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September 2018 Radiotherapy

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Re: September 2018 Radiotherapy

Thanks Maggie - followed your example and had chocolate after treatment. Dropped niece off, went to beautiful Botanical Gardens had a walk and lunch before treatment. It was fine - staff all efficient but caring checking I understood everything and if I had any questions before starting. It’s just a weird feeling lying there listening to machine do it's stuff and thinking about whether there is anything left in there for it to zap - so I did some visualisation and took my mind out of the room. Biggest pain now is they have given me appointments between 4 and 5.30 for rest of week which means will probably hit all the commuter traffic 😏

My other biggest pain is the hot flushes which have kicked in with the Letrozole - been through menopause once and hating that feeling again. 

Hope everyone else is getting through OK 

Maggie must be great to get to end 🎉🎉

Bibi

1/20

Member

Re: September 2018 Radiotherapy

Have fun dropping your niece off Bibi. And good luck to everyone having or starting treatment today.

Wombat, I treated myself to a chocolate bar most days, 🍫 ,

Looking forward to ringing my virtual bells tonight & will check in to see how your all doing - this forums been a real support to me for the last 3 weeks x
Member

Re: September 2018 Radiotherapy

Hi Bibi 

 

What lovely treats. Smiley Happy

 

i hope you have a good distracting time with your niece. 

 

The latest episode of Bodyguard is definitely in order.......Smiley Happy

 

Member

Re: September 2018 Radiotherapy

Morning Anxious Soul- yes catch up on. Bodyguard- so good and will distract you.

my sister sent me a lovely sleep spray for my pillow and some lavender self heating eye masks - they helped a lot through chemo when I couldn’t settle. 

My distraction this morning is taking our niece to uni as my sister lives abroad - final year you can imagine the amount of stuff lol - we have to drive past the uni on way to hospital so not out of our way.

Have a good day xxx

Member

Re: September 2018 Radiotherapy

Good morning everyone,

 

I am feeling a little anxious this morning, I will have to try and keep busy and catch up on Bodyguard.

 

Bibi and Wombat woo - we can do this. Smiley Happy

 

Maggie - after your treatment ends I do hope you have some lovely times walking your dog and whilst outside get to kick those autumn leaves. And I hope you can continue to pop by here. Smiley Happy

 

Whilst going through treatment I had many gifts from family and friends and the two gifts that I really appreciated were a bunch of daffodils mixed with yellow tulips and a bag of jelly beans. As I lie zonked in bed going through chemo both these gifts stimulated my senses. 

 

Anyone else have have any gifts that they really appreciated whilst going through treatment? Smiley Happy

Member

Re: September 2018 Radiotherapy

Thanks for the kind thoughts Maggie and Anxious Soul - am feeling a bit anxious but not too bad - Bodyguard tonight and Vanity Fair - been watching River on Netflix which I can recommend - lots of distractions on Netflix - Orange is the New Black got me through chemo. 

Yey for you finishing tomorrow Maggie 🛎🛎 - hope you recover over next few weeks well - have you any more treatment or are you finished? 

Member

Re: September 2018 Radiotherapy

Oh your journey sounds lovely - we had the innner ring road to traverse!!

I’ve missed walking with my dog more than anything whilst I’ve been ‘under treatment’ and I’m really looking forward to getting back up to speed - my legs feel heavy, a commmon side effect of Tamoxifen apparently, but it’s improving (or I’m adapting!)

What’s good to know is the fatigue does end. Mx
Member

Re: September 2018 Radiotherapy

Hey Maggie. Ring that virtual bell long and loud tomorrow.., and pop that fizz... fabulous way to celebrate 🛎🍾
First 2 done and ready for the new routine all this week.., I seem to get more tired but doing well.. just craving chocolate but I guess this could also be the Anastrozole

Here’s to a lovely week for us all xxxx
Member

Re: September 2018 Radiotherapy

Hi Maggie, I have been mostly resting, I had my herceptin injection on Thursday and I think that makes me tired. My appetite is good and since I lost weight whilst on chemo I am pleased with that.

 

My friend is taking me tomorrow so hopefully we will do something nice afterwards. 

 

I am am an active person, love walking, love being in the countryside and accepting the fatigue has been the hardest thing for me, in fact the thought of fatigue frightens me because I find myself stuck indoors, my least favourite place.

