Member
Posts: 150
Registered: ‎27-08-2018

Re: September 2018 Radiotherapy

Hello everyone,

 

well, another one down.

 

zzzz and I need chocolate......Smiley Happy

 

2/15 

Highlighted
Member
Posts: 150
Registered: ‎27-08-2018

Re: September 2018 Radiotherapy

Thanks for the info Yorkshire Tyke, I am drinking heaps on ginger tea and using diprobase cream. 

Member
Posts: 22
Registered: ‎06-07-2018

Re: September 2018 Radiotherapy

Hi Ladies,

 

I've just finished my radiotheraphy sessions at Leeds (15 in total) last week. Or as one of my friend put it zapping sessions (not that I minded).... the jokes on him now though as he has to go for some light theraphy session so it will soon be his turn to get zapped!

 

I drove from home to the hospital each day (1 hour each way) and didn't really suffer from fatigue. I went to work part time (because of the timing of the appointments) and to my normal gym classes. My gym schedule was a standing joke with the radiographers! I'm 52, so no spring chicken but very fit and healthy otherwise.

 

I recommend you drink LOTS of water. I drank about 2 Litres per day plus tea and coffee and it appears to have helped.

 

Skin wise. Slap on the moisturiser 2 or 3 time a day and make sure you go right up to your collar bone. Aveeno (which they recommend) is on offer in Waitrose by the way.

 

I don't have a big chest (B cup) so I guess that impacts the dose....

 

So 6 days on and all I have to show for my treatment is a discoloured armpit (it looks like I have a tan.....) and some mild skin redness and irritation.

 

As for getting off the bed in a controlled manner, I was more commando roll than dignified!

 

Have a great weekend

 

 

Member
Posts: 142
Registered: ‎11-05-2018

Re: September 2018 Radiotherapy

Klonodu,

Some ladies got Medihoney cream prescribed to them by their radiology team, together with another good thing, Polymem non-adhesive dressings, these are squares of a foam-sided material and are very good if tucked over a sore nipple area to protect - or under the breast.
I had to have my nipple cut out and re-sited( not resisted as the original post said!) and it was painful after rads. I just ordered these things online, the cream and dressings, thinking our team wouldn’t prescribe, but they said they would have if I’d asked ! So maybe ring your unit? The Medihoney cream contains Manuka honey, and is therefore a bit pricey !! But I think it was definitely worth it. Crumbs, no wonder you are sore after 23 sessions! I was lucky in that I only had 15.
All the best xx
Member
Posts: 150
Registered: ‎27-08-2018

Re: September 2018 Radiotherapy

Thanks Maggie, your words help me....Smiley Happy

 

Wombat woo, tonight, hopefully we sleep well. Smiley Happy

Member
Posts: 66
Registered: ‎09-05-2018

Re: September 2018 Radiotherapy

Well done anxious soul! One down. It’s ok to be tired and it’s ok not to like it. Maggie x
Member
Posts: 242
Registered: ‎16-08-2018

Re: September 2018 Radiotherapy

Apologies if this post turns up twice... I thought I posted but perhaps didn’t hit the button 🤣

So 1/15 done. Was a lot less traumatic than I thought... what we have in our heads is often a lot worse than reality!!!!!

Anxious sole so glad you got to have coffee and a catch up afterwards- time to chill is a good thing So we are off !! Xxx
Member
Posts: 5
Registered: ‎24-01-2018

Re: September 2018 Radiotherapy

Thank you, i will have a look out for it and give it ago xx
Member
Posts: 142
Registered: ‎11-05-2018

Re: September 2018 Radiotherapy

Er- that should be Skin, not Shin !! 🙄😁
Member
Posts: 150
Registered: ‎27-08-2018

Re: September 2018 Radiotherapy

Hi everyone,

 

As always, the NHS staff were totally lovely. I think this is going to be tough for me, this morning I had my herceptin injection which causes fatigue and with the ongoing radiotherapy I think I am going to be shattered. 

