16-04-2018 11:04 PM
Hi everyone, how aere things with you/ I love the warmer weather coming in this week and hope it stays. Would have been nice to have a warm week away like Lisa. Carole has it warmed up in France too?
Nicky, how are you getting on with your convalescence after the op? That changeover to relying on tablets for painkillers can be tricky, so hope it is covering the discomfort enough but allowing you to be more with it. Are you able to drink and eat ok or not got an appetitie yet? Lots of protein needed if you can manage it, to help repair the body. What happens about taking tablets and alcohol, do you have a set amount of time you have to be careful for, or does it depend on blood results to gauge the speed of recovery of your liver?
Well I hope you are all ok. I don't seem to have had time to watch hardly any of the games on tv and just hear results on the news. Mum is hooked to thetv so she is getting a lot of enjoyment from watching it. Ed has been made redundant, which has been disappointing but she is looking around for new opportunities and has had a couple of offers already. Just waiting for one that fits in with childcare too as she is part time. Take care Lily xxx
13-04-2018 11:45 PM
Hi Nicky, I'm glad you now feel up to a post, another good sign. I won't repeat all my previous pm and text good wishes and nags to be sensible and not try to do too much too quickly. I am sure you are fed up me playing mum to you ha ha. Just really good to have you so well, so quickly and at home where you always pick up the quickest. I hope this turns out to be a big turnaround point for your treatment, as you really deserve it. Take care. That's an order. Hugs. Love Lily xx
13-04-2018 06:00 PM
A very quick update from a very tired person!
My op went ahead as planned on Monday and luckily wasn’t as complicated/involved as the surgeon had thought so less of my liver was removed. They did get all the visible lesions (presumably there’s others too tiny to see!) which is good. It currently feels like he had a good old rummage in there, chucked things around a bit and then put me back together! I think it’s called bruising. So the op wasn’t as long as it could have been and I was back in the recovery (HDU) by lunchtime, totally spaced out but looked after by great staff until the next morning when I went up to the general surgical ward. They continued to do a great job on there and gradually removed all the tubes etc until i was allowed home yesterday evening. A bit of a shock not having IV pain relief but good to get home and start recovering. Still very tired, after all you don’t actually sleep in hospital so, after 4 nights of disturbed sleep I’m spending the time now catching up with sleep and gently exercising as the physio has instructed.
Will catch up with you all in a day or so. Looks like we will be getting a bit of sun as well Carole ☀️. A shame for all the school kids (and teachers) going back next week but great for me to sit out in!
13-04-2018 10:13 AM
Hi all, just a quick hello from me mainly to say good luck to Nicky, remember that a 9 hour surgery will still only feel like an hour to you. Hope you make a speedy recovery and will get back home soon. Lots of hugs xxx
Thank you Lily for your words about YD. Lisa is still posting photos from her hols and gosh it seems like she's been away forever
Wishing everyone a great weekend. Hoping for some sun here and for you all too.
Love Carole xxx
11-04-2018 09:48 PM
Hi Carole, I meant to say congratulations about your daughter. She has done so well and what a great help she will be translating for medicals. She will help so many people and reassure them in a time of need. Yes it is windows 10 here too but I have to use it quite a bit at school so at least some is familiar. Still trying to find documents though.Computers are so necesary but so annoying too! I have to find my own payslip and print it off now, instead of a welcome little envelope in my pigeonhole. I wish I could be organised and have a password I use for lots of things but never do and have so many to remember now. So annoying but at least if someone gets one they don't get to open the door to everything I guess. When is Lisa back, I have lost track!. Hugs Nick. Love Lily xx
08-04-2018 09:34 AM
Thanks Lily, have sent a PM xx
Btw is anyone landing on a very old page each time they access this thread? I’m ending up on one of the earliest pages - which was way back in 2009!
