To add, I asked the nurse about the advice to drink loads of water, You may know this already but apparently when the treatment destroys the cells, the dead cells create toxins which then circulate around the body and this can contribute to the tiredness, so the more you drink the more dead cell toxins you get out of your body.
Yes, you said it - you can do this.
For me, attending rads is far less anxiety inducing compared to attending the dentist.
Maggie, lovely to hear your energy is returning.
Bibi - I am excited for you regarding your camera course.
Wombat woo - we have passed the half way mark
DamselGreen - Lovely to hear you're embracing the great outdoors. I have been researching woodland walks and I hope when I get physically stronger I can walk within the trees.
Ah Sue as others say you are allowed to feel like that - it’s the waiting every time that is hard - waiting for chemo, waiting for surgery, waiting for results, waiting for radiotherapy- once you have done the first one you will be able to cope better. The physical aspect of radiotherapy is much easier to bear than chemo for sure but it’s still mentally tough. I have done 7/20 and have been feeling fine but have just sat down and had a good cry and I don’t know why - it’s hard keeping going at times but hopefully you have the support of your family - and just tell them when you feel rubbish don’t always be ‘fine’ if you are not feeling it.
Having said all that I agree drink plenty, moisturise and get fresh air every day - that’s what has helped me. Good luck Sue xx
As ever, the prospect is always worse than the reality. It will be fine & as you say, once the first one is over you'll soon get into the routine of it all.
We've all had days feeling as you describe & it's just fine to feel the way you do.
It will pass.
Maggie good to hear you have some energy back and I hope you have a fabulous holiday - you deserve it after all this.
Green Damsel I agree it would be lovely to go for a swim but advice I think is not - can’t wait to go again - will probably wait for a couple of weeks after end of rads until sure the skin is OK. Walking up a hill is also something I am looking forward to - walking up a slight incline raises my heart rate and makes me a bit breathless - think it might be the drugs rather than rads but again going to keep walking and will discuss with my oncologist when I see him in October.
I had a lovely afternoon in garden sorting out plants. I also became a student again last night for the first time in a long time - signed up for a Photography course at local college - had a great camera for my birthday last year and was going to do this course earlier in year but with chemo didn’t think I was up to it - so I’m quite excited to be learning and feel like it’s a step to getting my life back.
Hope everyone has a good week
Thanks Maggie, I thought as much, skin is fine just now but who knows what may happen if it’s exposed to all those chemicals. I can wait a few more weeks and I’ll ask the nurses in case there is advice on waiting for a period of time after rads are finished, it just seemed to be a nice way to exercise without any impact and the plastic surgeon is ok with it, will just need to be patient.
Hi Green Damsel,
My rads team said no to swimming, until after skin has returned to normal after treatment, I'm guessing the puplic pools use pretty harsh stuff...
There is a separate thread running on swimming during rads, some people have been fine...
How glad am I that I did my walking yesterday, today we have strong winds and rain and it’s probably very “dreich” at the top of Ben Ledi today. It was a good day yesterday and I really enjoyed getting out in the fresh air and some exercise. A bit tired at the end of the day but no worse than any other time I’ve done the same walking route so I don’t think i’m seeing any side effects of rads yet.
Good luck with the gardening Bibi, I hope you’re having much kinder weather than me.
ps anyone gone swimming during rads, just wondering if it’s a no no due to the chemicals?
Good morning everyone,
How is everyone doing?
I am starting to feel very tired, the physiotherapists just reminded me to continue with the arm exercises.
Good morning ladies.
Rads done first thing and thanks to a local holiday, traffic and parking were a breeze. Must admit I was still thinking about the loose ends of Bodyguard on the way in this morning and wondering if that lines up a second series. Thoroughly enjoyed it and glad they kept it to a relatively short series.
Anxious-soul I liked Keeping Faith too although got a bit annoyed at her and some of the very silly things she does whilst supposedly being a fairly intelligent woman.
Sun is out and I am now allowed to drive again so off on a little trip today to the hills for some walking and fresh air.
Hope everyone one had a good weekend and this week goes quickly.
Good morning everyone,
I didn't stay awake to watch the bodyguard, crashed at 8pm, catching up on iplayer - excited.
To distract myself over the weekend I was binge watching Keeping Faith on iplayer, really enjoying this.
