Member
Posts: 150
Registered: ‎27-08-2018

Re: September 2018 Radiotherapy

Hi Bibi, 

 

I would say be carefully stopping the arm exercises as I think the stiffness can creep up all of a sudden. Yes, keep up with the moisturising. I think a visit to the GP to ask for some cortisol cream may be in order for me if this doesn't calm down. 

 

Yes, definitely pace yourself, I had a strange turn the other day, I just did too much. Smiley Happy

 

 

Member
Posts: 148
Registered: ‎22-01-2018

Re: September 2018 Radiotherapy

What a beautiful morning - been enjoying my garden - before this I would  have carried on all day but I am realising I need to pace myself otherwise I am too tired for days afterwards. So that will also be my plan for decorating Green Damsel 👍 small sessions and enjoy them.

I use my Fitbit to track my distance or even the phone using Map my walk - I like the Fitbit to track steps as I don’t have to carry phone around the house/garden then. Walked about 6 miles in Dovedale last week and that was just about right at the moment. Going back out with my walking buddies tomorrow for the first time since before surgery in July - but will probably be a short stroll and lot of cake and coffee and chat to catch up- looking forward to it.

I must admit I forget to do the exercises now as I feel I have full movement back with only very occasional twinges. 

Red patch on collarbone looking a bit iffy and skin breaking down a bit - is it best to still keep using Aveeno do you think?

Enjoy the sun while it’s here everyone xx

Member
Posts: 150
Registered: ‎27-08-2018

Re: September 2018 Radiotherapy

Hi everyone,

 

ladybowler - I was thinking the same, it is interesting that we get different advice. I have been reading about how walking with poles helps with the shoulder, arm and upper body. There has been some research which has proven they help after breast surgery. 

 

GreenDamsel, is that fly fishing that you do? Smiley Happy

 

I am reading up on the map my walk ap, this sounds a good option. Historically, I think I have measured my walks with time and not distance. And then my oncologist started asking me how far can I walk. 

Community Champion
Posts: 9,659
Registered: ‎16-11-2016

Re: September 2018 Radiotherapy

Anxious Soul

 

Its funny how each hospital is different, I was advised to try and do them 3 times a day but certainly twice during rads.  I carried on doing them after rads but to be honest not every day, really just when I felt everything was stiffening up.  I was lucky because in the April I started my bowls season again so that gave my arm a lot of exercise, albeit was really uncomfortable at first but it did get better quickly.

 

Helena xxx

Member
Posts: 29
Registered: ‎12-03-2018

Re: September 2018 Radiotherapy

Morning,

 

Got the ok to pretty much do anything I want as far as exercise is concerned so planning a fishing trip for the weekend. I’ve been desperate to get back in the river and I think using the shoulder and arm muscles will be a good thing too.  

Re mileage i usually plan it on a old fashioned map/guide book, especially if it’s new territory, or using an online app ‘map my walk’ and then my phone or apple Watch keeps track while I’m walking.  The app also has lots of routes others have done so you can reuse them instead of creating your own. There are many route planners out there so it’s just what suits, and if it’s forestry commission land you often find there are good waymarked routes available with pretty good distance  and elevation guides. 

 

Bibi decorating sounds like a plan for a real fresh start, just don’t over do it! 

 

No one mentioned reducing exercises during rads so I’m still doing them 4 times a day but they only take a few minutes, as there is no stiffness it feels a bit silly to do them but I don’t mind, might be a good benchmark to notice any changes if things start to seize up.  I was warned chording can happen about 8-10 weeks post op so will keep at it.  

 

Member
Posts: 150
Registered: ‎27-08-2018

Re: September 2018 Radiotherapy

[ Edited ]
  • Good morning everyone,

 

Bibi - a time to recover now although like me you have the herceptin to complete. Having a motorhome must be exciting. I enjoy camping, getting back to nature although I've done none this year due to the treatment. I struggled with the heat too. 

 

DamselGreen -  seven miles seems a good healthy length to me. I am curious, do you calculate your miles the old fashion way or with one of the new gadgets? I am just pondering whether to buy myself a gadget although I would like one which is very straight forward. 

 

I think my shoulder is stiffening up a little so I am going to increase my exercises. During rads I was advised to do the exercises only once a day rather than 3 times a day. Did everyone get similar advice? Smiley Happy

 

 

Member
Posts: 148
Registered: ‎22-01-2018

Re: September 2018 Radiotherapy

Glad to hear you are all getting energy back.

Today waking up felt great knowing there was no more rads - had a nice day mooching around the Motorhome Show at NEC for a few hours - didn’t buy a new one though - mad prices - but always fun having a look.

Decided I’m going to decorate next week and have a good clear out - fresh start coming up! 