See you all soon
08-04-2018 12:02 AM
Hi NIck, blazing the trail to help the next generation, as always. I am really pleased that they have given you this opportunity as It has been in your mind for quite a while now. Any op is daunting but it sounds like you couldn't be in better hands, so to speak. Very fortunate to be in a specialist area for this. Strangely I was asked if I knew anyone who would be a liver donor and read a little about it. I was rather shocked that the donor only keeps one third and gives away 2 thirds of the liver. So it seems we can manage with quite a small amount and then it regenerates. So you will sail through your part. Please pm me details of when you go in, as I want to be sending you my best 'white witch healing power'!!! Maybe someone could send me a text to say its done if you still have my mob number, or I can resend it. I would like to support you through it all if I can help in any small way. Brave girl and I hope that you will be rewarded with some good news that makes it all worthwhile. Hugs Lily xxx
07-04-2018 08:20 AM
Glad you all had good breaks over Easter - and you might still be enjoying yours Lisa, not sure when you get back. All sounds very good with a change of scenery for all and a chance to catch up with family.
We have stayed at home over the Easter period, seeing family and friends but generally just getting everything in order as I have my Big Op next week 😬. I have kept quiet about it as I am not really broadcasting the fact on other areas of the forum (although will be happy to do so once it’s over and done with). I had a consultation the other week with the surgeon who said if I were his sister he would recommend to have it done. It was originally planned for earlier this week but as he wants to do the op himself he realised he wouldn’t be in so it is next week. I’ve had my pre assessment and also agreed to take part in some research which is to deter,one if a different type of MRI scan will detect liver cancer better than the current ones so I’m still being involved in things that should help future generations. This will be a major op lasting some hours with a reasonably long stay in hospital afterwards, although our expert team seem to think I will be out pretty quickly as I live so close to the hospital and will have someone at home with me for the first few days after I get home. They are real experts in this type of surgery and people from all over the country come to our hospital to have this op done and the surgeon doing the op is the top dog 🐶 so I’m in good hands - but pretty scared of the whole thing! If Dr Lily, or any of you, want to find out more the op is called a liver resection so you can look it up online. I will be out of cyber action for some time so don’t be alarmed however I will be back in touch once I’m out of the HDU and being thoroughly bored by my spell in hospital. No driving or heavy lifting for several weeks after so even more boredom but I understand I need to get out and walk to aid recovery so I hope to be super fit as well 😀
Anyway, onwards with a coupe of days of getting everything in place, including the garden so I can sit out once the sun arrives (it’s gone back into hiding after 2 lovely sunny days) without looking at it in frustration that I can’t do anything to make it look better!
Take care all
06-04-2018 04:51 PM
Hi buddies, looks like you got told off Carole ha ha, although she did it very nicely compared to some of our interventions (I am appreciating that bec, in case text talk makes it seem otherwise). I recall a rather eager e-cop chastising me for saying bloody some years back, as we all know I like a good long b text at times. Its a good thing really, a good bc friend of mine stopped posting on here after a shocking reply from a troll after she revealed she was a widow. We do need people on the case at times.
Anyway back on track, I am just back from the big family holiday and my much treasured week with all my littles and bigs too. We ahd a variety of relatives pop in to visit as well as we were really near enough to home for a day trip. We took all the dogs too and were so pleased to find a local pub that allowed dogs to sit under tables, so we could eat out quite a lot. I was most pleased being head chef ! I am surveying the washing mountain and trying to work out the minimum number of loads to cover the variety of fabrics and colours. Do you do that? I hate putting it on for a couple of items. Anyway it was black, white or other. We will see if all items survive the groupings, before being tumbled, no matter what the label says. I had an interesting conversation with Victor about his Brittney Spears cropped top and stomach sliding out!! He says I tumble everything and shrink it. I said I think more body is trying to squash into it, ha ha. I am doind penance for having been on holiday and leaving mum, so will be busy trying to get her cheerful again. Don't suggest we take her, I still haven't forgotten the last time we did. Carole will have a deeper understanding of this. Carole nice you have some brighter weather, are you planting yet? Take care this year as the pup sounds like it might try to help by digging them back up again. Don't forget some bulbs like daffodils can kill dogs if they eat them. Obviously not poisonous to squirrels though as they have dug up almost all of my new bulbs and left holes all over the garden, so disappointing. Nick are you getting on ok with the latest drugs? Are they fairly use friendly with regard to s/e? Any news yet about other options they might consider? Brilliant news about your decade, mine was in Feb. I am a little superstitious but told a few people. You buddies have been incredible friends to have, through good and bad spells. So very very nice to have someone who will always understand and have a kind and helpful word or advice to offer. I don't know what I would do without you all. Special thoughts to our many friends who didn't get to today but have helped shape medicine for next generations by bravely soldiering on, so the drs could keep pushing the BC stats up so well in our 10 years, and the next. With much love Lily xxxx
06-04-2018 10:59 AM - edited 06-04-2018 10:59 AM
Just to let you know I edited out a hospital name / location you mentioned in your post, we generally do this to protect the identities of users on our open Forum.
