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September 2018 Radiotherapy

Member

Re: September 2018 Radiotherapy

Good morning Wombat woo, I hope your first session goes okay, I will be back to see how you go.

 

Good morning everyone, here goes, I  didn't sleep too well last night. My friend is taking me today, picking me up around 1pm. Smiley Happy

 

 

 

 

 

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Member

Re: September 2018 Radiotherapy

Good luck tomorrow Wombat Woo and Anxious Soul xx

Aliand must be tough for you thinking about your son going away as well as going through rads - sending you big hugs 🤗- hope you manage to get through it OK. 

Im starting next Monday - I’m not too nervous atm, although people do keep telling me this is the easy part - I’m hoping they are right but I think you have to wait and see how you feel - just because the process is straightforward doesnt mean it doesn’t affect you. 

 

Member

Re: September 2018 Radiotherapy

Wombat Woo & Anxious Sole - good luck tomorrow, I’ll be thinking of you.

Klondu I’m using Aveeno and washing with an organic bar of soap (purchased in boots) from ‘the little soap company’ and I’ve no skin side effects, yet, after 12 sessions. I’ve used no deodorant on the affected side. It might be worth calling the helpline for advice too.

Maggie x
Member

Re: September 2018 Radiotherapy

Anxious sole. Tomorrow 😊. Will be thinking about you xx
Member

Re: September 2018 Radiotherapy

Hello. Friends have used AVEENO cream through various types of radiotherapy with really good results - might be worth a try.

I start tomorrow so have been using it all this week

Hope you get relief soon
Member

Re: September 2018 Radiotherapy

Hi, I have recently finished 23 sessions of radiotherapy and had no problems, other than slightly swollen and pink. A week later and it is very sore around the nipple and the scar area where I had lymph nodes removed. I have been using organic coconut oil all the way through but it’s not bringing me any relief. Does anyone have any advice on what to use, thank you 

Community Champion

Re: September 2018 Radiotherapy

mustardandgrey

 

Yay well done for the first one, I am sure you will get the hang of the breathing very quickly, you will be on no. 3 today already.

 

Your rads team should be keeping an eye on your skin and it might be worth asking them if chemo makes your skin more sensitive.

 

Helena xxx

Member

Re: September 2018 Radiotherapy

Hi Aliand

 

I am pleased you got some comfort from your coffee shop experience. Remember you can rant and rave on here and we wil get it. Remember it is okay not to be okay. Smiley Happy

 

 

Member

Re: September 2018 Radiotherapy

Hi Alland. Coffee shop sanity indeed !! I often sit and look around and try to second guess why everyone is there.... a bit of conspiracy theorising or storytelling takes my mind off everything else for a few moments at least .... I call it cake contemplation !!! Keep going your doing great 🤗
Member

Re: September 2018 Radiotherapy

Thanks Girls

no I cant talk to the staff, they are lovely and one of them offered me a hug today, but I just want to get in and out as quick as possible hugs will just make me fall apart and I dont want to do that alone at a radio appointment. If I fall apart afterwards I'm happy to go to councelling I dont mind falling apart there with a safe space and someone used to it where I'm not holding anything up.

Today toast and costa coffee helped before I wandered home. My eldest is off to uni on 22nd, I will still have 3 sessions after he goes so I dont want him going away thinking I am in bits, he will have enough to contend with and as I am in liverpool and he will be in london its not like he will see me that oftrn to reassure himself.

Thank goodness for coffee shop sanity

Member

Re: September 2018 Radiotherapy

Hi sue and Alliand Sorry your are feeling it a bit and are anxious of your rads. Remember it is the last bit of this journey we didn’t choose to be on and as Helena says it is the bib and braces part and making sure all is cleared and zapped. If you are feeling vulnerable during your treatment do speak to your team on how you are feeling. If all goes well you can be in and out in 15/20 mins but this all depends on how the machines are behaving in the day. I drove myself most days. Just take a drink with you. The biggest problem I had was parking and had to be there a good 45 mins prior to app just to park. Seems to be a hospital thing. As you say we are all different and react in different ways but the rads for me were a breeze. It was afterwards for me and others. Take a look in our thread first few weeks after rads as there is some interesting reading i there that might just help you both. You will get there ladies and the light is at the end of the tunnel. Take care both.
Member

Re: September 2018 Radiotherapy

hi Aliand

 

I am sorry to hear how vulnerable you're feeling. Are you able to talk to the staff about your feelings? Physically, are you being challenged too? 

 

Hi Sue I have also been told this bit is the easy bit although I remember we're all different and so I have never assumed anything during the treatment, just held back to see how my body and emotions responded. 

Member

Re: September 2018 Radiotherapy

Hi Sue, I’m not feeling affected by tiredness. I’m not sleeping well anyone as I’ve got quite severe carpel tunnel syndrome at the moment. But the radio isn’t affecting it. I’ve only a 30 min drive each way. I don’t think anyone knows how you will feel until it happens
I think sometimes friends who’ve not been there tell us it will be fine and we are doing great because that’s what they want to believe. Very few people really want to know how crap this all is. I hope you find it much easier than me. I find being undressed one of the hardest things. It may not be a big issue to you xxx
Member

Re: September 2018 Radiotherapy

Hi Aliand so sorry you are having such a bad time with the radiotherapy, I’m not sure what to expect everyone keeps telling me it will be a walk in the park it’s only 10 minutes treatment a day but these are people who haven’t actually gone through it, it’s a 40/45 minute drive each way and I’ve been told I could drive myself because at my age (55) I will feel fine after it so any worries I’m having about it all I have kept to myself because I don’t want anyone thinking I’m making a fuss about nothing!!
Sue x
Member

Re: September 2018 Radiotherapy

Hi Anxious-soul, good luck starting your treatment today
Due x
Member

Re: September 2018 Radiotherapy

Hi TMede08 I have been told I don’t need hormone therapy, hope all goes well at your planning appointment
Sue x
Member

Re: September 2018 Radiotherapy

Gosh I hate radiotherapy. Just had session 6 of 15 and cried while strapped down for the 3rd time. I never expected to feel so vulnerable. I’ve had 8 rounds of chemo and a diep reconstruction and I’ve nanaged those really well. This is totally knocking me !
Member

Re: September 2018 Radiotherapy

Hi Sue,

 

I hope the planning appointment last week went okay for you.

 

I start treatment tomorrow.

 

Today, I am going to be cooking up some meals and putting in the freezer since I may be feeling fatigued from the travel and the treatment. Smiley Happy

 

 

Member

Re: September 2018 Radiotherapy

Hi Sue,

I too will be starting my radiation within the next week, or so. I have my planning appointment scheduled tomorrow and just like you, I can't wait until this Phase 2 is over. 

 

I'm 31yrs old and I was diagnosed this past June (26) about 2-3 weeks shy of my 31st birthday. I was diagnosed with Invasive Ductal Grade 1, Stage 1. I’ve had my lumpectomy, and everything went well, so now it’s off to Phase 2. Will you be starting hormonal therapy too?

I honestly can’t wait until I can have my life back.

Member

Re: September 2018 Radiotherapy

Anxious sole ... good shout ! I will force myself 😊😊