I promise I am but also need to push myself a bit as well. I can not believe that it will be 6 weeks on Tuesday since I had my op, I remember thinking how on earth I was going to get through it and how i would cope, well I have and I did, I am amazed how resilient our bodies can be, as long as we listen to them. Girls like everything we have been through there is a bright shining light at the end of that tunnel
Hiya, bowls outdoor do not start until April next year, the season is 6 months long, so I have plenty of time to get fully back up to strength. It will be interesting to see what difference this makes to my bowling in terms of bending and the discomfort I used to be in at the start of the season with my hip, which I had never put down to what was going on inside me with my womb, but now I wonder if it was as the discomfort was getting more and now it has completely gone.
Oh your weekend sounds wonderful and suh a difference from last year xx My friend took me out today to a garden centre and a craft centre, we had breakfast and shopped til we dropped. I am knackered tonight but it is all about building up my strength.
Ah thank you Mishy18 - we are planning a family Christmas (he has three grown up sons), so I will be in my element doing turkey and 52 veg for lunch.
Still cannot believe the difference one year has made and I am sooooo grateful to be in the position I am now in.
Love to all.
P.S. Still making chutney .....
Hi Alibobs ,Glad you eventually got your appoinment. You wouldn't think it would be so hard. I had a call from a friend this week who had her op in December last year and had her mammogram begining of November. I admit she had her op in a different hospital to me.Let's hope we get our results pretty soon. The last thing I want is to worry over those for ages.
Hello sounds like you have had a busy day and well done you celebrate how far you have com., A friend of mine always includes a jar of chutney in my xmas present, I love homemade presents.
Thank you for your lovely thoughts, hard to believe that it is 5 weeks tomorrow since my op, I honestly do not know where the time has gone
Just a quick note from me to say hello - I always keep an eye on this thread.
Helena - sounds like you are making good progress. Well done you.
i have spent today making a LOT of chutney. No prizes for guessing what my stocking filler gifts will be this year. Such a difference to this time last year - I am very grateful and making the very most of it.
Love to all.
Thats good news and lovely that she is going to be pro active and chase up ther esults afterwards xxx
So pleased for you Helena. You've come on leaps and bounds. Well done you.
I have to speak to my Oncologists Secretary on Monday anyway so will mention it to her.
Thanks for your advice.
In view of Alibobs experience I think I would ring sooner rather than later.
Doing even better in that my scar has finally completely healed so no more nurse apts and I can finally have a shower now instead of the top and tailing I have had to do for the past three and a half weeks xxx
Oh for god sake the sheer incompetence and it is totally unacceptable that you have to follow this up yourself, thank goodness you checked. Well make sure you insist on being seen asap and that they do not try to fob you off that there is nothing availabe, it is their mistake.
Marla, are they putting you on zoledronic acid too? This usually goes with aromatase inhibitors to reduce the risk of osteoperosis and bone mets. x
Alibobs and Juliewulie,
I couldn't agree with you more. Whenever I encounter anyone in a service/care industry, the first question I ask myself is "would I have you work for *me"? Nine times out of ten the answer is no.
I, too, pride myself on my five star service to my clients....responding to enquiries promptly, spending time with them (they pay for 50 minutes-I see them for 50 or longer)-I don't cut sessions short which is what I've experienced in the BC arena.
As soon as you walk through the "private" sector door in BC care, it seems they want to get as many patients through the door as possible; I never know how long my appointments are supposed to me but by god I do know how much my insurance co. is being charged. And I also know that my premiums will sky rocket next year.
I pride myself on working in the private sector and seeing *fewer* clients than I did on the NHS-this allows me to provide a quality service and maintain a work-life balance. As long as I earn enough to pay my bills I'm happy. I never set out to save the world or own a Ferrari.
I've seen things from both sides now that I am a patient in the private sector and I must say-I do things so differently and I'm very proud of how I run my business. Good god. It's called Ethics.
Hi Mai-thanks for the link (I'm entertaining my father this week so may only have a chance to read once he's left). It sounds like we have very similar presentations (I remembered this from when I first read one of your messages). As my consultant keeps saying, lobular cancers are "interesting". Mine is ductal but it appears as lobular...here there and everywhere which is why we won't know what surgery I will need until we know *how* it has shrunk. It *will* shrink, but we don't know *how*.
My Onctotype Dx test score was 1 so chemo was never going to be part of my treatment plan; (a score of 25 and over suggests chemo and anything under suggests the risks might outweigh the benefits). My consultant assured me that a score of 1 is a good thing, so I'm not too worried about that. I'm aware I am simplifying things but it is my understanding that Letrozole does to Estrogen + tumours, what chemo does to non-Estrogen + tumours so I'm really not worried at all. We'll know more in a few months, if not a years' time. It does take time to shrink the cancer. I'm just trying to get my life back on track-a lot has been "undone" and I now need to rewind the clock to pre-August. Right now, it's a "wait and see" and "do nothing other than take Letrozole" approach so I'm very happy with the plan for now.
Marla, that sound like a good plan and you seem much less anxious now. Hormone positive tumours don't have a high response rate to chemo, mine only had a partial response after 8 rounds so I think trying the Letrozole could be a revolutionary move for hormone positive people. Mine was scattered (diffuse) too and was primarily ductal with some lobular mixed so I had grown quite a magnificent masterpiece with an equal and opposing medical challenge. We all grow a different masterpiece and the job of decoding what we have created isn't as clear cut as we'd like to think. However, none of us intended to grow a tumour and I agree that the upheaval it causes for us is quite disturbing and we want everyone to understand that we have lost control of the fundamentals in our lives. We're told we're ill and yet, suddenly we now have to work even harder to stay alive and not sink financially. Like you, I have never been a person to take of much sick leave, in fact, I've never really suffered ill health until *this*. I hope your Letrozole works well for you. I still had to have the dreaded mx and I've now started consulation discussions on recon. Keep us posted on how you're doing. In the meantime, this is a lovely read: https://anticancerclub.com/inspiring-stories-from-cancer-survivors/dear-every-cancer-patient-ever-to... xx