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September 2018 Radiotherapy

Member

Re: September 2018 Radiotherapy

Ringing a loud bell for you Wombat and shouting Woo Woo! Well done - have a fab weekend xxxx

Member

Re: September 2018 Radiotherapy

Thank you Helena xxx
Very much appreciated 😘
Community Champion

Re: September 2018 Radiotherapy

Wombat Woo

 

Whey h ey congratulations on finishing your rads and an rining the bell for you tonight.

 

What a lovely way to celebrate the end of your active treatment, very special

 

Helena xxx

 

bell-ringing-gif-9.gif

Member

Re: September 2018 Radiotherapy

Thank you Anxious Sole.
I am so very proud of us both
⭐️⭐️⭐️
😘
Member

Re: September 2018 Radiotherapy

That is totally lovely to hear Wombat woo. Smiley Happy

 

 

I cannot figure out how to download a bell. So instead I will say:

Ding Dong

Ding Dong

Ding Dong 

 

CongratulationWombawoo

Member

Re: September 2018 Radiotherapy

Hello ladies - bell well and truly rung today ! A friend surprised me and came too as well as my husband and then the radiographers came too- they all made it special and I had a real sense of moving on... wow!
What an experience..., so the new normal starts now... having my hair done tomorrow and a weekend away

I will be on here a lot to see how you are all doing and to encourage you all to the end of your treatment - not long now Green Damsel

I really appreciate this forum and all your support

We made it anxious sole 👍👍👍

🤗&😘
Member

Re: September 2018 Radiotherapy

Thankyou for your replies about how your team looks after you.  Maybe my area just don’t think it’s needed but it also feels like there is a huge rush to get you out and on to the next person, and so far I’m side effect free apart from a really bright red boob a couple of hours after treatment which goes back to normal by bed time, so don’t want to waste their time by asking about trivial concerns.  Only 3 sessions to go so will keep up with the fluids and moisturiser. 

 

Congrats to all those ringing the bell this week, another leg of this marathon completed. 🤗 

Member

Re: September 2018 Radiotherapy

Good morning everyone,

 

wombat woo - I can hear that bell you rang for me. Thank you. Smiley Happy 

 

I hope you get to ring that bell today. Let us know how your last session goes. Squeezey hugs. Smiley Happy

 

 

 

 

 

 

Member

Re: September 2018 Radiotherapy

Well done Anxious sole what a day you have had. I am sure you will celebrate when you are ready xx

Green Damsel - they ask me how I am and they look at my skin - I went in 1 day and they had a sign up saying skin check today - they always ask how I feel and if there are any issues. They have prescribed hydrocortisone cream and given me cooling gel pads as I have developed a very itchy rash which I guess is a form of prickly heat. - deep joy. They then said it may get worse before it gets better.

I more session on Thursday

I hope your all relaxing this evening and that your having a great holiday Maggie ?!?

🤗 and 😘
Community Champion

Re: September 2018 Radiotherapy

Anxious Soul

 

It is a pleasure, I remember when I finished and the ladies did that for me xxx

Member

Re: September 2018 Radiotherapy

Green Damsel - I am always asked how I’m feeling that day, they don’t ask about my skin - I assume they are looking and monitoring. When I went red the first few sessions they got the rads nurse to see me and she came back the next day to check how it was. I had a rads check after 2 weeks and she said she would see me again before I finish - I’m having 20 sessions.

Member

Re: September 2018 Radiotherapy

Anxious ringing for you - well done for getting through - you will celebrate when you have had a rest xxx Goo luck xxx

Member

Re: September 2018 Radiotherapy

Thank you ladybowler, that means a lot to me. Smiley Happy

Community Champion

Re: September 2018 Radiotherapy

Anxious Soul

 

Woo hoo thats it done and I am rining the bell loudly for you.

 

Helena xxx

 

bell-ringing-gif-9.gif

Member

Re: September 2018 Radiotherapy

Hi there GreenDamsel,

 

Yes, I have rang those bells, around 3.30pm, no apparent emotions at present possibly because I am very tired. Smiley Happy 

 

On arrival the nurses always asked how I was feeling and asked about my skin, whether it was feeling itchy, they would also have a look at my skin and reassure me that everything was looking okay. Every day they would ask what cream I was using and how often I was applying the cream. And yes they would ask what plans I had for the rest of the day. 

 

The NHS radiotherapy staff have all been totally brilliant. 

