Member
Posts: 56
Registered: ‎05-09-2018

Re: November 2018 Radiotherapy

hi ladies just a quick update I am on day 11 of 20.  In the last day or so I have been having sharp pains in my breast a bit like after surgery, doesn't last very long so not too bad, skin is fine at the moment just looks a bit Sun tanned. Had a wobble today, very tearful for no particular reason, could be Anastrozole effects or just the constant getting stuck in traffic jams getting to hospital every day, but I just think I am nearer to finishing than starting now so onwards and upwards, hope everyone is doing ok, best wishes to you all.   Fezzy x

Member
Posts: 45
Registered: ‎05-06-2018

Re: November 2018 Radiotherapy

Hi LJ, yes I live in Swindon and doing the daily run to Oxford Churchill. My appointments have been late morning / early afternoon varies during he week. I’m on day 3 and aooointment is 1.35 pm so I’ll need to set off around 12.15 . Leave enough time to find parking space - was actually lucky yesterday I found one ! Amazing !

I was planning dropping into Maggie’s Center today which is across the road from the hospital and familiarize myself with the drop in center

My last Rads session is 7 Dec . I’m on day 3 and already feel fatigue slowly kicking in and I’m keeping myself well hydrated .. I don’t have any pain or sensation in area being treated however that may change as I progress further into my treatment.

I hope it all goes ok for you - keep us updated . . At least you’ve got a few weeks to prepare etc .

Xx
LJ
Member
Posts: 61
Registered: ‎12-06-2018

Re: November 2018 Radiotherapy

Just checking in here to see how everyone is doing. I start on 26 November, so I shall be going once most of you have stopped I think and with 20 sessions I go up to 21 December. I shall also lurk on the December thread when it's up. 

 

Mavit - I'm also going to Oxford, for me because there's no unit in Swindon, is that the same for you?  I'm dreading the parking too. My first two weeks are morning appointments, the second two at lunchtime, so just when I've got used to how hard it is to find a space I'll have new times to wrestle with. 

 

LJ

Member
Posts: 45
Registered: ‎05-06-2018

Re: November 2018 Radiotherapy

Evening ladies , I had my first Rads session this morning and pleased to say that everything went ok. I got to hospital some 33 miles away in plenty of time however hospital parking is a nightmare ! Ended up having to find on the road parking.

I was shown by receptionist how to use their online booking system which I will need to do on each visit and then head straight to the treatment waiting area where i will be called .

I was surprised how quickly they treated me , from having a brief chat with radiologist and then escorted into the radiology room . They spent a good 10 mins or so positioning me on the bed and taking digital images and then once that was completed started radiotherapy which last a few minutes.

I didn’t feel any burning or sensation whilst under .
Once completed, I slapped on Aveeno cream and got dressed and left.

I must admit I felt really tired after the treatment and then had to drive home.

When I got home, got into my PJs - had a nap . Will be off to bed soon as need to do it all over again tomorrow. My appointment tomoro is early afternoon so I can set off a bit later .. hopefully I’ll get the hang of it as it will become my daily routine,

Just hope that any side effects I experience will be towards the end of the treatment, so far all good.

Hope your all doing good xx
Member
Posts: 9
Registered: ‎12-09-2018

Re: November 2018 Radiotherapy

Hi everyone, just checking in again, great to hear how you’re all doing. #5 tomorrow. Still feeling a bit chilly in the room, I was told I could bring a jumper to pop over the top of my legs which I did, but I chose my lovely thick fleece which was too big and prevented the camera from spying on my breathing block - so, thin fleece today, worked well, everyone happy.

 

I have found that the arm on the axillary clearance side is getting pretty numb towards the end of the session and needs a good rub and flex afterwards. Good news is that because my deep inspiration breath hold is so consistent, I only have to have X-rays during sessions once a week so it’s much quicker.

 

Most stressful thing so far is trying to get a parking space, I arrived an hour early just to be sure as I was driving myself today! Skin ok, using Aveeno twice daily, drinking minimum 2.5ltrs fluids. Day off on Wednesday, going to do something nice or treat myself to something I think! 

