I felt a bit nauseous afterwards. Normally I feel absolutely fine, take no anti sickness and just carry on as normal but defitely felt a bit grotty yesterday. I actually think it's a reaction by me going into hospital and thinking I will be nauseous if if have chemo - all in the mind rather than anything particular causing it. One thing I have come to hate is the smell of the conditioner they use before putting on the cold cap - they do this once the hair has been wetted as it helps release the cold cap at the end and you don't have lots of hair frozen to the inside! I took my own last time to get away from theirs, which would normally smell absolutely fine but to me I'm associating it too much with chemo. Oh well, only one to go and I'll remember to take my own again as I forgot it yesterday. I also had a scare this week on Sunday night. My right eye was very sore in the night, I needed to rub it a lot and even take painkillers as it was so sore. Anyway, come Monday morning my vision was really blurred and I immediately started thinking, Oh no, brain mets. I know my eye was sore but know way too much about what can and cannot happen with SBC so was not a happy bunny. Not much better by Tuesday morning when I had hoped it would've have improved. Anyway I was seeing my onc that morning and he was very reassuring about it being an infection at which put my mind at rest, and funnily enough on the drive home my vision was so much better! I think I may have got a bit of grit in it, especially as I have no eye lashes to protect my eye, and rubbed it so it scratched the eye a bit. It is definitely getting better but not 100% at the mo. Add to that the constant watery eyes it really doesn't help with seeing things clearly!
Yes, I have been seein GS quite a bit but don't need to be there all the time to help ED as her husband is off for about 3 weeks and it's good for them to be themselves and their own unit. eD had a bad time with a severe infection with her stitches but is now on the mend on antibiotics and painkillers. She was so bad she couldn't even sit down to feed or hold her new baby so her OH was doing all the feeds and nappy changes. She is feeling much better and enjoying being a new Mum now and because they had to go to her GPs a couple of days on the trot they have got out of the house and realise there is life outside ha ha. She is popping over today to show him off to her grandparents who are now Great grandparents which will be nice. Rather than ha have them all at their small house it's easier they all come here so I will be able to have a cuddle with him again. After a couple of days and nights not settling he seems to have got into his routine - sleep, feed, nappy change, sleep repeat. Very contented little fellow and, although we all say it, a very beautiful baby boy, ah.
Hooe your son and DIL don't have to wait too long Carole, I think the due date must be quite soon.
Hi all, weather been very strange here, one minute sunny next minute torrential rain.
ha lily I meant travel insurance. Wow got a great deal, all medical conditions
covered and £68 for annual policy including USA 😁😁😁. Believe it or not lily the shoes were Louise and from clarks and love them.
well, had awful 48 hrs but hopefully coming out of the other side. Mam has had a viral bug for about 3 weeks. Started with sickness and major toilet issues bless her, she was wiped out for a week. Few days okay then back again and she's just felt generally crap and her acid reflux playing up. She rang me at 1am as had palpitations and whnnshuts her eyes everything jerked and tremorred. Ended up taking her to a and e where we stayed till 9pm before being moved to coronary care bless her. Looks like her potassium, magnesium and calcium levels had all dropped seriously low, she was on oxygen, drips in both arms to get nutrient back in, cathatar in and about 10 lots of bloods and said serious. Had me worried as kept asking about cancer history and her brother sister and aunt died of itbut ask you about everything. Today's been a new day tonight she looks loads better, and on a normal ward. Consultant thinks it was the trots as it was really bad and she wasn't eating or drinking so wiped her body of nutrients and mixed with one of her tablets which has rare side effect of wiping potassium out, even though been on it for 10 years, so after lots of IVs levelsmall back up and she's back on her feet, so I'm hoping for some sleep tonight.
Hi everyone, ha ha I loved the emotional tag and thought it was a cool feature i didn't even know we had. I must use it myself when the moment arrives. Carole its chilly her too but hoping the sun will be back and its not autumn already. It must be exciting waiting to hear about your new little GD. I hope she arrives on her own and doesn't need some help, so much nicer than the induction walk into the hospital. Having had a big family I found mine were all different and didn't follow a pattern really. I am curious to hear her name now.
Lisa how embarassing and painful to fall over. I hope it wan't terribly painful and throw those rotten shoes away now in case you break a bone next time. What was the insurance policy comment about? I wasn't sure. Only about a week until your holiday now so I bet you are busy trying to get evrything up to date at work before you go. Spa day was a lovely treat. We are up in London in a big spa hotel for Eds hen do in a few months and a night out in a club and lots of food and fun. Very excited about it. Before then I am seeing the dreamboys and I will be the oldest person there I am sure so will be very careful not to be anywhere near the end of the aisle to be safe. The girls got the tickets and one of them booked the front arggggh. Might not take my glasses so the view is a little blurred ha ha. Then next week going to a George Michael tribute concert and very excited about that too. Going with work so should be fun.
