20-03-2018 12:23 AM
nicky that birthday sounds lovely and the hotel sounds really nice and cozy as it's so bitter out. So you've a few weeks off from the hospital now??
carole, poor you with pup, I'm sure he will settle down lol. Omg the rain on your Facebook post was really heavy.
lily, are you due your wee break soon?
nothing to update on here work is bonkers as ever as we move towards becoming a subsidiary unfortunately the governance all needs to be in place very fast so it's hectic but off on my hols on Tuesday and so ready for it.... hope the snow keeps off as I've seen we are due it again.... we've had none this time round but 35mins away and covered, it's very strange.
off to bed now . Nite nite xx
19-03-2018 06:05 PM
Just got back from a very snowy stay in a hotel just outside Bath. It looked like a picture postcard with the deer in the deer Park and log fires burning in all the rooms. They had upgraded us to a cosy room in the garden where we had a lounge area with wood burner. Very romantic and just perfect weather for it. A day spent in Bath today doing some extra birthday shopping as OH had given me some spending money. Didn’t buy much but a nice top which I wouldn’t have justified for myself! We had a lovely day on Saturday, my actual birthday, when we went to Winchester with ED, SIL and GS for a lunchtime meal. GS was soooo good and had all the servers coming over him as well as the shop assistants when we went (more) birthday shopping afterwards. He now sits in one of those chairs that you secure to the table so he feels part of the whole meal rather than be stuck in his pushchair or car seat and is much easier to keep entertained.
So, a tiring but very enjoyable birthday and a few weeks off now from hospital visits -last week was jam packed but nothing that I hadn’t expected.
Take care and hope the snow has gone where you are - we had loads on Saturday night and Sunday morning but it’s mostly gone now.
17-03-2018 10:55 PM
Hi peacock, sorry if I'm butting in but we have had two dogs from puppy's and never crated either , they have both slept up with us from day one as couldn't bear to hear them cry if we shut them down stairs! both golden retrievers , the first one was hard work and woke me several times a night to go out but by 6 months was house trained and slept the night through on our bedroom floor , Gracie our current dog who is now 3 is a darling and from 10 weeks old has slept under our bed or on it with only a handful of accidents in the early days 😊
Nipping is natural with a puppy , easily sorted with a stern shriek from you or a squirt of a wonderful thing called pet corrector , it's a can of compressed air that works a treat! Only have to show it to ours now to stop unwanted behaviour! Good luck with it all and hopefully your pup will soon settle down and give you a nights sleep! Xx
17-03-2018 07:37 PM
16-03-2018 10:19 PM
Hi everyone. Happy birthday for tomoorow Nick, hope they all spoil you. Have a lovely day.
Lisa how is the job going? Hope things are working out ok.More snow due tomorrow!! So annoying this year, I want to see spring as going away soon. At this rate I will be packing a dozen jumpers and taking my gloves and scarf. Good luck Carole with the toilet training. That's the only part I find hard work about new pups. Its a long time since I had one and I paid people to come in and take her out on days we both worked or she would go out for the day to family to play with their dogs. It was always too long to leave her until she was much older. I did use the crate though as she was really tiny and the kitchen is big with too many little gaps to get stuck in, so I penned off a play area for her and then the crate when alone for short spells.I didn't really have biters from what you are describing, maybe the puppy bones made of plasticor rubbery compounds. Ours loved the chocolate fragranced one. I hear the golden retrievers are surprisingly the dog that send most owners to A and E so labs might be the same at wanting to hold your hand a bit too much!! Its sweet. I never mind unless its my toes. My neighbour says the chocolates are terribly accident prone and theirs could never be trusted with a small ball without getting into danger. I am pleased you have dogy company again. Lily xx
14-03-2018 09:21 PM
14-03-2018 01:11 AM
Hi all, will catch up with goss tomorrow just been manic but popped in to wish belated birthday to nicky. I'm off to bed now although just watched celebrity bake off and can't stop giggling xxx
13-03-2018 11:14 PM
Hi everyone, how are you all? I am enjoying it being so much warmer, so not happy to hear news of more snow being a possibility. Too much already as far as I am concerned. Carole the pup is certainly keeping you busy and that's brillliant to be clean so far. Our dog was in a crate as well when tiny, it keeps them safe and makes sure they don't over do it. Pups can be quite silly and do too much which I believe can become a joint problm for some of the more leggy breeds. Mothers day was lovely thank you and everyone gave me Nanna cards and gifts on top of the mum ones, so i was extremely spoiled. I saw them all which was most important and I really feel for you being apart Carole. From reading Nicky was one down too. So I was fortunate. We had a huge family meal here and everyone ate exactly what they like best. We call it 'everything out' dinner. The little ones love it. I hadn't realised we had started having titles or themes ha ha. My diet is completely useless as we also had 2 birthdays so cakes galore. i also had a box of personalised really beautiful cup cakes just for me. So hmmm cake every day. Lisa are you on a countdown to your holiday yet? so exciting as it gets closer and the thought of hot sun, fab. Nicky when will you hear about the op? Did they give any indication about whet5her you met some of the requirements or is it all down to the surgeon to decide? I hope you will have the opportunity to put your case forward and discuss it. Or even better. Surgery is a big decision which I am sure they will evaluate very carefully. I guess it is all to do with the position of it, so fingers crossed you get what you want. Keep me posteda nd it would be a nice birthday present to get your wish. i hope you do love Lily xx
12-03-2018 09:23 PM
Hi Nicky, just in case I don't manage to log in again so I will wish you a happy birthday, I've also read briefly about a liver resection and hope that you will be able to have it. The liver is an amazing organ in that it can regenerate in just a few weeks. Good luck with the appointment.
