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October 2018 Radiotherapy

Community Champion

Re: October 2018 Radiotherapy

Fezzy

 

Glad I was of help,  It is the same with every step we take on this journey, fear of the unknown and then when it happens it is not quite as bad as we think.once we get going xxxx

Member

Re: October 2018 Radiotherapy

JWD
Is your seroma getting smaller or larger as you've had 2 sessions already. I've a seroma too they said it draining on it's own must be able to tell on the scan.
Take care
Susan xx
JWD
Member

Re: October 2018 Radiotherapy

That's such a journey for you. It's the travelling that will probably tire you out as the treatment is so quick. When they did a scan this morning all my measurements had changed they work in milimetres and they wasn't happy.i think I have a seroma so until I go tomorrow I'm not sure what will happen. It's reassuring that they like to be so exact. Susan yours will be done and dusted before you know it. Xxx
Member

Re: October 2018 Radiotherapy

Hi JWD
Oh dear sorry you've got to go through planning again as if there isn't enough to cope with. Wonder what they mean about lung volume, do let us know if you dont mind telling. X

Do you know how long before a session you can apply cream, most of my sessions are late afternoon and I have been using E45 in the morning and at lunch time then before bed.

I hope all goes well for you tomorrow. I start on the 11th so that's Thursday then Friday. Weekend off then full 5 days for 2 weeks and 3 days the last week.
I'll be a seasoned traveller then I hate the idea of travelling almost an hour for 15/30 mins then an hour home.
JWD
Member

Re: October 2018 Radiotherapy

Hello all.. day 3 today but couldn't go ahead as the measurements were not right something to do with lung volume and they wasn't happy. I have had seromas so whether it's that. I've got to go tomorrow for maybe another planning scan.
Fezzy I have heard of a lot of ladies that have to have 5 extra sessions so i wouldnt worry.xxx

Member

Re: October 2018 Radiotherapy

Hi, I also had the 15 + 5 boosters through August - I found it manageable, it did involve travelling into London on the bus/underground, but most days I would incorporate a coffee shop, or a walk around parts of London I didn't know ( lol, saw Changing of the Guard quite a few times as it was only a short hop further on the tube )  -  possibly I was very lucky, but side effects were minimal and manageable - for me, I was using Dr Hauschka Rose Body Oil on the area, as my daughter invested in it for me, though I did get the area under-boob with some redness and dryness, and the nipple was a bit dry towards the end of treatments, but all in all, it went okay.  Timings varied, so I saw different staff and different patients, but I'm a 'talker' and chatting to new people was good for the soul, and all the staff were superb.  I wish you well, I am sure it will be fine for you, and once you start ticking off the days, then the end is in sight. Hugs aplenty.

Member

Re: October 2018 Radiotherapy

Hi Helena.   Thank you for your reassuring reply that has helped a lot with my anxiety, xx

Community Champion

Re: October 2018 Radiotherapy

Fezzy

 

I had exactly the same as you, 15 regular and 5 boosters (on the tumour site).  I didnt have any more effects from having them.  I made sure I drank plenty of fluid every day usually 2 litres to ensure that I helped with any potential dehyradtion effects from the rads, took my E45 with me so that I could apply it immediately after each session which helped.  I actually found the last 5 a lot easier, they are not as long because the area they are targetting is smaller, I was in and out much quicker than when I was having the regular ones. 

 

Helena xxx

Member

Re: October 2018 Radiotherapy

Hi ladies, I have got my planning on the 17th October, so I may just qualify for the October radiotherapy club. I have been told I will have 15 sessions plus 5 targeted where the tumour was, has anyone else had this many sessions and will it lead to more effects from the radiotherapy. Fezzy xx

Member

Re: October 2018 Radiotherapy

 
JWD
Member

Re: October 2018 Radiotherapy

I'm lucky my journey is only10-15 minutes. That's added stress though it you don't like traveling
I will be honest though I nearly bottled it lol🤦🏻‍♀️ You will get through it..I think once the first one is over with and you know what to expect it gets easier. Take care xxx
Member

Re: October 2018 Radiotherapy

Hi jWD
Pleased you got 1st session over with. I felt like doing a runner too lol.
My hubby and so we're chatting on the journey as I was in two minds whether to go ahead with treatment but realised it was just nerves.
I'll be ok now I've done the journey once and timed it. I'm not a very good traveller.

Yes we can do this!!!!
JWD
Member

Re: October 2018 Radiotherapy

Hello ladies. First one today.. 1 down 14 to go! I was so anxious and at 1 point I nearly did a runner literally!! The staff were so understanding. In nervous situations when lying down I have a fear of choking but I think it's all the stress of my husband at the minute making me worse. It was fine though it was so quick and over before I knew it. The staff were so reassuring and put me at ease.
Susan I've been having seromas too since planning scan but when you start they can tell by tattoo marks if there's any build up of fluid.
I'm a really anxious person in scan like situations but coped so anyone starting please try not to get anxious it's over so quick. We can all do this💪💪💖
Member

Re: October 2018 Radiotherapy

Had planning today I start on 11th Oct
I was a bit stressed as I have IBS and it had kicked in due to anxiety.
No need really they were very kind and considerate even though I had to make numerous trips to the loo. I didn't hold anyone up as I was concerned about that.

