Community Champion
Posts: 9,663
Registered: ‎16-11-2016

Re: November 2018 Radiotherapy

Fezzy

 

Congratulations on finishing yoru rads. As your team have advised you the next couple of weeks you will need to keep up your regime as you will still be feeling the effects, and I found especially making sure that I kept up my fluid intake.

 

Ringing the bell for you tomight as well.

 

Helena xxx

 

ringing bells.gif

Member
Posts: 559
Registered: ‎30-03-2018

Re: November 2018 Radiotherapy

Congratulations Fezzy, I am glad you have finished rads and I hope your skin stays strong 💪🏻 X
JWD
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Posts: 173
Registered: ‎24-07-2018

Re: November 2018 Radiotherapy

Well done Fezzy💖👏💖
Member
Posts: 52
Registered: ‎05-09-2018

Re: November 2018 Radiotherapy

hi ladies hope you are all doing ok. Today I rang the bell, 20 sessions completed, my lovely radiotherapy team cheering me on they have been brilliant. Been told that I still have to moisturize and watch my skin but it's been fine up to yet, just a tender nipple and odd stabbing pains which I have been told are normal, hopefully I won't have any problems but time will tell. Good luck to all having treatment this month it does seem never-ending  but it's surprising how quick it goes, Fezzy x

Member
Posts: 7
Registered: ‎12-10-2018

Re: November 2018 Radiotherapy

Hi, I have been prescribed some Mepiplex pads to put under breast but has anyone used any gels or creams on the blistered areas? Or should I just keep it dry? I will ask the radiotherapy nurse but just wondered what your experiences were. Thanks

Member
Posts: 87
Registered: ‎07-11-2017

Re: November 2018 Radiotherapy

Hi Michelle, 

 

I though I would just pop on and say I know exactly how you feel with the radiotherapy burns.  I had some nasty burns this time last year when I was going through treatment.  I was given the instrasite gel too and it really did work wonders.  It is something to do with keeping the skin moist while it heals and it helped me no end.  Keep your chin up, mine took about three weeks to skin over (mine were all under my boob and under my arm).   Take painkillers regularly too, I tried to be brave and eventually realised I was doing myself no favours and just took them.  The skin is very fragile when it is healing too so gentle is the name of the game.  Take care X 

 

Hi Ladybowler,

 

Glad to see you are doing well and recovering from your op.  I have just been for my 1st year mammogram, and got the all clear - hurrah!  Got myself in a state going, but glad it is all done.  X 

Community Champion
Posts: 9,663
Registered: ‎16-11-2016

Re: November 2018 Radiotherapy

Michelle

 

Well that is positive and it does sound as if things are improving. Have you got a cotton hanky that you might be able to put between your bra and nipple to ease it.  Oh the joys of numb underarms, I remember putting my deoberant on and the only reason I knew I was doing it was because I had it in my hand, I could not feel anything under my arm.

 

I am so glad to hear that you have an appointment for counselling as well, I really do think it will help and give you the space you need without having to worry about upsetting anyone.

 

I am doing fine.  I have my apt on Wednesday which will be 7 weeks post my hysterectomy, cant believe how the time has flown.  I am hoping that I will be able sort out a date for me to go back to work for at least a week before xmas.  Getting stir crazy now and need to get back to normality, albeit that I will only be working a few hours a day for about 6 weeks.  I must admit I feel so much better having had the op, which is what a lot of ladies have told me

 

xxx

 

 

Member
Posts: 559
Registered: ‎30-03-2018

Re: November 2018 Radiotherapy

Hi Helena
They have given me more dressings and said that the gel is the best thing to use to help healing. The blisters underneath have improved although a new one has appeared today, my nipple has begun to get sore and my under arm is raw. On the plus side I can’t feel how sore my under arm is because I haven’t got the feeling back since lymph clearance! They have said that it should have healed in the next two weeks so I am focusing on that.
Also I have got an appointment booked with the counselling team which I really think I need as I am very up and down.
How are you doing? X
Community Champion
Posts: 9,663
Registered: ‎16-11-2016

Re: November 2018 Radiotherapy

Michelle

 

How did you get on with your rads team today?

