cancel
Showing results for 
Search instead for 
Did you mean: 

May 2018 Radiotherapy

Member

Re: May 2018 Radiotherapy

Hi Andi

 

You're right because I am always hard on myself. I always try to run before I can walk and do everything at 100 miles an hour. I think it's the first time I've "given in/ admitted" that it is time I asked for help during this period. I think ( in my experience anyway) that people think once you've finished rads you're fine and back to normal. As I mentioned before this is when it hit me. It has also been mentioned to me-stop feeling sorry for yourself! That did wonders for my health and confidence! 

I was wondering regarding your counselling is this involving Mindfulness? 

 

Julie xx

 

Community Champion

Re: May 2018 Radiotherapy

Vonne

 

Sorry that your day has been so frustrating but I absolutely love your latter part of it and its positivity. Yes thank goodness for routine screening xx

 

Sending you loads of hugs

 

Helena xxxx

Member

Re: May 2018 Radiotherapy

Hi May Ladies

I finished my rads on 4/5/18 but am still a regular on the forum.
For me the forum is still my support network even though active treatment has finished.

Vonne
You make me smile. I love your wry angle on the whole bc business. I too had back pain through the last week of rads. I have back problems anyway but think the stretched out position on the rads bed just made it worse. I should have been relaxing into position but seemed to hold myself quite taught, clinging on to the handles we have to clasp above our heads. Thankfully the pain has now subsided.

Handbag/Julie
Totally agree with your comments. .. we are so wrapped up in the conveyor belt of treatment that we don't anticipate the feelings at the end. We have a goal and keep moving forward, but the end of it all is a weird mixture of emotions.
I had a day of sobbing one week after treatment finished, but I feel more stable now.
Having something to focus on in the near future is useful.
I have also started a few counselling sessions and these have helped enormously.

Emotions yes,are up and down but ladies don't be too hard on yourselves. Just look at what you have achieved so far.

Good luck to all of you, hope everything goes smoothly.
Andi xx
Member

Re: May 2018 Radiotherapy

Handbagaddict, I've had the 'run over by a bus' scenario said to me so many times now that I'm beginning to think I'd better try and avoid them! Smiley Happy

I know what you mean about being in a cocoon, I've had regular hospital appointments during chemo and now during rads and then it will be trying to get back to 'normal' life.

I've been offered counselling by Macmillan. I didn't feel I needed it during chemo or now through rads, but I'm going to have some once I've finished because I think I might find it difficult then and people will all think I'm fine x

Member

Re: May 2018 Radiotherapy

I have a blue boob too, like was said here,  I'm so used to it now that It's become part of my norm & don't think about it anymore.  There's  def a blue boob club going on 😀Xxx

Member

Re: May 2018 Radiotherapy

Oh Vonne, what a day! Sorry it was such a nightmare but glad you can still be positive at the end of it all!

you have to laugh at the blue palm matching the boob! 

Hope today is better! Xx

Member

Re: May 2018 Radiotherapy

Thought for the Day...

 

Yesterday excelled itself! 🤪🤪🤪🤪🤪

 

Because of traffic complications and lack of hospital parking I took the train instead of the car but various problems developed there too, so I was on 6 trains in total and the whole thing took 8 hours!!!!! All for the 15 minutes radiotherapy appointment! Got back to my local train station where they had just painted a handrail, so I now have a blue palm! Then the heavens opened and I got soaked in the 10 minute walk to the car! 🤨

 

At least I was getting a massage from a friend when I got back?  Hmmm...even that had problems, because very stupidly I put large white hospital bandages over the scars so she wouldn’t see them, (still very self conscious about them) but my skin started to peel when I took them off! 😬 Ouch! 😯

 

But...at least I could relax the rest of the evening and soak in the bath? No chance! Some of my extended  family decided to offload their problems on the phone to me one after the other and it was 10.30 pm when I could get peace! Went to bed and have now been awake for over an hour in pain! 

 

What a brilliant day! 

 

However...all is well...because...

 

I’m alive! 

 

I’m having radiotherapy!

 

I’m grateful they caught BC at screening before it got any worse and am mindful that the day could have been a much more somber one, tomorrow is a wonderful new day with lots of fresh challenges to explore! 

 

 

 

Dramjo, the blue breast and blue palm are almost the same shade! I’ve scrubbed my hand but it needs paint remover, pity it wouldn’t work removing the blue dye too! 😂😂😂😂😂

 

 

 

 

Member

Re: May 2018 Radiotherapy

@handbagaddict the funny thing is, the blue boob has become the new normal! Don’t even notice now 😂. 

Member

Re: May 2018 Radiotherapy

I hadn't really thought about how i would feel after my treatment finishes until this past weekend whilst sitting in the garden.  I feel like I'm in a little cocoon at the moment with a daily routine of rad treatment and boob maintenance and then everything else is secondary.  I think the thought of recurrence and potential long term damage caused by the rads made me suddenly realise that i might not actually live as long overall as I had originally thought I might and actually that's going to take me a while to get my head around.  Albeit I do also realise that in all likelihood, I will be fine...and there's probably a higher probability of being run over by a bus......or something like that.  I think what I'm trying to say, is that its easy to just be focused on getting through the treatment without actually thinking about coping with the aftermath.

 

On a more cheery note though.... @ Vonne ......you had me giggling about blue boobs!  I thought I might be the only one still suffering but clearly not!  This could well turn out to be a new form of 'free mason style handshake'.... you know.....you're in a secret club and the only way to identify one another is to somehow display a part of your blue boob...  Could it catch on.....???