Nicky I bet you are popping around to help with that little chap as often as you can. Which side of the family does he take after? Hope he is settling a little. What a lovely thing to take your mind of appointments. Love to all Lily xx
Welcome back Lisa, sorry about your leg and hope it doesn't affect you on your break. I have no idea what happened with my emotional tag, hit the wrong button I think instead of a smiley
All for now xxx
Hi all, quick catch up before I bash on and aim to get earliest night, sorry for absence, work is sooo busy and have som Night time meetings and been on a course, ha fell in front of boss and leg black and blue just before my hols typical, ha weather was terrible and my wedges slipped on silver circles that were indicating the dropped kerb, happened twice at both sets of traffic lights, needless to say those won't be in my holiday case. Mam not feeling great with awful acid reflux well she hopes it is and had a bug so been at there's a bit, nieces birthday and sorting out for girls holiday... phew so finally logged on before off to bathe my still weird eye..... and what a time to log on....
Nicky , amazing news the name is lovely really cute and hope you've had a lovely day spoiling him if you managed to help out today. Hope treatment still going well.
carole, oh how long till your new arrival.? Oh and what happened with your post, says wanting emotional at the bottom.
Lily, are you back to routine at school, did you go for a different job at work??
well nothing interesting to report her, been so sad watching the news... right off to try and find the dreaded insurance policy online, the joys of the form filling... oh old boss bought me a lovely spa day at a local place that I've never had the spas as too much money, was lovely, me and friend went, was bliss, sat around reading, was fed and watered, facial, tucked up in a furry bed overlooking the woods and country and then some pool time and outdoor hot tub with a prosecco overlooking the gardens (and in heavy rain lol), bliss but been exhausted every since ha.
night all, will try and pop back in more often as missed the gossip...
What a lovely name Nicky for GS, he was a good healthy weight wasn't he? I hope that your daughter is recovering well from the experience of childbirth. I know it's a perfectly natural thing but it does take it out of you.
We are eagerly awaiting the arrival of new grandaughter, we know the name already but I'll surprise you when she arrives. All is well so far.
It has been a bit chilly over the weekend, definitely autumnal and despite our best efforts to keep the flies out, unfortunately they seem to find a way to get in as they don't like the cold either. Today is quite bright and sunny, after having overnight rain. I shouldn't complain considering what The Caribbean and Florida are going through.
YD will be here for only another couple of weeks, and then will head off to her final year of her Master's, and studying. Let's hope she will be able to find a decent job when she finishes. Still, will worry about that next year.
Mum is still finding the odd BB, the council are fumigating next week. She often complains of "just not feeling right", so I suggest she tries to eat, even if only a bit of cereal and to keep taking her drink supplements.
Well, my housework is calling love Carole xx
Hi everyone. Nicky I love the name. Funny that I mentioned William or a modern/current name!! We must have a psychic link going on. I like family traditions with names, we have a few but not everyone continues them. Always up to mum or dad. Who do you think he looks most like? Well how lovely to have the excuse to monopolise the little chap while helping them out. New babies can be hard work. Main thing is not to both get up, to take turns looking after them so you at least catch some sleep. My best sleeper from early on was the only one that was born in the day time. All my night born babies seemed to think that was getting up time every day and had to gradually move their clock round. Well congrats again and welcome to the Nanna club. What have toy decided to be called? Lily xx
Hi, thanks ladies. A very busy Friday for me just making sure family and friends knew plus of course visiting my lovely grandson before he came out from hospital. Sorry I realise I have given you this info already.
So the details, for Dr Lily: As you have done I'll give you his name once and then refer to him as GS or similar. His name is Quinn William (William being his dad's middle name and a family tradition). He weighed in at 7lb 3oz and was a week early. ED and her OH are v tired as the lovely little baby doesn't want to sleep much. I think we will be relieving them a bit today so they can have an hour or so catch up with sleep. I managed a long cuddle on Friday as I was at the hospital for about 3 hours, visiting then waiting for them to be discharged which took an age. Luckily they live only about 5 mins away so it will be easy to drop in and help out if they need it, which going on this mornings cry for help might be more often than we all thought!
Niw we just need to wait for Carole's news of her GDs arrival 😊
Congratulations Nicky that's wonderful news. Very glad to hear he arrived safely even if he did take his time. First labours!! It sounds very familiar, lots of hanging around and wondering if it will ever happen. He was early wasn't he? Do we have a name yet? What did he weigh? I love the details. I bet you can't wait to have a cuddle and spend some time getting to know him. Lovely news Love Lily xxx
A busy morning for me as I have been updating family and friends about the arrival of our new grandson 👶🏻. Born late last night so ED and GS are still in hospital making sure they are OK. EDs waters had broken on Weds morning so they gave her a chance for the labour to start naturally, she was already having contractions, or she had to go in yesterday morning to be induced. I think if it goes beyond 24 hours after the waters break but the baby isn't born both mother and baby need to be observed for about 12 hours for signs of infection so she won't be home until later this afternoon. Anyway I'm sure I'll hear all about it when I see her but not a quick labour from what I can tell. However they are both looking great (good old whatsapp for sending photos) and she is very happy, as is the new Daddy!
Will catch up over the weekend.