Member
Posts: 4
Registered: ‎14-11-2018

Re: November 2018 Radiotherapy

Hi Kim . You sound as though you are just like me! I've certainly been more tearful since finishing RT, but I just let it out. Having said that I don't have any choice on a bad day. The last 2 days have been fine with no tears at all. Good luck and don't bottle it up I'm better after a good cry- alone or anyone around!

Member
Posts: 5
Registered: ‎04-11-2018

Re: November 2018 Radiotherapy

I think they do a moving forward day, probably in January, so I’ll make sure I get to that. The staff have been good, but the Radiotherapy department is very busy, and the staff don’t have the time, and I don’t think the training to cope with emotional needs. Although the breast care nurses have said that they can be contacted, they’re short staffed, and my impression is that they are busy with new patients, and don’t normally offer support post surgery. I’m happy with my care, but my only criticism is that they don’t do much emotional support, which is fine, but a gap in service provision, and means that if I do need help further on, that will mean going to the GP.

Kip
Member
Posts: 821
Registered: ‎27-04-2018

Re: November 2018 Radiotherapy

Hi Kim,  I'm feeling more teary the nearer to the end of treatment I get too.  I am hoping to get on a "moving on" course to deal with some of the emmotions, do they offer that at your hospital?

Kip

x

Member
Posts: 5
Registered: ‎04-11-2018

Re: November 2018 Radiotherapy

Have finished 15 sessions of whole breast Radiotherapy, and had the first of 5 breast boost sessions today, as posterior margin was very narrow. I’m feeling really tired now, my skin is mildly pink, but the 2 surgical scars are really itchy and have got very red. I’m using Aveeno and Aloe Vera Gel which I keep in the fridge. Also advised by the Radiotherapy team to use 1% Hydrocortisone sparingly. It helps, but not for long, has anyone got any other recommendations? I’m looking forward to finishing treatment, but also worried about the emotional effects hitting home then, which seems to be a common experience, just wondering how other people feel after the treatment ends? I’ve had a few tearful days, but mostly bottled it up in order to be able to carry on, which I know isn’t healthy, but I was worried that I wouldn’t cope if I let myself properly cry.

Member
Posts: 4
Registered: ‎14-11-2018

Re: November 2018 Radiotherapy

Hi Kip. Thank you so much for this. I know I'm not going through nearly as much as you and alot of other ladies. Yesterday was just awful, but today I've been fine and even went to the yoga class with no tears!

  This was my 1st time on here so really appreciated your message. I did speak to my Breast Cancer Nurse a couple of weeks ago when out of the blue I burst into tears and she just said it was normal . 

  Good luck with you radiotherapy. My journey has been very short compared with your's.

    Thanks again.

        CyclingSoo

Kip
Member
Posts: 821
Registered: ‎27-04-2018

Re: November 2018 Radiotherapy

Aveeno it is then!  Thanks everyone

Member
Posts: 52
Registered: ‎05-09-2018

Re: November 2018 Radiotherapy

hi Kip I am now on day 12 of 20 and have only used Aveeno just a small amount of redness today but I suppose it does depend on your skin type.  good luck Fezzy x

Member
Posts: 45
Registered: ‎05-06-2018

Re: November 2018 Radiotherapy

Hello Kip
I’m on day 4 and been using Aveeno daily moisturizing. I seem to be doing well and not applying too much cream to skin - I seem to be doing fine under Rads as I don’t feel any pain / burn or sensation . Perhaps it’s early days for me .

I haven’t used any other cream other than Aveeno so interested to know others views on this
Kip
Member
Posts: 821
Registered: ‎27-04-2018

Re: November 2018 Radiotherapy

Rads ladies - what kind of creams are you using?  My rads nurse suggested Aveeno?

