Thank you Gill for that reply, really helpful. Finished 20 days on Tuesday, and the treatment itself wasn't a problem at all, lucky for me, but side effects are now rearing up ( and putting my glasses on has made the skin 'damage/reactions' a lot clearer ) - I used Dr Hauschka oil between daily treatment, as I found the Aveeno cream that many recommend didn't do it for me, and dryness on the nipple (eek!) and that crease under the boob line are the real skin issues that have now made their presence felt. If I don't think things are mending the way that might be best, I think I shall contact the BCN at the hospital for some advice and possible medication. Thanks again.
Your post really struck a chord, although I’ve been lucky in the support I’ve had, I’ve discovered people I hardly knew (originally) have been absolute gems and so supportive, whilst older friends are noticeable by their silence. It’s been wheat from the chaff ! - sad but true.
It’s been 4 months of hard life learning for me too, and today I was thinking of things I’d like to do...and after reading what you’ve said, I’m determined to do them, for me.
I’ve spent many years of not doing things I’d like to do, but instead following other’s wishes, time to change that I think, at 64 !!
I think we have earned the privilege, us all in here...
Lucaboo, nice to see your posts, hope the sessions are getting easier for you. No breathlessness I hope..
Let’s all get through these last zapping days and out the other side.
Take care, all - have a good weekend.
Mcnulcc Chris, have a lovely time away...cant wait for you to ring that bell uve done yourself proud. Look forward to next weeks antics its the only thing thats kept me sane lol....live and hugs xxx
What an amazing post, yes reflective however very positive for the future, this diagnosis really does make you take stock of what, and who, is important to you.
I think one of the things I took away from my experience was how wonderful my family and friends were so I have been very lucky in that respect, but also I am very grateful for the wonderful friends I have made from being on this forum, whom without having gone through this I would never have met and can honestly say my life is richer for having them in it.
Mcnulcc Chris, how true your words are. But first congratulations on your 10th session, i remembervonly too well saying to you 3 down etc when you first started. Weve had a few giggles along the way with various things lol. But my heart goes out to you where family and friends are concerned.
I too found it astounding that all of a sudden my phone was silent, and my family, i have 2 sisters, and brother nieces sister in law brother in law etc plenty of them, all suddenly didnt care wtf??.
Anyway all i can say to your braveheart is you have come though this 4 months amazing, your strong and caring of others and perhaps those people who have shunned you, well they werent worth having in the first place. One day in life it may happen to them, and then they will realise what a lonely lonely path it is.
But can i say for all your sadness and panics over your health, i give wholehearted thanks for the time you have taken every single morning on my way to treatment to message me and support me and jolly me on, when you knew id be sat there on my own.
So you go see those places, do those things and when you ring that bell ring out all those people who let you down...and go forward the lovely kind caring lady that you are....big love and hugs xxxxxxx
Thank you for that very moving passage. Yes, you do indeed need to put yourself first. I am so glad your sisters have been so supportive and understanding; that has clearly made a great difference. It is so ufortunate that other members of your family have kept a silence; do not blame yourself for that, it is their choice and only they can explain their behaviour. Or perhaps they can't; perhaps they don't really understand themselves. It is, in any case, their loss that they have cut you off.
Next Friday you will be ready to ring the bell (assuming your radiotherapy department has a bell). Then you will be on your way, to all those places you have yet to see, to enjoy the company of the people in your life who matter, and to make new friends.
The very best of everything to you.