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Breast pain 18 months after lumpectomy

Community Champion

Re: Breast pain 18 months after lumpectomy

Smiffy

 

The same as Fayeb, the only way you are going to get peace of mind that it is nothing to be concerned about is to give your breast care nurse a call, it does take time for things to settle down after surgery and radiotherapy, not sure if you had that, but honestly give her a call on Monday.

 

Senfing you hugs

 

Helena xx

Community Champion

Re: Breast pain 18 months after lumpectomy

Fayeb

 

I totally understand your fear of getting it checked out but honestly that is the only way you are going to get peace of mind that it is nothing other than your body still settling down after treatment. I know it is really scary but give your beast care nurse a call on Monday and just talk it through with her, you really do not need the constant worry of this with everything else that you are having to contend to.

 

The lump you can feel is very likely to be scar tissue, which is what it has been with other ladies on here who felt it around the scar site, or it could be something like a cyst, which is easily dealt with, but you need to make that call.

 

I am sending you our virtual tough pants and we are all in the pockets with you to support you in making the call, plus lots of hugs

 

Helena xxx

 

tough pants.jpg

Member

Re: Breast pain 18 months after lumpectomy

Yes i have a lot of pain. Lump removed in august finished radiation in december. On hormone pills. I seem to be getting sorer & can feel a lump near scar site. Hurts to lift arm i get sharp pains too. Very tender. Pain when i take bra off. Hot flushes & night sweats pain in knees. I still did usual house things from 2 days after op. Struggled from halfway through 15 rad treatments. Getting ready for Christmas was a big struggle.. I was treated like people thought once lump was out that was it. No-one offered any help. Daughter did what she could but doesnt live close & works. Hubby just ignored pain i was in. I feel really let down. I have helped others constantly.I am starting to really struggle with pain & stress. Plus now hubby has dementia for me to deal with plus my 97 year old father keeps having falls at aged care. I am scared to get checked too
Member

Re: Breast pain 18 months after lumpectomy

I had my lumpectomy a year ago this month and this last month have been getting a lot of pain, I have read in the literature that it can be normal for some but it doesn't make you feel good. You think maybe the cancer has come back because the cancer that I had removed was so small so am a little worried but got to think positive which a am trying to do. 

Member

Re: Breast pain 18 months after lumpectomy

Hi i rang back again last Tuesday as when i woke up breast looked more swollen and i have a patch of skin on breast lower part that looks like orange peel like tgere are loads of little prin prick indentations on surface of skin, with some swelling around scar, the bcn is arranging an app with her and bc surgeon to have a look should be seen within a week
Your post about cellulitis is interesting i think i may have some serma type thing and rads damage as scar area is very lumpy hopefully my problem will be resolved there may be nothing that can be done but just wanted to have it checked out xx
Member

Re: Breast pain 18 months after lumpectomy

I finished my rads end of September, went back November had fluid removed in breast, then a sample taken from  lumpy swelling over scar thank god was told possibly seroma. 6 weeks ago was diagnosed with breast cellulitis have a fantastic drs and have been on antibiotics. Dr now given me a different antibiotic for 3 weeks if not improved have to go to bc hospital, I was told 10 out of 100 women get it who had a lumpectomy and radiotherapy yet when I ask people they have never heard of it, this worries me also. I am due for 1st mammogram in June and am worrying if I will be not be able to have it. I feel I take one step forward then three back. I am so scared again . I come on here every day and always feel I am not on my own even if I do not reply I read all comments . 