Hi to everyone else. I'm off for an early night as little choccie has had me on my feet all day.
As a bonus, I've lost 1.6 kilos in the last week. All the running about I am doing has benefits. Exhausting though.
12-03-2018 03:39 PM
A busy time for you Carole, being a new Mum and all ;-) Hope Aero gives you hours of pleasure and not too many puddles or chewed things. Glad you had a good time in the UK when you visited, sounds like you weren't troubled by the weather.
Well, I had a lovely Mothers Day and made sure ED did as well - her first one. We made sure the two menfolk did the cooking and more importantly the clearing up. OH was very much the sous chef (or most likely the washer-upper) and SIL was the chef but he is very capable. YD had left earlier in the day for a two week holiday to Canada to visit a school friend who is living and working out there at the moment. All very odd without her here, even though she's usually working, especially though as it;'s her birthday today. We will celebrate with her when she gets back.
A few hospital visits this week but nothing too bad. Carole, I'm hoping to have a liver resection (ie cut the bit out with the large lesion in it!) so not another biopsy. One of my appointments is to discuss whether or not it can be done. Otherwise everything is just fairly routine.
Have a good week all, I'm looking forward to another weekend of celebrating, this time its my birthday, hooray.
11-03-2018 07:27 PM
08-03-2018 09:59 PM
Hi everyone. Carole returning to the new puppy must have made it a bit easier to say goodbye to everyone this time. A sweet name, is it a boy or girl? Yes I can remember standing outside at 4am frozen wondering if that was my life now. But suddenly they get that bit bigger and then you are throught that very needy stage. Buy lots of carpet shampoo and trainer pads for the floor. they seem to work really well. How were all the family? Lisa hope the extra workload isn't running you into the ground. At least your trip is getting closer so you will have time to relax. Well for part of it. New York is much too exciting for relaxing on that part of the trip. Its been a busy day as mum had an operation today, planned and minor but she has to be awake evry time now after strokes each time she has an anaesthetic. People seem to get braver as they get older and she said I saw this great big injection and it went right into my eye. It made me want to pass out just thinking about it. I think I would have screamed. She is now on her zimmer frame with an eye patch so terribly dangerous. When her carer came in I couldn't help saying she wants captain birds eye fishfingers today ha ha. She has taken it all much better than we could hope and fingers crossed being able to read again will help her to be happier and do hobbies she can't currently do. Nicky I like the sound of the plan and hope you will get your wish for the surgery to remove the persistent one. I guess that will all depend on where it is and your history. I have only read a little about the procedure as it was a rather complex document and I was half asleep but I thought the type of bc seemed to have a bearing on it and also exactly where it is located, although this paper talked about people with more than one tumour being offered surgery as well. You have had a liver biopsy before so i am sure you will already have more than a good idea about what it will involve and the recovery. But who cares if it does the job!!! Lily xx
06-03-2018 08:36 PM
06-03-2018 08:46 AM
The port needs flushing as blood clots can form if it doesn’t have the blood thinning drug injected (ie the ‘flush’) and if one of those gets in your blood stream we all know what can happen. The ‘flush’ is actually heparin, an anti coagulant in a very small quantity, not the same amount as I had to inject myself with when I had actually had a TIA. I would also get the port removed given the chance but as it’s likely to be used again at some point I will probably have to keep it in. The fulvestrant injection has to be given very slowly, in fact the nurse giving it to me there’s not much chance of giving it quickly as it’s very viscous so there's a lot of pressure needed on the syringe to get it injected! Not too sore but I knew about it! I am waiting for an appointment with the liver specialist but last weeks weather has probably put their work load back as their weekly meeting I think was on a Thursday which was a day when not many hospital staff got in. The MRI was of the liver so they have all the info they need, other than pre med checks etc so I shouldn’t need to wait for any other scans. I’d expect the procedure would be ultra sound guided anyway so it wouldn’t quite be a stab in the dark 😉🔪
YD managed to travel to and from work OK and the restaurant were very aware of the travel issues so everyone went in late, after assessing the conditions, and came home early. In fact they closed for 2 nights, after all there weren’t many customers wanting to travel for a meal out in those conditions either. She had almost a normal working week, ha ha and was nice to see her each evening for a change.