Thanks a lot for your post, Becca at Breast Cancer Care.
06-04-2018 09:10 AM - last edited on 06-04-2018 10:55 AM by Becca_BCC
Nicky, I had forgotten that you had already had BC before the rest of us, it's strange though isn't it how diagnosis dates never leave us. It has been a pleasure for me to know you all, albeit by internet. Hope you have had a chance to catch up on some rest.
Lily how are you getting on with your new computer? Is it a windows one or Mac? I ask because I found it difficult at first to get the hang of windows 10 when I replaced my laptop 2 years ago. Some things about it are still odd.
Lisa seems to be having a great time with lots of photos on FB.
We had a nice time seeing YD in Lyon, although the mobile home we stayed in was a bit dowdy and as we were in the mountains it was freezing at night. The 2 bedrooms did not have any heating Still, we saw some sunshine during the day.
Since we arrived back home on Monday afternoon we have had a couple of very nice days here, the sun is lovely and quite warm too. Pup is still getting me up at night, but I'm trying to extend the time. His nibbling is the same and I think he gets quite cross with the soreness of teething.
Our GD is teething, but doesn't have any as yet. I get lots of photos all the time and she is so smiley and happy, a real cutie. They are very lucky to have such an easy baby.
YD has finished her 2nd year of her Masters, but at the moment she is doing training as part of the studies with a gynie dr. She is doing translating for the doctors and the interns (I think they are the equivalent to UK registrars). So in July she will be home again until she finds a job, or decides to become an independent translator. This will take a while before she is earning enough like any self employment. She has final exams in August and September. I am very proud of her dedication for her studying.
Well I'm off to take little pups out for a short walk, usually I end up dragging him as he doesn't seem to like the big wide world yet
Have a good weekend all love Carole xx
01-04-2018 08:05 PM
Happy Easter everyone. A late message from me as it’s been a hectic 24 hours with babysitting GS at our house then a few visitors before a family meal, phew. No chance for a sit down o4 even a glance at my phone let alone my iPad. Poor little chap seems to be back with teething problems, having already got his bottom two. Luckily for us he was as good as gold last night, just not a happy bunny today 🐰 😟Hope his mum and dad have a good night with him tonight.
Anyway another landmark was reached today with it being exactly 10 years since my secondary diagnosis. What a roller coaster I’ve been on - with more to come I’m sure. Thank you all for being there' our lovely friendship has helped us all at various times and long may it continue.
29-03-2018 11:42 PM
Hi, well the computer has arrived but my sites and favourites don't seem to be a priority so I am still waiting for them to all be imported for easy use. Just wanted to wish you all a Happy Easter. Lisa I am probably too late but have a fab time. You have got me itching to return to New York. We have been offered a place to stay in Florida if we go some time so that is on the list too. I just struggle so much with the flights.Just come back from a funeral only an hour away and been green as green just from that journey. Hopeless. Carole enjoy your visit and Nicky enjoy your gs time. Sounds like a good time for everyone then
Better get back to packing. I have been getting hilarious accounts of what the littles have put in their cases. They were allowed to pack a little case of whatever they wanted to take extra. I can see us having a boxer pants shortage!! Take care love Lily xx
29-03-2018 08:20 AM
Enjoy your hols Lisa, lucky you, very jealous. It’s what you need to get away from work for a while and spend time with the family - plus the bonus of sun and retail therapy - what’s not to like!
Carole - enjoy being away visiting YD and do hope your rain stops. Ours has stopped this morning but looks like it is starting again, and continuing all weekend and into next week. Not much fun for anyone. Glad pup is behaving himself a bit more. It is like having a baby again but I’m sure once he is into a routine, especially his toilet training, he will become such a companion for you.
Lily - you enjoy your hols as well (lots of enjoyment on this post ha ha) . You will have a great time in your barn with all the littlies running around. Fingers crossed for the weather so you can all get out and about.
