Hi Angie and all April starters.
Started on Thursday so I have had 2 sessions , today felt really sick and started to vomit . Not a great deal in my stomach as I have totally lost my appetite. Has anyone else experienced this ?
I asked about anything I need to do at my first session and was told to moisture 3 times a day with E45 or Simple. No mention of fluid intake or anything else , no mentions of deodorants !
I have started Letroxole , on week 4 . That’s a whole new thread , not side effects , but availability.
Would love to hear how you are getting on 😘
One down, only 14 to go! I found it all took longer than expected. I had to have two X-rays to get me in the right position. I found the hardest thing today was being in an uncomfortable position for so long, and it hurt my already dodgy back. I got pins and needles in my hand, but nothing major.
I was told not to use any moisturiser at all on my boob, during and beyond treatment. And only alcohol free deodorant. No shaving or hair removal products. And I was given my own special “easy boob access” gown to use for the next three weeks!
Phew. I’m glad it’s over.
Thank you nipper
i dont feel as nervous now
waiting to hear to from Angie as her appointments was 11.30. I hope she’s ok
Yes good luck. Once you get started it surprising how you get into the swing of it and how quickly is whizzes by. Well it does for me! Starting to feel tired and I think my car is one of those driverless ones! Let us know how you all get on.
Yours will be here in no time debs
11th April do not long now for you.
it does sound like your journey has been much longer than ours x
I start tomorrow at 3.35 but my hospital is a 15 minute walk from my apartment.
il be leaving work at 2pm as I work central Manchester but will work from home on some appointments.
Are you coping ok nipper?
Feel a bit yuck afterwards but that wears off. Just a bit tired but I think that’s the early start - around 9am appointments and a 25 mile trip. What about you ambychlo?
Hi ladies, just wanted to say good luck to Ambychio and Angie123 who both start radiotherapy tomorrow.
Nipper11, hope your treatment is going well.
Thank you, I knew it was okay but she’s being really nasty and trying to get people to side with her.
HR are involved but not because of me, I think one of my friends was really upset so she reported it
i can stop stressing now and enjoy my weekend
What a horrible person , you are no ''danger'' to anyone you can carry on as normal
Hope the RT goes well - E45 cream will be your best friend
i have a bit bit of a dilemma
I have been told that whilst I am receiving radiotherapy that I will not cause an harm to pregnant women or children so I can carry on working. Is this true?
there is a lady in my office that is refusing to be anywhere near me whilst I’m receiving my treatment. I think she’s being mean due to the time I’ve had off for my surgeries and appointments but I would hate to cause anybody any harm.
can anybody advise
Yes, it's been a bit of a slog. We have a two-week holiday planned for the beginning of June, and I can't wait.
Regarding deodorant. The one I usually use has aluminium in it so I've bought one called Bionsen. It's a solid one rather than a spray or roll-on. It does smell rather gorgeous.
I start mine on 4th April and had my mark up today
im going away 1st May so my amazing doctor made sure that was possible
i can’t wait to have normality again
I'll be joining you, to start my radiotherapy on 11th April, finishing on 3rd May (because of the bank holidays).
I was diagnosed with DCIS back in July - that seems so long ago now! They were happy to wait for me to have my Sept hols so I had a therapeutic mammoplasty at the beginning of Oct (with the other boob reduced to match). Some of the calcifications were a bit more advanced than expected so I had an op on my lymph nodes at the beginning of Nov. Thankfully they were all clear (well there was one micromet, but that doesn't really count).
I finished 12 weekly chemo sessions yesterday and now have a couple of weeks break before the radiotherapy starts. Though I have to pop over to the hospital for my Herceptin injection on Tuesday, and will be doing that for another 9 months. I think Tamoxifen, or something similar, will start soon too.
I just realised I titled this thread "radiology" and not "radiotherapy" - many apologies. If you find my brain, please let me know
Nipper11 - that's great news! I hope that things continue so well for you. Do let us know. I start a week today...