 

Maggie48, wow, hola! It is lovely to hear from you across the water. 

Member

Re: September 2018 Radiotherapy

Hello,

 

if i”ve got it right you ring that bell today Anxious-Soul, well done on completing what can feel like a very long journey.

 

I finish next Tuesday and can’t wait to be appointment free and not having my day revolve around whichever appointment slot I have that day.

 

 

One question for you all, have you been asked about side effects at all during treatment?  While the radiographer will say hello and what are my plans for the day etc. no one has actually ever asked how I am feeling, how my skin is etc.  Apparently I get a treatment review with a nurse on the last day of treatment (no doubt to warn me it gets a lot worse 2 weeks after treatment stops).

 Maybe they are just surreptitiously eyeing up my skin each day while they check the measurements and can see the skin all looks ok and because I usually have some activity planned they work out that I can”t be feeling tired etc but just very aware no one has ever asked me directly.  Just wondered what everyone else had experienced ?

Member

Re: September 2018 Radiotherapy

Hola!!
Ring thos eves Annxious-Soul, what a lovely post, so glad you’re seeing some positives.

🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔
Member

Re: September 2018 Radiotherapy

Thank you Thistledown. Smiley Happy

Community Champion

Re: September 2018 Radiotherapy

Anxious Soul

 

I know in my particular case I have an appointment with my onoclogist annually for 5 years and a mammogram yearly as well, if it is like this year the mammo will be about 4 weeks before my oncologist apt.

 

I think everyone is different, I find if I am having an anxious time, and I do still have moments even two years after my diagnosis, I immerse myself in my cross stitch which seems to work.  Honestly it does get easier, I would say now 99% of the time I do not even think about having had bc, it is certainly not the first or last thing I think of now.  Have you thought about having some counselling which your bcn should be able to organise for you.  It gives you a safe comfortable space in which to talk to someone about how to you are feeling.

 

I also found that I set myself small milestones, like starting to drive again, building up to do my normal working hours, getting back into my lawn green bowls, gardening, it was great to tick each one off as I achieved it.  I didnt look to far ahead and was realistic in what I wanted to achieve.

 

Also never fear to come on here and talk to us when you are feeling anxious, the wonderful ladies on this forum will be there to help and support you in whichever way you can

 

Sending you hugs

 

Helena xxx

Member

Re: September 2018 Radiotherapy

Yes ladybowler it will be strange, I see the chemotherapy consultant on Monday but after that I don't appear to have many appointments.

 

From then on, I am going to have to learn to reassure myself. Do you have any thought regarding this? Sometimes when my mind is racing towards worst case scenarios I concentrate on my breathing and this helps me.  I think reassuring myself may be slightly different to being positive. I am trying to figure out what approach would work best for me and lead me to feel some reassurance rather than getting relief externally, that is from hearing the words from others. 

 

Wombat woo - it is good to know you will be popping next door too.  I will await others to finish before I go next door.  Smiley Happy

 

 

 

 

 

 

Member

Re: September 2018 Radiotherapy

Hi Anxious Soul

 

Just here as one of the ‘recent Rads finishers’ to say congrats, hope you ring that bell today loud and clear... - and as Ladybowler said, keep up with the fluid, exercising, and moisturising..

 

It definitely peaked for me at about 14 days, fatigue hit occasionally too, but nothing major..it’ll all be fine for you. Emotionally, I found it a bit of a struggle, but get yourselves over to the After the Bell thread, advice and support is invaluable at this time, (as it’s been right the way through),  so keep together, and look after each other..

 

Take care 

 

Thistle 

 

Community Champion

Re: September 2018 Radiotherapy

Anxious Soul

 

What a lovely positive post which I know will reassure ladies who are about to start rads and are anxious, thank you for that, it is just what they need

 

Yes it is going to be strange moving forward after today because you have spent so long "in the system" but remember you do have your breast care team there to support you and us lovely lot Smiley Happy.  I remember the first time I drove after my op I just went round the block and back, yes it was a bit scary but do you know what within days I was not even thinking about it. 

 

Remember to to keep up your regime for the next couple of weeks, especially the fluid intake as that will help with any fatigue you might experience. 

 

Sending you hugs

 

Helena xxx

 

 

 

 

Member

Re: September 2018 Radiotherapy

Hi anxious I am now one day behind you as I had a day of yesterday as the machine was being serviced ! I will ring it loud and clear tomorrow.
I will also go onto that thread... see you there xxx
Member

Re: September 2018 Radiotherapy

Wombat woo - I hear you regarding the new normal. I have noticed some positive aspects within my new normal, for example when I am feeling physically rubbish I push myself so I can spend time with the people I care about. 

