31-10-2018 01:23 PM
28-10-2018 09:05 PM - edited 28-10-2018 09:08 PM
Hello everyone - just dropping into the forum. I finish my sessions on Tuesday. I like so many others have used Aveeno cream - it has worked well. I am red and very hot but the skin so far seems okay.
My trip to hospital has been very exhausting - 2-3hrs each way.
I have had added complications so my care had to be in central London - the clinic were wonderful and I have had transport every day BUT it is still leaving at 6am and back anytime between 1-2pm.
Needless to say I have managed to do very little in this 3 week period.
It is weird also to be feelign anxious that treatment is about to end - the hospital has become a second home to me - I have asked about getting pychological help and will get an update Tuesday.
To everyone starting in November - I send all the best to you to soldier through and if in doubt - ask on here or ask at the clinic - the staff are wonderful.
27-10-2018 10:16 PM
Just wanted to welcome you to the thread where I am sure you will get loads of help and support from the ladies on here who are currently undergoind rads or about to start as you are.
Ask any questions you want and I am sure one of us will be able to help you.
27-10-2018 09:11 PM
My radiotherapy starts on 8th November and have 23 sessions in all, finishing 10th December. Relieved that this next stage of treatment is just around the corner as surgery (WLE & SNB) was 28th August. Got my 3 tattoos at my planning session a week and a half ago and all the “bumf” so am good to go 😊. The journey to the hospital is the only bit that’s daunting to be honest as it’s it’s an 80 mile round trip. But hey-ho, not much I can do about it!
Good luck to you all, may our rads go quickly and uneventfully 😊.
27-10-2018 05:33 PM
Love the name
Just wanted to welcome you to the thread, you will get loads of support here from the lovely ladies who are a bit further on from you and those who are just starting.
I had the same 15 regular and 5 boosters, the boosters are a lot shorter in time
27-10-2018 04:04 PM
Hello everyone. I start radiotherapy on 9th November, 3 weeks plus a booster week. I’ve had to wait for my underarm seroma to get smaller (now a haematoma) so I’m actually delighted (odd word to use I know!) to be starting as I had my surgery the very beginning of August.
I had my planning session yesterday. It took a bit longer as for some reason they couldn’t get the board that tracks your breathing to sit properly on my torso. A few of them had a go, apparently because I’m petite on the top and my breathing isn’t that obvious! Because I was on the scanner table for so long I got very, very cold and was shaking so they gave me a 20 minute break to go get a hot drink and warm up. I ran up and down the stairs a few times, I also waved my arms about a lot as the arm that had the axillary clearance had gone completely numb, the other arm was just a bit stiff (must have looked a bit mad). Anyway, we got back on with it and I managed the deep breathing to hold my breath ok. At least I know the radiotherapy sessions will be swift!
With regards to the skin, I currently use Aveeno, cream and post shower spray. From what I’ve read it seems everyone has had slightly different experiences, but glad I have lots of backup solutions to try from all the geat posts other people have made should I need it. I’m 45 mins from Oxford, on Fridays and the weekend my husband has said he will drive me, the other 2 days I’ll drive myself... well that’s the plan!
Good of luck everyone xx
27-10-2018 01:21 PM
27-10-2018 11:35 AM
Hello all, just popping in to say hello to everyone else starting or undergoing radiotherapy treatment in November. My sessions start 7 November and I am quite apprehensive but I'm sure it will be ok. 45 minute journey each way but hoping it will not be too bad. All will be over by Christmas anyway 😊
25-10-2018 10:42 PM
Lovely to hear from you Lilacmoon and that you are doing well, I am getting a bit apprehensive about the rads but sure I will be fine when the first one is over with. my sister has just rung the bell (she was diagnosed a month before me with DCIS )so has given me an in site as to what happens, I will take the advise to take painkillers beforehand after my back went into spasm during planning and couldn't get off the bed without help, hope that doesn't happen again. It is a bit daunting to think about having to make the journey 20 times but I suppose it will become routine after a while. Fezzy x
25-10-2018 09:10 PM
25-10-2018 01:03 PM
There is a form that you will need to complete, then the GP signs it, it then gets sent off and about a week later you will get your medical exemption card which is valid for 5 years, or up til you are 60 when you get free prescriptions anyway. I only had mine for 18 months as I was then 60 xx
25-10-2018 12:18 PM
hi Mavit don't know if this helps but I have been getting Aveeno from Morrison's its been on offer for a few weeks at half price still £4 but not too bad so I have been stocking up, don't know how long this offer is on for or if it's in every store. Fezzy x
25-10-2018 10:51 AM
25-10-2018 09:49 AM
just a thought are you going to be on hormone blocking tablets? If so you are entitled to free prescriptions for the time that you are taking them and that includes any other medications you might require during that time regardless if it is related to your bc or not. Perhaps you could get your GP to do a prescription for the Aveeno.
25-10-2018 09:47 AM
That is totally natural to have those worries, however I can assure you that with time it does get easier, I no longer go to sleep or wake up thinking about it. I am two years post surgery and nearly 20 months post rads.
That is a long journey to undertake each day, I can certainly understand why your team have suggested as they have. It might be a good idea to discuss this with your employer to see if there is any way that you can work from home or that your GP signs you off for the time that you are having the rads, but if you do remember if you do work from home you should only do your phased return hours even when you are at home
Sending you hugs
24-10-2018 09:14 PM
24-10-2018 09:09 PM
24-10-2018 08:16 PM
hi Sooty I am starting rads on 31st and have been using E45 or Aveeno which I will continue during rads, my sister who has just finished her rads (we were diagnosed within a month of each other) used Aloe Vera but not all radiologists advise this, but she was also given cream to use by the hospital. Best wishes Fezzy x
24-10-2018 06:59 PM