Member
Posts: 75
Registered: ‎08-04-2018

Re: June 2018 Radiotherapy

I actually got to the stage where a song would come on and I would hope I was able to,listen to it all the way through especially if it was a favourite LOL most days it just finished except when they had an issue with the programme / machine 😊

Dcb
Member
Posts: 40
Registered: ‎18-04-2018

Re: June 2018 Radiotherapy

sounds like everyone is doing really well and it’s good to see those numbers clock up and get closer to the finish line!  Number 3 for me done today, worried the machine wasn’t switched on the 1st few days as didn’t see any difference, but slightly pink when came out today - went as soon as aveeno applied.

 

Gill, I will listen out for the songs tomorrow and see if I’m done in one  - I haven’t even noticed them so far as I think I’ve been concentrating so hard on keeping still! 

Member
Posts: 230
Registered: ‎07-03-2018

Re: June 2018 Radiotherapy

Make sure you are drinking enough LizzieLou, it does make a difference.

I am on session 8 today,

Good luck to everyone

Member
Posts: 21
Registered: ‎08-03-2018

Re: June 2018 Radiotherapy

Feeling rough this morning, no energy and I ache everywhere. Driving myself today as well, roll on lunchtime when I can take a nap! 

Member
Posts: 231
Registered: ‎30-03-2018

Re: June 2018 Radiotherapy

Hi daisiemoo. Thanks for your experience and advise. I have some forever living aloe on standby in case I get sore I am using on my nipple at the min as it feels a bit tender. It’s like a waiting game with each day getting up and seeing how you feel. Semi prepared for the se’s. Number 7 for me today. Have a good session everybody and get used to how you get on that bed I was in and out yesterday within 1 song!! That was focusing on getting on the couch and almost lined up straight away. Will do the same today and hope it works again!!
Member
Posts: 75
Registered: ‎08-04-2018

Re: June 2018 Radiotherapy

Good luck everyone going through and just starting your rad treatment.

 

I had 15 sessions and had no problems until the 7th day as I had a nausea afternoon due to taking my Tamoxifen in the morning rather than at night and this did knock me sideways just a little, just completely ran out of steam and had to go home from work.

 

I then only worked a couple of hours in the morning and then went home after my treatment, felt tired but made myself go out for an hour with the dog and after 15 mins walking felt better.

 

Still drank tea but also lots of squash to keep hydrated, the one day I didn’t drink enough I did feel tired.

 

My last week my legs did feel heavy in the afternoon and so left work mid afternoon and again Thursday and Friday I went straight home after treatment.

 

I used Aloe Vera on my skin and in the afternoon Forever Living Aloe First ( which we always use as after sun) and this was great, before going to bed I used Forever Living Aloe & Bee Propolis cream. Have my rad tan but. no problem with my skin at all.

 

I had a masectomy and my scar on my arm side is lumpy bumpy and tender but apparently this is normal and this should go down in the next few weeks. I have a seroma under the side of my scar and my drain site which is bruised which I hope will go down also.

 

Any questions please ask, but hope everyone goes though smoothly with as few problems as possible.

 

 

 

Member
Posts: 12
Registered: ‎25-05-2018

Re: June 2018 Radiotherapy

Lilacmoon I also had my first session today!  Was a bit overwhelmed to start with and blubbed again, but once I was on the bed it was okay.....they said I can bring in my own CD to listen to if I want 🎼

 

Now I don't know if this is psychosomatic but I am really thirsty! Been drinking lots but mouth feels parched - anyone else had this so soon?  I know they say keep well-hydrated but I wasn't expecting a thirst......

 

 

Member
Posts: 21
Registered: ‎08-03-2018

Re: June 2018 Radiotherapy

Hi Sunflower, I have slept for between 1-2 hours after every treatment. A bit frustrating but I feel ok otherwise so have just accepted it as part of the process. I have had 10/15
Member
Posts: 86
Registered: ‎09-05-2018

Re: June 2018 Radiotherapy

First one done.
All over before i really realised what was going on.
Time will yell 😊
Member
Posts: 30
Registered: ‎01-06-2018

Re: June 2018 Radiotherapy

Thank you Gill

so reassuring

to read

your success 

Member
Posts: 230
Registered: ‎07-03-2018

Re: June 2018 Radiotherapy

Hi Ladybowler,

Yes, I am drinking over 2 liters I would say, I have had a short walk and feel a little better now, I think I may cut out the caffine tomorrow and see if that makes a difference.

At least my arm is fine this week although my breast is a bit sore - oh well roll on 25th June.

Sunflower

Community Champion
Posts: 8,748
Registered: ‎16-11-2016

Re: June 2018 Radiotherapy

Sunflower

 

You bet it will, already made a note of it xxx

 

are you taking in enough fluids as that will help with fatigue, good that you are listening to your body as that will help you

Member
Posts: 230
Registered: ‎07-03-2018

Re: June 2018 Radiotherapy

Hi Everyone,

 

Ladybowler, thats a great bell, I hope it will get rung for me on the 25th,

 

I had my 7th today, came home and think I am starting to get the side effects - Ugh, felt a bit tired yesterday, but had to nap for two hours today, I am picking up a bit now but was just wondering if the side effects subside during  the second weekend a bit then start to build up  on the third week again or does it just get worse and worse each day  from now on?  I have got a few things planned on Sunday and am thinking may be I should cancel them if I am going to feel like I do today?