Kip
Member
Posts: 908
Registered: ‎27-04-2018

Re: November 2018 Radiotherapy

Hello Ladies,

I am having my planning session tomorrow at which I am hoping to get the plan for my 3 weeks of sessions.  I am hoping to finish by Christmas but have been told it may run over... am hoping that I am not juggling cooking the turkey and a visit to hospital.. surely they don't run over Xmas?   I've been reading all your posts and getting tips, am kind of looking forward to getting started but also apprehensive too.  I will be stocking up on Aveeno too, I already use it but will need a shed load more I think.

P.S.   just for info... I had MX in June (no recon), 6 x chemo and then ANC clearance 3 weeks ago so this will be the last leg (hopefully)...

Kip

xx

Member
Posts: 7
Registered: ‎04-04-2018

Re: November 2018 Radiotherapy

Hi all, I have had my first 3 sessions of radiotherapy now. Getting quite good at the breath holding and can do 20 seconds with no bother. So far no skin issues but its early days i know. Compared to chemo this is so far not as bad.... fingers crossed it continues. **currently smothering in aveeno**

 

Member
Posts: 11
Registered: ‎26-08-2018

Re: November 2018 Radiotherapy

Hello ladies

So have had my first 2 sessions, on Thursday and Friday. The team are lovely, efficient and professional, makes it easier to bear. I sense the 80 mile round trip will fast become a bore however needs must. No side effects although I understand they are more common towards the end of treatment. Have been given an emollient called Zerobase by the radiotherapy team to moisturise my breast before bed and after showering in the morning. 21 treatments left including 8 boosters to the tumour bed. Otherwise I seem to be spending a lot of my time reading, Pinterest-ing and watching Netflix, getting outside when the notion takes me. Is anyone else not working at the moment?

Nicola xx

Member
Posts: 11
Registered: ‎26-08-2018

Re: November 2018 Radiotherapy

Hello ladies

So have had my first 2 sessions, on Thursday and Friday. The team are lovely, efficient and professional, makes it easier to bear. I sense the 80 mile round trip will fast become a bore however needs must. No side effects although I understand they are more common towards the end of treatment. Have been given an emollient called Zerobase by the radiotherapy team to moisturise my breast before bed and after showering in the morning. 21 treatments left including 8 boosters to the tumour bed. Otherwise I seem to be spending a lot of my time reading, Pinterest-ing and watching Netflix, getting outside when the notion takes me. Is anyone else not working at the moment?

Nicola xx

Member
Posts: 9
Registered: ‎12-10-2018

Re: November 2018 Radiotherapy

Hope you are all doing ok. I have had 3 sessions so I am counting down and 12 to go for me. Feel ok so far but got quite emotional on day 2. My appointments are all about 4pm or later so spend so much time in traffic jams for rush hour on way home. I won't ask them to change the appointments though, someone has to do the later times. They have already been very good and changed one appointment for me so that I can attend stepfather's funeral.

I am doing the breath holding technique which is quite daunting but managing ok so far. I have started coughing a lot today though, not sure if that is a side effect or whether I am catching hubby's chest infection.

I have been told to use Aveeno to moisturise but someone else suggested Bio Oil as well. Sending love and hugs to all of you 💕💕

JWD
Member
Posts: 194
Registered: ‎24-07-2018

Re: November 2018 Radiotherapy

Hi fezzy didn't know you had to have extra 5 but I'm sure the time will go quick for you. Maybe you do need more fluids to compensate for your other problems you have to cope with. I think your a star coping with everything else too👏👏 you will soon be ringing that bell.. take care xxx
Member
Posts: 56
Registered: ‎05-09-2018

Re: November 2018 Radiotherapy

Thanks for replying JWD it is possible that I should be drinking more water, I do have to drink water regularly throughout the day anyway because I have an ileostomy and need to stay hydrated but because of rads  I maybe should be drinking more to compensate, unfortunately I am not quite half way through as I have got 5 boosters as well, thank you for your support its much appreciated.   Fezzy x

