05-09-2018 02:08 PM
Hello lovely ladies
It does sound like we are all in the same ship...but it’s not sinking!!!
Having said that I too am looking at a pile of ironing that just keeps growing 😩 and plenty of cobwebs in this house too. I am doing my best to ignore it all and try and enjoy the lovely sunny days left of the summer!!
Husband still sharing our bed though!!! And yes I laid awake last night, being a fidget and huffing and puffing for a fair while. I think it’s the same as Lilac, the worry gremlins arrive in the early hours and start off the ‘what ifs’!
I think I’m doing ok on the Letrozole although I feel absolute wiped out by about 9pm so not sure whether to blame that or just this whole emotional bc journey🤔 . Will see how it goes.
Lucaboo, thanks for asking about me, I’m ok and I think I’ve been strong mentally throughout. However I do feel quite fragile inside and although I feel people think I’m all ok and back to normal, I’m still not quite me. I’m finding my new normal. And Paulus, I think we all have a right to be a bit touchy after all of this.
i live in France, in Burgundy and was diagnosed about two weeks before my 60th birthday in February. Not a year I’ll ever forget.
Sending love and hugs to all you dear ladies from France.
Take care lovelies.
05-09-2018 01:39 PM
05-09-2018 01:02 PM
05-09-2018 07:52 AM
All in the same boat - but all ready to throw each other that lifeline every time we feeling like we might be sinking a bit.
Me also, having a bit of turmoil now, just been SO TOUCHY, like with PMT, and I am way past that, at 63.
I am now pinning the blame on the Letrozole, after 2 months on it, as my weight is starting to creep up a bit, and it took me 2 years to get to the comfortable weight I am now - been having more 'clicks' in my shoulder and neck than usual - so I have stopped taking the little bu**ers for the last few days, and tomorrow I have follow-up with the radiology team, just the standard 'how you doing' about 6 weeks after end of R/T. I will speak to her about it.
My husband was diagnosed with prostate cancer when he was 49, had the prostactetomy, but 'it escaped', so over these last 15 years, his treatments have been a fairly dominant factor in this household ( it's defo in his family, father's side ) and he has been on the 3-monthly hormone jabs, and has put on a MASSIVE amount of weight in all this time. Unlike me, he isn't quite a pro-active in his should I/shouldn't I treatments and self-care.
Anyway, I digress . . . it is just that old catch-22 of do I/don't I continue - and having refused chemo, before and after surgery ( I am Grade 3, had WLE and axillary clearance, ER8, was in 1 lymph node out of 11 removed ), I am aware of the risks I am taking. . . sigh.
05-09-2018 07:34 AM
04-09-2018 09:14 PM
04-09-2018 09:05 PM
Hi Thistledown..omg youve made me laugh on a day i thought wasnt possible, about the drinking programme and you needing a drink. I swear to god i could drink myself to oblivion every night if i let myself after this diagnosis!
I think all of us are more sensitive to cancer ads or stories now i usually dont read them, but i happen to just stumble across that one today, ive struggled all day afterwards. I emptied the tissue box and just sat with a toilet roll forever rolling for the tears, and now i look a 100 with puffy eyes so ive put towel over mirror lol...should of put it over my head ha...lets hope tomorrow bettter day.
Hope your lymphodema eases its like a dominoe effect this treatment, or as Mcnulcc Chris says ...the girt that keeps on giving!! So true.
Anyway lovely ladies goodnite hope tomorrow fills you with happiness....your the beautiful ones..everytime xxxxxx
04-09-2018 07:39 PM
Good evening lovely ladies
Good to catch up with all your posts. I hope everyone has been feeling ok today.
Lucaboo I don’t know if it’s any help but I used and am still using Avene Xeracalm balm which I was prescribed through rads. It is for very dry and iritated skin and worked perfectly for me. I live in France and the Avene laboratories work with cancer doctors and patients to find the best solutions for sensitive skin. I’ve seen it in Boots in the UK so I know it’s available. Have to say it was brilliant and my oncologist was absolutely spot on with it.
Mcnulcc Chris I hope your cruise went well the other day and you had a good day. Not quite as you imagined though.😉
I’ve been reading about Rachel Brand and feeling very emotional and sad - such an inspiring lady. I think maybe we are all so ‘raw’ from our own experiences and it hits us harder. Gill I too wake up and it’s my first thought each day - even feel a sob sometimes deep down inside some days. Hopefully it will get better as time goes on.
Thistle - fortunately I don’t have British tv here so miss the adverts and programmes like this but I can imagine how it all hits home. Good luck with your meditation.
Have a good evening everyone and take care lovelies.
Love Rosie xxx
04-09-2018 07:24 PM
04-09-2018 06:54 PM
Have not been here for a few days, nice to see your posts and know you are still all there and doing ok ! Lucaboo, your inspirational posts and advice have been lovely, agree with everyone too about the skin, I’m almost level with you, Lucaboo, one day ahead, skin above breast went all lumpy and itchy, not horrendous, but like when you’ve had too much sun ? Like those little water filled blisters, but these are not water filled and just itchy....have to laugh as I have a definite rads shadow mark, it’s like a big bat ear, makes me want to draw and fill in one on the other side ! It goes to each point of the five tattoo marks, but is most noticeable on the front where it arches up almost to collar bone.