 

Sunflower.

Highlighted
Community Champion
Posts: 8,748
Registered: ‎16-11-2016

Re: June 2018 Radiotherapy

Jencat

 

Glad you liked them.

 

I think you are right a combination of everything and it just spills over, which is good as it is better to get it out. 

 

How was your first day after rads Smiley Happy Smiley Happy xx

Member
Posts: 231
Registered: ‎30-03-2018

Re: June 2018 Radiotherapy

Hi DCB and Loz.   number 6 for me today and all fine.  keep doing arm excercises.  I stand slightly in front of a door and raise arms up and back to touch the door.   I do keep getting shoulder spasm and take ibrupofen 1 hour before I go, usually half an hour been have had a bit of a wait this last 2 days to machines being down.  I know everbody reacts differently but I had a review yesterday and radiography said I will start to see colour change this time next week.   She also mentioned my skin was looking really good and asked what I was using.   I am using Aveeno 4 times a day.   Morning, Lunch time, straight after treatment when getting changed and night time so fingers crossed it will stay this way.  Drinking 2 litres a day excluding coffees and always take full bottle with me and knock that bad why waiting and after.    Also asked at the end when all the formal stuff had been done if I could do my nails.   Yes I can and her words were you can do anything as long as its not in the breast area and won't affect the treatment.   Again all clinics are different.   I hope my 5 days experience helps you both moving forward with your own.  One other thing is walking, I go for a walk through the village every two hours and if I can't do it or in other words can't be bothered I go up and down the stairs till I get a bit of a sweat on. 

 

Fit bit is going on meltdown.

 

Ladies I am sure all will go great for you and all sessions complete and ringing that bell.   Four times it rang in my clinic yesterday and I can't wait to ring it and going to video it also then put on facebook as advise to all my friends that it can be beaten, I have done it, finished active treatment  and to inform them all to check their boobs. 

 

Jencat - Ringing that bell for you.    and bet it feels so strange not having to go today?   

 

Have a great day all and good rads today.    Mine is not till 16:45 today.   

 

 

Member
Posts: 1,628
Registered: ‎21-06-2017

Re: June 2018 Radiotherapy

Helena, I'm glad I'm not the only one who cried after finishing rads! I couldn't believe how emotional I felt, even getting changed afterwards made me feel teary! (Probably not helped either that I was tired as my treatment was at 8am!)

I loved the bells btw, thank you Smiley Happy xx

Member
Posts: 1,628
Registered: ‎21-06-2017

Re: June 2018 Radiotherapy

I feel tired today Dcb, but I'm not sure if part of it isn't down to the emotion of yesterday! I did feel overwhelmingly tired a few times during treatment and had to have naps, but think it was partly down to the journey each day as well. The radiologist said to make sure I drank a lot as that helps with the fatigue. x

I feel as if the physical side is finished, but now I need to spend a bit of time looking after myself mentally x

Member
Posts: 1,628
Registered: ‎21-06-2017

Re: June 2018 Radiotherapy

Glad your first rads went ok Dcb Smiley Happy I remember thinking on my second day that I didn't think I could do it and 25 sessions seemed forever! (Didn't know at the time that the 25 sessions were only the ordinary rads and the boosters hadn't been added on yet, good job I didn't!) But once I got into the routine and got to know the staff, the time has gone really quickly! x

Member
Posts: 1,628
Registered: ‎21-06-2017

Re: June 2018 Radiotherapy

Congratulations for finishing rads too Daisiemoo! Smiley Happy How are you feeling today? x

Member
Posts: 1,628
Registered: ‎21-06-2017

Re: June 2018 Radiotherapy

Thank you all very much for your lovely replies and for the bell ringing! There wasn't a bell at the hospital, so thank you for those Smiley Happy

I didn't celebrate Helena as when I got back YD was in agony with a kidney infection, so spent the afternoon at the doctor's with her! Smiley Sad Also, ED won't be back until the weekend, so I'm sure we'll do something then. We did end up at ex-husband's house after the doctor's though and had dinner together with his step-daughter and her two small daughter's, which was nice. (Bit strange I know, but ex-hus and I get on quite well)

I'll celebrate properly once I know the cancer's gone-there was a microscopic amount in the internal mammory node, so I'm sure I'll need to have another scan in a few weeks time once everything has settled down after rads. I've worried a bit that maybe I won't have been given enough rads for it to be zapped, although the radiographers have assured me that the amount of treatments I needed are carefully worked out and the treatment nurse said she'd be very surprised if there would be any cancer left. Despite all this, there is a bit of me thinking perhaps I should have had more boosters to be on the safe side!

Found it quite difficult to sleep last night, I think it was the emotion of the day, so feel tired this morning! I used to go to rads at different times, so it's not really hit me yet that I'm not going today!

It's a year ago today that I was diagnosed with bc, what a year! xx