61233members
322882posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Breast pain 18 months after lumpectomy

Member

Re: Breast pain 18 months after lumpectomy

Nice to hear from you Lesley and Mary. Smiley Happy

 

Lesley, I'm doing ok on Anastrozole (touch wood!). I'm having some hot flushes but not too bad. No pain in joints yet but I do take 75 mg of Amitriptyline daily for MS pain so I think I might have managed to kill two birds with one stone! Hope it continues like this!

 

My fatigue is through the ceiling! Was bad enough living with MS fatigue but it's even worse now. I'm not sure if it's the Anastrozole or my MS reacting to it. On the up side, at least I'm used to fatigue and my life is arranged to deal with it...have meals delivered, have a cleaner etc etc. 

 

For the first few weeks I had terrible trouble getting to sleep but it's better now. Just the occasional night. I take the pill in morning. Woman Happy

 

Mary, can you ask someone about your back? The rads nurse maybe for the BC nurse? It might be related...hard to say. It might be because you are so tired. When I'm very tired I tend to get lower back pain. 

 

Kelly, hope the pain is improving or at least that you are reassured and not worrying about it. I wonder if massaging the breast would help, esp if there's liquid it there. Might help to disperse it. There's more to this BC lark than it says on the packet!!!

 

Wishing you all well. Cat Happy

 

Pat xx 

Member

Re: Breast pain 18 months after lumpectomy

Meant to as if you ever suffered back pain after all rads,op etc. I have quite stiff achy back and not sure if its all the cancer journey or ms related. xxxx
Member

Re: Breast pain 18 months after lumpectomy

Hello Pat, just noticed you were on giving valuable advice as ever.

Well Rads over 3 weeks ago and it all went well although its the weirdest thing but I feel tired and wobbly more this week. The nurse at the hospital said to expect this as did my gp.

I am very consciousof every wee ache and pain and my mind then works overtime, hopefully that will settle in time.

I have the neurologist on Monday for my normal ms appointment so it will be interesting to see what they will say as I had my first relapse in June. 

It has been a crazy dark summer but hopefully all will be fine. Thanks for all help/advice. Mary

Member

Re: Breast pain 18 months after lumpectomy

Hello Pat, lovely to hear from you.  As usual, reassuring words from you.  Yes, wearing a bra "supports" and helps the aching but I do whip it off as soon as I get indoors as nipple is still peeling and sensitive, between a rock and a hard place, what's best? Like everything on this BC journey you just have to go along with it.

 

how are you doing with Anastrozole?  I'm coming to the end of a 6 week break as I was feeling so awful due to lack of sleep (flushes/sweating) which haven't improved, so guess it's menopausal not all down to the drug, though now off it I find I manage to drop off between flushes whereas on it once they started I was wide awake all night.

 

Hope ms is  stable and you're keeping well xx

Member

Re: Breast pain 18 months after lumpectomy

Hi all, and to Lesley...we were on July rads together. Smiley Happy

I had lumpectomy on May 20th and still getting pain esp sharp stabs of pain behind the nipple. Saw surgeon a couple of weeks ago and he said it's perfectly normal. Can last a year or two or longer! 

I was very worried it was another cancer forming but examined me and reassured me it's all ok. Still some swollen tissue from rads. Not nice to have the pain but is nice to know it's normal. Also I find wearing a bra helps. 

All the best, 

Pat xx 

Member

Re: Breast pain 18 months after lumpectomy

Reading all your posts has reassured me no end.  I had my op beginning of June this year and rads July/August and was getting very anxious because I'm still getting sharp stabbing pains in breast and pains/aches in breast bone and ribs.  The mind starts working overtime especially in the early hours when laying awake unable to sleep even though I'm exhausted.  My skin has still not recovered from rads.  

 

This is whole thing is awful and seems never ending,  and I'm sure I'm not alone in that friends and family think that now treatment (other than hormone drug) is finished its all over and expect you to carry on physically and mentally the same as before, almost like you've had a cold but it gone now so forget it.