Well we’re not off enjoying ourselves, just at home but will see family over the weekend. GS, who is doing so well, and is the smiley-est baby ever (as I keep saying to his Mum, way more smiley than she was!), is having a sleep over with us on Saturday as ED and SIL are out for a birthday celebration. Just hope I manage a decent nights sleep for when they all arrive for lunch on Easter Sunday! We will be pottering around the house and, weather permitting, sorting out a few things in the garden ready for whenever the sun decides to turn up this year.
Have a great Easter/Pacques where ever you are.
27-03-2018 04:45 PM
27-03-2018 12:03 AM
CArol, hope pup is improving xxx
lily, enjoy, barn with all family sounds amazing.
Nicky, hope you are doing okay and having some chill time xxx
well, I'm packed finished work at last, just now and off at 5am. Talk to you all in 17 days but may try and get on line. Big hugs all, miss you xxx
25-03-2018 09:48 PM
Hi, sorry for my absence but the hard drive crashed and as the computer is 6 now its got to be a new one rather than a repair. Sil managed to save all the data hooray and all the emails but there is a queue for Victor's work laptop as I can't be bothered to bring mine home from work or attempt to use a phone. There are a few around but no idea what their passwords are. Anyway that explains my lack of text.
Nicky glad you had a nice trip even if chilly. Did you visit the baths. I tried the water there yukkk ut you have to do these things once and it was my first visit. Any more news from the latest visits regarding surgical options? Also hope the bum stabbing is manageable, I bet your veins were cheering. Little GS sounds so cute and must give you so much happiness.
Lisa yes we are off when the schools closed, staying in a big barn which has 6 bedrooms and is open plan living space so the noise should be impressive when the littles all get round to hide and seek. I have 2 funerals to go to next week so not a good start but not family so a little easier than some losses. I hope you have a lovely time in Florida and New York. i have to go back!! I am really hooked on the West Wing on tv so really want to try to go round the White House if at all possible on our next trip. i don't think it is easy if you are not American though.
Carole are you sure you got a pedigree pup and not a tiger cub!!! Little devil. Ours didn't like the pet corrector either. Isn't he interested in his toys and chewing them? Mine loved her flavoured puppy 'toy' bones and the rustling and squeeky toys. Even tearing up cardboard like toilet roll inners. It seems a long time to still be crying. Ideas are a hot water bottle (if safe and not very hot) to snuggle up to, lots of cuddly toys (with buttons and dangerous parts removed), the radio on low, something safe to snuggle into. Otherwise go see the vet as he might have tummy ache from a food that doesn't suit him or something? Ours pood for ages and it just suddenly stops. Try a good play and walk as late as possible to tire him out. Also think about what times you feed him as dogs have something whereby their food is evacuated certian time after it eats, so changing the time he feeds may allow him to hold on longer. What part of you is he nipping? If feet, give him your slipper or wear harder shoes. i would definitely enrol in pup classes as soon as he is allowed. Most vets here offer and run them to help with socialisation and problems. Or ask the breeder as the problems may be typical of the breed you picked so they would have ideas too. Good luck. Lily xx
21-03-2018 08:37 AM
Hi to all
Jobey thank you for offering some advice. The situation isn't much better yet and being as I'm home alone (Mr P works away) I am finding it quite tough. We have some lovely moments but many that are quite exhausting. I'm not one for having animals in the bedroom so will have to put up with it. I'm sure it will get better. He is only 11 weeks old so still very young.
Nicky your break in Bath with the snow and deer sounds picture postcard, I have been to Bath it is a lovely City. It's nice when our little ones can join us at the table. I'm so pleased that you had a lovely birthday.
Lisa, where are you off to?? Well in fact gone by now so have a super time.
Lily how are you? Easter soon so I guess you and the family will be having some time together, is it the Haunted House again this year lol??
I saw my GP yesterday about some abdo problems and am having a CT next week. I guess it could be due to adhesions following operations but it's just a precaution. She also prescribed me some stronger sleeping tablets and boy, last night I was out for the count, very unusual for me. Consequently I didn't hear my little pup but ended up clearing up in his cage this morning, YUK? Getting a good nights sleep has made me feel so much better today.
Better get on with things, love to all Carole xxx