10-11-2018 10:36 AM
Hope you are all doing ok. I have had 3 sessions so I am counting down and 12 to go for me. Feel ok so far but got quite emotional on day 2. My appointments are all about 4pm or later so spend so much time in traffic jams for rush hour on way home. I won't ask them to change the appointments though, someone has to do the later times. They have already been very good and changed one appointment for me so that I can attend stepfather's funeral.
I am doing the breath holding technique which is quite daunting but managing ok so far. I have started coughing a lot today though, not sure if that is a side effect or whether I am catching hubby's chest infection.
I have been told to use Aveeno to moisturise but someone else suggested Bio Oil as well. Sending love and hugs to all of you 💕💕
09-11-2018 05:54 PM
09-11-2018 04:44 PM
Thanks for replying JWD it is possible that I should be drinking more water, I do have to drink water regularly throughout the day anyway because I have an ileostomy and need to stay hydrated but because of rads I maybe should be drinking more to compensate, unfortunately I am not quite half way through as I have got 5 boosters as well, thank you for your support its much appreciated. Fezzy x
09-11-2018 03:32 PM
09-11-2018 10:44 AM
Hi all hope everything is going well. I am day 8 today and I can honestly say I have never felt fatigue like it, even having a shower wears me out, my skin is fine at the moment, a bit of discomfort in my breast. Has any one else experienced this level of fatigue, I am going for a walk most days even though I feel like collapsing in a chair. best wishes to all Fezzy x
04-11-2018 07:48 PM
Thanks for replying. its so scary knowing whether they have seen something new on the CT ( i had to sign a disclaimeer to say the ct wasnt going to be formally reported by the radiologist, but was just for the oncolgist to plan treatment) but oviously have a call to say the plan has changed makes me worried they saw something they arent officially mentioning as it hasnt been reported. I start on wenesday the 7th too, bring it on XXXXXX
04-11-2018 03:46 PM
I had 20 sessions of rads over 5 weeks and to be honest other than a bit of redening and a sensitive area around my nipple I was absolutely fine, not everyone has any or all of the side effects from rads and your team will be keeping a close eye on you, if you are concerned about anything mention it to them at your appointment so that they are aware and can give you reassurance.
Well you are now a third of the way through so it will not be long before you are waving them goodbye for the last time.
04-11-2018 03:42 PM
My first five days of radiotherapy are over and two more weeks to go - ending on 16th November. So far so good, but I am dreading getting sore - which seems to be common. It's been ok so far - I've got a friend driving me, so I'm not getting too tired. And my appointments are all at the same time, and I usually get seen on time.Can't wait for all to be over though, and move on with my life!!!!
04-11-2018 02:37 PM
04-11-2018 02:09 PM
04-11-2018 11:14 AM
04-11-2018 11:12 AM
It will do darling, but I can assure you, being now 2 years post and 22 months post active treatment completed, things do get better and you do get back to some sort of "normal" albeit it a different one as a result of your experience.
Do you have a Maggies Centre or McMillan Centre near as they might be able to help with the counselling sessions, also speak to your breast care nurse, I know when I was diagnosed mine said that they could arrange some counselling for me when and if I needed it. I actually had mine through work, my boss recognised that I was struggling and she sorted it for me.
I can totally relate to where you are with regard to your hubby, my partner has MS, is housebound and I am his carer so he was not able to accompany me on any of my appointments etc., I have a wonderful network of friends who stepped in to support me, however when you are caring for someone it put that bit more pressure on you, so please make sure you make time for you as well
04-11-2018 10:47 AM
04-11-2018 08:32 AM
I just wanted to send you a big virtual hug because you really need it.
It is hard enough contending with the diagnosis and all that imposes on us but you are also trying to come to terms with your mum passing, for which I want to send my condolences to you.
I remember when I was having my rads there was a day when I had just had enough of it all, my life being dictated for 5 weeks by this one apt, I told them I didnt want to do it any more, burst into tears, my lovely rads nurse hugged me, gave me a box of tissues and sat talking to me until I was ready to carry on.
As much as people are trying to be positive and thinking that they are boosting you, the comments do not help yes you are coping, yes you are doing well, because you have to, but inside you are still trying to make sense of what has happened to you and what you are going through, that will take time. perhaps in the coming weeks you might consider getting some counselling which might help you to process everything and allow you to grieve for your mum and what has happened to you. I know I found it very restorative as I was in a safe comforrtable environment with someone who did not know me and I could be honest about the way I was feeling, she was able to make sense of it all for me.