I have two appointments today, physiotherapy followed by rads - I am guessing I will be shown different arm exercises to do.
On Friday during rads the staff were playing a Fleetwood Mac CD. I caught myself singing over the weekend to one of their songs....For me, a good moment if you know what I mean.
Maggie, how are you feeling after ringing those bells?
All the the best to those heading into treatment. X
I have a crick in my neck didnt realise how tense I was.
Sending you all best wishes for the week ahead my dear xxx
All nail biting stuff in that final episode - never guessed the bent copper once - and a great twist at the end. I did have to keep going over it and checking I had understood the whole thing about 10 times with hubby to check I had all the threads correct - good stuff - certainly distracted me from the week ahead.
Pearly start tomorrow- good luck to everyone for this week x
I am truly exhausted got it totally wrong, was on the edge of my seat. What an amazing finale
Week 1 complete 🎉5/20
Redness has calmed down , not used the Aloe Vera so don’t know whether it was that 🤷🏻♀️
Looking forward to a restful weekend- enjoy yours everyone xx
I remmeber when I was having mine I was using both E45 and Aloe Vera, my team told me to stop using the aloe vera and instead keep my E45 in the fridge as it work in exactly the same way in cooling the breast xx
Good morning everyone,
Bibi, yes, get those appointments moved if you can. I was advised not to use aloe vera due to the drying effect and just using diprobase cream which seems to be working well at the present time. Not quite knowing what is causing the redness must be a concern, I hope you're taking your temperature if it may be an infection. My fingers and toes are still crossed for you.
Maggie, lovely to hear from you and by the sounds of it you're off to a sunny holiday soon....
DamselGreen, I can understand your concern regarding the sun, I remember desperately wanting to get away for a couple of days with a friend and then the heat wave arrived and I didn't go in the end as I thought I'd be consumed with worry about the sun. After chemo my skin feels like plastic.
How is everyone coping with the sun? I really struggled with the heat waves, I have learnt that chemo can affect the sweat glands and when I am sweating my skin goes prickly.
Wombat woo - you okay?
It is Friday, I have a 2.15pm appointment, a friend is taking me in today and hopefully we will do something nice before or after. Physically I seem to be doing okay at the present time, emotionally I am having a few wobbles.
All the best to those heading in today
Hi everyone- thanks for the kind thoughts - the redness and heat is worse after I have had rads and then it calms down. I spoke to a nurse as well as radiographer today - they said it shouldn’t really be the rads but it could be that my skin is just very sensitive or possibly an infection but we are waiting to see how it goes tonight and maybe see doc tomorrow if it happens again. She also advised me not to use Aloe Vera - she said although it cools it’s not very moisturising and maybe I was having a reaction to something in that. I have been using Aveeno during and since chemo - have only used the Aloe Vera when its been red and hot - seems to be highly recommended by lots of people but am going to give it a miss and see if it helps.
Jealous of your short journeys- we had another epic tonight - half an hour to do a mile at one point tonight 🙄
I have asked them to please give me earlier appointments next week so🤞for me ladies.
PJ’s and fire on for a cosy night now .
Have a good evening xxxx
Well the redness disappeared by the time I went to bed and no sign of it today so maybe just a little over reaction on my part. I am fortunate I only have a 10-15 minute drive to treatment, traffic allowing, but parking is a nightmare so we need to leave plenty time although this week my husband has been dropping me off and I go in while he looks for a space. However I get to drive next week (6 weeks post surgery) so will be driving myself (he’s been lovely but I need my independence).
My appointments are all early morning and today I went into town afterwards, met people from work for lunch, got my eyebrows done for the first time since they grew back and had two haircuts! My regrowth got a trim and tidy up when I went in to see my hairdresser as she’s about to go on mat leave and she wanted to know how I was doing. Then my wig also got a bit of a trim while I picked out a new one, it’s done well but it’s had a lot of wear and I need a new style.
Waiting on the fatigue to kick in but hoping it’s like chemo where it never really materialised until the very end. Desperately want to look at a holiday at the end of the year but wary about too much sun etc, although I’ve been a factor 50 user for years as I do a lot of outdoor activities. Will wait until rads are over before making any decisions.
Hope everyone is coping with all the things that treatment throws at us, amazing how resilient we can be.