 

Luckily, the journey tomorrow is lovely and I get to see some lush countryside. Smiley Happy

Member

Re: September 2018 Radiotherapy

I found I was progressively more tired as the week went on and the weekend really recharged me, it’s been the same this weekend.

How have you and Wombat found your first weekend?
Member

Re: September 2018 Radiotherapy

That all sounds lovely. And how is your tiredness? I seem to be tired straight afterwards and then I feel I recharge. 

Member

Re: September 2018 Radiotherapy

Me too, my hospital has no bell so I’ll be ringing some virtual bells on here & hubby has put some bubbles in the fridge for tomorrow- Fizz on a Monday, must be good news!!

I have finally come out with a faint red square, which is strangely reassuring- like the treatments working... odd our minds work...

Maggie x
Member

Re: September 2018 Radiotherapy

Maggie I am pleased you're feeling this way. Smiley Happy  I hope lady bowler has her bell ready. Smiley Happy

Member

Re: September 2018 Radiotherapy

Hi Anxious Soul, thanks for asking. I’m actually really excited that it’s nearly over - had no idea how I’d feel but it’s a huge relief! X
Member

Re: September 2018 Radiotherapy

Hi Maggie, how are you feeling about tomorrow, this being your last session? Smiley Happy

Member

Re: September 2018 Radiotherapy

And Bibi -  I have not been told not to shower before treatment Smiley Happy

 

Maggie - binge watching has definitely helped me through treatment and of course chocolate. Smiley Happy

Member

Re: September 2018 Radiotherapy

 Hi Bibi,

 

sending you hugs to help.

 

For me, the staff said it was okay to moisturise before treatment, they have said diprobase cream or E45 cream okay but they were not okay with me using aloe Vera. 

 

I hope the staff are gentle and friendly with you as I think this always helps. Smiley Happy

Member

Re: September 2018 Radiotherapy

Hi Bibi,
Hope you’ve got something lovely to distract you today. (I binge watched Misummer Murders, but we’re all different!)

I’ve showered before treatment & moisturised afterwards, but my instructions don’t say either way.

In my first treatment the radiographer took time to talk to me before the 1st rads, so you should get the opportunity to double check what they’d prefer you to do.

I can’t imagine that moisturising before would affect treatment, or they’d make sure we knew not too.

Good luck tomorrow
Maggie x
Member

Re: September 2018 Radiotherapy

My rads were always early evening but i never put any moisturiser on after mid day. I think i remember being told not to use any barrier type creams up to 3 hours before treatment as it might affect the rads getting though. I also used to wipe the area with a wetwipe before i went in just because!!!
Member

Re: September 2018 Radiotherapy

Morning Anxious Soul - got butterflies and am getting a bit nervous tbh - feels like end of summer - start of a new term. 

A question - do I not have to moisturise in morning before treatment ? know I have to moisturise loads but can’t remember and can’t find anything to say whether you should just shower before rads but not moisturise.

Thanks

Member

Re: September 2018 Radiotherapy

Good morning everyone,

 

Bibi - I hope you're feeling okay about tomorrow.Smiley Happy

 

 

Member

Re: September 2018 Radiotherapy

Klonodu I hope your brggininh to feel better an that the anti biotics are working wonders 🤗
Member

Re: September 2018 Radiotherapy

Klondu, I hope the antibiotics kick in quickly and you’re soon feeling better... not nice to have an infection on top of everything else. Maggie x
Member

Re: September 2018 Radiotherapy

Hope the antibiotics do the trick for you Klonodu, I think I’ve read elsewhere on here that they are pretty effective, so fingers well crossed ... best of luck ! 🍀
Xx
Member

Re: September 2018 Radiotherapy

Thank you Thissledown. I rang up for some advice and was asked to go in to see my radiotherapy consultant. I was given antibiotics as he's worried i may have an infection in my lymph node scar. I had to have 23 sessions because im on immune suppressant tablets for a kidney disorder, i was fine until a few days after the last session. I have the pads, thank you, they are a great help, im hoping these anti biotics do the trick, if no change i have to ring them on wednesday....fingers crossed x
Highlighted
Member

Re: September 2018 Radiotherapy

Woohoooo, chocolate heaven!

