Community Champion
Posts: 7,225
Registered: ‎16-11-2016

Re: January 2018 Radiotherapy

Mishy

 

I was told if I had any problems post my rads finishing during that two weeks to give them a call. 

 

The other thing you could do is make an appointment to see your GP/nurse as they will no doubt but able to prescribe it, take the container with you so that they can see what it is just in case, but I would ring your rads team first of all

 

Helena xxx

Member
Posts: 1,079
Registered: ‎29-04-2017

Re: January 2018 Radiotherapy

Anyone know if the hospital would see me rr my skin im finished now had last clinic review lsst Tuesday but skin under breast is peeling think i need more flamazine but don't know what to do as the stuff i have got has been n open 10 days now and it says on box to discard after 7 days still wite sore too its 12 days since ful breast and armpit rads and 5 since boosters i know it will get worse yet at site of booster so im concerned anyone experienced this?
Member
Posts: 72
Registered: ‎25-10-2017

Re: January 2018 Radiotherapy

Crocrazy nothing beats memories with our mums wish everyday mine was still here. It really has helped so good luck and enjoy John Lewis xx
Member
Posts: 56
Registered: ‎07-11-2017

Re: January 2018 Radiotherapy

Thanks Ruth, if nothing else it's an opportunity to have a trip to John Lewis habadashery department :-).  I can't help myself in there, l love it!  There is something about the tubes of buttons, lengths of ribbons and balls of wool which take me back to being a child and going with my mum when she was shopping for her sewing supplies for her projects.  Funny what can trigger memories off.   Thanks for the tip, it sounds like it would be very soft on the skin.  X 

Member
Posts: 72
Registered: ‎25-10-2017

Re: January 2018 Radiotherapy

Crocrazy they advised me to use some silk as I was in pain with cotton bra. Bought half a meter from John Lewis £8 I fold it up lay on my breast and then tuck it under the fold breast and it really helps xx
Member
Posts: 56
Registered: ‎07-11-2017

Re: January 2018 Radiotherapy

Hi Mrs Meow,

I am doing a long round trip too. About an hour each way. Love your description of your travel being your new hobby!! Good luck for Thursday x
Member
Posts: 56
Registered: ‎07-11-2017

Re: January 2018 Radiotherapy

Hi Peanut,

 

They told me from the outset I would be breath holding.  My ct planning scan was done with the hold in place.  From Eliza's experience it looks like they can make the decision at the ct planning scan stage too.  Sorry you have had such a time getting to this point.  Good luck for starting.

 

I am red under my boob today and hot.  They had a look at it yesterday and said it was to be expected, keep going with the moisturising. I am slathering on the aloe and keeping my fingers crossed.  10 more to go! 

 

Hope everyone is doing ok, glad its Saturday and a couple of days off from zapping x 

Member
Posts: 1,208
Registered: ‎01-05-2012

Re: January 2018 Radiotherapy

Hello Peanut, breath holding isn’t always needed. When I was planned we did the CT without breath holding and then I went back to the waiting room while the images were sent to physics where they overlaid the beams and decided whether we'd need to use breath holding. My heart wasn’t in the field so someone came to tell me that and I went home. If it had been, we'd have done the second CT with breath holding.

 

I'm now getting quite red. Only 2 more to go, but I'm having Monday and Tuesday off so that I can go to a conference.

 

Eliza xx

Member
Posts: 45
Registered: ‎15-12-2017

Re: January 2018 Radiotherapy

Thanks, Helena. I’ll remember that about the dressings. My review lady yesterday said she’d found that people who had had double mastectomies were less likely to have skin breaking down and blistering, so fingers crossed that works for me. One advantage! X
Member
Posts: 9
Registered: ‎28-12-2017

Re: January 2018 Radiotherapy

Hello MrsMeow - how strange we are both starting on Thursday!  I have 15 sessions and am quite glad that we have the 2 days and then a break over the weekend.  I agree - it is great to be able to chat with other women going through this and share tips/advice.  Keep me posted and we can compare notes x