First session over and all ok. Staff lovely and it was over before I had realised it had started. I must stop looking at YouTube. I asked about deodorant and shaving. They said only if the area becomes sore otherwise continue as normal. Just don’t put anything directly on it and be careful with hot water in the shower. Don’t wear an underwire bra and drink lots of water which I am as actually feeling thirsty. Only mentioned using E45 but I also have some aloe vera gel. One down 14 to go. 😀
I don't think you should use any deodorant on the treated side, certainly not before treatment - I'd extend that to not spraying perfume behind your ear as the spray can cover a wide area. That's certainly what I was told and a rule I complied with successfully. You can shave with an electric razor although I believe many people lose the underarm hair on the radiated side - mine hadn't started regrowing after chemo at that point.
I really hope all goes well for you tomorrow. It sounds like you have been through so much already. Thinking of you.
I hope your next session goes well. You must be feeling very emotional with the onslaught of the menopause as well as everything else
I haven't shaved since my surgery! The BCN suggested not to - but I am so tempted, it is driving me mad! Maybe I should before the radiology actually starts...
Let us know how you get on today.
Hello, I start tomorrow. I haven’t been told a lot except just what is in the standard information sheet they give everyone and that doesn’t go into any detail about personal care. I had my op’ on the 8th of January so it’s been a long wait. I had a mastectomy first time around so didn’t go through this. Really apprehensive but I’m sure once you get into the swing of it, it will be fine.
pleased to hear your first session went well. Did they recommend what deodorant to use while having treatment. I have bought a Simple roll on which doesn't have alcohol perfume etc and was hoping that would be ok but I wondered if they suggested a specific one to use.
hope things continue to go well for you. I start radiotherapy on April 8th. Will be glad to get it over and done with.
Hi I had my first session today and it was ok. A few practical things I didn’t know about were you can’t shave or wax etc whilst having treatment and you are restricted to the deodorants you can use. Best to buy/prepare before hand. Emotionally I’ve been up and down but I think that’s more about stopping my HRT and having the menopause hit me like a ton of bricks🤗
It’s so good, I don’t think I would have coped without the help and support from all these lovely people.
i feel we are both at the exact same place so will you keep me posted on your progress
I was diagnosed 21/1, surgery 6/2, and start radiotherapy 4/4. I feel it is quick and also that there has been lots of waiting! I want to get my radiotherapy over with now too.
It is good to hear from others who have been through something similar already, isn't it?
when do you start your radiology as it sounds really quick 2 months.
i think mine would be all over now if I hadn’t had 2nd surgery.
i can’t wait to get back to some normality now.
ive heard so many similar stories which is helping me so much, so many questions.
Helena - it was similar for me too. First mammo, no lump and out of the blue. The surgeon couldn’t feel anything either. I’m still in shock two months later. I’m not sure I’ll even start to “process” until after my radiology now.
im so glad I found this forum as you are all so lovely and helpful.
i do find it easier speaking to people who have had similar experiences. I often think other people think I’m being a bit mardy.
i know it’s really only been 3 months but visited the hospital 15 times so just want to be normal again.
I never thought of an end to all the treatments and surgery until now.
thank you Helena I will now start to look forward.
thank you for my hug xxx
That was the same as me in 2016, had my 3rd routine 3 yearly mammogram when they found the cancer, I had no lump nothing so it came as a great shock. I finished active treatment in January 2017, it wont be long before you are at the end of rads and looking forward. Just take it one step at a time my dear and you will get there.
Sending you hugs
Aww thank you so much, I really do appreciate your help
i actually think I’m still just getting to grips with this as it was completely out of the blue xxx
this too is is my first post
i was diagnosed with DCIS on December 27th, had a lumpectomy 21st jan and they found invasive cells which resulted in more surgery on 13th Feb. Results came back no cancer in lymph nodes. Radiation is a pre caution and have decided against letrozole due to reading up on it. I have been really well and not had much time off work.
i feel really guilty reading about all that every body has gone through.
i feel extremely lucky and cannot praise the NHS enough.
reading everybody’s stories really does help me and makes me realise how lucky I am xxx
I think it varies from hospital to hospital. I had my scan and tattoos on 18 March and they gave me my appt to start radiotherapy then, and that’s for 08 April. I haven’t got the full schedule yet eg whether I’ll get a four day break over Easter.
