Member
Posts: 589
Registered: ‎30-03-2018

Re: November 2018 Radiotherapy

Hi Helena, no the dressing is simply that, a sterile non adhesive dressing. It looks like a sanitary towel! The gel is called Intrasite gel, I don’t think either actually help the healing process the gel just keeps it moist and the pad stops my bra rubbing. I will ask about polymem when I go on Monday.
Your husband sounds great, what is it with men and gadgets?! Although the grabber does sound useful!
I have rang the counselling dept, waiting for a call back.
Thanks again for ‘talking’ x
Community Champion
Posts: 9,808
Registered: ‎16-11-2016

Re: November 2018 Radiotherapy

Michelle

 

Thats a good idea about going again Monday.  Have they given you a dressing called polymem as that is supposed to be really good for radiotherapy burns.

 

Well as you say we go into auto pilot dont we, it must have been so hard for him because he was not able to support me in the usual way, but he always finds ways round things to make life easier for me. In teh same way as he has done with my hysterectomy, I think I have every gadget going to help me, the best one ever is my grabber, I never realised how times I dropped things on the floor until I have not been able to bend to pick them up Smiley Happy Smiley Happy. Think I will be keeping that one around for a lot longer x

 

Give the counselling a go and see you might be surprised.  I did go the mill a bit with everything that was hiding under the surface but it was lovely to do it in a safe comfortable environment where more than anything I could be honest with myself.  I recall the last session which was on the last day of my rads, I actually said to her that I was letting her go now and that I was ready to move forward, she just smiled and gave me a hug,

 

I am so glad that I have been of some help xxxx

Member
Posts: 589
Registered: ‎30-03-2018

Re: November 2018 Radiotherapy

Hi Helena
Thank you so much for your thoughtful response. I went to the unit on Monday and ifnit is no better I think I will go again on Monday. Two new blisters today.
You must have had a lot on your plate caring for your partner as well as coping with BC. I think we can go into auto pilot and deal with the immediate bit like you say there is a lot bubbling under the service waiting to rear up. I have been given a referral for counselling, I wasn’t going to contact them but having read your reply I think you are right it could be a big help.
Once again thank you for your reply, it’s very much appreciated x
Community Champion
Posts: 9,808
Registered: ‎16-11-2016

Re: November 2018 Radiotherapy

Michelle

 

I didnt have any blisters but the area around my nipple was rather tender for several weeks after, and yes I did experience the stabbing pains for a while.  I seem to recall them saying it is eveyrthing settling down again following surgery healing and then it all being agitated by the rads but it will settle in time, everyone is different so it is difficult to say how long it will take.  I am nearly two years post rads I very very occasionally get an ache but that is all now.  Remember even if they have given you something to help with the blisters you can sstill contact them to see if there is anything else they can suggest.

 

I recall after finishing my rads bursting into tears, I think it is a mixture of the relief that active treatment is completed, fear because we have been on the cycle of appointments and treatment for a several months, depending on the amount of treatment even longer than that, to be suddenly "thats it" is rather scary.  For me the biggest thing was my life not being controlled by that one apt every day for 5 weeks which such a relief.

 

Have you thought about having some counselling to talk through your feelings with someone who is objective, you can say what you are feeling to them without the worry of upsetting them the way you would be in telling your family and friends.  I had counselling just before I start rads as I was feeling scared that I was doing so well I would crash and burn.  It is amazing the stuff I was keeping nside me which I was able to let out and she helped me understand so much of it, I am carer for my partner who has MS and is housebound, so there was a lot of anger there as to why this should happen to me.  It was very therapeutic.

 

Sending you hugs

 

Helena xxx

 

Highlighted
Member
Posts: 589
Registered: ‎30-03-2018

Re: November 2018 Radiotherapy

Helllo
I finished 20 RT sessions last Wednesday and since finishing my skin has erupted in blisters on the under side of my breast, 48 and two kids I’m not as pert as I once was! So when the skin touches the skin it is really sore. I have been back to the unit and they have been very helpful giving me non adhesive dressings and some gel to put on the raw skin. I noticed someone mentioned stabbing pains which I also have. I was wondering if anyone else has been through this and how long it lasted. Each day a new blister seems to appear.
I also notice a few of you have found you’ve been emotional during rads, I have found that too, In fact I found the whole Rt experience quite depressing. Now they have finished I still feel very up and down. I feel like I have been on high alert during 8 months of gruelling treatment and only now am I stopping and trying to take in what has happened.
All advice welcome x
Member
Posts: 9
Registered: ‎12-09-2018