JWD
Member
Posts: 194
Registered: ‎24-07-2018

Re: November 2018 Radiotherapy

Hi fezzy are you drinking plenty of water as I found that helped me a lot.. I'm 2 weeks post rads and I'm still drinking plenty of water and moisturising the same as when I was having treatment. Your half way through now you will do this💪💪💕 x x
Highlighted
Member
Posts: 56
Registered: ‎05-09-2018

Re: November 2018 Radiotherapy

Hi all hope everything is going well. I am day 8 today and I can honestly say I have never felt fatigue like it, even having a shower wears me out, my skin is fine at the moment, a bit of discomfort in my breast. Has any one else experienced this level of fatigue, I am going for a walk most days even though I feel like collapsing in a chair. best wishes to all Fezzy x

Member
Posts: 7
Registered: ‎04-04-2018

Re: November 2018 Radiotherapy

Thanks for replying. its so scary knowing whether they have seen something new on the CT ( i had to sign a disclaimeer to say the ct wasnt going to be formally reported by the radiologist, but was just for the oncolgist to plan treatment) but oviously have a call to say the plan has changed makes me worried they saw something they arent officially mentioning as it hasnt been reported. I start on wenesday the 7th too, bring it on XXXXXX

 

Community Champion
Posts: 9,808
Registered: ‎16-11-2016

Re: November 2018 Radiotherapy

Moonwing

 

I had 20 sessions of rads over 5 weeks and to be honest other than a bit of redening and a sensitive area around my nipple I was absolutely fine, not everyone has any or all of the side effects from rads and your team will be keeping a close eye on you, if you are concerned about anything mention it to them at your appointment so that they are aware and can give you reassurance.

 

Well you are now a third of the way through so it will not be long before you are waving them goodbye for the last time.

 

Helena xxx

Member
Posts: 4
Registered: ‎11-09-2018

Re: November 2018 Radiotherapy

Hi everyone

 

My first five days of radiotherapy are over and two more weeks to go - ending on 16th November.  So far so good, but I am dreading getting sore - which seems to be common.  It's been ok so far - I've got a friend driving me, so I'm not getting too tired.  And my appointments are all at the same time, and I usually get seen on time.Can't wait for all to be over though, and move on with my life!!!!

Member
Posts: 5
Registered: ‎04-11-2018

Re: November 2018 Radiotherapy

I’m so sorry to hear about your husband JWD, life’s just rubbish sometimes isn’t it. I hope things get better for you both soon. We don’t currently have a Maggies Centre, but I think one is in the planning stage at my Radiotherapy Centre and they have a Macmillan information centre. I have two friends who have been through breast cancer treatment, and one is coming with me next week to one session. It’s great to have their support, but equally I’m concerned that inadvertently supporting me might be upsetting for them, and bring back bad memories for them. Thanks everyone for your support, it really does help.
Member
Posts: 143
Registered: ‎09-05-2018

Re: November 2018 Radiotherapy

Talking of councilling, I start my HOPE course tomorrow. This was organised for me through the MacMillan centre at my hospital and my BCN.
Sp many people say how well I look and how well I've done to come through everything these past 6 months, but its the stuff inside my head that now needs fixing and thats the bit no-one sees.
If the help and support is there and its offered, take it xxxxxx
JWD
Member
Posts: 194
Registered: ‎24-07-2018

Re: November 2018 Radiotherapy

Hi Kim. I totally understand how hard all of this is for you. My husband just been diagnosed with secondary oesophageal cancer. I finished rads last week he started palliative chemo the day after and his not coping very well with side effects. I too get fed of people saying your so strong and don't know how you cope. They all mean well and care but we don't have a choice in the card life deals us..we have to cope and it's not easy. It must me awful for you with the added stress of losing your mom. Life is so cruel. I hope you get through rads and hope your hubby gets well too. I think counselling seems a good idea and I too maybe looking into it in the near future.. sending you strength love and hugs xxx Jo ❤