Highlighted
Member
Posts: 9
Registered: ‎28-12-2017

Re: January 2018 Radiotherapy

Thanks Crocrazy - I too got the Aloe Vera from H & B and agree it is nice to apply.....will have a look at the deoderant although I got the impression they would prefer me not to wear any!  I hate feeling sweaty and smelly and  I know from experience this will happen if I feel nervous so will investigate further.  I had a WLE and 2 x re-excisions to get clear margins and its fair to say I was a puddle by the time I got down to theatre on more than one occassion!!  Thanks for your advice and good luck with your ongoing treatment x

Member
Posts: 9
Registered: ‎28-12-2017

Re: January 2018 Radiotherapy

Thanks Nuthatch - I will get some E45 and yes I have been using the Aloe Vera in advance to check there was no reaction to it.  And thanks for your good wishes.  Hope that you continue to be problem free as you progress with your treatment x

Community Champion
Posts: 7,225
Registered: ‎16-11-2016

Re: January 2018 Radiotherapy

Ladies

 

Ask you rads team for polymem dressings, they are very good for prtecting your breast area from friction and also help where the skin is peeling.  I believe.  They gave them to me at the hospital when my skin looked as if it was starting to break down

 

xxx

Member
Posts: 7
Registered: ‎15-12-2017

Re: January 2018 Radiotherapy

Hi Nuthatch,

 

I’ve done 11 now, having 15 plus 8 boosters, so it will be another couple of weeks yet.  Really having to psych myself up to go out to the hospital.  Been to speak to the Macmillan volunteers today and going to try one of the free therapies (reiki, reflexology, etc) as a ‘treat’.  My underarm scar area sore today too.

Hey, ho!  We’ll get there..... xx 

 

Member
Posts: 1,079
Registered: ‎29-04-2017

Re: January 2018 Radiotherapy

Wish someone had told me that my armpit hadd been really hurting with the axilla rads as well as the breast finished in Tuesday fir the boosters but under arm last Tuesday so my skin is as they say at its peak reaction phase was all black and really red but has started peeling so have to be careful when applying cream its also peeling under my breast fold which im also being careful about
Member
Posts: 45
Registered: ‎15-12-2017

Re: January 2018 Radiotherapy

Zap 12 today, plus a review. I’m red under my arms from the treatment and that’s a bit uncomfortable. Was advised to put a cotton hankie under my armpit to stop any friction of skin against skin, so I’m passing this on in case it helps anyone else. Hope everyone else is fine and can enjoy a zap-free weekend. X
Member
Posts: 20
Registered: ‎27-08-2017

Re: January 2018 Radiotherapy

Hello.

 

I havent been on the forum for a fair while, I had some issues after my surgery that i had back in October which are only now starting to clear up. I had Celulitus to start with and that wouldnt clear up, so they kept me in and I was given a antibiotic that they keep for when normal antibiotics dont work, this then gave me Hives from my head to my toes several days later so had to go back in again, finally allowed home and although infection markers showed the infection had gone it has stayed very inflammed and was filling with fluid every now and then which needed draining. It is slowly looking a little better, fluid has gone and the Oncologist happy to proceed to radiation now. So this coming Monday I start my course of 15 treatments. It is on my left side but nothing has been said about breath holding, should I be asking about that or does it not always need doing? Also Ladies can I ask what can I use to help with the hot flushes, I am so getting some crackers from these pills!

 

Hope your all doing fine xx

Community Champion
Posts: 7,225
Registered: ‎16-11-2016

Re: January 2018 Radiotherapy

MrsMeow

 

I love that description of it being a lovely comfy blanket Smiley Happy xx

Community Champion
Posts: 7,225
Registered: ‎16-11-2016

Re: January 2018 Radiotherapy

Mishy

 

I am much much better thank you xxx

 

 

Member
Posts: 134
Registered: ‎23-08-2017

Re: January 2018 Radiotherapy

Hi Shefgirl - I start on Thurs next week - are we twins? Have 15 then 4 boosters so finish on valentines day!
I have extremely dry skin so through chemo have continued with E45 oil baths and hope this will still be OK throughout rads- and will add the cream from the cancer centre and will probably get aloe Vera cream too from h+b
My journey time to treatment is a round trip of over 3 hours each day - so will be my new hobby taking most of each day!
Hope you all are doing well with treatment - am so pleased there is this thread to share how you are getting on - like a lovely comfy blanket! Xx