Re: November 2018 Radiotherapy

Sorry you had to have another scan Mavit, that must have been very annoying and frustrating for you. I’m 10/20 so half way now. I started seeing slight pink skin after 7 and thought oh no... but it settled down again, the main pink is just behind my armpit, back of the arm, where the rays are exiting I guess and kinda in the top armpit fold, it’s irritating due to my scar still producing because of the large bruise. I’ve had one episode of fatigue I guess, 7:30pm I crashed, couldn’t keep my eyes open and crawled into bed! I’ve been fine for the last few days though. Drinking loads as soon as I’m in the car (water!), using Aveeno straight after each session and at bed time. Walking with the dog seems to give me an energy boost. Had one emotional wobble on day 5, but fine since then and grateful the sessions are all over very quickly.  think what everyone experiences is all very normal, good to hear how others are feeling so it punctuates the normality even more. Take care all. Getting there! Xx 

Member
Posts: 56
Registered: ‎05-09-2018

Re: November 2018 Radiotherapy

hi Mavit I am now on day 17/20 so nearly finished, I am just the same having good and bad days feeling tearful for no particular reason and  then absolutely fine again for a few days, fatigue comes and goes as well, it's all very odd. I have had stabbing pains on and off that was round about 9 days in, the boosters I am having now are giving me pain again but it doesn't lasts long. my skin has held up remarkably well, just looks Sun tanned at the moment just hope it continues like this. I have only used Aveeno but put lashings of it on 3 times a day, and kept my fluid  intake up, must admit I can't wait to get this over with now it is very tiring and I have had some early appointments, on the plus side at least it's easy to find a parking space.  hope tomorrow goes well for you.  Fezzy x

Member
Posts: 9
Registered: ‎01-09-2018

Re: November 2018 Radiotherapy

I hope all goes well with your scan.
Take care xx
Member
Posts: 45
Registered: ‎05-06-2018

Re: November 2018 Radiotherapy

Hello everybody
I’ve not been on for a while now and just wanted to check and see how you are all doing.?

I’m on day 8 of Rads and been having good and bad days . Today felt ever so tired after my session that I needed an afternoon nap.

The hospital phoned me early this evening to tell me that the shape of my breast has changed due to the Rads so I need new scans done.

I’m a bit shocked but then I was aware that Rads can cause breast changes. I am starting to experience some pain within and twingesas such.

I need to go into hospital early morning 7.45 am to firstly have my Rads session on the current measurements etc and then have the CT scan done.
I will need to be up early at 6 tomoro to get to the hospital. Not happy Smiley Sad

My breast feels like it’s swollen , not a lot of redness only around the nipple area. Also have a big of itchiness around the breast and nipple area and been told to take antihistimines as well as continue to cream up.

I am feeling anxious and just hope I will be able to successfully complete Rads as I still have got another 2 weeks to go .

Not feeling too happy ..

Member
Posts: 5
Registered: ‎14-11-2018

Re: November 2018 Radiotherapy

Hi Kim . You sound as though you are just like me! I've certainly been more tearful since finishing RT, but I just let it out. Having said that I don't have any choice on a bad day. The last 2 days have been fine with no tears at all. Good luck and don't bottle it up I'm better after a good cry- alone or anyone around!

Member
Posts: 5
Registered: ‎04-11-2018

Re: November 2018 Radiotherapy

I think they do a moving forward day, probably in January, so I’ll make sure I get to that. The staff have been good, but the Radiotherapy department is very busy, and the staff don’t have the time, and I don’t think the training to cope with emotional needs. Although the breast care nurses have said that they can be contacted, they’re short staffed, and my impression is that they are busy with new patients, and don’t normally offer support post surgery. I’m happy with my care, but my only criticism is that they don’t do much emotional support, which is fine, but a gap in service provision, and means that if I do need help further on, that will mean going to the GP.

Kip
Member
Posts: 903
Registered: ‎27-04-2018

Re: November 2018 Radiotherapy

Hi Kim,  I'm feeling more teary the nearer to the end of treatment I get too.  I am hoping to get on a "moving on" course to deal with some of the emmotions, do they offer that at your hospital?

