I was diagnosed in 2005 when I had just turned 30. I had inflammatory breast cancer and my right breast blew up. My oncologist said such cancer is extremely rare but especially rare in women my age. It saved my life, because by blowing up it alerted me to the fact something was wrong and I went to the Doctor. It turned out I was HER2 Positive and it had spread to my underarm lymph nodes and the lymph nodes in my neck. I received Herception every week for 20 weeks and chemo every 3 weeks for 6 rounds. After that they sent me for another PET scan and the cancer was gone. They were delighted because (unbeknownst to me at the time), they didn't think they could operate. The drugs had reduced my breast to a normal size again and I had a full mastectomy. Then my oncologist gave me 4 more rounds of chemo to 'be on the safe side' (carboplatin and Taxotere). I also had 5 weeks of radiation. After surgery, I had Herceptin every 3 weeks for 5 years. I gained 2 stone in weight from the steroids, but after chemo I started walking every day for 1.5 hours and the weight started to come off. It has been 14 years now, I am 44 and last week they discharged me from annual visits as they feel I am cured. I went back to college and studied for a Higher Diploma in Psychology which I really enjoyed. I did my thesis on Self-compassion in Cancer Survivors. I basically wanted to find out do those with higher levels of self-compassion experience lower levels of body image dissatisfaction as a result of cancer treatment. They do. So be kind to yourself and gentle in your recovery. You will get there and when you do you will be wiser for the experience. I wish you all a healthy cancer free future. Look after yourselves. Take care , J
Hello, it's 4 1/2 years since I was diagnosed with grade 3 HER2 positive breast cancer. I had the usual chemo, herceptine and radiotherapy treatments and am on Anatrazole. Just got the yearly all clear, so just 1 to go.
Have peripheral neuropathy from the chemo so on Gabapentin.
Life was a struggle at first but got better and better. I am 68 this month and my daughter gets married in May, so lots to look forward to.
Well done Chrissie10. I'll be two years post diagnosis in May next year and to see you've just had the 5 year mammo all clear result is a great boost and thank you for sharing. I'm sorry to hear you're still sore with scar tissue after rads - so am I! Still small price to pay. Have a good Christmas and Happy New Year x
Hi Nimra, I was diagnosed with ER- PR- HER2+ grade 3 in 2008. I went through all the necessary treatment - mastectomy, chemo, rads herceptin. I'm sure my daughters felt the same as you when I was diagnosed and I can't believe it is now ten years since then. I have just had my routine mammogram which came back clear and fingers crossed it stays that way. Lots of lovely things have happened since 2008, both daughters have graduated, got their dream jobs, both married and one now a mother of two. Have spent the day with them watching Disney on Ice. When going through the process of treatment you don't ever believe life will get back to "normal" - but eventually it does and you appreciate those special moments even more. It is early days for you and your mom and she might find it best to just concentrate on getting through the treatment one stage at a time, she will have bad days as everyone does, but try to make the most of days when she is feeling ok it helps to have some normal routine away from hospital appointments. If you have any questions you need advice on and I can help please ask. I don't post on here often but I still find it a comfort to pop in.
Just came back on this site after many years and did not look carefully at where i was posting. I am very sorry but just replied to a post from 2010. I am really sorry and apologise
I feel i have to reply as you seem to be having a really rough time. I came on here for my sister who is 16 months post treament but I had cancer myself 13 years ago. It was grade3, Her2 positve with 3 pos nodes. I had lumpectomy, 6 rounds of chemo, 5 weeks of rads, 1 year Herceptin and 5 years of Arimidex. Sounds a lot of treatment but I hardly remember it now. I am cancer free and had my last neg mammogram about 8 months ago
It may be an aggressive cancer but you can still pull through. Do not bottle things up (I did and just made things worse) voice your fears, take all the help that is offered and stay positive. I hope and pray that you get through this and look back in years as i have done and hardly remeber anything about it xx
just read your post, I too was diagnosed with HER-2 positive Stage 3 last March after a routine mammogram, what a shock, there were no obvious signs at all, no lumps or pain. After being diagnosed I too went on the Rosco trial, had four rounds of chemo, then another four slightly changed, in with that was Herceptin, the cancer disappeared completely, I had a lumpectomy in November with removal of all lymph nodes from my left breast and had the other breast remodelled to match, still no signs of cancer, phew! Luckily I was able to choose my surgeon, I did lots of ground work and asking and now have amazing breasts, nipples moved, and at 70 years old I am very proud of them, something good came out of all the trauma. February brought fifteen rounds of Radiotherapy and at the end of May I finished the Herceptin injections at home. I was discharged from hospital cancer free and feel like a new woman.
My yearly mammogram is in December, not looking forward to it but it has to be done.
Like you I have changed my life, go walking, eat very healthily and feel much better.
I tried the cold cap but lost my hair after two weeks so I asked hubby to shave it off, I had bought a good wig in preparation which has been my constant companion until February when my hair was long enough to keep it off, I am keeping it short and it has the chemo curl, which all my friends tell me, looks good..
I still have after effects of chemo, it has left me deaf, also tinnitus, my toes still have peripheral neuropathy though not too bad, nails are slowly getting better, so life is good and I appreciate every minute as I am sure you do too.
I was diagnosed October 2017 with IDC, HER2, ER2 positive Grade 3, 20mm, 2 lymph node removal which thank goodness was negative. I had 4 rounds of chemo, Taxotere and Cyclophosphamide, 4 and a half weeks Radiotherapy, plus Herceptin (just had number 10 out of 18 ) and Letrozole for 10 years, it has been an emotional and eventful roller coaster to say the least, still a way to go but i'm getting through it and very thankful. 3 weeks a go i had a swelling come up under my arm, i'm waiting for an ultra sound appointment for that. My fisrt mammogram since diagnosis will be in November so not to long now, nearing the goal, wishing you all lots of positive thoughts and best wishes on your journeys.
Thank you for your post. A huge motivation for people like me. I am on Herceptin too. God Bless you.