Yes I did survive! And am not leaking from the tiny holes that were left once the wire was removed ha ha. A very odd sensation but best not to think about it. Our GP surgery is only a short walk from us so I set myself the target of walking there for the appointment but had YD on standby at home in case I couldn’t walk home through either fatigue or having passed out 😵 Luckily I didn’t need her services and managed to walk home. I do feel a bit more comfortable having had them removed and have my follow up appointment today so we will see if the surgeon thinks I’m doing well.
Hi ,just wanted to check you survived the dreadfull sounding wire and suture removal. That's one of the medical things that makes me squirm, like pulling drains out yuuuk. Hope it went ok Nick and that it feels a little more comfortable Lily xx
Feeling much better thank you - still on pain killers though, just paracetamol with the odd ibuprofen thrown in for good measure. This time last week I did feel really awful, a bit of a tickle in the throat (probably from the GA) and when I coughed it was agony, luckily that cleared up after a day or so. I have been sitting out in the sun at every chance and got OH to stock me up with lots of mags to read whilst out there - can’t used iPad in such lovely weather as can’t see the screen ha ha. A very light bit of gardening, just pulling a few weeds and sowing a few seeds so nothing strenuous, just left all of that for OH over the weekend. And getting out for a few very short walks just to test the water! Very achy where the main part of the op was on the first time we went out but feeling a bit stronger each time so will keep it up as this is one of the main physio activities they want you to do to improve recovery. OH, ED, GS and I went to a local garden that it open for visitors on Saturday and that was just right for me to have a bit of a walk around in, look at the lovely flowers and then sit down for a cuppa and a cake - bliss. The others were able to have a bit more of a walk to see the gardens as I have been there quite a few times before whereas this was their first time. Have seen GS quite a bit, towards the end of last week when I picked up a bit, but obviously can’t pick him up as he is so heavy now, he is 7 months old would you believe. But he’s happy in his walker or just crawling around and playing so doesn’t need so much in the way of being held these days. And yes, Lily, the scar is as bit as that! Much bigger than I even thought when I agreed to have it done. Hoping it heals well and sutures come out today, I’m currently held together with bits of wire so it seems but they said that this is the way they have found best so I assume they know what they are doing! Then a follow up appointment with the surgeon tomorrow, which is sensible rather than leaving it the normal 4-6 weeks after an op and will ask a few things like when I can drive etc. So that’s me up to date. How are you and all the family doing?
Lisa, your hols sound fab, what a lovely time with the family. Must have been a bit of a weather contrast between Florida and NYC at this time of the year. I know exactly what you’re talking about with the blue bag story, maybe speak to their UK office and explain? (I know they have a shop in London and probably elsewhere as well). Sorry to hear you had a bad cough whilst away though, that is such an annoyance, just when you want to enjoy the whole thing and get fed up sleeping badly because you’re coughing so much. Sounds like you and Lily had a similar bug, but maybe mention it at your checkup? Hope that going back to work hasn’t been too bad and you settle in, or your new assistant settles in more to the point! Decide how things are before looking elsewhere as well.
Carole, how are you doing? Is the weather nice and sunny like here? We seem to have had all the warm weather for now but at least the sun is still shining for a few more days. For the first time I seem to be struggling with hay fever this year, goodness knows why but my eyes are really itchy and I have a blocked or runny nose, I could do without this! Are you getting on with the garden and planting up things? How is little pup doing? Any better at sleeping and generally training? Hope that he (I think it’s a he!) is becoming more of a companion than a nuisance now.
Better sign off now as have things to get on with, most importantly getting my wires removed, yikes!
Hi how was your weekend everyone? First of all, Nicky how are you feeling now? Are you managing to get round and about or is it still uncomfortable to do some things? I forgot to ask you about the scar and bruising, how has it been. A shark bite !!! I hope not that size. Still getting it done and the good result make anything worthwhile Are you up to playing with your gs yet> I am sure they try to stop you every time you try to play and have fun with him. Spoil sports. Did you manage to get out in the lovely weather?
lisa you mad eme want to go back to New York so much. Our relatives want us to go to their other house in Florida next time but my heart would head to NY every time. i haven't the foggiest idea what that was about the bag. Couldn't understand it at all, were you on the sherry? Read it back and have another go. Who is this Andy that keeps appearing lol. Don't worry about the weight, do it when you are ready xx
Carole how are you? How is the pup now, still keeping you busy? Hugs Lily xx
Hi all, I'm back but not at my best, coughing to the point of throwing up again, started 4 days into hols and managed well apart from 2 days when I was wiped out but struggling now I'm back. Tad worried as it seems to just keep coming back, couple months before hols said chest infection, went then weeks after back and said bronchitis , this change in weather and air con don't help. Boob check up annual on Tuesday and I've gained so much weight so a telling off. Need to get head into gear..