Good morning everyone
Bibi and GreenDamsel I do hope your redness settles.
Yesterday, no delays with treatment. I was lucky though as in the morning the hospital had a power cut.
For transport, I relied on the ambulance service which has volunteers who use their own cars to take me. Due to the high winds we took the rural route which made the journey longer. We picked up 2 patients on route. It was a long day for me but I very much appreciate the service.
A friend was waiting for me when I got home and I really appreciated her big warm hug - priceless!
I am getting into a routine of coming home, food, resting and then in bed at a ridiculously early time.
Fatigue is here - the thought of doing a food shop seems too much. Anyone doing food shopping online? Never done it before and I could do with tips/ advice if there is any.
I am drinking loads in the morning but when I get home not so much which is probably why I have a mild headache this morning.
GreenDamsel, I too started chemo in Feb this year although back then I wasn't using this forum.
I am sooo looking forward to the weekend..............
Bibi - we have the Bodyguard to look forward to.
Hi everyone- and hi Green Damsel - how is your redness tonight?
mine was Ok today when I went for treatment but tonight after third lot it is really red and hot - I really hope it settles - just worried how I’ll cope with rest of the sessions.
Wombat I’m really tired but I think it’s the travelling - an hour and half to do 25miles tonight because we hit the commuter traffic - and I’ve got a later appointment tomorrow. Can’t wait for weekend so I can stay home. I’m drinking loads and moisturising and getting walks for fresh air but still tired.
Hope everyone has a good day tomorrow
It is very likely the travelling, but are you taking in enough fluid daily as that will help combat the fatique which can be experienced as a result of the dehydration from the rads treatments xxx
I was on the feb chemo forum and have just started rads today and lo and behold I also have a bright red boob already. Bit of a shock as I was told it would be a few sessions before I would see any reaction. I don’t burn easily in the sun either so this is new for me. Will ask tomorrow if this is a sign of problems as I can’t see how my skin would cope with 3 weeks of this. I’d been moisturising with epaderm after mastectomy/reconstruction so I can’t see that being the issue. Hope your redness settles down soon.
Hi Bibi - oh, I do hope the redness has settled, keeping fingers and toes crossed for you.
I am already looking forward to the weekend when I don't have to go to hospital.....
All the best to everyone heading in for another session.
Hi everyone- radiographer said they wouldn’t expect to see redness after only 1 so got to see what it’s like tomorrow- they are checking if it’s warm ( it is) and swollen - not so much - so will see what they say. Wombat Woo did yours get any worse?
I have had some nausea and also find walking up slight hills and stairs makes me a bit breathless - can’t tell if it’s just my general unfitness, the Letrozole or the Herceptin.
Sleep well all
Hi wombat woo, I have not had any nausea since starting rads.
Just adding that I have noticed my arm stiffening up so keeping up with the exercises is going to be important.
I was quite anxious this morning but settled as the day progressed, no delays with the treatment and they seem to be going quicker, not so much adjusting, not so much asking me to move here and move there.
Bibi - as of yet I have no redness to the skin. I can understand your concern and I hope you get some reassurance/ advice from the staff.
Wombat woo - I am sorry to hear you're in a difficult place, I do hope the counselling works out for you and he or she has the compassionate approach you deserve.
Maggie, I am guessing you may be indulging in some more fizz.
No chocolate here today so I guess it is going to be full fat rice pudding.
Congratulations Maggie - what a great feeling that must be 🥂🛎🛎🍾🎉🎉
Good luck to everyone today - I’ve already been to one hospital this morning for a bone density scan - bit of a rest and then to a different one for rads and then out to the theatre - hope I’ll stay awake 😴
Question about skin reaction - how quickly did you get any reddening of breast - did you get any ?
I am quite surprised that after the first rads I have some redness - obviously will ask this afternoon but am worried about how Im going to get through 20 sessions .
Congratulations Maggie - I can hear those bells!
An easy to read book sounds like the perfect solution to escaping when low in concentration. A very thoughtful gift.
I will expect delays from now on and think of a plan to keep myself distracted - perhaps I will take along an easy to read magazine.
An hour delay today, got through it though.
Bibi, that is a pain regarding meeting rush hour traffic - not what you could do with.
Maggie, you finished?