Might be best to call the hospital and explain about your holiday?
And congratulations on your special birthday! I do hope you can get away to celebrate.
It is usually 2/3 weeks after that when you start but just let them know what is planned and see what they say, they might be able to work round it xx
Hi angie, I have my marking up scan on 28th March, do you know how long after that radiation treatment starts. I turn 50 in April and my daughters had already booked a short break to Spain on the 1st May. I’m stressing about not being able to go
You know, the more I think about it, I think you are right, she said tamoxifen if my bone density isn't good. I'm confusing myself now 🤔 I'll just wait until I see her. My brain is all over the place at the moment.
Now that is strange as I was told that Tamoxifen reduces the risk of osteoporosis in post menopausal women ...so it's one of the benefits..however aramatose inhibitors such as Arimidex definitely increase the risk.
Thank you Stirts for such a positive post. So pleased to hear that your treatment is going so well.
i have bought some E45 cream and started using it as I wanted to be sure it was ok with my skin, I do have some allergies but it's fine.
I think I am feeling positive about the radiotherapy, just need to get on with it. I may say something different the closer it gets to my starting date of 8th April!! I think it's the hormone therapy I am more concerned about. My oncologist mentioned tamoxifen but no decision will be made until she has the results of the bone density scan which I have a week tomorrow. She says the tamoxifen can aggravate osteoporosis so needs to have the scan results before deciding. I think this is because of my age (65). I am so glad to hear you are not having side effects.
I am actually quite surprised at how good I feel at the moment. I think not having any appointments or test results due this week and next has helped me to relax and feel more normal.
Thank you again for your reassuring post.
What a lovely reassuring post.
It is a shame that in general it is only the bad experiences that you hear about. I too sailed through mine 15 and 5 boosters with very little problems at all, in fact the biggest problem for me was the daily trudge to the hospital and back, I hated having my life dictated by this one appointment however it was soon over and, at the end of the day, you know it is for a good reason that you are having to do it.
I must admit I know the days when I have not taken enough water even now, feel sluggish and tired, but as soon as I drink it is fine again.
Woo hoo only 3 more to go, roll on Wednesday and then you can celebrate having completed it.
I have been on tamoxifen for two and a half years now with very little side effects, will be on it for 10 years in total.
Thank you, Strits - it is ndeed good to hear from someone that has been through and had a positive experience. It is very much appreciated.
Thank you, Helena. I have the date of my first session already - next month. I think I will just give them a call tomorrow, just to check what they recommend about preparation for the first treatment session. I need to get in the habit of drinking water too!! I don't drink any at the moment and will find it hard to get up to the levels suggested - but in the grand scheme, drinking water is not going to be too difficult :-)
Really appreciate your posts - thank you.
Hi Lovely Ladies
I have been reading through your posts and I thought that I would give you some reassurance and positive thoughts. As has been said you mostly hear about bad experiences or problems ... so here is mine.
My treatment plan was 15 rads and 4 boosts.. at the moment I have only 3 boosts left to go next week ..the boosts treat a much smaller area. So far, I have had very little side effects - no fatigue at all and still walking miles every day. My boob has sometimes looked slightly pink but I've never felt it hot or burning ..I've had worse sunburn sitting out in the garden for half an hour with no suncream. No pains in it either. The hospital gave me Zerobase cream to put on morning and night and also Betnovate (hydrocortisone) to put on once in the evening. and I've done this without fail. Also I have been drinking more water but I've not been obsessive about it !
As for Tamoxifen, I've also been on that for 8 weeks now, also no side effects and the hospital told me that if there were to be any they show up early on.
Actually I am feeling really well and it might be because I am better hydrated ..so I think I will try to continue with that anyway.
I hope that my story has made you all a little less nervous about the process.. yes, it's a pain going every day, but then so is travelling to work every day !
Hope this has helped ..good luck to you all with your treatment
Once you get into the habit it becomes second nature, the only trouble is the consequent loo trips but actually that is getting all the toxins etc out of your body. At first I would set the alarm on my mobile for every hour to remind me to drink, it also helped that I would have to take a walk to the water machine to fill my bottle so I was moving away from my computer