Holiday was fab, tiring but fab, we done lots of Disney and universal parks with kids, too much shopping ouch lol and a few chill days Andy guess what, barely a drop of rain, shocker, was dull a few days but worked out well walking in the parks.
new york was fab, we walked 28.5 miles in 2.5 days, the perfect pint bar next door was a life saver at the end of the night lol. I told the guy who collected us at airport it was Taylor's 9th birthday, he put balloons in the car and a presentation and music with his name playing when we got in, was so lovely, and on the way back surprised us with free upgrade to stretch limo, although looked fab, gosh, he drove like a loon and as if he was in a normal car on streets of New York, me and brother couldn't look half of time.
we done all normal sights, Statue of Liberty, 9/11 tribute, empire, top of rock, time square, grand central station and Central Park and hop on hop off buses and few well know places for food. Everyone loved the pedicabs incentral park, although it was a bit hairraising when they picked us up 7 blocks away and drove amongst all traffic, we had 3 together so it was a real family and funny time, taylor and Sophie loved it and I think it was mam's favourite thing.
i got a wee blue bag eek from a special shop but not a happy bunny, it was lovely, got it home and wore it twice Andy its tarnished black so complaint coming in as no way should that happen when you pay that sort f.money.
anythow that's about it, back to work, been to Liverpool with work and lots of meeting and assistant left after 8 years so been a bit sad but replacement seems good too.
hope everyone is doing okay and enjoyed some lovely weather this weekend. Hope you managed to get some vitiman d from the sun nicky xxx
Hi a lol, m back in land of living just, been wiped out since Sunday esp. with work, but wow I've missed your op totally nicky as didn't have to get on whilst away. Glad to see your resting and good luck with the check up, you are one tough cookie xxx
catch up on rest of goss tomorrow, of to land of nod xxxLISA
Hi Nicky, yes I often think we worry about the op and don't think nearly so much about afterwards. I always find that the initial recovery seems amazingly fast which makes you feel really optimistic about getting back to normal but its then followed by a much slower recovery stage as the deeper healing takes place. That part is the more frustrating part when you see much slower changes. It sounds like you have been through it then. Not sure tablets can ever get close to the power of iv drugs. Are you feeling more in control of the pain now? I hope so xx.Definitely listen to your body as I am sure your liver would not appreciate fine wines for a bit. I think the seta belt part might be 6 weeks like most big ops and anaesthetics, but might be a little more because of the position.Get the senna tablets out if the drugs continue to make your innards a bit sluggish. It works really well when you need it to. Keep me up to date on your progress and appointments. Is the district nurse popping in to check you out? Sad news about the cat but I guess it could have been a lot worse than his tail. I hope it all goes to plan and that he is insured.Thanks ed has 2 job offers which don't pay enough to live on and an interview for a job in a big firm who want a receptionist/organiser type role. I hope she gets it but you never know who you are up against and it is not her professional field.Time will tell. I have had such a sore throat which turned into the most annoying cough that started as soon as I got into bed each night. I have struggled to even get an hour of sleep in one go and then that started the acid problems off. The girls tell me that they say to put vic on children's feet to stop a cough! It sounds crazy i thought but this came back to me at 2.45 am when I was sitting in the bathroom being sick through coughing. Would you believe it works for big people too??? The whole room stinks and Victor says I am killing him with the fumes but at least we can sleep at last Take care of yourself love Lily xx
Gradually feeling a bit better day by day. I think overall it would have been better to have stayed in hospital longer as the transition from on-tap IV painkillers to oral ones has been rather uncomfortable to say the least. Generally moving around though much more comfortably and getting better sleep, although still quite uncomfortable at times. I go back next week for a check up with the surgeon, he says they do it sooner rather than later presumably to sort any problems out. I will ask then about driving and other precautions I might need to take. One thing at the moment is I don’t even fancy a drink so it must be my body telling me to wait for full recovery! Not that I was expecting or needing to imbibe but just goes to show how your own body tells you what to do. Eating lots of protein and off the carbs rich diet that hospitals give you which is no good for bed ridden patients who can’t go to the loo! Tablets are OK to take but I expect at the moment some of my liver function tests will be raised as it is under a lot of stress and one in particular shows this up. Generally bloods were OK whilst in hospital so the op itself didn’t bring down other readings for platelets, etc.
I managed to catch up with some of the Commonwealth Games but mainly on catch up or the edited programmes as most things I would choose to watch were on at ridiculous o’clock - understandably as it’s their time not ours. Now just trying to fill the days whilst recuperating and not getting bored. In hospital I was so wired out and spaced out on painkillers etc that I had no time to get bored, plus of course all the checks they do all the time. If the sun ever does come out I will sit outside for a bit as a bit of Vit D is good for the healing process.