 

Wombat woo - you are finishing today too? I think we started together. Let me know how you are doing. I read some discussion in the thread named a few weeks after ringing the bell that the side effects from rads peak 10 to 14 days after treatment.

 

I am planning to continue to use the forum and later maybe use the thread named a few weeks after ringing the bell if this is active. 

 

Ring that bell Wombat woo. x 

 

 

 

 

 

 

Member

Re: September 2018 Radiotherapy

Go ring that bell Anxious sole. ! This is the beginning of your New Normal. I believe we will never be the people we were before our diagnosis - too much has happened to us and we understand ourselves a little differently now.
But celebrate the end of this chapter and look forward to the next - !!! Xxxxx
Member

Re: September 2018 Radiotherapy

🛎🎉 hope your final day goes well - ring that bell really loud - it may take a while to adjust but you will find yourself again Anxious. Thank you for all your support xxxx

Member

Re: September 2018 Radiotherapy

Good morning everyone,

 

Bibi - it is so hard when experiencing side effects and we are never too sure which treatment is the cause. Tummy troubles is never nice. Today,  I do hope very much you feel a little better. Please let me know how you get on. 

 

 

It is my last session. For me, the hospital transport has worked really well. The pattern has been travelling with two other patients who live near to me and who are going through rads and we have got to know each which has been comforting.  And to add the drivers have been supportive throughout.

 

Yesterday I noticed there is a bell near to the reception area. I am really not sure how I am going to feel. In some ways I feel the biggest tests are to come, that is: letting go, learning to reassure myself, learning to trust my body again, gaining confidence in driving, gaining physically and emotionally strength and the list goes on and on but I guess ultimately I would like to start feeling more like me, the person I know. 

 

For anyone feeling anxious about the radiotherapy, for me, so far this has been far easier emotionally and physically compared to chemo and surgery. The bcn said this was the easy part but I was thinking about a marathon, how the running gets harder near the end. I may get hit by more fatigue after I finish but I am ready and waiting and hopefully I will find the strength to get through the other side. Smiley Happy

 

 

 

 

Member

Re: September 2018 Radiotherapy

Anxious I thank god for whoever discovered Herceptin! Yes definitely appreciate that it is giving me a better chance of survival and reduces chances of reoccurrence.

But it makes me tired - although at the moment I’m still not sure which is the biggest contributor to tiredness, rads, Herceptin or Letrozole- think they all do.

Im lucky I don’t seem to be getting of the aching bones and muscles that some people seem to suffer from it so 🤞that continuesHowever I do seem to be suffering a bit in the nausea and upset bowels and I’m wondering if it’s the Herceptin- I thought I might not be able to lie on the bed for rads today as I felt so bad - they were very kind to me and I did manage but have been on sofa all afternoon feeling terrible and frequent bathroom visits. Didn’t help they were running about an hour late today either- hoping I will feel better tomorrow- have started to pick up in last half hour. 

Member

Re: September 2018 Radiotherapy

And Bibi, what are your thoughts and feelings about herceptin?  Although they give me a runny nose and I think contribute to my tiredness I find having them reassuring, the drug makes me feel safer. Smiley Happy

 

How are you doing Sue62? 

Member

Re: September 2018 Radiotherapy

Good morning everyone,

 

I finished watching Keeping Faith and so currently binge watching Killing Eve to help with distracting myself. 

 

Bibi I think the herceptin contributes to my tiredness too. 

 

Wombat Woo - how are you feeling about finishing? 

 

13/15

 

Member

Re: September 2018 Radiotherapy

Happy Birthday Maggie - what a great way to celebrate - have a fantastic holiday x 

Anxious yes I do think the Herceptin contributes to my tiredness - especially the first few few days after it - also affects my digestive system .

I also find the reassuring words from the radiologists make me feel secure.

Good luck to you both Wombat and Anxious for your last week - you will be soon ringing that bell xxx

Member

Re: September 2018 Radiotherapy

Have a Happy Birthday Maggie and a great holiday. X
Community Champion

Re: September 2018 Radiotherapy

Maggie

 

Happy birthday for tomorrow and have a wonderful holiday xx

Member

Re: September 2018 Radiotherapy

Oh Maggie happy birthday and Bon voyage xxx

Anxious you finish a day before me... I can hear that bell calling !