No holiday plans for us until I know whether I’m having surgery or not, and the recovery period that it will entail, however we are planning to do something in the next couple of months, just not sure when and where. We are going away for the night near my birthday to Bath, just OH and me, so that will be nice. It’s to a boutique hotel and we have stayed in some of the same small group before so we know what to expect in terms of rooms, service etc so we’re looking forward to it. The fact they had a very good deal on sealed the deal!
Hi to Lisa and Carole, hope all is well
05-03-2018 10:24 PM
Hi everyone. Lisa it sounds like your job might actually turn into something new if it is a takeover. If it becomes a bigger company maybe it will open more opportunities. Apay rise, even if modest is a big indicator that they want to keep you. Why not hang around and see what happens. There will be new people to work with as well so quite a few changes to make it more interesting? I can't believe you slept through an earthquake!! Must have been small or you snore a lot ha ha. Carole please post a picture of you pup. I love puppies. Hard work though, how are you getting on?
Nicky how long does it take for the discomfort from the injection to go? When YD had an ectopic pregnancy she had to have chemo in her backside. Not sure why there. Lucky pants are a must each time!! In the end my port was taken out because of it needing flushing regularly. I still have a hole/dent in my chest where it was. Not sure why it neve filled up again. Is it risky to your heart then or do yuo mean the infection risk? Are you waiting for an appointment with the liver consultant or do you need to have other things done before this can begin? I imagine there will be a lot of scans and things to be sure of its exact position but hopefully your recent scajns will be a large part of this already. Did your daughter get home in the snow as there were a lot of road problems in your area after you said she insisted on going to work. Such a worry.
Anyway on a cheery note has anyone got holiday plans ahead? Lisa you are the best one at getting organised and it is such a boost to have something to look forward to. I am away later this month but at least 4 birthdays and Eater coming up so a busy time. i bought 17 easter eggs and boy are they difficult to get in bags and home without squashing any. Love Lily xx
02-03-2018 08:44 AM
Hi Lily, it has to be given in the butt as it is a very viscous liquid and I imagine needs to go into the largest muscle as it’s a sub cutaneous one ie not into a vein. Good job I had my pretty knickers on 😉👙You’re right about the port as well. In fact everyone, including me, had forgotten about it when I finished chemo last year and I suddenly woke up one night remembering that it hadn’t been flushed for at least a month! Panic stations - I didn’t need anotherTIA! So I have been getting it done when I have my bone strengthening injection which has been every 6 weeks, but will now get all of it done (injections and flush) when I go in four weekly. They are pretty good at my hospital and I get the next appointment sorted each time I’m there for treatment.
Lisa, good to hear from you and glad you are safe and sound. We have quite a lot of snow here with more forecast later today. Our roads have been grittedover the past week as the temperatures have been so low so we can get out and about. In our last house though, as it was down a country lane which never got gritted, we were pretty much stranded until it thawed. Glad we are where we are now! Very envious of your trip, as ever, how lovely to look forward to the sun, and the shopping😉, especially after all this rubbish weather.
Take care all, keep warm, have a good weekend and watch out for the icy patches.
01-03-2018 11:04 PM
Ghiball, I'm back, huge grovelling apologies, work has been bonkers so not had time for anything 😪. So nicky, that sounds like great news and a great team at your hospital. Whilst daunting operation sounds good to get that lesion out and have a look at it. Oh in the bum ouch. How is the treatment though? Any side effects yet?
carole, just seen pup on Facebook, how adorable xxxx hope you had fun in UK?!
lily, snowed in, has its plus and down sides eh....
not much to report here, didn't get that job which was expected lol. Ain't looked for anything else yet, my assistants leaving too boo hoo. We are becoming a subsidiary of another housing association much bigger and national in a couple months and all things go and with doing governance I've got a huge amount of involvement, it's blowing my mind at the minute lol, but tiny pay rise too.
worked at home due to weather but had to braved it today so headed to Carlisle for meeting on train, cold, brrhhh... ps. I slept through the mini earthquake, it was in our town too lol.
