Hello, I'm a her2 positive grade 3 with 2 lymph nodes involved (sentinel and 1 other). I have had chemo, radiotherapy and on herceptin 3 weekly. I have heard that the more aggressive the cancer the easier it is to zap and get rid of. I'm coming up to a year after diagnosis. When I have my rational head on, I am sure that it"s gone and won't come back, but a lot of the time my mind torments me with negative thoughts. It doesn't help that I still have pain and swelling under the arm and my affected breast is a cup size bigger than the other! I guess all we can do is be glad we got it before it marched on even further. I do find meditation and yoga help also music and tv shows that you can lose yourself in. Hope you"'re feeling better than you were the other morning. I"m new on here, so only just seen your thread. Take care
Hi this is my first post. I was diagnosed with stage 3 Her 2 positive Breast cancer. I had the usual treatment fec t, taxotol and 16 radiotherapy. I was 67 when diagnosed this time in my lymph node I had 23 out of 25 positive nodes. I had Breast cancer when I was 40 with a mastectomy and reconstruction and 15 years of tamoxifen no chemo then just radiotherapy. My problem is now although I was lucky to survive the first treatment and have so many years. I am now on aromisin (exemestane) and also I have had 45 herceptin and I am on it for the long term every 3 weeks. I am very grateful for this as I know it is expensive. I just feel so unwell all the time breathless and tired, I have told my oncologist. I have a ct scan every 6 months and also an echo. I have been told my heart is coping well, I have nodules on my lung which are stable. I feel so ungrateful that I don’t feel well, people must be fed up with me, I used to walk a lot, I have neuropathy which was made worse by treatment.. I was diagnosed late 2015. Will I ever feel better. Sorry to moan.
Hi Everyone, Just to say I too was diagnosed with Her2+, stage 3, grade 3, estrogen postive BC. The tumour was 9mm but I got a complete remission with 6xs FEC/T . Also had a masectomy, DIEP, 15 rounds of rads & 9 Herceptin jsbs. That was 3 years ago.
Still on estrogen blocker, loosing bone mass but apart from that doing well. I do still tire so going part time soon at work. Cant wait! Life is for living gals!! Who knows what the future holds none of us whether diagnosed with cancer or not truly know so best not to even try to crystal ball it!! BC teaches you to enjoy what you have NOW. Thats what I am doing & plan to carry on doing.
Hugs to all you brave ladies!! Xxx
Thank you so much for such a positive and inspiring post. Wishing you all best wishes for Christmas and 2018 and continuing good health
Yes Maddie, its great to hear from people who are a long way forward in this 'game' (I couldnt think what word to us, instead of journey....lol you all know what I mean, perhaps 'expedition of life' is better ?). Sometimes these forums can be a self-selecting group, of people who are just having problems and there are lots of people out there who are doing just fine and getting on with life happily. Wishing you a happy continued happy, healthy future x
Hi Maddie, what a lovely positive post to read on Christmas Eve! Delighted you are doing well 10 years on , long may it continue! Happy Christmas and thank you for coming on to post 🎄❤️
I was diagnosed with Her2+ ER+ Grade 3 breast cancer 10 YEARS AGO, and have been healthy with no sign of recurrence since the end of treatment. Hang in there! Believe that you can beat this thing, be patient with the process of healing (it took a while to trust that not every little ache wasn't the cancer coming back!), and be kind to yourself...
- I've got the same, but everyone is different and reactions are different too.......For example, they decided I won't have any radiotheraphy, but my protocole seems the same as you........
- reactions different, .................ask your doctor for problems, my reactions are not bad so far (2snd chimio), , after I'll have 12 taxon every week.....
- Don't think too much about it and live as usual in between, make yourself happy...........take pleasure...!
Relaxation may do you good as well...me, I've been practising yoga for a long time, I've started again after my operation (April 4th), it's getting OK, and I practice cycling a little and gardening a little for pleasure or painting, or sudoku, or .......music!
Take care, and stop worrying.....(that's the best therapy)
Im her 2 pos grade 3 only known by my node involvement as im cup cancer. have finished 4 fec and 4 tax due to have lymphs removed on 9th May as a day patient and then rads. ON Herceptin no 6 out of 18. All scans show NED will have to wait and see what nodes show after surgery but clinically clear.