You are right about this forum and the ladies on here who can totally relate to what you are going through and feeling. Come on here whenever you want there will always be someone to help and support you. You can rant, rave, cry whatever here we are here for you
04-11-2018 06:25 AM
I’ve had 7 of 20 sessions so far, the last 5 are a breast boost, due to a narrow margin. I’m starting to get tired, and my skin is itchy, so using cream twice a day, and keeping Aloe Vera gel in the fridge. It still feels like a mountain to climb to get to the end. It’s not helped by having a 56 mile round trip every day either, and twice a week I’m having to drive it on my own, as my husband can’t come on those days. My appointment times vary every day, so finding that hard too, some days they’re early mornings, and others late afternoon, so it feels like Radiotherapy totally dominates my life. The staff are all friendly, but lying on a table whilst they move you a little in the right direction, draw pen marks on your breast whilst they call out measurements, and holding your breath for 20 seconds, just seems de-humanising somehow. I’m struggling with the concept of being a cancer patient anyway, but there’s no denying it when you’re having Radiotherapy. Lying there on your own, on a table, with the disembodied voice of a radiotherapist issuing instructions just seems to reinforce what a lonely experience it all is. Also my Mum died 8 weeks before I was diagnosed, and I haven’t had time to process that yet, and it’s her birthday next week, the first one since I lost her, but I’ll have to go to Radiotherapy, rather than be able to grieve for her as I would like. I’m fed up of people saying “it’s good they caught it early”, or “you’re coping so well”! I don’t have a choice about coping, and do what most of us do, put on a brave face, to spare others, when really my heart is breaking. Also Letrozole doesn’t help, I’m having 12-20 hot flushes every day, it’s just a constant reminder of how life has changed. I’m grateful for free treatment, and that modern treatment is very effective. Sorry for the moan, but I don’t think anyone else but fellow patients can fully understand how it feels to cope with the treatment, and the stress it brings.
03-11-2018 09:42 PM
Hi Everyone - Had hoped to start my radiotherapy 10 days ago in october but had my first treatment session this Thursday 1st November, the 56 days wait time made me anxious aka 56 days after 2nd Surgery.
Was told 15 sessions , and as always my expectations are never met as I assumed it would be 5, 5 and 5
I accepted as you have no choice that appointments could be any time of day and and that I would know the times of the following week at the end of the 1st week
So had had two so far but wasnt happy to learn that my week #2 will only be x 4 session as the hospital cant fit me in - on Friday which means I will have an interuption not of the standard two days over the weekend but 3 - Monday night #3 of 15 is at 7pm which isnt ideal but at least they are fitting me in, the man who gave me my appointment booklet assured me there was no difference to reocurrence rate if treatments are not consecutive and further informed me there had been recent trails yet everything i have read online states to the contrary so Monday morning I will email oncology and ask if they can find another hospital for Friday.
My journey from February to now hasnt been seamless made to feel am on a conveyor belt, after Radiotherapy and who knows how many weeks I assumed it would be 3 but now it will defo be 4 I then start on my endochrine therapy - taxmofen OR Letrozol was always referenced but its #exemestan dreading taking as it will as we know destroy all my oestrogen yet surely the body needs some oestrogen
I so grateful to Breast Cancer Care and will post on here my radiotherapy 13 more sessions to go,
Maybe I am doing my self a disservice pushing for 5 consecutive treatments as having 3 days off could be good but on the other hand it published studies show the reocurrence rate is higher for those who are not compliant ie miss a session even if they make up the session afterwards.
03-11-2018 03:46 PM
Hi emac, I had to go back for a second CT scan doing the breath holding too. It is a bit daunting knowing I will have to do that for each session. My treatment starts on Wednesday 7th - just want to get going with it now and get it over with. Hope all goes well for you, and everyone else on here
02-11-2018 08:00 PM
Joining this thread as im due to start radiotherapy next week as the last part of my treatment (having had chemo and then surgery). Feel i have had the least preparation about what to expect. Went for my planning CT after seeing the consultant and changing from 3 to 4 weeks of radiotherapy as initially told, and then had a phone call to say they wanted to extend the area being treated to covered (which was already my breast, axilla and neck) to include both chest bone nodes as well. Had to go back to have another CT with breath holding to replan things so i feel a bit stressed. No one has been able to say whether they saw something on the planning CT that is a reason to change the plan or whether the consultant has just decided to change his mind and be over cautious....... Anyway, im glad im a swimmer as i can imagine breath holding for 30 seconds might be hard for some people.
02-11-2018 06:53 PM
02-11-2018 03:48 PM
Hi ladies I have been on Anastrozole for 9 weeks and just started rads, I was told it is ok to stay on them for radiotherapy but not if you have chemo, I have been lucky that any se's I have had up to now have been manageable , but I wouldn't want to be coping with bad se's and rads at the same time, best wishes to all starting rads this month, all I can say is its not as bad as I imagined and the staff are lovely and always willing to answer questions, sorry your experience has not been so good Charlie. Fezzy x