 

And look at you Maggie, you're nearly there.....Smiley Happy

 

2/15 And can't hear any bells.......

 

 

 

 

 

Member

Re: September 2018 Radiotherapy

Wombat Woo & Anxious Sole - chocolate hee too - maybe it’s a Friday thing?!

Have a lovely weekend everyone
Maggie
14/15
Member

Re: September 2018 Radiotherapy

Strangely I hit the chocolate after this one.... 🤣🤣😳

Have a lovely weekend everyone xxx

2/15
Member

Re: September 2018 Radiotherapy

Hello everyone,

 

well, another one down.

 

zzzz and I need chocolate......Smiley Happy

 

2/15 

Member

Re: September 2018 Radiotherapy

Thanks for the info Yorkshire Tyke, I am drinking heaps on ginger tea and using diprobase cream. 

Member

Re: September 2018 Radiotherapy

Hi Ladies,

 

I've just finished my radiotheraphy sessions at Leeds (15 in total) last week. Or as one of my friend put it zapping sessions (not that I minded).... the jokes on him now though as he has to go for some light theraphy session so it will soon be his turn to get zapped!

 

I drove from home to the hospital each day (1 hour each way) and didn't really suffer from fatigue. I went to work part time (because of the timing of the appointments) and to my normal gym classes. My gym schedule was a standing joke with the radiographers! I'm 52, so no spring chicken but very fit and healthy otherwise.

 

I recommend you drink LOTS of water. I drank about 2 Litres per day plus tea and coffee and it appears to have helped.

 

Skin wise. Slap on the moisturiser 2 or 3 time a day and make sure you go right up to your collar bone. Aveeno (which they recommend) is on offer in Waitrose by the way.

 

I don't have a big chest (B cup) so I guess that impacts the dose....

 

So 6 days on and all I have to show for my treatment is a discoloured armpit (it looks like I have a tan.....) and some mild skin redness and irritation.

 

As for getting off the bed in a controlled manner, I was more commando roll than dignified!

 

Have a great weekend

 

 

Member

Re: September 2018 Radiotherapy

Klonodu,

Some ladies got Medihoney cream prescribed to them by their radiology team, together with another good thing, Polymem non-adhesive dressings, these are squares of a foam-sided material and are very good if tucked over a sore nipple area to protect - or under the breast.
I had to have my nipple cut out and re-sited( not resisted as the original post said!) and it was painful after rads. I just ordered these things online, the cream and dressings, thinking our team wouldn’t prescribe, but they said they would have if I’d asked ! So maybe ring your unit? The Medihoney cream contains Manuka honey, and is therefore a bit pricey !! But I think it was definitely worth it. Crumbs, no wonder you are sore after 23 sessions! I was lucky in that I only had 15.
All the best xx
Member

Re: September 2018 Radiotherapy

Thanks Maggie, your words help me....Smiley Happy

 

Wombat woo, tonight, hopefully we sleep well. Smiley Happy

Member

Re: September 2018 Radiotherapy

Well done anxious soul! One down. It’s ok to be tired and it’s ok not to like it. Maggie x
Member

Re: September 2018 Radiotherapy

Apologies if this post turns up twice... I thought I posted but perhaps didn’t hit the button 🤣

So 1/15 done. Was a lot less traumatic than I thought... what we have in our heads is often a lot worse than reality!!!!!

Anxious sole so glad you got to have coffee and a catch up afterwards- time to chill is a good thing So we are off !! Xxx
Member

Re: September 2018 Radiotherapy

Thank you, i will have a look out for it and give it ago xx
Member

Re: September 2018 Radiotherapy

Er- that should be Skin, not Shin !! 🙄😁
Member

Re: September 2018 Radiotherapy

Hi everyone,

 

As always, the NHS staff were totally lovely. I think this is going to be tough for me, this morning I had my herceptin injection which causes fatigue and with the ongoing radiotherapy I think I am going to be shattered. 

 

A painless procedure, I closed my eyes and imagined going on one of my favourite walks. 

 

The good part is that next to the hospital is a lovely hotel within beautiful gardens where my friend and I had a catch up and a coffee. 