I have a sense of prickly heat - very urgent need to scratch!! The radiographers were great - they have given me some acticool to use to ease the itch 😳

Here’s to great week lovely ladies 🤗😘
Member

Re: September 2018 Radiotherapy

Oh Maggie so soon, a very Happy Birthday for tomorrow. I hope your holiday in Spain is everything you wish for. Smiley Happy

Spoiler
 
Member

Re: September 2018 Radiotherapy

Anxious-soul -I’d say I’m pretty self sufficient and ressiant, and I found the daily comments of the radiographers very reassuring and emotionally helpful. It’s such an alien environment it’s hard (& unnecessary) to rely on your own resources. I’ve also found this thread hugely helpful - thank you ladies 🤗

I was tearful, tired and elated all at the same time after the last treatment. Took me a few days but I soon got used to having no hospital- it may be easier to walk away if you’ve not had chemo?

Well done Bibi, terrific fundraiser!!

We’re sailing to Spain first thing tomorrow, which is also my birthday, so a double celebration 🎉

Maggie x
Member

Re: September 2018 Radiotherapy

Hi Bibi,

 

Yes I am nearly done. Like you I am on herceptin and this Thursday I will have completed 12 of 18. Bibi, do you think the herceptin contributes to your tiredness?

 

This Wednesday I will have finished rads and I think I may feel a little lost. I think this is because I struggle to reassure myself and most days the nurses will say something which gives me the reassurance I can't give myself.

 

The reassurance can include words like you're doing really well or you're doing everything right. Does anyone else feel emotionally better when they get this type of reassurance? 

Member

Re: September 2018 Radiotherapy

Hi everyone - I had a great weekend - our coffee afternoon was a great success and we raised almost £400 so are very happy.

I am tired though and it’s only Monday! 

I had a rads review with a nurse after treatment on Friday and it was good to chat with someone and be able to ask questions. My skin was fine but over the weekend I have started cooking and it’s quite pink in parts - keeping up with fluids and moisturising so hoping it settles down. 

Anxious you are nearly done !  Have you any more treatment ahead? Are you nervous about treatment finishing? I think it will be weird to be ‘let go’ after treatment. I still have Herceptin injections every 3 weeks for a while yet so will still feel attached - will be seeing oncologist every 3 months till that finishes as well. 

Maggie enjoy your sun holiday and have a good relax. 

Have a good week everyone xx

Member

Re: September 2018 Radiotherapy

Maggie - good to hear about your energy levels rising. When do you head to Spain?

 

GreenDamsel it sounds like you're tolerating the treatment quite we'll.

 

My skin is doing well, no sore areas, a little red and prickly but otherwise okay,

 

I was with friends on Sunday which was lovely, we visited our local canals and grabbed some fresh air, the ducks were out and about. Emotionally, when I am alone I feel like I could do with a good cry but there are no tears at the present time.  

 

12/15

 

Member

Re: September 2018 Radiotherapy

Good luck to everyone this week - hope the weekends been fun & restful. You’re so nearly there....

Two weeks after finishing and my energy levels are back to normal, such a relief, and just in time for my trip to Spain. I’m still very pink and have one very patch, where my bra sits, but it’s not sore.

Still think of you guys going through it though.
Sending healing vibes
Maggie x
Member

Re: September 2018 Radiotherapy

Morning Anxious-Soul.

I had a good weekend, no obvious changes in the skin or dip in energy yet but that’s only session 9/15 done so still a little way to go. I wasn’t planning on moving threads, unless the September one becomes ‘empty’. 

 

Hope you had a good couple of days as well and aren’t suffering from side effects.

Member

Re: September 2018 Radiotherapy

Good morning, how is everyone?

 

Are folks going to move over to the October radiotherapy? Smiley Happy

Member

Re: September 2018 Radiotherapy

Good morning everyone,

 

Sue - I do hope the process gets a little easier for you, I have always found the staff very understanding when I have told them about my fears and anxieties. One member of staff simply said 'we will look after you' and that was enough to comfort me.

 

Swimmer - I am sorry to hear about your loss, this forum is a good place to let it all out and people here will listen and understand. 

 

Maggie, Bibi and Wombat woo - I am so pleased it is nearly the weekend.

