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November 2018 Radiotherapy

121 REPLIES
Kip
Member

Re: November 2018 Radiotherapy

Well done zzzhu, what a long trip it must have been. How's the skin?
Member

November 2018 Radiotherapy

Hello everyone - just dropping into the forum. I finish my sessions on Tuesday. I like so many others have used Aveeno cream - it has worked well. I am red and very hot but the skin so far seems okay.

My trip to hospital has been very exhausting - 2-3hrs each way.

I have had added complications so my care had to be in central London - the clinic were wonderful and I have had transport every day BUT it is still leaving at 6am and back anytime between 1-2pm. 

Kip
Member

Re: November 2018 Radiotherapy

Thats fab news CyclingSoo... good for you keeping up the exercise... I still walk about 2-3 miles but I ache so much when I stop.

Janey - thanks for the kind words, yes its the children that kept me going, had to be strong for them and still do.   Just wish I didn't ache so much!!

Kip

xx

 

Member

Re: November 2018 Radiotherapy

I know I haven't been on here much, but my radiotherapy was completed mid November. I managed to cycle for all of my sessions, so I was quite pleased. If anything I'm more tired now than I was then, but returned to work 2 weeks ago. Although on phased return not sure how I'm going to cope with 12 hour shifts, so far only done 6 hours!

  I can do 11 mile walks without a problem , so will just have to wait and see I guess! To be honest, I did go into this journey fit and healthy which helped. I was lucky my boob didn't get sore, but I did put plenty of Aveeno cream on.

  Good luck to all of you still going through this.

  I have also been told I'm cancer free.

   

Member

Re: November 2018 Radiotherapy

Well done ladies who have completed radiotherapy. You give us such an uplift

Kip!!! Your children are adorable. The photo brought a tear to my eye. When you get the diagnosis, your children are the first thing that leaps into your mind, and I am sure they are thrilled and proud of you to have completed treatment. Have a wonderful Christmas, Kip, and all you lovely ladies, as we support each other through this.

Jane xx

Member

Re: November 2018 Radiotherapy

well done Kip. I am now just over 3 weeks post radiotherapy so just a quick update. I did get incredibly sore under the breast and on the scar where the boosts were done, but the skin didn't break so I used a barrier cream and carried on with Aveeno twice a day, the itching was horrible but I found calamine lotion helped with this, also Aloe Vera soothed it as well. This week it has all cleared up except for the tan marks were radiotherapy beam hit, but I am feeling much better now. I can also report that the Anastrozole is not causing me many problems, yes I do have some joint pains and hot flushes but I am coping with them so I just hope that I am one of t he lucky ones, I do find that keeping as active as possible helps. Sending very best wishes to all who are still receiving treatment, there really is light at the end of the tunnel.  Fezzy xx

JWD
Member

Re: November 2018 Radiotherapy

Well done kip😍😍🎅
Kip
Member

Re: November 2018 Radiotherapy

I've done it and rung the bell... feeling emotional but happy... good luck to all of you still plodding on.. I'm sending big hugs to you all...xxx Kip

Ringing the Bell2.JPG

Kip
Member

Re: November 2018 Radiotherapy

Janey Glad you have found the masectomy not too bad, me neither, I have found the ANC clearance op harder but the radio has been fine,  no burning or anything yet.  Its a shame you don't finish until after xmas but you'll get there and soon be ringing that bell too.   I have terrible achey joints but I think that may be either chemo or Tamoxifen but in the scheme of things... I can put up with that.

Kip

xx

Community Champion

Re: November 2018 Radiotherapy

Michelle

 

Sorry mate I have only just seen your post from 3 December. 

 

Another milestone passed in that I went back to work last week, only 3 hours a day but it is a start.  I really feel it when I come home and can not help having a nap in the afternoon.  I have not had a problem with the driving however it is only 2 miles each way so not far, also as I have an automatic car I think that makes a difference

 

You will get there my dear honestly, just give yourself the time you will get there honestly xxx.  How is the counselling going?

 

 

Member

Re: November 2018 Radiotherapy

Thanks Kip.

I finish on 10th January. There will be fifteen sessions, but because of Christmas and New Year it is dragging on til then. I was really keen to start earlier as I had healed well from my mastectomy on 31st October, but there was no availability, and I would love to have been finished treatment by the end of the year.

I still have to have Herceptin injections three weekly til around June next year, and I am on tamoxifen. Luckily, I have had no ill effects from Herceptin or tamoxifen, and I am hoping I don't find radiotherapy too bad!

Best wishes for your last radiotherapy tomorrow.Ring that bell!!

Jane xx

Kip
Member

Re: November 2018 Radiotherapy

Ah thanks Jane, ive booked the moving on course to start in February and it sojnds helpful.  You hit the nail on the head with what you said..  irs like being set adrift rwally. The ladies at my Macmillan centre said its very common.  God luck with your rads .when do you finish?