On a bit of a sad note our EDs cat, which we used to have at ours as a kitten, wasn’t acting very well yesterday. They took him to the vets and they said he had been hit by a car ☹️ Obviously a glancing blow but his tail is broken and they had to keep him in to see if he had any other injuries. Luckily (being a cat he has 9 lives) he has passed urine which was their main concern but he is having his tail amputated today poor thing. This, we were told, is because he won’t have any feeling in it therefore could get it trapped etc which would cause lots of problems. Lots of TLC coming his way and hopefully he has learnt his lesson and will stay nearer his house where there are lots of hunting and killing opportunities!
ps hope your ED finds something she likes soon, Lily x
Hi everyone, how aere things with you/ I love the warmer weather coming in this week and hope it stays. Would have been nice to have a warm week away like Lisa. Carole has it warmed up in France too?
Nicky, how are you getting on with your convalescence after the op? That changeover to relying on tablets for painkillers can be tricky, so hope it is covering the discomfort enough but allowing you to be more with it. Are you able to drink and eat ok or not got an appetitie yet? Lots of protein needed if you can manage it, to help repair the body. What happens about taking tablets and alcohol, do you have a set amount of time you have to be careful for, or does it depend on blood results to gauge the speed of recovery of your liver?
Well I hope you are all ok. I don't seem to have had time to watch hardly any of the games on tv and just hear results on the news. Mum is hooked to thetv so she is getting a lot of enjoyment from watching it. Ed has been made redundant, which has been disappointing but she is looking around for new opportunities and has had a couple of offers already. Just waiting for one that fits in with childcare too as she is part time. Take care Lily xxx
Hi Nicky, I'm glad you now feel up to a post, another good sign. I won't repeat all my previous pm and text good wishes and nags to be sensible and not try to do too much too quickly. I am sure you are fed up me playing mum to you ha ha. Just really good to have you so well, so quickly and at home where you always pick up the quickest. I hope this turns out to be a big turnaround point for your treatment, as you really deserve it. Take care. That's an order. Hugs. Love Lily xx
A very quick update from a very tired person!
My op went ahead as planned on Monday and luckily wasn’t as complicated/involved as the surgeon had thought so less of my liver was removed. They did get all the visible lesions (presumably there’s others too tiny to see!) which is good. It currently feels like he had a good old rummage in there, chucked things around a bit and then put me back together! I think it’s called bruising. So the op wasn’t as long as it could have been and I was back in the recovery (HDU) by lunchtime, totally spaced out but looked after by great staff until the next morning when I went up to the general surgical ward. They continued to do a great job on there and gradually removed all the tubes etc until i was allowed home yesterday evening. A bit of a shock not having IV pain relief but good to get home and start recovering. Still very tired, after all you don’t actually sleep in hospital so, after 4 nights of disturbed sleep I’m spending the time now catching up with sleep and gently exercising as the physio has instructed.
Will catch up with you all in a day or so. Looks like we will be getting a bit of sun as well Carole ☀️. A shame for all the school kids (and teachers) going back next week but great for me to sit out in!
Hi all, just a quick hello from me mainly to say good luck to Nicky, remember that a 9 hour surgery will still only feel like an hour to you. Hope you make a speedy recovery and will get back home soon. Lots of hugs xxx
Thank you Lily for your words about YD. Lisa is still posting photos from her hols and gosh it seems like she's been away forever
Wishing everyone a great weekend. Hoping for some sun here and for you all too.
Love Carole xxx
Hi Carole, I meant to say congratulations about your daughter. She has done so well and what a great help she will be translating for medicals. She will help so many people and reassure them in a time of need. Yes it is windows 10 here too but I have to use it quite a bit at school so at least some is familiar. Still trying to find documents though.Computers are so necesary but so annoying too! I have to find my own payslip and print it off now, instead of a welcome little envelope in my pigeonhole. I wish I could be organised and have a password I use for lots of things but never do and have so many to remember now. So annoying but at least if someone gets one they don't get to open the door to everything I guess. When is Lisa back, I have lost track!. Hugs Nick. Love Lily xx
yes I am too, no idea why. Hugs galore. See you soon love Lily xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Thanks Lily, have sent a PM xx
Btw is anyone landing on a very old page each time they access this thread? I’m ending up on one of the earliest pages - which was way back in 2009!