 

H xx

Member
Posts: 7
Registered: ‎12-10-2018

Re: November 2018 Radiotherapy

Hi everyone, I had session 13 of 15 yesterday and also a review with the radiotherapy specialist nurse. I had been feeling quite hopeful that my skin was not going to be affected too badly but she warned that the worst is to come. Apparently about 2/3 after finishing the rads will be worst time and she expects blisters etc will appear under boob so she has advised me to get some pads from the GP and also some 1% hydrocortisone cream for itchiness. Best to be forewarned I suppose. She is going to phone me to see how I am getting on in a couple of weeks. 

I am also getting some stabbing pains but very short lived at the moment. Nurse has advised that these could happen more for a while and breast will feel very heavy. Paracetamol advised and plenty of rest and fluids of course. I have been getting some dizziness for the last day or two but nurse says this is more likely due to not drinking enough fluid rather than the radiotherapy. They are all very kind but I cannot wait to get to Wednesday so that there are no more long trips to the hospital. I am going there again today though as the breast care nurses run a monthly support group and it sounds quite jolly so I am looking forward to that. I am also being referred for counselling as the whirlwind of appointments and treatment over the last six months has meant that I don't believe that I have really had time to accept what is happening to me yet - nurses have said it is not unusual to feel at your worst mentally/emotionally at the point treatment finishes so we will see.

Sending big hugs to you all 💕💕

Community Champion
Posts: 9,663
Registered: ‎16-11-2016

Re: November 2018 Radiotherapy

Michelle

 

Definitely ask them about the polymem, you can also get it prescribed by your GP but the rads team should be able to give you some in the meantime.  One side of it has lines on it and I think that is the side that you slightly dampen before applying it to your skin.

 

Always there mate xxx

Member
Posts: 559
Registered: ‎30-03-2018

Re: November 2018 Radiotherapy

Hi Helena, no the dressing is simply that, a sterile non adhesive dressing. It looks like a sanitary towel! The gel is called Intrasite gel, I don’t think either actually help the healing process the gel just keeps it moist and the pad stops my bra rubbing. I will ask about polymem when I go on Monday.
Your husband sounds great, what is it with men and gadgets?! Although the grabber does sound useful!
I have rang the counselling dept, waiting for a call back.
Thanks again for ‘talking’ x
Community Champion
Posts: 9,663
Registered: ‎16-11-2016

Re: November 2018 Radiotherapy

Michelle

 

Thats a good idea about going again Monday.  Have they given you a dressing called polymem as that is supposed to be really good for radiotherapy burns.

 

Well as you say we go into auto pilot dont we, it must have been so hard for him because he was not able to support me in the usual way, but he always finds ways round things to make life easier for me. In teh same way as he has done with my hysterectomy, I think I have every gadget going to help me, the best one ever is my grabber, I never realised how times I dropped things on the floor until I have not been able to bend to pick them up Smiley Happy Smiley Happy. Think I will be keeping that one around for a lot longer x

 

Give the counselling a go and see you might be surprised.  I did go the mill a bit with everything that was hiding under the surface but it was lovely to do it in a safe comfortable environment where more than anything I could be honest with myself.  I recall the last session which was on the last day of my rads, I actually said to her that I was letting her go now and that I was ready to move forward, she just smiled and gave me a hug,

 

I am so glad that I have been of some help xxxx

Member
Posts: 559
Registered: ‎30-03-2018

Re: November 2018 Radiotherapy

Hi Helena
Thank you so much for your thoughtful response. I went to the unit on Monday and ifnit is no better I think I will go again on Monday. Two new blisters today.
You must have had a lot on your plate caring for your partner as well as coping with BC. I think we can go into auto pilot and deal with the immediate bit like you say there is a lot bubbling under the service waiting to rear up. I have been given a referral for counselling, I wasn’t going to contact them but having read your reply I think you are right it could be a big help.
Once again thank you for your reply, it’s very much appreciated x
Community Champion
Posts: 9,663
Registered: ‎16-11-2016

Re: November 2018 Radiotherapy

Michelle

 

I didnt have any blisters but the area around my nipple was rather tender for several weeks after, and yes I did experience the stabbing pains for a while.  I seem to recall them saying it is eveyrthing settling down again following surgery healing and then it all being agitated by the rads but it will settle in time, everyone is different so it is difficult to say how long it will take.  I am nearly two years post rads I very very occasionally get an ache but that is all now.  Remember even if they have given you something to help with the blisters you can sstill contact them to see if there is anything else they can suggest.

 

I recall after finishing my rads bursting into tears, I think it is a mixture of the relief that active treatment is completed, fear because we have been on the cycle of appointments and treatment for a several months, depending on the amount of treatment even longer than that, to be suddenly "thats it" is rather scary.  For me the biggest thing was my life not being controlled by that one apt every day for 5 weeks which such a relief.

