Nice to hear from you Lesley and Mary.
Lesley, I'm doing ok on Anastrozole (touch wood!). I'm having some hot flushes but not too bad. No pain in joints yet but I do take 75 mg of Amitriptyline daily for MS pain so I think I might have managed to kill two birds with one stone! Hope it continues like this!
My fatigue is through the ceiling! Was bad enough living with MS fatigue but it's even worse now. I'm not sure if it's the Anastrozole or my MS reacting to it. On the up side, at least I'm used to fatigue and my life is arranged to deal with it...have meals delivered, have a cleaner etc etc.
For the first few weeks I had terrible trouble getting to sleep but it's better now. Just the occasional night. I take the pill in morning.
Mary, can you ask someone about your back? The rads nurse maybe for the BC nurse? It might be related...hard to say. It might be because you are so tired. When I'm very tired I tend to get lower back pain.
Kelly, hope the pain is improving or at least that you are reassured and not worrying about it. I wonder if massaging the breast would help, esp if there's liquid it there. Might help to disperse it. There's more to this BC lark than it says on the packet!!!
Wishing you all well.
Hello Pat, just noticed you were on giving valuable advice as ever.
Well Rads over 3 weeks ago and it all went well although its the weirdest thing but I feel tired and wobbly more this week. The nurse at the hospital said to expect this as did my gp.
I am very consciousof every wee ache and pain and my mind then works overtime, hopefully that will settle in time.
I have the neurologist on Monday for my normal ms appointment so it will be interesting to see what they will say as I had my first relapse in June.
It has been a crazy dark summer but hopefully all will be fine. Thanks for all help/advice. Mary
Hello Pat, lovely to hear from you. As usual, reassuring words from you. Yes, wearing a bra "supports" and helps the aching but I do whip it off as soon as I get indoors as nipple is still peeling and sensitive, between a rock and a hard place, what's best? Like everything on this BC journey you just have to go along with it.
how are you doing with Anastrozole? I'm coming to the end of a 6 week break as I was feeling so awful due to lack of sleep (flushes/sweating) which haven't improved, so guess it's menopausal not all down to the drug, though now off it I find I manage to drop off between flushes whereas on it once they started I was wide awake all night.
Hope ms is stable and you're keeping well xx
Hi all, and to Lesley...we were on July rads together.
I had lumpectomy on May 20th and still getting pain esp sharp stabs of pain behind the nipple. Saw surgeon a couple of weeks ago and he said it's perfectly normal. Can last a year or two or longer!
I was very worried it was another cancer forming but examined me and reassured me it's all ok. Still some swollen tissue from rads. Not nice to have the pain but is nice to know it's normal. Also I find wearing a bra helps.
All the best,
Reading all your posts has reassured me no end. I had my op beginning of June this year and rads July/August and was getting very anxious because I'm still getting sharp stabbing pains in breast and pains/aches in breast bone and ribs. The mind starts working overtime especially in the early hours when laying awake unable to sleep even though I'm exhausted. My skin has still not recovered from rads.
This is whole thing is awful and seems never ending, and I'm sure I'm not alone in that friends and family think that now treatment (other than hormone drug) is finished its all over and expect you to carry on physically and mentally the same as before, almost like you've had a cold but it gone now so forget it.
Wishing you all a good weekend xx
Julie I'm guessing you would have had Radiotheraphy , this is what makes you so tender, I finished mine in June last year and I can't put much pressure on my boob still, I was told it may always be like it so I don't worry Xx Jo
Myofascial releases with certified lymphedema therapist will help. I treat this regularly at Vanderbilt in Tennessee
Go to a physical therapist that treats with myofascial release. Takes 6-12 sessions at 1x a week
Hello My surgery was about 4 months ago and lymph node had a splinter in first node, so early days I know but having lots of pain, there was an infection which a course of anti-biotics did the trick., it is where the scarring is under arm and nipple area.
so I feel for you if 18 months down the line you are still sufferring :-( I suppose it all has to mend and knit back together. I find sleeping a problem at the moment as i sleep on my side, and the emotional side also keeps me awake also, so it is nice to chat to like minded people.
all the best Elaine
Please feel free to call our helpliners to talk your queries over as they may be able to offer some ideas or know of other people who have been affected in a similar way, the lines are open 9-5 weekdays and 10-2 Saturday on 0808 800 6000 and they are here to support you