23-11-2018 03:54 PM
23-11-2018 02:42 PM
Thats a good idea about going again Monday. Have they given you a dressing called polymem as that is supposed to be really good for radiotherapy burns.
Well as you say we go into auto pilot dont we, it must have been so hard for him because he was not able to support me in the usual way, but he always finds ways round things to make life easier for me. In teh same way as he has done with my hysterectomy, I think I have every gadget going to help me, the best one ever is my grabber, I never realised how times I dropped things on the floor until I have not been able to bend to pick them up . Think I will be keeping that one around for a lot longer x
Give the counselling a go and see you might be surprised. I did go the mill a bit with everything that was hiding under the surface but it was lovely to do it in a safe comfortable environment where more than anything I could be honest with myself. I recall the last session which was on the last day of my rads, I actually said to her that I was letting her go now and that I was ready to move forward, she just smiled and gave me a hug,
I am so glad that I have been of some help xxxx
23-11-2018 02:11 PM
23-11-2018 09:52 AM
I didnt have any blisters but the area around my nipple was rather tender for several weeks after, and yes I did experience the stabbing pains for a while. I seem to recall them saying it is eveyrthing settling down again following surgery healing and then it all being agitated by the rads but it will settle in time, everyone is different so it is difficult to say how long it will take. I am nearly two years post rads I very very occasionally get an ache but that is all now. Remember even if they have given you something to help with the blisters you can sstill contact them to see if there is anything else they can suggest.
I recall after finishing my rads bursting into tears, I think it is a mixture of the relief that active treatment is completed, fear because we have been on the cycle of appointments and treatment for a several months, depending on the amount of treatment even longer than that, to be suddenly "thats it" is rather scary. For me the biggest thing was my life not being controlled by that one apt every day for 5 weeks which such a relief.
Have you thought about having some counselling to talk through your feelings with someone who is objective, you can say what you are feeling to them without the worry of upsetting them the way you would be in telling your family and friends. I had counselling just before I start rads as I was feeling scared that I was doing so well I would crash and burn. It is amazing the stuff I was keeping nside me which I was able to let out and she helped me understand so much of it, I am carer for my partner who has MS and is housebound, so there was a lot of anger there as to why this should happen to me. It was very therapeutic.
Sending you hugs
23-11-2018 12:07 AM
22-11-2018 10:29 PM
Sorry you had to have another scan Mavit, that must have been very annoying and frustrating for you. I’m 10/20 so half way now. I started seeing slight pink skin after 7 and thought oh no... but it settled down again, the main pink is just behind my armpit, back of the arm, where the rays are exiting I guess and kinda in the top armpit fold, it’s irritating due to my scar still producing because of the large bruise. I’ve had one episode of fatigue I guess, 7:30pm I crashed, couldn’t keep my eyes open and crawled into bed! I’ve been fine for the last few days though. Drinking loads as soon as I’m in the car (water!), using Aveeno straight after each session and at bed time. Walking with the dog seems to give me an energy boost. Had one emotional wobble on day 5, but fine since then and grateful the sessions are all over very quickly. think what everyone experiences is all very normal, good to hear how others are feeling so it punctuates the normality even more. Take care all. Getting there! Xx
22-11-2018 04:48 PM
hi Mavit I am now on day 17/20 so nearly finished, I am just the same having good and bad days feeling tearful for no particular reason and then absolutely fine again for a few days, fatigue comes and goes as well, it's all very odd. I have had stabbing pains on and off that was round about 9 days in, the boosters I am having now are giving me pain again but it doesn't lasts long. my skin has held up remarkably well, just looks Sun tanned at the moment just hope it continues like this. I have only used Aveeno but put lashings of it on 3 times a day, and kept my fluid intake up, must admit I can't wait to get this over with now it is very tiring and I have had some early appointments, on the plus side at least it's easy to find a parking space. hope tomorrow goes well for you. Fezzy x
21-11-2018 05:47 PM
16-11-2018 06:19 PM
Hi Kim . You sound as though you are just like me! I've certainly been more tearful since finishing RT, but I just let it out. Having said that I don't have any choice on a bad day. The last 2 days have been fine with no tears at all. Good luck and don't bottle it up I'm better after a good cry- alone or anyone around!