 

A painless procedure, I closed my eyes and imagined going on one of my favourite walks. 

 

The good part is that next to the hospital is a lovely hotel within beautiful gardens where my friend and I had a catch up and a coffee. 

 

1/15

Member
Posts: 142
Registered: ‎11-05-2018

Re: September 2018 Radiotherapy

Klonodu

Regarding shin and scar soreness, I had similar, and found Medihoney cream really helpful for sore nipple area, I have large scar under boob as well as nipple being resisted, because of therapeutic mammoplasty.. and that cream was great. Aveeno is excellent too for the less sore areas. Hope it gets better for you soon..
Best wishes to all starting out on rads - hope you all breeze through ! Xx
Member
Posts: 167
Registered: ‎12-05-2018

Re: September 2018 Radiotherapy

Aliand. Hope you are okay totally understand your comments about wanting to get out as quickly as possible. Are you having your treatment at Fazakerley?. I finished my Rads there 3 weeks ago. It's up and down this journey but you will soon be at the end of this part of treatment and it's another milestone to tick off the list. We have a thread called first weeks after ringing that bell. It might help you to take a look at the comments on there as we have all been on the same road as you. Sending you best wishes and hugs Chris.
Member
Posts: 150
Registered: ‎27-08-2018

Re: September 2018 Radiotherapy

Good morning Wombat woo, I hope your first session goes okay, I will be back to see how you go.

 

Good morning everyone, here goes, I  didn't sleep too well last night. My friend is taking me today, picking me up around 1pm. Smiley Happy

 

 

 

 

 

Member
Posts: 148
Registered: ‎22-01-2018

Re: September 2018 Radiotherapy

Good luck tomorrow Wombat Woo and Anxious Soul xx

Aliand must be tough for you thinking about your son going away as well as going through rads - sending you big hugs 🤗- hope you manage to get through it OK. 

Im starting next Monday - I’m not too nervous atm, although people do keep telling me this is the easy part - I’m hoping they are right but I think you have to wait and see how you feel - just because the process is straightforward doesnt mean it doesn’t affect you. 

 

Member
Posts: 66
Registered: ‎09-05-2018

Re: September 2018 Radiotherapy

Wombat Woo & Anxious Sole - good luck tomorrow, I’ll be thinking of you.

Klondu I’m using Aveeno and washing with an organic bar of soap (purchased in boots) from ‘the little soap company’ and I’ve no skin side effects, yet, after 12 sessions. I’ve used no deodorant on the affected side. It might be worth calling the helpline for advice too.

Maggie x
Member
Posts: 242
Registered: ‎16-08-2018

Re: September 2018 Radiotherapy

Anxious sole. Tomorrow 😊. Will be thinking about you xx
Member
Posts: 242
Registered: ‎16-08-2018

Re: September 2018 Radiotherapy

Hello. Friends have used AVEENO cream through various types of radiotherapy with really good results - might be worth a try.

I start tomorrow so have been using it all this week

Hope you get relief soon
Member
Posts: 5
Registered: ‎24-01-2018

Re: September 2018 Radiotherapy

Hi, I have recently finished 23 sessions of radiotherapy and had no problems, other than slightly swollen and pink. A week later and it is very sore around the nipple and the scar area where I had lymph nodes removed. I have been using organic coconut oil all the way through but it’s not bringing me any relief. Does anyone have any advice on what to use, thank you 

Community Champion
Posts: 9,659
Registered: ‎16-11-2016

Re: September 2018 Radiotherapy

mustardandgrey

 

Yay well done for the first one, I am sure you will get the hang of the breathing very quickly, you will be on no. 3 today already.

 

Your rads team should be keeping an eye on your skin and it might be worth asking them if chemo makes your skin more sensitive.

 

Helena xxx

Member
Posts: 150
Registered: ‎27-08-2018

Re: September 2018 Radiotherapy

Hi Aliand

 

I am pleased you got some comfort from your coffee shop experience. Remember you can rant and rave on here and we wil get it. Remember it is okay not to be okay. Smiley Happy