Kip

Xx

Member

Re: November 2018 Radiotherapy

Hi KIp,
I have followed some of your posts on the other threads so I feel I know you quite well! I have just started the first of my radiotherapy sessions today. I had a left mastectomy, so I am hopeful I won't have any rubbing either!
Good luck when you have your lymphodema treatment.Also, I wish you well, in the future. I can imagine I will feel emotional after this stage- you feel like you're on a treadmill, onwards and upwards to the finish line, and then, I imagine, you think, where do I go from here? Maybe you feel less 'safe' as active treatment has finished. I am sure the Moving Forward course will be very beneficial.
Best wishes
Jane xx
Kip
Member

Re: November 2018 Radiotherapy

Hi all, haven't posted on here for a while, just been doing the daily slog to Radiotherapy.  Today is No. 14 of 15... so ringing that bell tomorrow!   So far so good, no soreness, redness or burning... but well aware this may happen in the next couple of weeks.   I think as i had a masectomy with no recon and have just a flat chest there is no boob to rub against the skin so perhaps that helps a bit.. got to be an advantage somewhere to being a lopsided flatty!!   My only SEs at present are horrendous aches and pains from head to foot but the nurses think this could be a SE from the docetaxol chemo or from the Tamoxifen I'm now taking.. or possibly all of them!!   Unforutnately I have developed cording from my ANC and am awaiting an appintment with Lymphodema clinic for some massage and exercise advise but otherwise just trying to get through this week and then some nice rest over Xmas.   Am also feeling tearful at the though of end of treatment..ironic really isn't it as at the beginning couldn't wait for the end of it all.   I'm hoping to attend the Hope Moving Forward course run at my hospital in the new year to help move on.

Take care ladies

Kip

xx

Member

Re: November 2018 Radiotherapy

Thanks Helena, good to hear life has gone back to normal in 2 years. I think Me and my OH are at the stage where we are beginning for the first time to reflect on what has happened. I wish I was 2 years down the line but know you just have to go through it.
Well done on the drive, it must be hard post hysterectomy. It always feels good to pass a milestone x
Community Champion

Re: November 2018 Radiotherapy

Michelle

 

Oh mate I can really assure you that there a light and it is starting to shine brighter fat the end of that tunnel for you now. 

 

Before

ligth before.jpg

 

Now

 

ligth after.jpg

 

I am now 2 years post op and 22 months post rads finishing, life really has gone back to normal but with a greater appreciation about what I have been through and my priorities in life xxx

 

Done an airport run today as mum has flown home, it was quite a journey as it was pouring down the whole way, tired but again another milestone reached as it is a round trip of about 35 miles, which would not have been a problem prior to my hysterectomy!!

 

Sending you hugs

 

Helena xxx

 

 

 

Member

Re: November 2018 Radiotherapy

A night out and talking about normal stuff can do the world of good cant it? It’s good to hear you are getting back to some sort of normality, it’s a good idea to return to work on reduced hours, gradually get back into it. Shows me there is light at the end of this long dark tunnel! X
Community Champion

Re: November 2018 Radiotherapy

Michelle

 

That is good news and is obviously going to help your overall wellbeing. 

 

Yep totally agree still would be worth going to your appointment, at the end of the day mate, if it is not for you, you dont have to go back but you need to find that out first.

 

I am doing really well, I was out last night with a few of the girls from work at one of their homes, it was wonderful, had a late night and didnt get home until midnight, I slept for 7 straight hours which is something I have not done for months so it really did me the world of good.  Had my apt with GP and am returning to work on 11 December albeit on a very reduced hours phased return which I am really looking forward to, I am ready and need to get back into the real world again.

 

xxx

Member

Re: November 2018 Radiotherapy

Hi ladies. So I’m now going braless! I didn’t wear underwire, but after 15 the redness & soreness has just crept up on me. Very itchy and skin ever so slightly raised towards the collar bone, but taking antihistamines which seem to work. My underarm is quite sore because of my protruding bruise where I had axillary clearance so it rubs. I saw the nurse today, she gave me some pads and gel ‘just in case your skin breaks down’ - fingers crossed it doesn’t, but at least I’m prepared! Had a bout of fatigue yesterday, was out of breath walking the dog! But not too bad and muddling through. Glad of this forum so I know what to expect and that everything’s ‘normal’ - 4 more then done!
Member

Re: November 2018 Radiotherapy

Hi Helena
Thanks for asking, I feel like I’ve turned a corner and there is some improvement. They haven’t disappeared but as long as I gel up regularly they seem to be improving.
The tears seemed to have stopped too which is a relief! I actually feel very positive today, although I’m still going to keep my appointment for counselling.
Hope everything is going well with you xx