Kip

x

Kip
Member
Posts: 821
Registered: ‎27-04-2018

Re: November 2018 Radiotherapy

Hi CyclingSoo, sorry to hear you are feeling down.  As everyone says it is completely normal to have ups and downs, you wouldn't be human if you didn't.  I was diagnosed in April of this year and have had a masectomny , chemo, axillary node clearance and am about to being Rads on 29th November (15 sessions).  I have had every emotion known to man and still do.  I have days when I am so positive and feel great and then out of the blue I could sit and cry for ever and usually do.  I broke down in tears at my plannig session this week, and couldn't really place why, just felt overwhelmed, sick to the back teeth of hospitals and just needed to cry.  It does help to let it all out and I am sure your friends don't mind, I regularly sob on my friends shoulders.   Do you have Breast Cancer Nurse you can call and talk to?  Or a Macmillan centre or similar?  We have one attached to Ipswich hopsital and they offer all sorts of counselling, therapies etc and encourage you to take them up as they are used to dealing with this sort of thing.  My Rads nurse has told me to seek help after the treatment is finished as you can feell a bit "set adrift and alone" once its all over.   There is a course run called "Moving On" which is designed to help you deal with psychology part of this nasty journey.  And please don't be afraid to come on these forums and let out how you feel, we have all been there and will be happy to chat.

Take care

Kip

xx

Member
Posts: 4
Registered: ‎14-11-2018

Re: November 2018 Radiotherapy

 I'm new to this so don't know where to begin! I've just completed a 15 day's of RT for Stage 2 breast cancer with 2 lymph nodes removed, luckily they were OK. I know I'm lucky in alot of respects, but struggling at the moment.

 I stayed very strong throughout most of the time since my diagnosis in early August both physically and emotionally. On day 12 last week I became an emotional wreck- couldn't stop crying all day. Then had a few good day's but yesterday was even worse. My treatment finished Monday.

  My friends have all been very good, but I feel bad as they phone or visit and I crumble in a heap. 

  I know everyone keeps saying it normal, but does anyone know how long this is likely to go on for? Also not sure whether it's due to the RT or the Letrozole which I have now been taking for 6 weeks. 

  Going back to work I'm sure would be good for me, but can't go back whilst I'm like this. I keep myself quite busy most of the time, but not sure what to do about it. Maybe I just need to accept it will go away soon and take each day as it comes.

  Coping with the tiredness is OK as I can just have a nap, it's the emotions I'm finding the hardest part at the moment.

  Soory about all  this.

Member
Posts: 52
Registered: ‎05-09-2018

Re: November 2018 Radiotherapy

hi ladies just a quick update I am on day 11 of 20.  In the last day or so I have been having sharp pains in my breast a bit like after surgery, doesn't last very long so not too bad, skin is fine at the moment just looks a bit Sun tanned. Had a wobble today, very tearful for no particular reason, could be Anastrozole effects or just the constant getting stuck in traffic jams getting to hospital every day, but I just think I am nearer to finishing than starting now so onwards and upwards, hope everyone is doing ok, best wishes to you all.   Fezzy x

Member
Posts: 45
Registered: ‎05-06-2018

Re: November 2018 Radiotherapy

Hi LJ, yes I live in Swindon and doing the daily run to Oxford Churchill. My appointments have been late morning / early afternoon varies during he week. I’m on day 3 and aooointment is 1.35 pm so I’ll need to set off around 12.15 . Leave enough time to find parking space - was actually lucky yesterday I found one ! Amazing !

I was planning dropping into Maggie’s Center today which is across the road from the hospital and familiarize myself with the drop in center

My last Rads session is 7 Dec . I’m on day 3 and already feel fatigue slowly kicking in and I’m keeping myself well hydrated .. I don’t have any pain or sensation in area being treated however that may change as I progress further into my treatment.

I hope it all goes ok for you - keep us updated . . At least you’ve got a few weeks to prepare etc .

Xx
LJ
Member
Posts: 61
Registered: ‎12-06-2018

Re: November 2018 Radiotherapy

Just checking in here to see how everyone is doing. I start on 26 November, so I shall be going once most of you have stopped I think and with 20 sessions I go up to 21 December. I shall also lurk on the December thread when it's up. 

 

Mavit - I'm also going to Oxford, for me because there's no unit in Swindon, is that the same for you?  I'm dreading the parking too. My first two weeks are morning appointments, the second two at lunchtime, so just when I've got used to how hard it is to find a space I'll have new times to wrestle with. 

 

LJ

Member
Posts: 45
Registered: ‎05-06-2018

Re: November 2018 Radiotherapy

Evening ladies , I had my first Rads session this morning and pleased to say that everything went ok. I got to hospital some 33 miles away in plenty of time however hospital parking is a nightmare ! Ended up having to find on the road parking.