See you all soon
Hi NIck, blazing the trail to help the next generation, as always. I am really pleased that they have given you this opportunity as It has been in your mind for quite a while now. Any op is daunting but it sounds like you couldn't be in better hands, so to speak. Very fortunate to be in a specialist area for this. Strangely I was asked if I knew anyone who would be a liver donor and read a little about it. I was rather shocked that the donor only keeps one third and gives away 2 thirds of the liver. So it seems we can manage with quite a small amount and then it regenerates. So you will sail through your part. Please pm me details of when you go in, as I want to be sending you my best 'white witch healing power'!!! Maybe someone could send me a text to say its done if you still have my mob number, or I can resend it. I would like to support you through it all if I can help in any small way. Brave girl and I hope that you will be rewarded with some good news that makes it all worthwhile. Hugs Lily xxx
Glad you all had good breaks over Easter - and you might still be enjoying yours Lisa, not sure when you get back. All sounds very good with a change of scenery for all and a chance to catch up with family.
We have stayed at home over the Easter period, seeing family and friends but generally just getting everything in order as I have my Big Op next week 😬. I have kept quiet about it as I am not really broadcasting the fact on other areas of the forum (although will be happy to do so once it’s over and done with). I had a consultation the other week with the surgeon who said if I were his sister he would recommend to have it done. It was originally planned for earlier this week but as he wants to do the op himself he realised he wouldn’t be in so it is next week. I’ve had my pre assessment and also agreed to take part in some research which is to deter,one if a different type of MRI scan will detect liver cancer better than the current ones so I’m still being involved in things that should help future generations. This will be a major op lasting some hours with a reasonably long stay in hospital afterwards, although our expert team seem to think I will be out pretty quickly as I live so close to the hospital and will have someone at home with me for the first few days after I get home. They are real experts in this type of surgery and people from all over the country come to our hospital to have this op done and the surgeon doing the op is the top dog 🐶 so I’m in good hands - but pretty scared of the whole thing! If Dr Lily, or any of you, want to find out more the op is called a liver resection so you can look it up online. I will be out of cyber action for some time so don’t be alarmed however I will be back in touch once I’m out of the HDU and being thoroughly bored by my spell in hospital. No driving or heavy lifting for several weeks after so even more boredom but I understand I need to get out and walk to aid recovery so I hope to be super fit as well 😀
Anyway, onwards with a coupe of days of getting everything in place, including the garden so I can sit out once the sun arrives (it’s gone back into hiding after 2 lovely sunny days) without looking at it in frustration that I can’t do anything to make it look better!
Take care all
Hi buddies, looks like you got told off Carole ha ha, although she did it very nicely compared to some of our interventions (I am appreciating that bec, in case text talk makes it seem otherwise). I recall a rather eager e-cop chastising me for saying bloody some years back, as we all know I like a good long b text at times. Its a good thing really, a good bc friend of mine stopped posting on here after a shocking reply from a troll after she revealed she was a widow. We do need people on the case at times.
Anyway back on track, I am just back from the big family holiday and my much treasured week with all my littles and bigs too. We ahd a variety of relatives pop in to visit as well as we were really near enough to home for a day trip. We took all the dogs too and were so pleased to find a local pub that allowed dogs to sit under tables, so we could eat out quite a lot. I was most pleased being head chef ! I am surveying the washing mountain and trying to work out the minimum number of loads to cover the variety of fabrics and colours. Do you do that? I hate putting it on for a couple of items. Anyway it was black, white or other. We will see if all items survive the groupings, before being tumbled, no matter what the label says. I had an interesting conversation with Victor about his Brittney Spears cropped top and stomach sliding out!! He says I tumble everything and shrink it. I said I think more body is trying to squash into it, ha ha. I am doind penance for having been on holiday and leaving mum, so will be busy trying to get her cheerful again. Don't suggest we take her, I still haven't forgotten the last time we did. Carole will have a deeper understanding of this. Carole nice you have some brighter weather, are you planting yet? Take care this year as the pup sounds like it might try to help by digging them back up again. Don't forget some bulbs like daffodils can kill dogs if they eat them. Obviously not poisonous to squirrels though as they have dug up almost all of my new bulbs and left holes all over the garden, so disappointing. Nick are you getting on ok with the latest drugs? Are they fairly use friendly with regard to s/e? Any news yet about other options they might consider? Brilliant news about your decade, mine was in Feb. I am a little superstitious but told a few people. You buddies have been incredible friends to have, through good and bad spells. So very very nice to have someone who will always understand and have a kind and helpful word or advice to offer. I don't know what I would do without you all. Special thoughts to our many friends who didn't get to today but have helped shape medicine for next generations by bravely soldiering on, so the drs could keep pushing the BC stats up so well in our 10 years, and the next. With much love Lily xxxx
Just to let you know I edited out a hospital name / location you mentioned in your post, we generally do this to protect the identities of users on our open Forum.
Thanks a lot for your post, Becca at Breast Cancer Care.