The sorest bit of skin for me is the crease underneath as there is the big scar from the TM, it was getting pretty red, and angry, so I left off with the cream and just used a folded Polymem dressing, that helped, then I used that Medihoney barrier cream, and that was really good. Lovely stuff ! Pricey but definitely worth it, skin after 3 days is looking so much better.
Also fully agree about cancer programs and advertising everywhere, my friend urged me to see the Big C and Little Me presenter on breakfast telly, but I just caught a tiny bit on catch-up and turned it off I’m afraid...then I thought I’d watch “Drinkers Like Me”, a documentary with Adrian Chiles about the perils of boozing, - thought that would be safe...was it heck !! One of the people on there, who was classed as a compulsive binge drinker, when asked why, filled up and confessed to a previous battle with BC that left her with the fatalistic attitude that she now has - ie - enjoy life while you can, which for her means getting regularly pie eyed on nights out, and not remembering anything about the evening... 🙁. It set me off anyway, wanted a drink to get over it!
Trying to avoid this subject is proving difficult, for sure..I’m waiting for a counselling/CBT assessment, will see if this helps with the low moods ..and sleeplessness too ! We must all suffer similar low thoughts....I’m reading about mindfulness, and trying to meditate, the deep breathing bit I have to do anyway for Lymphoedema,..but the meditating bit is proving difficult, going to have to shut my cats out during sessions, as there is always one trying to pat my face, probably saying “Are you OK in there ....😼”
Also still experiencing sore shoulder and arm ? Was at the Lymphoedema clinic today, and the nurse there (she is one of the radiographers) said she didn’t think that was down to the rads... but surely..? - yes, the Lympho makes the arm weaker, but it is thankfully still mild in my case. Will definitely remember not to run anywhere !! 😬
Anyway, fellow post-bell ringers, 😉- lovely to see you (in spirit anyway) from up here in currently sunny Cleveland (we border the North Riding of Yorkshire)..
(Gill, hubby and I love Derbyshire, we have friends in Chesterfield, they’ve shown us such beautiful areas, like Eyam and the Peaks, - and the well-dressing, well lovely! ) Our country is so beautiful isn’t it...trees are colouring with the leaves, now, I notice..let’s hope we get some sunny days to enjoy the season..
04-09-2018 03:52 PM
04-09-2018 02:37 PM
04-09-2018 02:01 PM
04-09-2018 10:08 AM
Hi Gill3015...thanks for the reply. Ive left the cream off that bit last night and it does seem to be less red. Ill see how it goes, i am just so fed up of appointments hosp etc etc as all you lovely ladies know, only too well. I know what you mean about running omg, had to run across the road before so road raged hog mowed me down near finnished me off.
Anyway my lovelies im having a bit of a wobble today, ive just been reading about the you me and big c presenter in daily paper, jesus wish i hadnt its set me off all upside down again.so im off out for a walk later trying to sooth my ruffled nerves.
Hope all you ladies have a lovely day ...big hugs as always...xxx
04-09-2018 07:23 AM
03-09-2018 11:09 PM
Hi u lovely ladies i hope your all doingwell after finnishing your rads. Can anyone advise me. Ive finnished my rads over weeks ago and obvs expected skin change. Skins mot too bad up to now but ive got this red rash like tiny spots going aroung areola and about ich around outside. Now its not sore but i wonder should i let cream off aquamax and let it get some air, or should i put mem dressing on, or dab of hydrocortisone. Really really dont wantvto see another hospital again for whole so any advives bee most appr.
Thanku my beatiful ones and goodnite xxxx
01-09-2018 09:43 PM
Hi lovely ladies, ive found this today and i thought i would post it here, on the first few weeks cos u may well be looking at your diets now treatment is over. This is what i found for keeping your estrogen levels down, that when the levels are too high make cancer cells grow......
Foods to AVOID
1. Coventional meat
2. Dairy producuced by cows which are fed by hormones.
3. Soy isoflavines, sugars, refinned sugar cakes etc
4. Processed foods and canned drinks
5. Grains and beer fermented barley.
Foods to EAT IN ABUNDANCE
1. Citrus fruit...lemons oranges tangerines
2. Cruciferous veg...bok choy,sprouts,cabbage kale,cauliflower mushrooms.(throw handfull of each stirfry easy ).
3. Fish...be careful here only eat fresh fish, farmed salmon and some fish are hormone fed and pumped with antibiotics.
4.Flax seeds...anti carcinogenic...and claim to inhibit breast cancer cell growth. Helps body eliminate estrogen.
5. Green tea...helps liver metabolize hormones and fats.
6. Leafy greens, spinach dark ,green cabbage.
7. Seaweed..helps kick xenòestrogen out your body
8. Brazil nuts...if your estrogen dominant then ur probably lacking Selenium which is likely to elevate aromatase significantly.
9. Sesame seeds...helps get rid of toxic estrogen
10.Turmeric and cayenne pepper helps liver get rid of cancer causing hormones.
So ladies, this is what im going to try to keep my diet to. I just thought id share incase it helps someone else level out there hormones, i realise it wont apply to all but for those with estrogen dominance it might just give you a few pointers, or perhaps didnt know what to eat.
Hope your all doing well my beautiful ones xxxx
01-09-2018 07:50 AM
31-08-2018 08:35 PM