 

This week has flown by, I am feeling a little emotionally numb at the present time and I wonder whether I may burst somehow when I finish. Emotions can be so unexpected at times, they are never planned and can come out of nowhere. Bibi, you have a tough day, I hope you reward yourself over the weekend. 

 

11/15

Member

Re: September 2018 Radiotherapy

Swimmer, no wonder you’re tired, there’s never a good time to be bereaved but this must be horrible for you, sending hugs x

Wombat, Anxious & Bibi well done, halfway or even further is a great feeling isn’t it.

Sue, good idea to ask your daughter along, and don’t be shy about telling the rads team you’re wobbly, they’re happy to help. I had sessions where they seemed to take forever to get the ‘numbers aligned’

10 days after finishing & I’m still moisturising and drinking lots & have a lovely red patch to show for it - but I’m not sore.

It’s Friday ladies - last one for this week!! Thinking of you xx
Member

Re: September 2018 Radiotherapy

Sue - well done for getting through that first sesssion- I felt something similar on my first session- it was like a fresh realisation that it was really happening to me just like when I was first diagnosed. I am on my halfway point tomorrow 10/20 and it does get easier - in fact it’s  quite boring after a while. Good luck with the rest of your sessions.

Swimmer you are having a tough time - sorry to hear about your dad that is a hard loss to cope with as well as getting to rads everyday- look after yourself and let your family look after you. 

Only one more day this week - looking forward to a lie in on Saturday- got 3 appointments at 2 different hospitals tomorrow 😲 so wish me luck on the traffic.

Community Champion

Re: September 2018 Radiotherapy

Sue

 

Well done on getting through your first session, it does get easier and from here on in the sessions are shorter which will help.  It is a bit weird at first but just think this is the last part of your active treatment and you will soon be at your last session

 

Sounds lovely to have your daughter and grandson with you as a distraction.

 

Sending you hugs

 

Helena xxx

Community Champion

Re: September 2018 Radiotherapy

swimmer

 

Just wanted to send you hugs, undergoing rads is hard enough but you are also dealing with the passing of your dad, it is not surprising at all that you are feeliing anxious, totally understandable.

 

Please try and give yourself time for you, let the others do stuff for you, the effects of treatment do build up and at some point you have to let go, this is a lovely comfortable place where you can do that with ladies who understand and get you.  I remember bursting into tears one day as I walked into the room, I just wanted it all to stop, my lovely rads nurse gave me a hug and a box of tissues, had a cry and then got on with it.  Be honest with them they will totally understand and do everything they can to help you.

 

Helena xxx

Member

Re: September 2018 Radiotherapy

Hi Everyone,

I am on 8/15. Not too many side effects  - I moisturise with E45 about three times a day! I had a therapeutic reduction and I think some of the scarring is looking redder and I think my breast just feels a bit different. I felt I was coping quite well - I am a bit claustrophobic and I don't like the idea of being trapped on the table. Today however I felt a real sense of panic which I just about got under control, thinking about the measurements having to start again and being there even longer. Has anyone else had this feeling and what did you do? Sadly my father died last week, so I am not getting much rest - having to travel a 200 mile round trip to see my mother at the weekend following my treatment. I am tired and I am sure it is cumulative - months of treatment - I had a haematoma after my operation. I am struggling to prioritise my own needs, as of course I look OK and everyone else in the family is tired too. This is despite having a really supportive husband and lots of lovely friends. I think I just feel quite low not suprisingly.

 

Just wanted to say something about swimming - to me it is a life saver. I have been once to the pool this week and once in the sea - chilly but rejuvenating. When the radiographers at my centre asked me this week about my shoulder movements they were pleased to hear I swam a lot and said it was good. I think the only contraindications I have picked up is if your skin was broken.

 

Thanks for listening - just feeling very anxious tonight.

Member

Re: September 2018 Radiotherapy

First session done this afternoon I found myself feeling really emotional it was hard keeping everything together, I felt so vulnerable on the table but I’m sure this will get easier once the first few are done.
This week has been my hardest week so far and it’s taken me by surprise I wasn’t expecting to feel like this.
My daughter and my 8 month old grandson are coming with me tomorrow so I’m hoping he will be a lovely distraction from it all.
1/15
Member

Re: September 2018 Radiotherapy

10/15 anxious sole - aren’t we doing well ! I don’t actually finish until next Thursday 4th as I have a day off on Tuesday

Hope all you lovely ladies are doing well and enjoyed the sunshine today. I went for a walk in a deer park it was beautiful

🤗😘