 

Have you thought about having some counselling to talk through your feelings with someone who is objective, you can say what you are feeling to them without the worry of upsetting them the way you would be in telling your family and friends.  I had counselling just before I start rads as I was feeling scared that I was doing so well I would crash and burn.  It is amazing the stuff I was keeping nside me which I was able to let out and she helped me understand so much of it, I am carer for my partner who has MS and is housebound, so there was a lot of anger there as to why this should happen to me.  It was very therapeutic.

 

Sending you hugs

 

Helena xxx

 

Member
Posts: 559
Registered: ‎30-03-2018

Re: November 2018 Radiotherapy

Helllo
I finished 20 RT sessions last Wednesday and since finishing my skin has erupted in blisters on the under side of my breast, 48 and two kids I’m not as pert as I once was! So when the skin touches the skin it is really sore. I have been back to the unit and they have been very helpful giving me non adhesive dressings and some gel to put on the raw skin. I noticed someone mentioned stabbing pains which I also have. I was wondering if anyone else has been through this and how long it lasted. Each day a new blister seems to appear.
I also notice a few of you have found you’ve been emotional during rads, I have found that too, In fact I found the whole Rt experience quite depressing. Now they have finished I still feel very up and down. I feel like I have been on high alert during 8 months of gruelling treatment and only now am I stopping and trying to take in what has happened.
All advice welcome x
Member
Posts: 9
Registered: ‎12-09-2018

Re: November 2018 Radiotherapy

Sorry you had to have another scan Mavit, that must have been very annoying and frustrating for you. I’m 10/20 so half way now. I started seeing slight pink skin after 7 and thought oh no... but it settled down again, the main pink is just behind my armpit, back of the arm, where the rays are exiting I guess and kinda in the top armpit fold, it’s irritating due to my scar still producing because of the large bruise. I’ve had one episode of fatigue I guess, 7:30pm I crashed, couldn’t keep my eyes open and crawled into bed! I’ve been fine for the last few days though. Drinking loads as soon as I’m in the car (water!), using Aveeno straight after each session and at bed time. Walking with the dog seems to give me an energy boost. Had one emotional wobble on day 5, but fine since then and grateful the sessions are all over very quickly.  think what everyone experiences is all very normal, good to hear how others are feeling so it punctuates the normality even more. Take care all. Getting there! Xx 

Member
Posts: 52
Registered: ‎05-09-2018

Re: November 2018 Radiotherapy

hi Mavit I am now on day 17/20 so nearly finished, I am just the same having good and bad days feeling tearful for no particular reason and  then absolutely fine again for a few days, fatigue comes and goes as well, it's all very odd. I have had stabbing pains on and off that was round about 9 days in, the boosters I am having now are giving me pain again but it doesn't lasts long. my skin has held up remarkably well, just looks Sun tanned at the moment just hope it continues like this. I have only used Aveeno but put lashings of it on 3 times a day, and kept my fluid  intake up, must admit I can't wait to get this over with now it is very tiring and I have had some early appointments, on the plus side at least it's easy to find a parking space.  hope tomorrow goes well for you.  Fezzy x

Member
Posts: 9
Registered: ‎01-09-2018

Re: November 2018 Radiotherapy

I hope all goes well with your scan.
Take care xx
Member
Posts: 45
Registered: ‎05-06-2018

Re: November 2018 Radiotherapy

Hello everybody
I’ve not been on for a while now and just wanted to check and see how you are all doing.?

I’m on day 8 of Rads and been having good and bad days . Today felt ever so tired after my session that I needed an afternoon nap.

The hospital phoned me early this evening to tell me that the shape of my breast has changed due to the Rads so I need new scans done.

I’m a bit shocked but then I was aware that Rads can cause breast changes. I am starting to experience some pain within and twingesas such.

I need to go into hospital early morning 7.45 am to firstly have my Rads session on the current measurements etc and then have the CT scan done.
I will need to be up early at 6 tomoro to get to the hospital. Not happy Smiley Sad

My breast feels like it’s swollen , not a lot of redness only around the nipple area. Also have a big of itchiness around the breast and nipple area and been told to take antihistimines as well as continue to cream up.

I am feeling anxious and just hope I will be able to successfully complete Rads as I still have got another 2 weeks to go .

Not feeling too happy ..