Yup, another one here. Done FEC 3, 4 lots of T to go, then surgery, then Herceptin. Oh what fun :-S
Another HER2+ here. Age 49, Grade 3, Er+ 4/8, Pr+ 6/8, no nodes (hurrah!) and am in the middle of 6 x FEC, with rads, Herceptin and Tamoxifen to follow.
I had a portacath inserted as I really didn't want to get stabbed with cannulas for a year and a half, and I do want to get back in the swimming pool when I'm allowed (not supposed to during chemo).
It's good to read all the NED ladies posting, that is very reassuring. Bummer for you though, Annie22, let's hope it's a local recurrence which they treat as a new primary, and that your new treatment goes well. I find ether very useful for controlling the frogs, but sometimes the ether runs out and the whole bloomin' lot get out.
Still here, over four years on now. Fit and well.
Herceptin is a breeze after chemo, although tiredness tends to kick in after several months of it, so don't worry if you feel better at first, as the chemo tiredness recedes, but then go back downhill as this is the herceptin tiredness kicking in. This will go after you finish herceptin
Ooops, sorry....I didn't mean that everyone should get out there and focus on the good things...I mean't that I should.
Anyone who is feeling bad, should do exactly what they want - shut the curtains on the sun if they feel like it...I did.
Quite late in the day and playing catch up, but I am HER2+++, ER+, Grade 3. Finished chemo on 1st April. Had 3 FEC, 3TAX (with Herceptin) and now doing just Herceptin for a year. Just starting on Arimidex (not Tamoxifen) for 5 years.
Yesterday was told that another lesion has been found, so the op planned to remove the reconstruction (which was where cancer came back) will be to remove this new lesion and send it for investigation.
Ws due to start rads in 6 weeks, but this will be changing according to what this other lesion is - which is a pain, as I planned my house move around the treatment. (Not to mention the terror I felt yesterday, on being told this latest news).
I think the thing about cancer, is that it is like controlling a box of frogs: you think everything is safely sorted and another frog jumps out and sends you chasing off to wrestle is back into the box.
It is all very tiring isn't it? The treatment is one thing, but the constant drip-feed of other bits of info that you have to get your head round takes some getting used to - and that's before deciding who/what/when to impart the info to.
Anyway, beautiful day today, so time to get out there and focus on the good stories, like Juliet.
Thank you Sharon for posting and thats great news about Juliet, it is reassuring to here news like that - Thanks
Best Wishes to you both
Hope you are doing okay?
Thanks for posting, I am not doing to bad thanks, I found FEC hard going especially with the nausea/sickness, am abit anxious about TAX as my Oncologist has advised not to go back to work yet especially as I will be starting TAX? I have days where I start to get panicky about it all, and scared of every ache and pain I get but im sure we all feel like this? Do you know if you get scanned (ct, bones etc...)anymore? I have had them done once and they showed no evidence of mets?
I am not to worried about Herceptin as the chemo nurses have said it is alot easier than chemo, obviously it can affect your heart but they said I will be closely monitored.
Best wishes to you
I was one of the early posters - posting about my partner who was diagnosed in ~November 2004. She has still, fingers crossed, NED.
Good luck with the Herceptin -Juliet certainly found it the 'easist' of all the treatments to cope with.
I am about 6 months ahead of you in treatment terms, with a very similar diagnosis. I have finished chemo (last Tax was 14th Feb), had 6 herceptin (3 with Tax, 3 without), out of a total 18. I am also having rads, and started Tamoxifen last month.
The herceptin is fine. It has few side effects, other than the main one, of stressing your heart. My latest MUGA showed some deterioration, but my onc said it was fine. The only other SE I have noticed, is it giving me a bit of an upset stomach, but that is much better without the Tax and antibiotics.
How are you coping?
I know this is an old post but I was just found it and thought I would post!!
I am 34 and have been diagnosed with grade 3, HER+++, ER+, 2/22 nodes had micromets in, I have currently had 3x FEC and due 1st TAX on 27th April, I will then have 1st Herceptin with 5th TAX for 12 months and also Tamoxifen.
Are any of the ladies who originally posted on here still posting on here, just wondered how you all are?
Thanks Tracey, I do think a years herceptin is a bit harsh especially with the effect it can have on your heart.. Did all your symptoms ie shortness of breath and swollen ankles go after you stopped the herceptin, also are you on femara?