 

1/15

Member

Re: September 2018 Radiotherapy

Klonodu

Regarding shin and scar soreness, I had similar, and found Medihoney cream really helpful for sore nipple area, I have large scar under boob as well as nipple being resisted, because of therapeutic mammoplasty.. and that cream was great. Aveeno is excellent too for the less sore areas. Hope it gets better for you soon..
Best wishes to all starting out on rads - hope you all breeze through ! Xx
Member

Re: September 2018 Radiotherapy

Aliand. Hope you are okay totally understand your comments about wanting to get out as quickly as possible. Are you having your treatment at Fazakerley?. I finished my Rads there 3 weeks ago. It's up and down this journey but you will soon be at the end of this part of treatment and it's another milestone to tick off the list. We have a thread called first weeks after ringing that bell. It might help you to take a look at the comments on there as we have all been on the same road as you. Sending you best wishes and hugs Chris.
Member

Re: September 2018 Radiotherapy

Good morning Wombat woo, I hope your first session goes okay, I will be back to see how you go.

 

Good morning everyone, here goes, I  didn't sleep too well last night. My friend is taking me today, picking me up around 1pm. Smiley Happy

 

 

 

 

 

Member

Re: September 2018 Radiotherapy

Good luck tomorrow Wombat Woo and Anxious Soul xx

Aliand must be tough for you thinking about your son going away as well as going through rads - sending you big hugs 🤗- hope you manage to get through it OK. 

Im starting next Monday - I’m not too nervous atm, although people do keep telling me this is the easy part - I’m hoping they are right but I think you have to wait and see how you feel - just because the process is straightforward doesnt mean it doesn’t affect you. 

 

Member

Re: September 2018 Radiotherapy

Wombat Woo & Anxious Sole - good luck tomorrow, I’ll be thinking of you.

Klondu I’m using Aveeno and washing with an organic bar of soap (purchased in boots) from ‘the little soap company’ and I’ve no skin side effects, yet, after 12 sessions. I’ve used no deodorant on the affected side. It might be worth calling the helpline for advice too.

Maggie x
Member

Re: September 2018 Radiotherapy

Anxious sole. Tomorrow 😊. Will be thinking about you xx
Member

Re: September 2018 Radiotherapy

Hello. Friends have used AVEENO cream through various types of radiotherapy with really good results - might be worth a try.

I start tomorrow so have been using it all this week

Hope you get relief soon
Member

Re: September 2018 Radiotherapy

Hi, I have recently finished 23 sessions of radiotherapy and had no problems, other than slightly swollen and pink. A week later and it is very sore around the nipple and the scar area where I had lymph nodes removed. I have been using organic coconut oil all the way through but it’s not bringing me any relief. Does anyone have any advice on what to use, thank you 

Community Champion

Re: September 2018 Radiotherapy

mustardandgrey

 

Yay well done for the first one, I am sure you will get the hang of the breathing very quickly, you will be on no. 3 today already.

 

Your rads team should be keeping an eye on your skin and it might be worth asking them if chemo makes your skin more sensitive.

 

Helena xxx

Member

Re: September 2018 Radiotherapy

Hi Aliand

 

I am pleased you got some comfort from your coffee shop experience. Remember you can rant and rave on here and we wil get it. Remember it is okay not to be okay. Smiley Happy

 

 

Member

Re: September 2018 Radiotherapy

Hi Alland. Coffee shop sanity indeed !! I often sit and look around and try to second guess why everyone is there.... a bit of conspiracy theorising or storytelling takes my mind off everything else for a few moments at least .... I call it cake contemplation !!! Keep going your doing great 🤗
Member

Re: September 2018 Radiotherapy

Thanks Girls

no I cant talk to the staff, they are lovely and one of them offered me a hug today, but I just want to get in and out as quick as possible hugs will just make me fall apart and I dont want to do that alone at a radio appointment. If I fall apart afterwards I'm happy to go to councelling I dont mind falling apart there with a safe space and someone used to it where I'm not holding anything up.

Today toast and costa coffee helped before I wandered home. My eldest is off to uni on 22nd, I will still have 3 sessions after he goes so I dont want him going away thinking I am in bits, he will have enough to contend with and as I am in liverpool and he will be in london its not like he will see me that oftrn to reassure himself.

Thank goodness for coffee shop sanity