 

Wishing you all a good weekend xx

Community Champion

Re: Breast pain 18 months after lumpectomy

Julie I'm guessing you would have had Radiotheraphy , this is what makes you so tender, I finished mine in June last year and I can't put much pressure on my boob still, I was told it may always be like it so I don't worry Xx Jo 

Member

Re: Breast pain 18 months after lumpectomy

Hi. I'm exactly the same. I had a wide lateral lumpectomy june 1st 2015. My breast hurts all the time. Aching, sharp pains and also under my arms around my ribcage. I've just been told to give it time but how much longer? I hate bothering my nurse or GP. I'm worried it might be back
Member

Re: Breast pain 18 months after lumpectomy

Myofascial releases with certified lymphedema therapist will help. I treat this regularly at Vanderbilt in Tennessee

 

Member

Re: Breast pain 18 months after lumpectomy

Go to a physical therapist that treats with myofascial release. Takes 6-12 sessions at 1x a week

Member

Re: Breast pain 18 months after lumpectomy

I treat this regularly. Look for a clinician that does myofascial release.

Member

Re: Breast pain 18 months after lumpectomy

Same here have to careful with cuddles
Member

Re: Breast pain 18 months after lumpectomy

I had mone a year ago March radio therapy and tamoxifen. My first annual app all clear in fen. Still get pain in breast where lump nodes removed.of I lean on it it hurts. I'm. Told its part of the process especially under the nipple loads of nerve endings healing.when I lean forward the bread feels top heavy and itchie
Member

Re: Breast pain 18 months after lumpectomy

Oh my operation was a year ago and got my 1st mammogram since then anout 2mths ago and they said everything was fine xx
Member

Re: Breast pain 18 months after lumpectomy

Hi Kelly i hve pain on my left side to which is sore to ly on at ngt in bed. The doctor said lik you its either fluid or ive pull tissue in that area. I got my lumph nodes out aswell as it had spread to them. It is worrying when ur sore still and dont no really why u do think the worst 😔😔
Member

Re: Breast pain 18 months after lumpectomy

Hello My surgery was about 4 months ago and lymph node had a splinter in first node, so early days I know but having lots of pain, there was an infection which a course of anti-biotics did the trick., it is where the scarring is under arm and nipple area.

so I feel for you if 18 months down the line you are still sufferring :-( I suppose it all has to mend and knit back together. I find sleeping a problem at the moment as i sleep on my side, and the emotional side also keeps me awake also, so it is nice to chat to like minded people.

all the best Elaine

 

 

Member

Re: Breast pain 18 months after lumpectomy

Hi There
I don't knkow if this what you want to hear - I had a lumpectomy, TNC and 25 sessions of rads in 2007 and yes I still experience pain, breast swelling and occassionally a clear oil-like discharge. Apparently this can happen is an unfortunate side effect of the TNC and rads. I do get neuropathic pain as well. A small dose 10mg of amytripaline at night with co-codamol of a bad seems to keep it all under control.
Take care Jacqui
Member

Re: Breast pain 18 months after lumpectomy

Hi. I hasurge lumpectomy in march 2011. I was ok until after my radiotherapy Lin October 2011. After the booster rads to the scar it became very very tender. It's ok now until someone hugs me or I catch it. Like nerve pain. At my check up in march thus year they told me to use ibuprofen gel. Investors bought it but not used it. I still can't bring myself to touch where the lump was. Daft I know!! But I believe it's supposed to help. None of the doctors I've mentioned it to seem alarmed.
Mandy xx
Member

Re: Breast pain 18 months after lumpectomy

Hi,

I am now 1 year after WLE and ANC, and I still have pain and tenderness around both scars. I also get swelling in the breast.

Someone on here suggested I try using ibuprofen gell on the area as an anti-inflammaotroy painkiller, and it works for me.

Lynda
Member

Re: Breast pain 18 months after lumpectomy

Hi Kelly

Please feel free to call our helpliners to talk your queries over as they may be able to offer some ideas or know of other people who have been affected in a similar way, the lines are open 9-5 weekdays and 10-2 Saturday on 0808 800 6000 and they are here to support you

Take care

Lucy

Member

Breast pain 18 months after lumpectomy

Does anyone still suffer pain so long after a lumpectomy. I am really really sore over the breast where the lump was removed. I had my check up with the surgeon in July of this year (1 year after surgery) and she said this was normal, and may be fluid. But it is agony when I lie down, sometimes I wear a bra at night to support my breast. Would welcome any thoughts anyone may have. Believe it or not I'm scared to go to docs, in case it starts all over again. Can't believe I'm thinking like that, because all the way through they told me that I had gone to my docs early and my grade 3 cancer hadn't spread to lymph nodes. Since then Ive been telling everyone else to go and get checked. Don't get scared get checked, just like the poster. Now i'm doing it!!!