My seroma is slowly going away without draining and hope rads don't make it worse.

At least 3 people rang the bell can't wait for my turn.
Susan xx
Member

Re: October 2018 Radiotherapy

 

Hello Ktk,

 

So pleased you are now at the end-in-sight session of chemo, you helped me with advice re TM op at the very beginning in the dark days of diagnosis, so many thanks for that 😊 ...

I, and other ladies, (who have now ended up on the First Weeks after Ringing That Bell thread) all completed rads pretty recently, and would be delighted to offer any advice and reassurance in turn, to anyone who has a burning question..(no pun intended btw 😏) .between us all there’s a lot of ‘zap’ experience !!  - so please ask away if needed...

 

Well done you, just this to get through now and it’ll whizz past ! 

 

Thistle xx 

Member

Re: October 2018 Radiotherapy

Hi Appletree

Thanks so much for all the information very thoughtful of you. I'm from Rotherham so it's a 45/50 minute journey.

Hope I can take all the info in on my planning tomorrow pity I can't take my hubby in with me he remembers what they say as I'm probably a bit nervous to take it all in.

Thanks for the tip about getting into robe on first visit. Xx

Yes I've been told about complimentary treatments but not decided on anything yet. I'll probably just want to get through the session and go home.

Im a keen crafter making cards and gift boxes etc this is my therapy and keeps me sane. Lol

Thanks again
Susan xx

Member

Re: October 2018 Radiotherapy

By the way, Susie, as you are having your treatments in Sheffield Weston Park, have you been told about the four complementary therapy sessions the Cance Support Centre offers, free of charge, to patients going through radiotherapy (and chemo too)? You will see the Centre in a Victorian house, to the left of WP Hospital main building. 

 

The Centre is part of WP Hospital and is staffed by qualified nurses with general help from volunteers. Cancer patients and their carers are welcome to drop in at any time on weekdays, and are promptly offered a drink and a biscuit. They are very kind and supportive. The complementary therapies, provided by qualified professonals, include general massage, Indian head massage, reflexology, reiki, shiatsu and acupuncture.

 

If you live in Sheffield, the Cavendish Centre also offers support to cancer patients and will allow you four complementary therapy sesssions in addition to those at WP CSC. The same therapists are involved.

 

Here's hoping all goes well for you.

Member

Re: October 2018 Radiotherapy

Hello Susie

 

I had my rads at Sheffield Weston Park and can confirm they are very kind and supportive. If you are seeing edited as per t's &c's (clinical oncologist) he is an absolute gem. The couch is not exactly designed for afternoon naps, but the radiographers are very helpful when getting you on and off again. About half way through my treatments I had a little tearful session, and the radiographers were very reassuring and considerate. By the time I reached the last week, I was well used to going straight into the reception area, getting my gown on, sitting at the appropriate spot and waiting to be called.

 

The radiographers at my first session pehaps could have explained a little more. It was not immediately obvious that, once you've announced your arrival at the desk and been told which machine you're assigned to, you are expected to go to one of the cubicles, take off your upper clothes, put them in a wire basket you keep with you and put on a blue gown that wraps around in front. Then, after your session, you return to a cubicle, leaving your blue gown in the bin next to the set of shelves holding the clean gowns.

 

It's all obvious once you're used to it, but at first I found I was in a bit of a daze and annoyed a radiographer by sitting down, fully clothed, and waiting to be told when to get robed up!

 

Don't worry, you're in a good place.

 

 

ktk
Member

Re: October 2018 Radiotherapy

I had my planning meeting last Friday and will start 18 sessions of rads on 30th, so I’ll join the November thread when it opens too. Last Docetaxol next Wednesday. Hooray!!!! Kxx
JWD
Member

Re: October 2018 Radiotherapy

I'm at Newcross Wolverhampton. I'll let you know how it goes. Jo. Xxx
Member

Re: October 2018 Radiotherapy

Good luck JWD

Can I ask which hospital you are going to. I'll be at Sheffield Weston Park.
Susan x
JWD
Member

Re: October 2018 Radiotherapy

Thanks Susan and Appletree. It's an added worry but we will both face it. I'm starting rads on Tues. Good luck ladies who have planning scans or are starting rads this week. I'll post on Tuesday after day 1.. take care.xxx
Member

