Member
Posts: 644
Registered: ‎03-04-2018

Re: questions about radiotherapy

Hi, I had pagers disease in 2006 and had surgery and radiotherapy. This year I had lobular cancer and have had a mastectomy, a second surgery for the node clearance and shave of the chest wall due to the size of the tumour 11.5 cms , chemo and now, 8 months after surgery it's been decided I'm to have radiotherapy too after i was initially told it wasn't possible to have it twice. This time it's going to be near the collar bone because of affected lymph nodes. .
Member
Posts: 114
Registered: ‎26-09-2018

Re: questions about radiotherapy

Hi blueash,
Thank you for your reply. I am starting radiotherapy next Tuesday. I am reassured by your last paragraph. Thank you!
Jane xx
Community Champion
Posts: 772
Registered: ‎26-06-2016

Re: questions about radiotherapy

I met a woman at my radiotherapy sessions that had been through a mastectomy. It is unusual to have rads after a mastectomy but she said they told her that the site of her cancer was the reason. She had it far back in her breast so growing into the wall of the chest if you get what I mean. Mine was the total opposite and was only growing on my nipple - I had Paget's disease.

 

Perhaps yours was far back and was near tissue not easily removed. But rads are nothing to worry about, you just have to go every day for weeks is the worst of it. You might get a bit of redness but it is painless.

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Member
Posts: 114
Registered: ‎26-09-2018

questions about radiotherapy

Hi ladies,

I posted the below on the surgery section but thought it would probably be more relevant to this section. Any replies gratefully received. x

Following my mastectomy on 31st October, I get my results this Thursday. I am triple positve and was given chemotherapy before surgery. This completely resolved my 5cm invasive tumour ( they could see 2-3mm of what they thought was scar tissue on the last scan). However due to the 9cm of dcis, mastectomy was the only option. I have been given differing opinions about the need for radiotherapy from three different breast cancer surgeons about the need for post operative radiotherapy. However I actually want it because I have checked the uk guidelines and I do fall into the category of needing it- see below- and I consented to mastectomy with delayed reconstruction because of the need for radiotherapy after surgery.

I am driving myself crazy , researching papers on the likelihood of cancer free lymph nodes from the SNB ( the three ultrasounds showed no evidence of cancer in the nodes and the initial fine needle aspiration was negative too).

 In the literature it states the risk of recurrence is higher if the tumour is 5cm or more, hence the need for radiotherapy. Is this the case if I have had the mastectomy though? Where would it come back? Does it mean recurrence in the same breast ( in residual breast tissue?). Would it be the same type ( triple positive)? I will have herceptin til next June, every three weeks, and medication too.

Also, the guidelines state that radiotherapy should start within 31 days ( in England). Is that likely? One of the surgeons said it would be ten weeks. I know I have to wait for healing, but I have had no post-operative complications, I have really good arm movements, little pain etc. ( Interestingly, on a different post, a lady was concerned about removing her dressings. I was told to remove my dressing after three days. I wasn't given drains. No-one has telephoned to check if the wound is looking alright. I just got a phonecall the day after surgery, when I had the dressing in place, and I told the nurse I was really traumatised and felt mutilated, and I couldn't bear to look at it. Luckily I am coming to terms with it now).

Sorry about the long post. I welcome any comments/ advice.

Jane xx