Kip

x

Member
Posts: 5
Registered: ‎04-11-2018

Re: November 2018 Radiotherapy

Have finished 15 sessions of whole breast Radiotherapy, and had the first of 5 breast boost sessions today, as posterior margin was very narrow. I’m feeling really tired now, my skin is mildly pink, but the 2 surgical scars are really itchy and have got very red. I’m using Aveeno and Aloe Vera Gel which I keep in the fridge. Also advised by the Radiotherapy team to use 1% Hydrocortisone sparingly. It helps, but not for long, has anyone got any other recommendations? I’m looking forward to finishing treatment, but also worried about the emotional effects hitting home then, which seems to be a common experience, just wondering how other people feel after the treatment ends? I’ve had a few tearful days, but mostly bottled it up in order to be able to carry on, which I know isn’t healthy, but I was worried that I wouldn’t cope if I let myself properly cry.

Member
Posts: 5
Registered: ‎14-11-2018

Re: November 2018 Radiotherapy

Hi Kip. Thank you so much for this. I know I'm not going through nearly as much as you and alot of other ladies. Yesterday was just awful, but today I've been fine and even went to the yoga class with no tears!

  This was my 1st time on here so really appreciated your message. I did speak to my Breast Cancer Nurse a couple of weeks ago when out of the blue I burst into tears and she just said it was normal . 

  Good luck with you radiotherapy. My journey has been very short compared with your's.

    Thanks again.

        CyclingSoo

Kip
Member
Posts: 903
Registered: ‎27-04-2018

Re: November 2018 Radiotherapy

Aveeno it is then!  Thanks everyone

Member
Posts: 56
Registered: ‎05-09-2018

Re: November 2018 Radiotherapy

hi Kip I am now on day 12 of 20 and have only used Aveeno just a small amount of redness today but I suppose it does depend on your skin type.  good luck Fezzy x

Member
Posts: 45
Registered: ‎05-06-2018

Re: November 2018 Radiotherapy

Hello Kip
I’m on day 4 and been using Aveeno daily moisturizing. I seem to be doing well and not applying too much cream to skin - I seem to be doing fine under Rads as I don’t feel any pain / burn or sensation . Perhaps it’s early days for me .

I haven’t used any other cream other than Aveeno so interested to know others views on this
Kip
Member
Posts: 903
Registered: ‎27-04-2018

Re: November 2018 Radiotherapy

Rads ladies - what kind of creams are you using?  My rads nurse suggested Aveeno?

Kip

x

Kip
Member
Posts: 903
Registered: ‎27-04-2018

Re: November 2018 Radiotherapy

Hi CyclingSoo, sorry to hear you are feeling down.  As everyone says it is completely normal to have ups and downs, you wouldn't be human if you didn't.  I was diagnosed in April of this year and have had a masectomny , chemo, axillary node clearance and am about to being Rads on 29th November (15 sessions).  I have had every emotion known to man and still do.  I have days when I am so positive and feel great and then out of the blue I could sit and cry for ever and usually do.  I broke down in tears at my plannig session this week, and couldn't really place why, just felt overwhelmed, sick to the back teeth of hospitals and just needed to cry.  It does help to let it all out and I am sure your friends don't mind, I regularly sob on my friends shoulders.   Do you have Breast Cancer Nurse you can call and talk to?  Or a Macmillan centre or similar?  We have one attached to Ipswich hopsital and they offer all sorts of counselling, therapies etc and encourage you to take them up as they are used to dealing with this sort of thing.  My Rads nurse has told me to seek help after the treatment is finished as you can feell a bit "set adrift and alone" once its all over.   There is a course run called "Moving On" which is designed to help you deal with psychology part of this nasty journey.  And please don't be afraid to come on these forums and let out how you feel, we have all been there and will be happy to chat.

Take care

Kip

xx

Member
Posts: 5
Registered: ‎14-11-2018

Re: November 2018 Radiotherapy

 I'm new to this so don't know where to begin! I've just completed a 15 day's of RT for Stage 2 breast cancer with 2 lymph nodes removed, luckily they were OK. I know I'm lucky in alot of respects, but struggling at the moment.

 I stayed very strong throughout most of the time since my diagnosis in early August both physically and emotionally. On day 12 last week I became an emotional wreck- couldn't stop crying all day. Then had a few good day's but yesterday was even worse. My treatment finished Monday.

  My friends have all been very good, but I feel bad as they phone or visit and I crumble in a heap. 

  I know everyone keeps saying it normal, but does anyone know how long this is likely to go on for? Also not sure whether it's due to the RT or the Letrozole which I have now been taking for 6 weeks. 

  Going back to work I'm sure would be good for me, but can't go back whilst I'm like this. I keep myself quite busy most of the time, but not sure what to do about it. Maybe I just need to accept it will go away soon and take each day as it comes.

  Coping with the tiredness is OK as I can just have a nap, it's the emotions I'm finding the hardest part at the moment.

  Soory about all  this.