Re: October 2018 Radiotherapy

Hi all the October rads ladies. Hope your rads are kind to you and remember it is the last stage of active treatment for you all. Keep drinking, creaming and excersising. I still do my post op exercises daily and I am now 17 weeks post last rads. I find it helps stop everything tightening up. The achey shoulder do ease as the days go by but to help take a couple of pain killers half hour before treatment. The measurement used are to the millimetre and if the team aren’t happy they will start over so best to not get to fidgety if possible. I only had one blip during treatment as got muscle spasm in my shoulder so had to stop. The time will go quickly and changes will happen more so when treatment has finished, the 10/14 days after when the treatment peaks. My advise stay calm don’t panic and contact your team if concerned and nine times out of ten they are waiting for your call specially if the skin starts to break down. Bit of advice give to me was stop using the cream where breakdown occurs usually on the crease line under the boob which was the case for me and wishing 48 hours it was all good. You will all be ringing that bell before you know it and on the road to moving forward which comes with all kinds of things. We started a thread for those first weeks after treatment. Worth a read as we all we experiencing exactly the same and the discussion we had have sure helped all of us. Good luck ladies
Member

Re: October 2018 Radiotherapy

Hi JWD
Just want to wish you and your hubby all the best and a prayer that you both get through this troubling time.

I'm taking letrozole and carbimazole (overactive thyroid ) both have same SE. Right hip, knee, calf and ankle paining at moment had cramp in big toe
Too not very pleasent. I have carpal tunnel so fingers hurt too. Hoping all settles down soon been on letrozole 4 weeks and Carbimazole 10 months.

I wish everyone well for your upcoming treatments and know that your not alone.
Take care.
Susan x
Member

Re: October 2018 Radiotherapy

Dear JWD, please don't apologize. Of course you need to let off steam; what a terrible shock for you and your husband. There is nothing I can say other than that I wish you both all the very best.

 

As regards the aches and pains from radiotherapy, I think what you and Caroline describe is quite normal. By the time I finished rads on 18 July, my left upper arm was aching quite badly and it was quite difficult getting it into position. I had axillary node clearance in May and it seems nerves have been damaged. I'm still getting a fair amount of pain, made worse by Anastrozole, and despite doing my exercises. I suspect this is normal. 

 

Very best wishes to you and your husband.

 

If you need to rant, just come in here.

JWD
Member

Re: October 2018 Radiotherapy

Hello Caroline I know what you mean with arms above head it's like a numb feeling that's pulling I think that's quite normal I feel it too... I've had a meltdown today.. my husband had a big op last year due to oesophageal cancer. We have been up a&e all day he's had pains in his ribs and spine. They did a chest x-ray and found a big white mass on his lung.hes got to have an urgent ct scan. Sorry everyone this is a breast cancer forum and not the place to discuss all other problems but so stressed.i feel like saying stuff the radiotherapy but I know its got to be done.. sorry for the rant everyone. Take care. Jo.xxx


Member

Re: October 2018 Radiotherapy

hi ladies I have my first oncology appointment on the 1st October so I will be finding out what treatment I will be having, been on Anastrozole for a month so far only a few se's, I agree the waiting has been awful. Fezzy. xx

Member

Re: October 2018 Radiotherapy

2 down, 16 to go... 

 

Any tips for stopping hands and arms getting sore and/or numb during treatment? I'm a climber and practise yoga regularly, but holding my arms above my head on the hard radiotherapy bed is surprisingly uncomfortable. It feels like a nerve is being impinged and I get spasms in my upper arms.

 

Caroline x

Member

Re: October 2018 Radiotherapy

Hello ladies

I have my first clinical oncology appointment on 4 October when I’ll find out my start date. Should be some time in October though. Just waiting, waiting, waiting, all the time waiting...it’s exhausting 😉.

Nicola xx

Community Champion

Re: October 2018 Radiotherapy

JWD

 

As at every stage in our treatment it is fear of the unknown, once you get into the first few sessions it will be fine. 

 

Ask any questions you want and I am sure that we will be able to help and support you

 

helena xxx

JWD
Member

Re: October 2018 Radiotherapy

Hello Susan thanks..yes I think it's just the unknown and I get quite anxious. I get panicky and tend to fidget just scared I'll move And get zapped in the wrong area. I'm sure after ive had a few I will be fine. I'll let you know how it goes. Take care. Jo xxx
Member

Re: October 2018 Radiotherapy

Hi JWD
I have my planning meeting 2nd Oct so hope to make a start asap after.
I'm sure you'll be fine as I hope I am too. Just trying to keep nerves under control but should be Ok once I've had a few sessions. Let us know how you get on.

Good luck.
Susan x



JWD
Member

Re: October 2018 Radiotherapy

Hello I'm due to start October 2nd. Will be glad when it's all over as im getting anxious. Jo xxx
Community Champion

October 2018 Radiotherapy

Ladies

 

Just starting a thread for October for those ladies who are starting their rads in October and ladies who will be completing them during October and may come over to help and support the new ladies.

 

Helena xxx