28 days and counting till 2 weeks in Florida and 3 nights in New York 😍😍😍😍.
01-03-2018 01:19 PM
Hi Nick, thank yuo for the big update. I am so pleased that you got what you were hoping for. Surgery is something we have talked about a number of times and I agree it would be a good opportunity if you meet all the surgeon's requirements. It also gives them the chance to get it out to analyse and possib;y gain a lot more information. It occurs to me that it they also were able to get anything else there it might shed light on whether the persistent one is in fact different strain from the more responsive ones. I absolutely hate the idea of injections in the bum, well done for being brave. What is the reason for this site? Mind you, I am sure the arms will be cheering to be given a break from needles and your port too. Have you had your port flushed through recently as I think it needs it regularly if not in use? Amazing that you had built yourself up for the 'I am not going to take no for an answer conversaiton' and then got it straight away. Ha ha I bet your face was a picture beaming. I am snowed in again hooray. Lily xx
01-03-2018 08:07 AM
Was going to give an update as I’ve eventually had my oncology appointment, better late than never - although maybe that’s not the right approach in this case 😉
So, all armed with questions, challenges and OH I went on Tuesday, ready to fight our case of getting fulvestrant on the NHS or funded by the hospital and not having to pay for it ourselves. It is the recommendation from The Marsden. Anyway we get into the consulting room and smiling onc says, guess what, our local trust has chosen to fund it (not just for me btw, in general) so blow me down! Then she says, oh and you can most likely have surgery, (again, wow, didn’t expect such a positive outcome for the meeting). And not only was fulvestrant being funded they actually had some in the pharmacy fridge and I got it about an hour late. Have never known such speed. I am pursuing the surgery option but this won’t stop the continuing hormone treatment, unlike if I was on chemo when you have to stop all treatment for immunity/infection risks. We have a world class liver cancer surgeon at our hospital which, if he says yes to the op, will mean I’m in the best hands possible. So, there’s been a lot of waiting around, I also know this treatment may not work, none of them are guaranteed, but if I can also have the op it will rid me of the biggest lesion and what I see as the most stubborn part of my cancer. Will update once I know more but I am happy with the plan as it is what I had wanted but hadn’t expected to get. The reason for not posting anything sooner is that fulvestrant is not funded by the NHS ie not NICE approved so I knew it was unlikely I would get it unless it was in a research hospital or in a trial, neither of which were options for me plus I wasn’t sure what the MRIwould show up in my liver and whether they would consider removal, it it seems they probably will. So, other than a sore bum (fulvestrant is given by injection into each buttock!) I’m OK.
So, onto your news. Great you’re getting a puppy Carole, sounds like you needed time and have come to the right decision for you. You will be kept busy as well which will be lovely and hopefully able to get out and about with training once this awful weather clears (rain or snow it’s affecting us all I think). I expect you are in the UK at the moment, if I recall visiting GD, annoying if you’re caught in this bad weatherhowever a nice place to be if it’s seeing the little miss.
Lily, a day off, that sounds good and wise! It’s snowed heavily overnight with more to come as we now welcome the Beast from the East - as well as Storm Emma from Portugalwhich will produce snow once it hits the Beast! OH not travelling today as his work is towards the part of the county where the two weather fronts are expected to meet later in the day although YD has decided to go in. We have advised her not to but she thought she needed to, hmmmmmmm, no one ‘needs’ to however she has taken extra everythings with her including boots, another coat and a complete wardrobe change in case she has to stay overnight somewhere.
Lisa, how are you doing, weather/job/social-wise? Not heard from you in a while. Would be good to have an update from you and see how you are.
Better dash, need to sort a few things out including clearing the drive 🌨☃️❄️
28-02-2018 10:45 PM
Hi, are you all as chilly as me? We have been snowed in so an extra day off for me. It was over 4 inches so just couldn't get out our road. Dreading tomorrow when I have to get to work unless the skies open tonight and pour some more over our house. Its very strage as there are huge diifferences between quite short distances across the county. people at work had a lot of snow and we had none at all and they were only 20 minutes away. Now they have a double drop and we have quite a lot too. Lisa I can see Cumbria is tricky and also 2 earthquakes??? How are you getting on? Nicky I did think you might escape too much snow but its so random. How are things your way? Also have you been to find out more yet? Thinking of you as you get settled into whatever the new plan is. I hope its what you want it to be, as I know you have enough current knowledge to keep up with the docs to a good level. Carole did the snow reach France? You myst be about to have your new puppy, what a lovely thing to loook forward to. I am looking forward to hearing about how naughty it is and how many of your slippers it eats!!! Get your carpet shampoo ready for little accidents. Lily xx