I do have a bit of a red patch developing near my collarbone ☹️ So am moisturising madly but trying not to rub. 

Take care xxx

Member
Posts: 29
Registered: ‎12-03-2018

Re: September 2018 Radiotherapy

[ Edited ]

Morning all, 

 

thats a week since my last zapping and all good so far,  energy levels are good, no naps needed and I think not having the daily appointments is also having a benefit, I think there’s something about not feeling like a patient which helps get back to normal.  Of course this could all go horribly in the next few days so making the most of it just now.

 

The hills were great, didn’t do much more than 7 miles in any one route and kept to fairly gentle slopes and good paths underfoot.  I usually use a pole for a bit of stability on steeper declines, I’m ok going up but coming down I’m just not as confident especially if it’s a bit wet and muddy. 

 

I see my plastic surgeon today as that’s 8 weeks post op but I think it’s going to be a quick conversation, the only issue I’m having is getting a bra which doesn’t leave red marks under the reconstructed boob, I’ve been measured and I’m wearing the right size bra, it’s not uncomfortable but that side always has a red indent as if it’s too tight.   Perhaps it’s still swollen or just the shape not suiting the underwear but the other side is fine. Small issue in the big scheme of things but I may as well ask.

 

Bibi I hope you are enjoying the lack of the daily trip to radiotherapy and can now feel you are really in the road to recovery.

Member
Posts: 150
Registered: ‎27-08-2018

Re: September 2018 Radiotherapy

Good morning everyone,

 

Bibi - how are you feeling today, with today being very different?

 

DamselGreen - how was your hill walking? Did you do many miles?

 

 

My diprobase cream is now in the fridge as I have come out in a mild rash and the coldness is soothing against my skin. Smiley Happy

 

 

 

 

Member
Posts: 66
Registered: ‎09-05-2018

Re: September 2018 Radiotherapy

4 weeks tonight since I finished and my energy levels are back to normal & my skin is still tanned but no longer red or dry. I lost a layer of dark skin, like a tan pealing, and it’s felt ‘normal’ ever since. No adverse effects from returning to deodorant, perfume or swimming I’m pleased to say.

Helena is right, keeping up fluids and moisturising really helps I think.

Enjoy tonight Bibi, it’s a date to celebrate 🎉
Maggie x
Member
Posts: 150
Registered: ‎27-08-2018

Re: September 2018 Radiotherapy

Hi Bibi, I am now 11 days on, my skin is rather red, I have periods of just feeling whacked and then energy okay, highs and lows although very little sustained energy. My appetite is good though, rads and herceptin are not affecting this so I am hopeful that I will put on the 1.5 stones I lost during chemo. Smiley Happy 

Member
Posts: 148
Registered: ‎22-01-2018

Re: September 2018 Radiotherapy

Thank you all - will be around for a while - hoping I don’t get any adverse reaction and start to get energy back- how are you all coping after rads?

Community Champion
Posts: 9,659
Registered: ‎16-11-2016

Re: September 2018 Radiotherapy

Bibi

 

Whey hey congratulations on finishing your rads and I am ringing the bell for you tonight.  Just think no more going back and forward, what will you do with your time!! Smiley Happy Smiley Happy

 

Make sure you continue your regime for the next couple of weeks especially teh water to help with fatigue.

 

Helena xxx

 

bell-ringing-gif-9.gif

Member
Posts: 66
Registered: ‎09-05-2018

Re: September 2018 Radiotherapy

Well done Bibi, ringing bells for you 🔔🔔🔔🔔
Member
Posts: 29
Registered: ‎12-03-2018

Re: September 2018 Radiotherapy

so Happy for you, bells ringing here for you,   

 

🛎 🛎🛎🛎🛎

Member
Posts: 150
Registered: ‎27-08-2018

Re: September 2018 Radiotherapy

Congratulations Bibi, you are through. I am really pleased, the journey has been long and hard and now you will not be tied to a hospital. You have many hospital free days ahead. X

 

🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔🔔

Member
Posts: 148
Registered: ‎22-01-2018

Re: September 2018 Radiotherapy

Can’t believe it’s finally over - I know there is a way to go yet but tonight am enjoying the thought of not spending 3 hours a day on treatment 😊😊😊😊

Member
Posts: 148
Registered: ‎22-01-2018

Re: September 2018 Radiotherapy

4C45F7CB-C3D8-4343-B405-05AA8018C9BE.jpeg

Member
Posts: 150
Registered: ‎27-08-2018

Re: September 2018 Radiotherapy

Bibi - today, your last session. I hope you stay on schedule. x

Member
Posts: 148
Registered: ‎22-01-2018

Re: September 2018 Radiotherapy

Thank you Wombat - have a great holiday 🌞🍨🍩🍮🍰🍦🥂🍾