I was shown by receptionist how to use their online booking system which I will need to do on each visit and then head straight to the treatment waiting area where i will be called .

I was surprised how quickly they treated me , from having a brief chat with radiologist and then escorted into the radiology room . They spent a good 10 mins or so positioning me on the bed and taking digital images and then once that was completed started radiotherapy which last a few minutes.

I didn’t feel any burning or sensation whilst under .
Once completed, I slapped on Aveeno cream and got dressed and left.

I must admit I felt really tired after the treatment and then had to drive home.

When I got home, got into my PJs - had a nap . Will be off to bed soon as need to do it all over again tomorrow. My appointment tomoro is early afternoon so I can set off a bit later .. hopefully I’ll get the hang of it as it will become my daily routine,

Just hope that any side effects I experience will be towards the end of the treatment, so far all good.

Hope your all doing good xx
Member
Posts: 9
Registered: ‎12-09-2018

Re: November 2018 Radiotherapy

Hi everyone, just checking in again, great to hear how you’re all doing. #5 tomorrow. Still feeling a bit chilly in the room, I was told I could bring a jumper to pop over the top of my legs which I did, but I chose my lovely thick fleece which was too big and prevented the camera from spying on my breathing block - so, thin fleece today, worked well, everyone happy.

 

I have found that the arm on the axillary clearance side is getting pretty numb towards the end of the session and needs a good rub and flex afterwards. Good news is that because my deep inspiration breath hold is so consistent, I only have to have X-rays during sessions once a week so it’s much quicker.

 

Most stressful thing so far is trying to get a parking space, I arrived an hour early just to be sure as I was driving myself today! Skin ok, using Aveeno twice daily, drinking minimum 2.5ltrs fluids. Day off on Wednesday, going to do something nice or treat myself to something I think! 

Kip
Member
Posts: 821
Registered: ‎27-04-2018

Re: November 2018 Radiotherapy

Hello Ladies,

I am having my planning session tomorrow at which I am hoping to get the plan for my 3 weeks of sessions.  I am hoping to finish by Christmas but have been told it may run over... am hoping that I am not juggling cooking the turkey and a visit to hospital.. surely they don't run over Xmas?   I've been reading all your posts and getting tips, am kind of looking forward to getting started but also apprehensive too.  I will be stocking up on Aveeno too, I already use it but will need a shed load more I think.

P.S.   just for info... I had MX in June (no recon), 6 x chemo and then ANC clearance 3 weeks ago so this will be the last leg (hopefully)...

Kip

xx

Member
Posts: 7
Registered: ‎04-04-2018

Re: November 2018 Radiotherapy

Hi all, I have had my first 3 sessions of radiotherapy now. Getting quite good at the breath holding and can do 20 seconds with no bother. So far no skin issues but its early days i know. Compared to chemo this is so far not as bad.... fingers crossed it continues. **currently smothering in aveeno**

 

Member
Posts: 11
Registered: ‎26-08-2018

Re: November 2018 Radiotherapy

Hello ladies

So have had my first 2 sessions, on Thursday and Friday. The team are lovely, efficient and professional, makes it easier to bear. I sense the 80 mile round trip will fast become a bore however needs must. No side effects although I understand they are more common towards the end of treatment. Have been given an emollient called Zerobase by the radiotherapy team to moisturise my breast before bed and after showering in the morning. 21 treatments left including 8 boosters to the tumour bed. Otherwise I seem to be spending a lot of my time reading, Pinterest-ing and watching Netflix, getting outside when the notion takes me. Is anyone else not working at the moment?

Nicola xx

Member
Posts: 11
Registered: ‎26-08-2018

Re: November 2018 Radiotherapy

Hello ladies

So have had my first 2 sessions, on Thursday and Friday. The team are lovely, efficient and professional, makes it easier to bear. I sense the 80 mile round trip will fast become a bore however needs must. No side effects although I understand they are more common towards the end of treatment. Have been given an emollient called Zerobase by the radiotherapy team to moisturise my breast before bed and after showering in the morning. 21 treatments left including 8 boosters to the tumour bed. Otherwise I seem to be spending a lot of my time reading, Pinterest-ing and watching Netflix, getting outside when the notion takes me. Is anyone else not working at the moment?

Nicola xx