Member
Posts: 67
Registered: ‎27-08-2018

Re: October 2018 Radiotherapy

Good luck JWD

Can I ask which hospital you are going to. I'll be at Sheffield Weston Park.
Susan x
JWD
Member
Posts: 173
Registered: ‎24-07-2018

Re: October 2018 Radiotherapy

Thanks Susan and Appletree. It's an added worry but we will both face it. I'm starting rads on Tues. Good luck ladies who have planning scans or are starting rads this week. I'll post on Tuesday after day 1.. take care.xxx
Member
Posts: 293
Registered: ‎30-03-2018

Re: October 2018 Radiotherapy

Hi all the October rads ladies. Hope your rads are kind to you and remember it is the last stage of active treatment for you all. Keep drinking, creaming and excersising. I still do my post op exercises daily and I am now 17 weeks post last rads. I find it helps stop everything tightening up. The achey shoulder do ease as the days go by but to help take a couple of pain killers half hour before treatment. The measurement used are to the millimetre and if the team aren’t happy they will start over so best to not get to fidgety if possible. I only had one blip during treatment as got muscle spasm in my shoulder so had to stop. The time will go quickly and changes will happen more so when treatment has finished, the 10/14 days after when the treatment peaks. My advise stay calm don’t panic and contact your team if concerned and nine times out of ten they are waiting for your call specially if the skin starts to break down. Bit of advice give to me was stop using the cream where breakdown occurs usually on the crease line under the boob which was the case for me and wishing 48 hours it was all good. You will all be ringing that bell before you know it and on the road to moving forward which comes with all kinds of things. We started a thread for those first weeks after treatment. Worth a read as we all we experiencing exactly the same and the discussion we had have sure helped all of us. Good luck ladies
Member
Posts: 67
Registered: ‎27-08-2018

Re: October 2018 Radiotherapy

Hi JWD
Just want to wish you and your hubby all the best and a prayer that you both get through this troubling time.

I'm taking letrozole and carbimazole (overactive thyroid ) both have same SE. Right hip, knee, calf and ankle paining at moment had cramp in big toe
Too not very pleasent. I have carpal tunnel so fingers hurt too. Hoping all settles down soon been on letrozole 4 weeks and Carbimazole 10 months.

I wish everyone well for your upcoming treatments and know that your not alone.
Take care.
Susan x
Member
Posts: 193
Registered: ‎13-04-2018

Re: October 2018 Radiotherapy

Dear JWD, please don't apologize. Of course you need to let off steam; what a terrible shock for you and your husband. There is nothing I can say other than that I wish you both all the very best.

 

As regards the aches and pains from radiotherapy, I think what you and Caroline describe is quite normal. By the time I finished rads on 18 July, my left upper arm was aching quite badly and it was quite difficult getting it into position. I had axillary node clearance in May and it seems nerves have been damaged. I'm still getting a fair amount of pain, made worse by Anastrozole, and despite doing my exercises. I suspect this is normal. 

 

Very best wishes to you and your husband.

 

If you need to rant, just come in here.

JWD
Member
Posts: 173
Registered: ‎24-07-2018

Re: October 2018 Radiotherapy

Hello Caroline I know what you mean with arms above head it's like a numb feeling that's pulling I think that's quite normal I feel it too... I've had a meltdown today.. my husband had a big op last year due to oesophageal cancer. We have been up a&e all day he's had pains in his ribs and spine. They did a chest x-ray and found a big white mass on his lung.hes got to have an urgent ct scan. Sorry everyone this is a breast cancer forum and not the place to discuss all other problems but so stressed.i feel like saying stuff the radiotherapy but I know its got to be done.. sorry for the rant everyone. Take care. Jo.xxx


Member
Posts: 52
Registered: ‎05-09-2018

Re: October 2018 Radiotherapy

hi ladies I have my first oncology appointment on the 1st October so I will be finding out what treatment I will be having, been on Anastrozole for a month so far only a few se's, I agree the waiting has been awful. Fezzy. xx

Member
Posts: 65
Registered: ‎01-07-2018

Re: October 2018 Radiotherapy

2 down, 16 to go... 

 

Any tips for stopping hands and arms getting sore and/or numb during treatment? I'm a climber and practise yoga regularly, but holding my arms above my head on the hard radiotherapy bed is surprisingly uncomfortable. It feels like a nerve is being impinged and I get spasms in my upper arms.

 

Caroline x

Member
Posts: 11
Registered: ‎26-08-2018

Re: October 2018 Radiotherapy

Hello ladies

I have my first clinical oncology appointment on 4 October when I’ll find out my start date. Should be some time in October though. Just waiting, waiting, waiting, all the time waiting...it’s exhausting 😉.

Nicola xx

Community Champion
Posts: 9,663
Registered: ‎16-11-2016

Re: October 2018 Radiotherapy

JWD

 

As at every stage in our treatment it is fear of the unknown, once you get into the first few sessions it will be fine. 

 

Ask any questions you want and I am sure that we will be able to help and support you

 

helena xxx

JWD
Member
Posts: 173
Registered: ‎24-07-2018

Re: October 2018 Radiotherapy

Hello Susan thanks..yes I think it's just the unknown and I get quite anxious. I get panicky and tend to fidget just scared I'll move And get zapped in the wrong area. I'm sure after ive had a few I will be fine. I'll let you know how it goes. Take care. Jo xxx
Member
Posts: 67
Registered: ‎27-08-2018

Re: October 2018 Radiotherapy

Hi JWD
I have my planning meeting 2nd Oct so hope to make a start asap after.
I'm sure you'll be fine as I hope I am too. Just trying to keep nerves under control but should be Ok once I've had a few sessions. Let us know how you get on.

Good luck.
Susan x



JWD
Member
Posts: 173
Registered: ‎24-07-2018

Re: October 2018 Radiotherapy

Hello I'm due to start October 2nd. Will be glad when it's all over as im getting anxious. Jo xxx
Community Champion
Posts: 9,663
Registered: ‎16-11-2016

October 2018 Radiotherapy

Ladies

 

Just starting a thread for October for those ladies who are starting their rads in October and ladies who will be completing them during October and may come over to help and support the new ladies.

 

Helena xxx