16-11-2018 05:13 PM
I think they do a moving forward day, probably in January, so I’ll make sure I get to that. The staff have been good, but the Radiotherapy department is very busy, and the staff don’t have the time, and I don’t think the training to cope with emotional needs. Although the breast care nurses have said that they can be contacted, they’re short staffed, and my impression is that they are busy with new patients, and don’t normally offer support post surgery. I’m happy with my care, but my only criticism is that they don’t do much emotional support, which is fine, but a gap in service provision, and means that if I do need help further on, that will mean going to the GP.
16-11-2018 08:54 AM
Hi Kim, I'm feeling more teary the nearer to the end of treatment I get too. I am hoping to get on a "moving on" course to deal with some of the emmotions, do they offer that at your hospital?
15-11-2018 11:14 PM
Have finished 15 sessions of whole breast Radiotherapy, and had the first of 5 breast boost sessions today, as posterior margin was very narrow. I’m feeling really tired now, my skin is mildly pink, but the 2 surgical scars are really itchy and have got very red. I’m using Aveeno and Aloe Vera Gel which I keep in the fridge. Also advised by the Radiotherapy team to use 1% Hydrocortisone sparingly. It helps, but not for long, has anyone got any other recommendations? I’m looking forward to finishing treatment, but also worried about the emotional effects hitting home then, which seems to be a common experience, just wondering how other people feel after the treatment ends? I’ve had a few tearful days, but mostly bottled it up in order to be able to carry on, which I know isn’t healthy, but I was worried that I wouldn’t cope if I let myself properly cry.
15-11-2018 06:08 PM
Hi Kip. Thank you so much for this. I know I'm not going through nearly as much as you and alot of other ladies. Yesterday was just awful, but today I've been fine and even went to the yoga class with no tears!
This was my 1st time on here so really appreciated your message. I did speak to my Breast Cancer Nurse a couple of weeks ago when out of the blue I burst into tears and she just said it was normal .
Good luck with you radiotherapy. My journey has been very short compared with your's.
15-11-2018 01:47 PM
15-11-2018 12:14 PM
Hi CyclingSoo, sorry to hear you are feeling down. As everyone says it is completely normal to have ups and downs, you wouldn't be human if you didn't. I was diagnosed in April of this year and have had a masectomny , chemo, axillary node clearance and am about to being Rads on 29th November (15 sessions). I have had every emotion known to man and still do. I have days when I am so positive and feel great and then out of the blue I could sit and cry for ever and usually do. I broke down in tears at my plannig session this week, and couldn't really place why, just felt overwhelmed, sick to the back teeth of hospitals and just needed to cry. It does help to let it all out and I am sure your friends don't mind, I regularly sob on my friends shoulders. Do you have Breast Cancer Nurse you can call and talk to? Or a Macmillan centre or similar? We have one attached to Ipswich hopsital and they offer all sorts of counselling, therapies etc and encourage you to take them up as they are used to dealing with this sort of thing. My Rads nurse has told me to seek help after the treatment is finished as you can feell a bit "set adrift and alone" once its all over. There is a course run called "Moving On" which is designed to help you deal with psychology part of this nasty journey. And please don't be afraid to come on these forums and let out how you feel, we have all been there and will be happy to chat.
15-11-2018 08:54 AM
I'm new to this so don't know where to begin! I've just completed a 15 day's of RT for Stage 2 breast cancer with 2 lymph nodes removed, luckily they were OK. I know I'm lucky in alot of respects, but struggling at the moment.
I stayed very strong throughout most of the time since my diagnosis in early August both physically and emotionally. On day 12 last week I became an emotional wreck- couldn't stop crying all day. Then had a few good day's but yesterday was even worse. My treatment finished Monday.
My friends have all been very good, but I feel bad as they phone or visit and I crumble in a heap.
I know everyone keeps saying it normal, but does anyone know how long this is likely to go on for? Also not sure whether it's due to the RT or the Letrozole which I have now been taking for 6 weeks.
Going back to work I'm sure would be good for me, but can't go back whilst I'm like this. I keep myself quite busy most of the time, but not sure what to do about it. Maybe I just need to accept it will go away soon and take each day as it comes.
Coping with the tiredness is OK as I can just have a nap, it's the emotions I'm finding the hardest part at the moment.
Soory about all this.