 

@ F - sorry to hear about your blisters and soreness.  Hope you manage to get hold of something that can soothe the discomfort.

 

 

Member

Re: May 2018 Radiotherapy

Hi F

That's exactly how I felt after my radiotherapy-as if I was abandoned and hit a brick wall. My Oncologist is also arranging Counselling for me at my local Cancer hospital. I went to my first Moving Forward Course "class" and there were a couple of blips- eg slides not working but the volunteers there were very good/nice. Then we had a discussion on nutrition. I haven't been since due to illness and now as I mentioned before think have a tooth abscess so off to the Dentist later.

 

Maybe it would be an idea to ring the number given to ask advice? Sorry I couldn't help anymore.

I also found the travelling took a long time for my course. A trip would usually take 20 minutes took 2 hours due to the work traffic etc.

 

Juliewulie xx

Member

Re: May 2018 Radiotherapy

Hi Vonne,

My hospital offers free complimentary treatments such as hand/ foot massage. Have you been offered anything like this? It might make you feel a bit more relaxed? 

Jo xx

Member

Re: May 2018 Radiotherapy

Hi Sunflower,

yes, as the others have said it will be 15 in total. I also had Bank holiday Monday off. It is nice to have a lazy start to the day 😊

It has all gone very smoothly, and you will find you will quickly get into the swing of things.

Have a good day ladies! Xxxx

Member

Re: May 2018 Radiotherapy

Ah F!

 

Your redness and blistering sound awfully sore, are you getting something for that?

How many more treatments do you need? 

Apart from pinkness and itchiness right now I’m fine. 

 

The infantilising sounds perfectly reasonable and makes sense...I always used to be in control of my emotions until BC, but even more so now since the rads.

Now to solve the rest of it!!!

 

Thanks 

 

Highlighted
Member

Re: May 2018 Radiotherapy

Hi Juliewulie

 

I’m  also interested in the Moving Forward Course as  I suspect that  I shall feel as if I have been cast adrift when my treatment ends. Any reviews of the course would be welcome. 

 

Thanks very much

 

F

Member

Re: May 2018 Radiotherapy

HiVonne

 

I’m finding I get more emotional too and little things get to me more than they used too. I definitely think it’s the treatment. In a way it is infantilising as you are not in control, the medics are. Maybe we will all turn into toddlers with tantrums! I’m also reacting badly to the zaps. I’ve got a bright red breast with dry blisters and get stabbing pains which isn’t helping my equilibrium. How about you?

 

Best of luck for the rest of your treatment

 

F

Member

Re: May 2018 Radiotherapy

Ladies, I’m hyper emotional!!!

 

I feel nauseous, very tired, emotional, don’t want to eat then eat too much, feel like I have a temperature but I don’t, and did I mention emotional???!!!🤔🤔🤔

 

I have a pink (and blue 😅) boob and my face has gone super dry so I’m piling on moistureiser! I want the world to leave me alone and feel that everything is hard work and too much. My back and muscles hurt, and now a pre existing medical condition is getting  a lot worse (stress???)😢

Is any of this to do with radiotherapy or just emotionalism in general from BC, or am I a hypochondriac?!!! 😜

 

Do any any of you feel like this? I feel that day 6 is far too early for any symptoms and the only side effects I’ve heard of is tiredness. Can any of these things be anything  to do with our treatment? 

 

Thanks! X

 

 

Member

Re: May 2018 Radiotherapy

Hi Sunflower

 

You definitely add an extra day on for radiotherapy if there is machine maintenance as it happened to me. 

I was also wondering what people thought about The Moving Foward Course on another thread you have written on. I have attended one session but unfortunately i don't think I can attend this week as think i have a tooth abscess and have a Dental Appointment tomorrow morning-never rains but it pours! 

Hope all goes well with your Radiotherapy when it starts.

 

Juliewulie xx

Member

Re: May 2018 Radiotherapy

What a beautiful morning!  Great start to the week.  Hope everyone had wonderful weekends.

 

@ Fenouillard - I think you've trumped me with your radiotherapy story!  Very funny and just plain strange!  I cant imagine what was going through your mind at the time!

 

@ Sunflower - Welcome and as the others have said, of course you can join!  No minimum entry requirements here!  Really hope that you are feeling better having had a few days to reflect on your prep meeting.  And its great that you dont have to breath hold, given that it was one of things you were most concerned about.

 

Having had session 8 today, I have 12 more to do.  Starting to look a bit darker around the side and there's one bit which just irritates me if i have a bra on for too long.  Its not pink or anything, it just irritates and I think i feel it more because I'm left handed so my arm is constantly moving!  Decided to try and go bra-less whenever i can get away with it.  I'm quite small chested, so can probably get away with it for a bit.....

 

Breath hold thing was the easiest yet today......

 

Enjoy the sunshine all nad hope you all have great weeks.

Member

Re: May 2018 Radiotherapy

Apparently it's a total dose divided into a number of individual doses so you can't miss one because that would reduce the whole dose. But, the doses don't usually have to be every day. My treatment went over Christmas and New Year so even though I had days off for weekends and Bank Holidays, I still got my 15 sessions (it just took 4 weeks instead of 3).

Member

Re: May 2018 Radiotherapy

Morning ladies,

Happy Monday 😀

Welcome Sunflower!

On The home run this week , number 12 of 15 today, none tomorrow as machine maintenance. Have felt tired this weekend, had naps Saturday and yesterday. Skin looking darker, but feels ok.

Have a good week everyone!

xxx