23-09-2018 11:23 PM
All nail biting stuff in that final episode - never guessed the bent copper once - and a great twist at the end. I did have to keep going over it and checking I had understood the whole thing about 10 times with hubby to check I had all the threads correct - good stuff - certainly distracted me from the week ahead.
Pearly start tomorrow- good luck to everyone for this week x
21-09-2018 08:39 PM
21-09-2018 08:34 AM
I remmeber when I was having mine I was using both E45 and Aloe Vera, my team told me to stop using the aloe vera and instead keep my E45 in the fridge as it work in exactly the same way in cooling the breast xx
21-09-2018 07:56 AM
Good morning everyone,
Bibi, yes, get those appointments moved if you can. I was advised not to use aloe vera due to the drying effect and just using diprobase cream which seems to be working well at the present time. Not quite knowing what is causing the redness must be a concern, I hope you're taking your temperature if it may be an infection. My fingers and toes are still crossed for you.
Maggie, lovely to hear from you and by the sounds of it you're off to a sunny holiday soon....
DamselGreen, I can understand your concern regarding the sun, I remember desperately wanting to get away for a couple of days with a friend and then the heat wave arrived and I didn't go in the end as I thought I'd be consumed with worry about the sun. After chemo my skin feels like plastic.
How is everyone coping with the sun? I really struggled with the heat waves, I have learnt that chemo can affect the sweat glands and when I am sweating my skin goes prickly.
Wombat woo - you okay?
It is Friday, I have a 2.15pm appointment, a friend is taking me in today and hopefully we will do something nice before or after. Physically I seem to be doing okay at the present time, emotionally I am having a few wobbles.
All the best to those heading in today
20-09-2018 07:42 PM - edited 20-09-2018 07:43 PM
Hi everyone- thanks for the kind thoughts - the redness and heat is worse after I have had rads and then it calms down. I spoke to a nurse as well as radiographer today - they said it shouldn’t really be the rads but it could be that my skin is just very sensitive or possibly an infection but we are waiting to see how it goes tonight and maybe see doc tomorrow if it happens again. She also advised me not to use Aloe Vera - she said although it cools it’s not very moisturising and maybe I was having a reaction to something in that. I have been using Aveeno during and since chemo - have only used the Aloe Vera when its been red and hot - seems to be highly recommended by lots of people but am going to give it a miss and see if it helps.
Jealous of your short journeys- we had another epic tonight - half an hour to do a mile at one point tonight 🙄
I have asked them to please give me earlier appointments next week so🤞for me ladies.
PJ’s and fire on for a cosy night now .
Have a good evening xxxx
20-09-2018 06:41 PM
20-09-2018 05:56 PM
Well the redness disappeared by the time I went to bed and no sign of it today so maybe just a little over reaction on my part. I am fortunate I only have a 10-15 minute drive to treatment, traffic allowing, but parking is a nightmare so we need to leave plenty time although this week my husband has been dropping me off and I go in while he looks for a space. However I get to drive next week (6 weeks post surgery) so will be driving myself (he’s been lovely but I need my independence).
My appointments are all early morning and today I went into town afterwards, met people from work for lunch, got my eyebrows done for the first time since they grew back and had two haircuts! My regrowth got a trim and tidy up when I went in to see my hairdresser as she’s about to go on mat leave and she wanted to know how I was doing. Then my wig also got a bit of a trim while I picked out a new one, it’s done well but it’s had a lot of wear and I need a new style.
Waiting on the fatigue to kick in but hoping it’s like chemo where it never really materialised until the very end. Desperately want to look at a holiday at the end of the year but wary about too much sun etc, although I’ve been a factor 50 user for years as I do a lot of outdoor activities. Will wait until rads are over before making any decisions.
Hope everyone is coping with all the things that treatment throws at us, amazing how resilient we can be.
20-09-2018 08:18 AM
Good morning everyone
Bibi and GreenDamsel I do hope your redness settles.
Yesterday, no delays with treatment. I was lucky though as in the morning the hospital had a power cut.
For transport, I relied on the ambulance service which has volunteers who use their own cars to take me. Due to the high winds we took the rural route which made the journey longer. We picked up 2 patients on route. It was a long day for me but I very much appreciate the service.
A friend was waiting for me when I got home and I really appreciated her big warm hug - priceless!
I am getting into a routine of coming home, food, resting and then in bed at a ridiculously early time.
Fatigue is here - the thought of doing a food shop seems too much. Anyone doing food shopping online? Never done it before and I could do with tips/ advice if there is any.
I am drinking loads in the morning but when I get home not so much which is probably why I have a mild headache this morning.
GreenDamsel, I too started chemo in Feb this year although back then I wasn't using this forum.
I am sooo looking forward to the weekend..............
Bibi - we have the Bodyguard to look forward to.
19-09-2018 10:56 PM
Hi everyone- and hi Green Damsel - how is your redness tonight?
mine was Ok today when I went for treatment but tonight after third lot it is really red and hot - I really hope it settles - just worried how I’ll cope with rest of the sessions.
Wombat I’m really tired but I think it’s the travelling - an hour and half to do 25miles tonight because we hit the commuter traffic - and I’ve got a later appointment tomorrow. Can’t wait for weekend so I can stay home. I’m drinking loads and moisturising and getting walks for fresh air but still tired.
Hope everyone has a good day tomorrow
19-09-2018 10:37 PM
It is very likely the travelling, but are you taking in enough fluid daily as that will help combat the fatique which can be experienced as a result of the dehydration from the rads treatments xxx
19-09-2018 10:30 PM
19-09-2018 04:27 PM
I was on the feb chemo forum and have just started rads today and lo and behold I also have a bright red boob already. Bit of a shock as I was told it would be a few sessions before I would see any reaction. I don’t burn easily in the sun either so this is new for me. Will ask tomorrow if this is a sign of problems as I can’t see how my skin would cope with 3 weeks of this. I’d been moisturising with epaderm after mastectomy/reconstruction so I can’t see that being the issue. Hope your redness settles down soon.
19-09-2018 07:00 AM
Hi Bibi - oh, I do hope the redness has settled, keeping fingers and toes crossed for you.
I am already looking forward to the weekend when I don't have to go to hospital.....
All the best to everyone heading in for another session.