Member

Re: Breast pain 18 months after lumpectomy

Just to add i am not on any hormone blockers as my bc was TN had axillary rads as well as breast, so at least i can rule out the med se causing any pain xx
Member

Re: Breast pain 18 months after lumpectomy

I think we all feel like we are pests and complain all the time, but until they have been through it they will never understand. You are not a pest just a concerned women xxx
Member

Re: Breast pain 18 months after lumpectomy

Hi ladies my breast and under arm is very painful surgery was a yrar this May finished rads jan this year i have a lumpy swelling near scar site of tumor and a little concerned i rann bc nurses and the said its early days since finishing treatment however at first surgery follow up they said a bc nurse would class it as lympodema so I don't know if i should if i should ask to be seen i didn't want to come across as overly anxious or a pest advice please!!!!!
Member

Re: Breast pain 18 months after lumpectomy

Hi Flossie13

 

To be honest i have not heard of lymphedema in the breast. I will ask about it next time i see someone. 

Member

Re: Breast pain 18 months after lumpectomy

Hi, I have had a lot of problems after my lumpectomy and radiotherapy. Was advised to get checked for breast lymphoedema and it is thought I have that. Might be worth getting checked for this? 

Member

Re: Breast pain 18 months after lumpectomy

So have they not given you any medication ?? x

Member

Re: Breast pain 18 months after lumpectomy

Hi Julie4556. No I wasn't given either of those drugs. But since bc I have been diagnosed as having fibro myalgia. I too feel as though I have aged 20 years or more. I have also gained lots of weight which is duet the amytriptiline and gabapentin. I feel so fed up with it all. My breast is a constant ache and hurts to touch it really gets you down, I can't remember the last time I felt really positive about anything😕
Member

Re: Breast pain 18 months after lumpectomy

Hi Jackie, i am exactley the same, do you have the side effects fro the letrazole ? or are you on the Tomoxifen ? I dont think i have hd a pain free day for 2 years since surgery and yes i feel the same when i go to the GPs , I feel like no one believes how bad the pain can be sometimes. I to was quite fit before all this and feel like i have aged 20 years. But it is good to know there are other who understand and know what it feels like. x Hope you feel better soon Smiley Happy xx 

Member

Re: Breast pain 18 months after lumpectomy

I've been reading some of your posts. I thought it was just me so carried on with life regardless. I had lumpectomy a little over two years ago and have been "ill" ever since. I can't sleep on my front and have to wear a bra to bed to help with discomfort. The sight of my scar and the area around it is constantly sore and worse if I bump it. I take gaberpentine and Ametripline and duloxetine for nerve pain all over this doesn't help with best pain. I have yet to have a full night's sleep as I wake in pain and soaked through from sweating. I hate going to my doctor because he makes me feel like I should not be there. I was pretty much fit and never really been ill until I got breast cancer, now I'm a lesser person of my former self, I rarely go out. So glad I joined this site it's so informative and we all have had the same all be it different.
Member

Re: Breast pain 18 months after lumpectomy

Same for me, 2 years ago and still pain and itching a lot of the time. My surgeon said I would have pain for ever probably, but leaves me unsure what to do  with regard to checking for recurrence. I also had grade 3 but no lymph nodes affected, but only found by routine mammogram, my first one, and no idea if caught early or not or even if this makes a difference. Sorry can't help you, but can say it is the same !

 

Community Champion

Re: Breast pain 18 months after lumpectomy

Hi Slo, welcome to the forum - glad you have found meds that agree with you at last .Jill.
slo
Member

Re: Breast pain 18 months after lumpectomy

I am 62 years old had lumpectomy 2 years ago  Letrozol was first inhibitor they gave me you are right I felt like I was 90 years old so they took me off that and put me on Exemestane 25 mg ....the aches and pains were much worse so I took myself off of that ... surgeon found out told my oncologist and she has put me on 1 mg of arimidex or generic version of that and all is better

Community Champion

Re: Breast pain 18 months after lumpectomy

Alibobs

 

Wow that is a lovely thing to do xxx

Member

Re: Breast pain 18 months after lumpectomy

Hi Helena as are going to Rhodes. We went with friends last year for a wedding and we are all returning to celebrate the 1st anniversary. Should be lots of fun. We are having a 2 centre holiday, staying in Tholos and Lindos.💗💗